PHA Events

Topic: Managing Medication Side Effects

Speaker: Gillian Leung, Pharma UK Gill Heart

Leader: Evelyn Mitchell

Email: moc.oohay@llehctimknyleve

Phone Number: 859-396-2476

Topic: Pulmonary arterial hypertension (PAH): Understanding the Basics and Living with PAH Or CTEPH: Medication Adherence and Goals

Speaker: Craig Long, Cardiologist

Sponsor: Bayer Healthcare

Leader: Barbara Thompson

Email: moc.liamg@sihpmemniarabrab

Phone Number: 901-463-8688

Topic: Pulmonary arterial hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Medication Adherence and Goals

Speaker: Dr. Majid Mughal, MD, PH specialist Pomologist

Sponsor: Bayer Healthcare

Leader: Karen Sawyer

Email:moc.liamg@elppadiuluL

Phone Number: 527-429-6457

Topic: A New Day: Catching Up

Leader: Shirley Craig

Email: ten.tta@eromonhp

Phone Number: 832-418-1405

Topic: The Power Of Saying No

Speaker: Colleen Schnell, Support Group Leader

Leader: Colleen Schnell

Email: moc.liamtoh@4271ydalnolem

Phone Number: 716-297-1067

Topic: Managing Medication Side Effects

Speaker: Katie Fitton, DO

Leader: Heather Arena

Email: moc.liamg@anaihcim.hp

Phone Number: 269-982-5864

Topic: Boosting Energy and Quality of Life with Pulmonary Rehabilitation, Exercise and Diet

Speaker: Rachel Damico, MD, PhD

Leader: Julie Shamberger, Laura Camponeschi

Email: ude.imhj@2ebmahsj, ude.imhj@ihcsenopmacl

Phone Number: 410-614-6311

Topic: Pulmonary arterial hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Medication Adherence and Goals

Speaker: Patricia George, MD

Sponsor: Bayer Healthcare

Leader: Alisa Orphy

Email: ten.htuoslleb@ayhpro

Phone Number: 337-853-7244

Únase a esta llamada de apoyo mensual para conectarse con otros pacientes y conversar sobre sus luchas y triunfos, así como para recibir apoyo y consejos de otros pacientes con hipertensión pulmonar (HP). Un paciente con HP facilitará las presentaciones y la conversación. Únase a la conversación o simplemente escuche.

Topic: Pulmonary arterial hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Coping with your Condition

Speaker: Omar Minai, MD, Cleveland Clinic

Sponsor: Bayer Healthcare

Leader: Matt Schatti

Email: ten.tta@yaj.ecyoj

Phone Number: RN 757-388-9138

Call in to meet others who have lost a loved one to PH. Connect, learn and share strategies and experiences dealing with grief and bereavement.

Meeting information will be sent to your email address when you submit your registration.

Leader: Betty Lou Wojciechowski

Email: moc.liamg@ojowuolytteb

Call in to meet others who have lost a loved one to PH. Connect, learn and share strategies and experiences dealing with grief and bereavement. Register for an upcoming call and receive call instructions once registered.

Topic: PAH Emergency Preparedness

Speaker: Richard Samaniego, RN

Sponsor: CVS Pharmacy

Leader: Michele Freeman

Email: moc.liamg@puorghpnogero

Phone Number: 541-408-4943

Topic: Book Club – Breath by James Nestor

Leader: Alicia Kubes

Email: ude.uyn@sebuk.aicila

Phone Number: 201-874-4118

Topic: Advocate for your Wellbeing

Speaker: Melisa Wilson, Doctor of Nursing Practice

Sponsor: United Therapeutics Corporation

Leader: Alice Yount

Email: moc.eocsirbsmleh@tnuoya

Phone Number: 952-221-5475

Topic: Walk for Your Wellbeing

Speaker: TBD

Sponsor: United Therapeutics Corporation

Leader: Doug Taylor

Email: moc.loa@FSrolyaTD

Phone Number: 803-465-2139

Topic: Open Discussion

Leader: Pat Hellyer

Email: moc.liamg@97reyllehtap

Phone Number: 561-628-5597

Topic: CPAP … Your Heart Will Love You for IT

Speaker: Vicki Little, RRT RCP

Leader: Connie Gill

Email: moc.kooltuo@52lligc

Phone Number: 513-368-8693

Call in to connect, learn, and share strategies and experiences caring for your child with PH.

Meeting information will be sent to your email address when you submit your registration.

Leader: Jane Northrop

Email:moc.liamg@1691senobj 

Topic: PAH and Nutrition

Speaker: Therese Sargent, NP

Leader:  Linda Urban

Email: moc.htlaehrennab@xobnihapivc

Phone Number: 970-810-3776

Topic: General Discussion & Connection

Speaker: Open Community Forum

Leader: Mary Clare McGraw, Wendy Berry

Email: moc.liamg@shpnotsob, moc.liamg@hpnotsobydnew

Phone Number: 781-820-4606, 610-203-8762

Topic: Pulmonary arterial hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Traveling with your Condition

Speaker: Valerie Laroy, NP

Sponsor: Bayer Healthcare

Leader: Beverly Lipmyer

Email: ten.tsacmoc@pilylreveb

Phone Number: 734-662-8433

Ann Arbor
PH Support Group
This is a virtual support group meeting.
Saturday, June 17, 2023 11 a.m. – 1 p.m. (EST)
Topic:
Speaker:
Virtual Meeting: RSVP to the support group leader
who can provide clear instructions on how to join by telephone, computer or tablet/smartphone
Meeting sponsored by
RSVP by June 16 to,
Thanks to Janssen Pharmaceuticals

Topic: New Normal

Speaker: Christina Benninger, RN

Sponsor: Janssen Pharmaceuticals

Leader: Nicole Fitzgerald

Email: moc.liamg@81nojrobn

Phone Number: 626-543-5726

Join this monthly telephone support group to connect with other CTEPH patients and discuss struggles and triumphs and receive support and advice from others experiencing the same challenges.

Meeting information will be sent to your email address when you submit your registration.

Leader:

Email: gro.noitaicossahp@troppus

Join this monthly support call to connect, learn, and share strategies and experiences with PH caregivers and parents across the country. There is a PH caregiver present to facilitate introductions and present a discussion topic.

Meeting information will be sent to your email address when you submit your registration.

Leader: Michele Freeman

Email: moc.liamg@puorghpnogero

Join this monthly support call to connect with other patients and discuss struggles and triumphs, and to receive support and advice from other PH patients. There is a PH patient present to facilitate introductions and conversation. Join the conversation or simply listen.

Meeting information will be sent to your email address when you submit your registration.

Leader: Carla Kinsey

Email:moc.kooltuo@CSP_alraC 

Topic: Advocate for your Wellbeing

Sponsor: United Therapeutics Corporation

Leader: Charnetta Lester

Email: gro.htlaehucv@nosnibor.attenrahc

Phone Number: 804-828-9055

Topic: New Normal

Speaker: Elsa Garza, DNP

Sponsor: Janssen Pharmaceuticals

Leader: Amy Chybowski

Email: gro.htlaehwu@ikswobyhca

Phone Number: 608-217-5667

Topic: Open Topic-Check in

Leader: Rayetta Johnson

Email: moc.oohay@ytinereSgnisahC

Phone Number: 605-559-0560

Únase a esta llamada de apoyo mensual para conectarse con otros pacientes y conversar sobre sus luchas y triunfos, así como para recibir apoyo y consejos de otros pacientes con hipertensión pulmonar (HP). Un paciente con HP facilitará las presentaciones y la conversación. Únase a la conversación o simplemente escuche.

Leader: Estella Medina

Email:moc.liamg@67demlets 

Únase a esta llamada de apoyo mensual para conectarse con otros pacientes y conversar sobre sus luchas y triunfos, así como para recibir apoyo y consejos de otros pacientes con hipertensión pulmonar (HP). Un paciente con HP facilitará las presentaciones y la conversación. Únase a la conversación o simplemente escuche.

This meeting is held monthly for young adults with pulmonary hypertension who want to connect with other young adult patients via phone or video conferencing. The call is moderated by two young adult facilitators.

Meeting information will be sent to your email address when you submit your registration.

Leaders: Janessa Curnow and Shannon O’Donnell

Email: moc.liamg@epoHnoitareneGAHP

Topic: Traveling with PH

Speaker: Megan Linebarger, BSN, RN

Sponsor: CVS Pharmacy

Leader: Brittany Watson

Email: moc.liamg@hapdnaltrop

Phone Number: 503-963-3161