PHA Events

Every year, there are more than 60 events taking place across the country to raise much-needed funds to support the PH community. Some events are hosted by PHA, and others are hosted by members in the community. However, every event brings together patients, caregivers and medical professionals to support one another in our fight against PH. Please join us in supporting the PH community by participating in an upcoming event near you!  Interested in hosting an event? Contact events@phassociation.org.

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01 Sep
September 1, 2023    
12:00 pm MDT - 2:00 pm MDT

Topic: Disability FAQs Presentation

Speaker: Nathan Cole, Public Affairs Specialist

Leader: Lala Juarez

Email: xoLalaBear@gmail.com

Phone Number: 801-663-4897

02 Sep
September 2, 2023    
1:00 pm EDT - 3:00 pm EDT

Topic: Insurance: How to Navigate the Open

Speaker: Mark Miller, Patient Care Consultant

Leader: Kelly Dickson

Email: kelly.dickson@anmedhealth.org

Phone Number: 864-617-9567

 

02 Sep
September 2, 2023    
1:00 pm EDT - 3:00 pm EDT

Topic: Coping with PH

Food provided by: PHA

RSVP to Michelle by Aug. 31

Phone: 812-489-1069

Email: mlreller@yahoo.com

07 Sep
September 7, 2023    
6:00 pm EDT - 8:00 pm EDT

Topic: Navigating Medicine Approvals

Speaker: Kimberly Jackson, RN, BSN

Leader: Evelyn Mitchell

Email: evelynkmitchell@yahoo.com

Phone Number: 859-396-2476

 

07 Sep
September 7, 2023    
6:00 pm CDT - 9:00 pm CDT

Topic: Walk for Your Wellbeing

Speaker: Lori Reed, NP

Sponsor: United Therapeutics Corporation

Leader: Barbara Thompson

Email: BarbaralnMemphis@gmail.com

Phone Number: 901-463-8688

 

08 Sep
September 8, 2023    
10:30 am MDT - 11:30 am MDT

Topic: Pulmonary arterial hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Experiencing Stress with your Condition

Speaker: Theresa Sargent, NP

Sponsor: Bayer

Leader: Evan Holm

Email: evholm@salud.unm.edu

Phone Number: 505-272-2815

 

09 Sep
September 9, 2023    
9:30 am EDT - 11:00 am EDT

Topic: Informal Group Discussion/Check-In

Leader: Ashley Horton, Wendy Berry

Email: bostonphs@gmail.com, wendybostonph@gmail.com

Phone Number: 708-307-6637

 

09 Sep
September 9, 2023    
10:00 am CDT - 2:00 pm CDT
09 Sep
September 9, 2023    
10:00 am CDT - 12:00 pm CDT

Topic: Pulmonary hypertension: Understanding the Basics (CTEPH) and Living with PAH or CTEPH: Experiencing Stress with your Condition

Speaker: Valerie A. LaRoy, CNP

Sponsor: Bayer Healthcare

Leader: Alice Yount

Email: ayount@helmsbriscoe.com

Phone Number: 952-221-5475

 

09 Sep
September 9, 2023    
12:00 pm EDT - 2:00 pm EDT

Topic: Patient, loved ones and caregivers discussion

Speaker:  Karen Sawyer, PHA support group leader

Leader: Karen Sawyer

Email: Luluidapple@gmail.com

Phone Number: 517-420-6457

 

09 Sep
September 9, 2023    
1:00 pm EDT - 2:00 pm EDT

Topic: Open Discussion

Leader: Pat Hellyer

Email: pathellyer79@gmail.com

Phone Number: 561-628-5597

09 Sep
September 9, 2023    
1:00 pm EDT - 3:00 pm EDT

Topic: About PHA & Best Practices

Speaker: Terrie Keplinger, Support Group Leader

Leader: Terrie Keplinger

Email: terrie.keplinger@gmail.com

Phone Number: 423-732-9344

 

 

11 Sep
September 11, 2023    
5:00 pm EDT - 6:30 pm EDT

Topic: Nutrition and PH

Speaker: Nadine Glowzenski, MS, RD, CDN

Leader: Rachel Potter

Email: respiratoryinstitute@mssm.edu

Phone Number: 212-241-5656

 

12 Sep
September 12, 2023    
1:00 pm EDT - 3:00 pm EDT

Topic: Inflation Reduction Act

Speaker: Katie Kroner, PHA employee

Leader: Laura Hooley

Email: laurah@myfairpoint.net

Phone Number: 603-863-9980

13 Sep
September 13, 2023    
6:00 pm EDT - 7:30 pm EDT

Topic: General Discussion, Virtual Speaker About PHA

Speaker: Matt Granato, President and CEO Pulmonary Hypertension Association

Leader: Connie Gill

Email: cgill25@outlook.com

Phone Number: 513-368-8693

 

13 Sep
September 13, 2023    
8:00 pm EDT - 9:00 pm EDT

Call in to connect, learn, and share strategies and experiences caring for your child with PH.

Meeting information will be sent to your email address when you submit your registration.

Leader: Jane Northrop

Email: jbones1961@gmail.com

14 Sep
September 14, 2023    
10:30 am CDT - 12:30 pm CDT

Topic: Navigating PAH Benefits and Resources

Sponsor: CVS Pharmacy

Leader: Linda Gates

Email: lgates62@aol.com

Phone Number: 985-651-5582

 

14 Sep
September 14, 2023    
1:30 pm EDT - 2:30 pm EDT

Topic: Navigating PAH Benefits and Resources

Speaker: Dawn Becher, BSN, RN

Sponsor: CVS Pharmacy

Leader: Tammy Stankard/ Kim Handa

Email: tstankard@swgeneral.com

Phone Number: 440-384-9683

 

14 Sep
September 14, 2023    
8:00 pm EDT - 9:00 pm EDT

Call in to meet others who have lost a loved one to PH. Connect, learn and share strategies and experiences dealing with grief and bereavement.

Meeting information will be sent to your email address when you submit your registration.

Leader: Betty Lou Wojciechowski

Email: bettylouwojo@gmail.com

14 Sep
September 14, 2023    
5:00 pm PDT - 7:00 pm PDT

Topic: Everything You Want to Know About Pulmonary Medications

Speaker: Ka Wan Chiang, PharmD

Leader: Michele Freeman

Email: oregonphgroup@gmail.com

Phone Number: 541-408-4943

 

15 Sep
September 15, 2023    
12:00 pm EDT - 1:00 pm EDT

Topic: Book Club – Year of the Tiger by Alice Wong

Leader: Alicia Kubes

Email: alicia.kubes@nyu.edu

Phone Number: 201-874-4118

 

15 Sep
September 15, 2023    
12:00 pm MDT - 1:30 pm MDT

Topic: Advocate for your Wellbeing

Speaker: Valerie LaRoy, FNP, Advocate Heart Institute

Sponsor: United Therapeutics Corporation

Leader: Carissa Tellinghuisen

Email: cvipahinbox@bannerhealth.com

Phone Number: 970-810-3776

 

16 Sep
September 16, 2023    
9:00 am CDT - 12:00 pm CDT
16 Sep
September 16, 2023    
10:00 am CDT - 2:00 pm CDT
16 Sep
September 16, 2023    
12:00 pm EDT - 2:00 pm EDT

Topic: Navigating PAH Benefits and Resources

Speaker: Jamilla Torio, RN

Sponsor: CVS Pharmacy

Leader: Barbara Stubbs

Email: BStubbsPH@gmail.com

Phone Number: 864-607 -4084

 

16 Sep
September 16, 2023    
5:00 pm CDT - 9:00 pm CDT
17 Sep
September 17, 2023    
3:00 pm CDT - 4:30 pm CDT

Topic: Open Discussion

Leader: Margie Chan, Sue Liss

Email: mchan624@aol.com, sjliss1O@gmail.com

Phone Number: 773-398-9155, 720-334-4136

19 Sep
September 19, 2023    
11:00 am EDT - 12:00 pm EDT

Topic: General Discussion

Leader: Colleen Connor

Email: connor_colleen@comcast.net

Phone Number: 610-329-4993

 

19 Sep
September 19, 2023    
6:00 pm EDT - 7:30 pm EDT

Topic: Risk Assessment/PAH Tracking

Speaker: Elsa Garza, DNP, MS, ACNP-BC

Sponsor: Janssen Pharmaceuticals

Leader: April Blakley

Email: ablakle1@iuhealth.org

Phone Number: 317-963-1860

 

19 Sep
September 19, 2023    
7:00 pm EDT - 9:00 pm EDT

Topic: Q&A

Speaker: Samuel Allen, MD

RSVP by Sept. 7 to Carla Kinsey

Phone: 586-530-0160

Email: carla_psc@outlook.com

19 Sep
September 19, 2023    
8:00 pm EDT - 9:00 pm EDT

Join this monthly telephone support group to connect with other CTEPH patients and discuss struggles and triumphs and receive support and advice from others experiencing the same challenges.

Meeting information will be sent to your email address when you submit your registration.

Leader: Missy Storm

Email: missyjstorm@cox.net

20 Sep
September 20, 2023    
1:00 pm MDT - 2:00 pm MDT

Topic: 02Breathe Walk Talk

Speaker: Kevin Heyen, Vice President, Development at the PHA

Leader: Estella Medina

Email: Estella.EPPHighters@gmail.com

Phone Number: 915-208-2671

 

20 Sep
September 20, 2023    
7:00 pm EDT - 8:00 pm EDT

Join this monthly support call to connect, learn, and share strategies and experiences with PH caregivers and parents across the country. There is a PH caregiver present to facilitate introductions and present a discussion topic.

Meeting information will be sent to your email address when you submit your registration.

Leader: Michele Freeman

Email: oregonphgroup@gmail.com

21 Sep
September 21, 2023    
1:00 pm EDT - 3:00 pm EDT

Topic: Caring for the Caregiver

Sponsor: Accredo

Leader: Joyce Kossman, Matt Schatti

Email: joyce.jay@att.net

Phone Number: 757-388-9138

 

21 Sep
September 21, 2023    
4:00 pm MDT - 6:00 pm MDT

Topic: Meet YOUR PH support group We hope to meet YOU!

Speaker: Brandi Bolton- Orr, Nurse Practitioner

Leader: Brandi Orr, Becca Pesaresi

Email: brandi.bolton-orr@imail.org, rebecca.laxton@imail.org

Phone Number: 801-507-4800

22 Sep
September 22, 2023    
1:00 pm EDT - 2:30 pm EDT

Topic: Sharing & Supporting

Speaker: Gloria Hamm, BSN, MS, support group leader

Leader: Gloria Hamm

Email: Glolhamm@aol.com

Phone Number: 610-799-2766

 

23 Sep
September 23, 2023    
11:00 am EDT - 1:00 pm EDT

Topic: PH Fall Mixer – Optional Silent Auction Fundraiser for PHA

Leader:  Chris Calvert

Email: circles69@calvert.cc

Phone Number: 804-360-9608

Consider bringing an item to auction off

23 Sep
September 23, 2023    
11:00 am EDT - 1:00 pm EDT

Topic:  PAH Emergency Preparedness

Speaker: Lindsay Corley, Clinical Nursing Services Specialist

Sponsor: CVS Pharmacy

Leader: Marcie McGregor

Email: marcie.mcgregor@yahoo.com

Phone Number: 803-640-3406

 

24 Sep
September 24, 2023    
10:00 am PDT - 2:00 pm PDT

Topic: Annual Retreat; small circles, craft time and surprise guest speaker!

Leader: Monica Penaranda, Marisela Navarro

Email: mpenaranda562@gmwl.com, longbeachphgroup@gmwl.com

Phone Number: 562-639-2053, 323-532-5164

26 Sep
September 26, 2023    
11:00 am EDT - 12:15 pm EDT
$0.00

Topic: TBA

Leader: Bonnie Patricelli

Email: bonabona@comcast.net

Phone Number: 856-904-6867

 

26 Sep
September 26, 2023    
12:00 pm PDT - 1:00 pm PDT
$0.00

Topic: Palliative care: Coping with Chronic Illness

Speaker: Shoshawna Rainwater, MSW, LCSW Palliative Care Social Worker

Leader: Brittany Watson

Email: portlandpah@gmail.com

Phone Number: 503-963-3161

 

26 Sep
September 26, 2023    
6:30 pm EDT - 8:00 pm EDT
$0.00

Topic: Emergency Preparedness

Speaker: Jennifer Johnson, RN, BSN

Sponsor: Accredo

Leader: Heather Arena

Email: ph.michiana@gmail.com

Phone Number: 269-982-5864

 

27 Sep
September 27, 2023    
8:00 pm EDT - 9:00 pm EDT
$0.00

Únase a esta llamada de apoyo mensual para conectarse con otros pacientes y conversar sobre sus luchas y triunfos, así como para recibir apoyo y consejos de otros pacientes con hipertensión pulmonar (HP). Un paciente con HP facilitará las presentaciones y la conversación. Únase a la conversación o simplemente escuche.

Leader: Estella Medina

Email: stelmed76@gmail.com

27 Sep
September 27, 2023    
8:00 pm EDT - 9:00 pm EDT
$0.00

Únase a esta llamada de apoyo mensual para conectarse con otros pacientes y conversar sobre sus luchas y triunfos, así como para recibir apoyo y consejos de otros pacientes con hipertensión pulmonar (HP). Un paciente con HP facilitará las presentaciones y la conversación. Únase a la conversación o simplemente escuche.

27 Sep
September 27, 2023    
8:00 pm EDT - 9:00 pm EDT
$0.00

This meeting is held monthly for young adults with pulmonary hypertension who want to connect with other young adult patients via phone or video conferencing. The call is moderated by two young adult facilitators.

Meeting information will be sent to your email address when you submit your registration.

Leaders: Janessa Curnow and Shannon O’Donnell

Email: PHAGenerationHope@gmail.com

 

28 Sep
September 28, 2023 - September 30, 2023    
12:00 am EDT
28 Sep
September 28, 2023    
6:30 pm EDT - 8:30 pm EDT
$0.00

Topic: Health Care Open Enrollment 2023

Speaker: Jane Northrop, PHA support group leader

Leader: Jane Northrop

Email: orlandophgroup@gmail.com

Phone Number: 321-245-8435

 

28 Sep
September 28, 2023    
8:00 pm EDT - 9:00 pm EDT
$0.00

Join this monthly support call to connect with other patients and discuss struggles and triumphs, and to receive support and advice from other PH patients. There is a PH patient present to facilitate introductions and conversation. Join the conversation or simply listen.

Meeting information will be sent to your email address when you submit your registration.

Leader: Carla Kinsey

Email: Carla_PSC@outlook.com

30 Sep
September 30, 2023    
10:00 am PDT - 12:00 pm PDT
$0.00

Topic: Oxygen and sleep therapies

Speaker: TBD

Leader: Nikole Nichols

Email: nikdunich@hotmail.com

Phone Number: 408-314-0114

 

Events on September 1, 2023
Events on September 2, 2023
Events on September 7, 2023
Events on September 8, 2023
Events on September 9, 2023
Events on September 11, 2023
11 Sep
Events on September 12, 2023
Events on September 13, 2023
13 Sep
Events on September 15, 2023
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Events on September 19, 2023
19 Sep
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Events on September 20, 2023
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Events on September 27, 2023
27 Sep
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Events on September 28, 2023
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28 Sep 23
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Events on September 29, 2023
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Events on September 30, 2023
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