PHA Events

Every year, there are more than 100 support group and fund raising events to support the PH community. Some events are hosted by PHA, and others are hosted by members in the community. However, every event brings together patients, caregivers and medical professionals to support one another in our fight against PH. Please join us in supporting the PH community by participating in an upcoming event near you! Interested in hosting an event? Contact us.

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28 Mar
March 28, 2023    
11:00 am EDT - 12:00 pm EDT

Topic: Chat

Leader: Bonnie Patricelli

Email: ten.tsacmoc@anobanob

Phone Number: 8569046867

28 Mar
March 28, 2023    
1:30 pm EDT - 2:30 pm EDT

Topic: The Journey to Transplant

Speaker: Christina Mclaughlin, Patient & Vandana Seeram, MD

Leader: Alicia Peters

Email: ude.lfu.xaj@sretep.aicila

Phone Number: 904 244 1758

28 Mar
March 28, 2023    
8:00 pm EDT - 9:00 pm EDT
$0.00

This meeting is held monthly for young adults with pulmonary hypertension who want to connect with other young adult patients via phone or video conferencing. The call is moderated by two young adult facilitators.

Meeting information will be sent to your email address when you submit your registration.

Leaders: Janessa Curnow and Shannon O’Donnell

Email: moc.liamg@epoHnoitareneGAHP

 

01 Apr
April 1, 2023    
11:30 am EDT - 1:30 pm EDT

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Experiencing Stress with your Condition

Speaker: Robert Schilz, DO, Director of Pulmonary Vascular Disease and Lung Transplantation

Sponsor: Bayer Healthcare

Leader: Rebecca Hamilton

Email: moc.liamg@67notlimahacceB

Phone Number: 330-204-9289

01 Apr
April 1, 2023    
12:00 pm EDT - 2:00 pm EDT
$0.00

Topic: Relationships & PH

Speaker: Colleen Schnell, Support Group Leader

Leader: Colleen Schnell

Email: moc.liamtoh@4271ydalnolem

Phone Number: 716-297-1067

01 Apr
April 1, 2023    
12:30 pm CDT - 3:30 pm CDT

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Healthy Nutrition

Speaker: Lauren Hulett, RN

Sponsor: Bayer Healthcare

Leader: Karen Fragale

Email: moc.oohay@2dogeveileb

Phone Number: 515-259-1030

01 Apr
April 1, 2023    
2:00 pm EDT - 4:00 pm EDT

Topic: Meet & Greet

Leader: Denise Clark

Email: moc.liamg@kralcresined

Phone Number: 502-338-9513

05 Apr
April 5, 2023    
11:00 am CDT - 12:30 pm CDT
$0.00

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Healthy Nutrition

Speaker: M. Patricia George, MD

Sponsor: Bayer Healthcare

Leader: Sonia Tindel

Email: ude.shusl@lednit.ainos

Phone Number: 318-675-5926

08 Apr
April 8, 2023    
10:00 am CDT - 12:00 pm CDT
$0.00

Topic: Latest trends and findings in PH treatment

Speaker: Thenappen Thenappen, MD, Cardiologist, Director of Pulmonary Hypertension at the University of MN

Leader: Alice Yount

Email: moc.eocsirbsmleh@tnuoya

Phone Number: 9522215475

08 Apr
April 8, 2023    
1:00 pm EDT - 2:00 pm EDT
$0.00

Topic: Open Discussion

Leader: Pat Hellyer

Email: moc.liamg@97reyllehtap

 

12 Apr
April 12, 2023    
6:00 pm EDT - 7:00 pm EDT

Topic: Empowered Patient

Speaker: Chad Link, MD

Sponsor: Janssen Pharmaceuticals

Leader: Connie Gill

Email: moc.kooltuo@52lligc

Phone Number: 513-368-8639

12 Apr
April 12, 2023    
8:00 pm EDT - 9:00 pm EDT
$0.00

Call in to connect, learn, and share strategies and experiences caring for your child with PH.

Meeting information will be sent to your email address when you submit your registration.

Leader: Jane Northrop

Email:moc.liamg@1691senobj 

13 Apr
April 13, 2023    
8:00 pm EDT - 9:00 pm EDT
$0.00

Call in to meet others who have lost a loved one to PH. Connect, learn and share strategies and experiences dealing with grief and bereavement. Register for an upcoming call and receive call instructions once registered.

13 Apr
April 13, 2023    
5:00 pm PDT - 7:00 pm PDT

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Coping with your Condition

Speaker: Sandra Lombardi, RN

Sponsor: Bayer Healtcare

Leader: Michele Freeman

Email: moc.liamg@0002nameerfm

Phone Number: 541-408-4943

14 Apr
April 14, 2023    
10:30 am MDT - 11:30 am MDT

Topic: Q&A with Dr. Melendres-Groove

Speaker: Lana Melendres-Groove, MD

Leader:  Evan Holm

Email: ude.mnu.dulas@mlohve

Phone Number: 505-934-6555

15 Apr
April 15, 2023    
8:00 am PDT - 1:00 pm PDT
15 Apr
April 15, 2023    
11:00 am EDT - 1:00 pm EDT
$0.00

Topic: PH Medications Tips & Tricks

Speaker: Claire Walter,  Pharm D, BCPS

Leader: Beverly Lipmyer

Email: ten.tsacmoc@pilylreveb

Phone Number: 734-355-0295

15 Apr
April 15, 2023    
12:00 pm EDT - 2:30 pm EDT

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics

Speaker: Alvaro Aranda, Neumolego

Sponsor: Bayer Healthcare

Leader: Patricia Faria

Email: moc.liamg@6541airafp

Phone Number: 787-383-4629

15 Apr
April 15, 2023    
1:00 pm EDT - 3:00 pm EDT
$0.00

Topic: Relationships & PAH

Speaker: Katy Boggs, NP

Sponsor: Janssen Pharmaceuticals

Leader: Doug Taylor

Email: moc.loa@FSrolyaTD

Phone Number: 8034652139

18 Apr
April 18, 2023    
8:00 pm EDT - 9:00 pm EDT
$0.00

Join this monthly telephone support group to connect with other CTEPH patients and discuss struggles and triumphs and receive support and advice from others experiencing the same challenges.

Meeting information will be sent to your email address when you submit your registration.

Leader:

Email: gro.noitaicossahp@troppus

19 Apr
April 19, 2023    
7:00 pm EDT - 8:00 pm EDT
$0.00

Join this monthly support call to connect, learn, and share strategies and experiences with PH caregivers and parents across the country. There is a PH caregiver present to facilitate introductions and present a discussion topic.

Meeting information will be sent to your email address when you submit your registration.

Leader: Michele Freeman

Email: moc.liamg@puorghpnogero

25 Apr
April 25, 2023    
8:00 pm EDT - 9:00 pm EDT
$0.00

This meeting is held monthly for young adults with pulmonary hypertension who want to connect with other young adult patients via phone or video conferencing. The call is moderated by two young adult facilitators.

Meeting information will be sent to your email address when you submit your registration.

Leaders: Janessa Curnow and Shannon O’Donnell

Email: moc.liamg@epoHnoitareneGAHP

 

26 Apr
April 26, 2023    
8:00 pm EDT - 9:00 pm EDT
$0.00

Únase a esta llamada de apoyo mensual para conectarse con otros pacientes y conversar sobre sus luchas y triunfos, así como para recibir apoyo y consejos de otros pacientes con hipertensión pulmonar (HP). Un paciente con HP facilitará las presentaciones y la conversación. Únase a la conversación o simplemente escuche.

27 Apr
April 27, 2023    
8:00 pm EDT - 9:00 pm EDT
$0.00

Join this monthly support call to connect with other patients and discuss struggles and triumphs, and to receive support and advice from other PH patients. There is a PH patient present to facilitate introductions and conversation. Join the conversation or simply listen.

Meeting information will be sent to your email address when you submit your registration.

Leader: Carla Kinsey

Email:moc.kooltuo@CSP_alraC 

Events on March 28, 2023
Events on April 1, 2023
Events on April 5, 2023
05 Apr
Events on April 8, 2023
Events on April 12, 2023
12 Apr
Events on April 13, 2023
Events on April 14, 2023
Events on April 15, 2023
Events on April 18, 2023
Events on April 19, 2023
19 Apr
Events on April 25, 2023
25 Apr
Events on April 26, 2023
Events on April 27, 2023
27 Apr