PHA Events

Every year, there are more than 60 events taking place across the country to raise much-needed funds to support the PH community. Some events are hosted by PHA, and others are hosted by members in the community. However, every event brings together patients, caregivers and medical professionals to support one another in our fight against PH. Please join us in supporting the PH community by participating in an upcoming event near you!  Interested in hosting an event? Contact events@phassociation.org.

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1
UT - Northern Utah (In Person)
01 Sep
September 1, 2023    
12:00 pm MDT - 2:00 pm MDT

Topic: Disability FAQs Presentation

Speaker: Nathan Cole, Public Affairs Specialist

Leader: Lala Juarez

Email: xoLalaBear@gmail.com

Phone Number: 801-663-4897

More Info
SC - Anderson, SC (In Person)
02 Sep
September 2, 2023    
1:00 pm EDT - 3:00 pm EDT

Topic: Insurance: How to Navigate the Open

Speaker: Mark Miller, Patient Care Consultant

Leader: Kelly Dickson

Email: kelly.dickson@anmedhealth.org

Phone Number: 864-617-9567

 

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IN - Kentuckiana PH Warriors (in-person)
02 Sep
September 2, 2023    
1:00 pm EDT - 3:00 pm EDT
O'Charley's

Topic: Coping with PH

Food provided by: PHA

RSVP to Michelle by Aug. 31

Phone: 812-489-1069

Email: mlreller@yahoo.com

More Info
KY - Lexington (In Person)
07 Sep
September 7, 2023    
6:00 pm EDT - 8:00 pm EDT

Topic: Navigating Medicine Approvals

Speaker: Kimberly Jackson, RN, BSN

Leader: Evelyn Mitchell

Email: evelynkmitchell@yahoo.com

Phone Number: 859-396-2476

 

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TN - Mid South Area (In Person)
07 Sep
September 7, 2023    
6:00 pm CDT - 9:00 pm CDT

Topic: Walk for Your Wellbeing

Speaker: Lori Reed, NP

Sponsor: United Therapeutics Corporation

Leader: Barbara Thompson

Email: BarbaralnMemphis@gmail.com

Phone Number: 901-463-8688

 

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NM - UNMH Albuquerque (In Person)
08 Sep
September 8, 2023    
10:30 am MDT - 11:30 am MDT

Topic: Pulmonary arterial hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Experiencing Stress with your Condition

Speaker: Theresa Sargent, NP

Sponsor: Bayer

Leader: Evan Holm

Email: evholm@salud.unm.edu

Phone Number: 505-272-2815

 

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MA - Greater Boston (Virtual)
09 Sep
September 9, 2023    
9:30 am EDT - 11:00 am EDT

Topic: Informal Group Discussion/Check-In

Leader: Ashley Horton, Wendy Berry

Email: bostonphs@gmail.com, wendybostonph@gmail.com

Phone Number: 708-307-6637

 

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Chicago O<sub>2</sub>breathe Walk and 5K
09 Sep
September 9, 2023    
10:00 am CDT - 2:00 pm CDT
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MN - Twin Cities (Virtual)
09 Sep
September 9, 2023    
10:00 am CDT - 12:00 pm CDT

Topic: Pulmonary hypertension: Understanding the Basics (CTEPH) and Living with PAH or CTEPH: Experiencing Stress with your Condition

Speaker: Valerie A. LaRoy, CNP

Sponsor: Bayer Healthcare

Leader: Alice Yount

Email: ayount@helmsbriscoe.com

Phone Number: 952-221-5475

 

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MI - Lansing, MI (In Person)
09 Sep
September 9, 2023    
12:00 pm EDT - 2:00 pm EDT

Topic: Patient, loved ones and caregivers discussion

Speaker:  Karen Sawyer, PHA support group leader

Leader: Karen Sawyer

Email: Luluidapple@gmail.com

Phone Number: 517-420-6457

 

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FL - Broward Count (Virtual)
09 Sep
September 9, 2023    
1:00 pm EDT - 2:00 pm EDT

Topic: Open Discussion

Leader: Pat Hellyer

Email: pathellyer79@gmail.com

Phone Number: 561-628-5597

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TN - Tri Cities (In Person)
09 Sep
September 9, 2023    
1:00 pm EDT - 3:00 pm EDT

Topic: About PHA & Best Practices

Speaker: Terrie Keplinger, Support Group Leader

Leader: Terrie Keplinger

Email: terrie.keplinger@gmail.com

Phone Number: 423-732-9344

 

 

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NY - Mount Sinai (Virtual)
11 Sep
September 11, 2023    
5:00 pm EDT - 6:30 pm EDT

Topic: Nutrition and PH

Speaker: Nadine Glowzenski, MS, RD, CDN

Leader: Rachel Potter

Email: respiratoryinstitute@mssm.edu

Phone Number: 212-241-5656

 

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NH - Dartmouth Hitchcock (Hybrid)
12 Sep
September 12, 2023    
1:00 pm EDT - 3:00 pm EDT

Topic: Inflation Reduction Act

Speaker: Katie Kroner, PHA employee

Leader: Laura Hooley

Email: laurah@myfairpoint.net

Phone Number: 603-863-9980

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OH - Cincinnati North (In Person)
13 Sep
September 13, 2023    
6:00 pm EDT - 7:30 pm EDT

Topic: General Discussion, Virtual Speaker About PHA

Speaker: Matt Granato, President and CEO Pulmonary Hypertension Association

Leader: Connie Gill

Email: cgill25@outlook.com

Phone Number: 513-368-8693

 

More Info
Parent Support Group
13 Sep
September 13, 2023    
8:00 pm EDT - 9:00 pm EDT

Call in to connect, learn, and share strategies and experiences caring for your child with PH.

Meeting information will be sent to your email address when you submit your registration.

Leader: Jane Northrop

Email: jbones1961@gmail.com

More Info
LA - New Orleans Area (Hybrid)
14 Sep
September 14, 2023    
10:30 am CDT - 12:30 pm CDT

Topic: Navigating PAH Benefits and Resources

Sponsor: CVS Pharmacy

Leader: Linda Gates

Email: lgates62@aol.com

Phone Number: 985-651-5582

 

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OH - Southwest General (In Person)
14 Sep
September 14, 2023    
1:30 pm EDT - 2:30 pm EDT

Topic: Navigating PAH Benefits and Resources

Speaker: Dawn Becher, BSN, RN

Sponsor: CVS Pharmacy

Leader: Tammy Stankard/ Kim Handa

Email: tstankard@swgeneral.com

Phone Number: 440-384-9683

 

More Info
Webinar: Understanding the Connection between Idiopathic Pulmonary Fibrosis and PH
14 Sep
September 14, 2023    
2:00 pm EDT - 3:00 pm EDT
More Info
Bereavement Support Group
14 Sep
September 14, 2023    
8:00 pm EDT - 9:00 pm EDT

Call in to meet others who have lost a loved one to PH. Connect, learn and share strategies and experiences dealing with grief and bereavement.

Meeting information will be sent to your email address when you submit your registration.

Leader: Betty Lou Wojciechowski

Email: bettylouwojo@gmail.com

More Info
OR - Central Oregon (Virtual)
14 Sep
September 14, 2023    
5:00 pm PDT - 7:00 pm PDT

Topic: Everything You Want to Know About Pulmonary Medications

Speaker: Ka Wan Chiang, PharmD

Leader: Michele Freeman

Email: oregonphgroup@gmail.com

Phone Number: 541-408-4943

 

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NY - NYC Manhattan (Virtual)
15 Sep
September 15, 2023    
12:00 pm EDT - 1:00 pm EDT

Topic: Book Club – Year of the Tiger by Alice Wong

Leader: Alicia Kubes

Email: alicia.kubes@nyu.edu

Phone Number: 201-874-4118

 

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CO - NOCO (In Person)
15 Sep
September 15, 2023    
12:00 pm MDT - 1:30 pm MDT

Topic: Advocate for your Wellbeing

Speaker: Valerie LaRoy, FNP, Advocate Heart Institute

Sponsor: United Therapeutics Corporation

Leader: Carissa Tellinghuisen

Email: cvipahinbox@bannerhealth.com

Phone Number: 970-810-3776

 

More Info
PHA National Support Group Meeting: PH and Idiopathic Pulmonary Fibrosis
15 Sep
September 15, 2023    
3:00 pm EDT - 4:00 pm EDT
More Info
Right Heart Fight – Oklahoma City, OK
16 Sep
September 16, 2023    
9:00 am CDT - 12:00 pm CDT
More Info
Puttin’ PHore Poots - Edina, MN
16 Sep
September 16, 2023    
10:00 am CDT - 2:00 pm CDT
More Info
SC - Upstate SC (In Person)
16 Sep
September 16, 2023    
12:00 pm EDT - 2:00 pm EDT

Topic: Navigating PAH Benefits and Resources

Speaker: Jamilla Torio, RN

Sponsor: CVS Pharmacy

Leader: Barbara Stubbs

Email: BStubbsPH@gmail.com

Phone Number: 864-607 -4084

 

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Glowing For Kassie - Lawrenceburg, TN
16 Sep
September 16, 2023    
5:00 pm CDT - 9:00 pm CDT
More Info
IL - North West Sub Lung at AMITA (Virtual)
17 Sep
September 17, 2023    
3:00 pm CDT - 4:30 pm CDT

Topic: Open Discussion

Leader: Margie Chan, Sue Liss

Email: mchan624@aol.com, sjliss1O@gmail.com

Phone Number: 773-398-9155, 720-334-4136

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PA - U of Penn (Virtual)
19 Sep
September 19, 2023    
11:00 am EDT - 12:00 pm EDT

Topic: General Discussion

Leader: Colleen Connor

Email: connor_colleen@comcast.net

Phone Number: 610-329-4993

 

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IN - Indianapolis (Hybrid)
19 Sep
September 19, 2023    
6:00 pm EDT - 7:30 pm EDT

Topic: Risk Assessment/PAH Tracking

Speaker: Elsa Garza, DNP, MS, ACNP-BC

Sponsor: Janssen Pharmaceuticals

Leader: April Blakley

Email: ablakle1@iuhealth.org

Phone Number: 317-963-1860

 

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MI - Macomb-Oakland (virtual)
19 Sep
September 19, 2023    
7:00 pm EDT - 9:00 pm EDT

Topic: Q&A

Speaker: Samuel Allen, MD

RSVP by Sept. 7 to Carla Kinsey

Phone: 586-530-0160

Email: carla_psc@outlook.com

More Info
CTEPH Support Group
19 Sep
September 19, 2023    
8:00 pm EDT - 9:00 pm EDT

Join this monthly telephone support group to connect with other CTEPH patients and discuss struggles and triumphs and receive support and advice from others experiencing the same challenges.

Meeting information will be sent to your email address when you submit your registration.

Leader: Missy Storm

Email: missyjstorm@cox.net

More Info
TX - El Paso Phighters (Virtual)
20 Sep
September 20, 2023    
1:00 pm MDT - 2:00 pm MDT

Topic: 02Breathe Walk Talk

Speaker: Kevin Heyen, Vice President, Development at the PHA

Leader: Estella Medina

Email: Estella.EPPHighters@gmail.com

Phone Number: 915-208-2671

 

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Caregiver Support Group
20 Sep
September 20, 2023    
7:00 pm EDT - 8:00 pm EDT

Join this monthly support call to connect, learn, and share strategies and experiences with PH caregivers and parents across the country. There is a PH caregiver present to facilitate introductions and present a discussion topic.

Meeting information will be sent to your email address when you submit your registration.

Leader: Michele Freeman

Email: oregonphgroup@gmail.com

More Info
VA - Hampton Roads (In Person)
21 Sep
September 21, 2023    
1:00 pm EDT - 3:00 pm EDT

Topic: Caring for the Caregiver

Sponsor: Accredo

Leader: Joyce Kossman, Matt Schatti

Email: joyce.jay@att.net

Phone Number: 757-388-9138

 

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UT - Intermountain Medical Center (In Person)
21 Sep
September 21, 2023    
4:00 pm MDT - 6:00 pm MDT

Topic: Meet YOUR PH support group We hope to meet YOU!

Speaker: Brandi Bolton- Orr, Nurse Practitioner

Leader: Brandi Orr, Becca Pesaresi

Email: brandi.bolton-orr@imail.org, rebecca.laxton@imail.org

Phone Number: 801-507-4800

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PA - Lehigh Poconos (In Person)
22 Sep
September 22, 2023    
1:00 pm EDT - 2:30 pm EDT

Topic: Sharing & Supporting

Speaker: Gloria Hamm, BSN, MS, support group leader

Leader: Gloria Hamm

Email: Glolhamm@aol.com

Phone Number: 610-799-2766

 

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VA - Richmond, Central VA (In Person)
23 Sep
September 23, 2023    
11:00 am EDT - 1:00 pm EDT

Topic: PH Fall Mixer – Optional Silent Auction Fundraiser for PHA

Leader:  Chris Calvert

Email: circles69@calvert.cc

Phone Number: 804-360-9608

Consider bringing an item to auction off

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GA - CSRA Augusta (In Person)
23 Sep
September 23, 2023    
11:00 am EDT - 1:00 pm EDT

Topic:  PAH Emergency Preparedness

Speaker: Lindsay Corley, Clinical Nursing Services Specialist

Sponsor: CVS Pharmacy

Leader: Marcie McGregor

Email: marcie.mcgregor@yahoo.com

Phone Number: 803-640-3406

 

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CA - Greater Los Angeles (In Person)
24 Sep
September 24, 2023    
10:00 am PDT - 2:00 pm PDT

Topic: Annual Retreat; small circles, craft time and surprise guest speaker!

Leader: Monica Penaranda, Marisela Navarro

Email: mpenaranda562@gmwl.com, longbeachphgroup@gmwl.com

Phone Number: 562-639-2053, 323-532-5164

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NJ - South Jersey (Virtual)
26 Sep
September 26, 2023    
11:00 am EDT - 12:15 pm EDT
$0.00

Topic: TBA

Leader: Bonnie Patricelli

Email: bonabona@comcast.net

Phone Number: 856-904-6867

 

More Info Register Now!
OR - NE Portland (Hybrid)
26 Sep
September 26, 2023    
12:00 pm PDT - 1:00 pm PDT
$0.00

Topic: Palliative care: Coping with Chronic Illness

Speaker: Shoshawna Rainwater, MSW, LCSW Palliative Care Social Worker

Leader: Brittany Watson

Email: portlandpah@gmail.com

Phone Number: 503-963-3161

 

More Info Register Now!
MI - Support Group of Michiana (In Person)
26 Sep
September 26, 2023    
6:30 pm EDT - 8:00 pm EDT
$0.00

Topic: Emergency Preparedness

Speaker: Jennifer Johnson, RN, BSN

Sponsor: Accredo

Leader: Heather Arena

Email: ph.michiana@gmail.com

Phone Number: 269-982-5864

 

More Info Register Now!
Grupo de apoyo en español
27 Sep
September 27, 2023    
8:00 pm EDT - 9:00 pm EDT
$0.00

Únase a esta llamada de apoyo mensual para conectarse con otros pacientes y conversar sobre sus luchas y triunfos, así como para recibir apoyo y consejos de otros pacientes con hipertensión pulmonar (HP). Un paciente con HP facilitará las presentaciones y la conversación. Únase a la conversación o simplemente escuche.

Leader: Estella Medina

Email: stelmed76@gmail.com

More Info Register Now!
Grupo de apoyo en español
27 Sep
September 27, 2023    
8:00 pm EDT - 9:00 pm EDT
$0.00

Únase a esta llamada de apoyo mensual para conectarse con otros pacientes y conversar sobre sus luchas y triunfos, así como para recibir apoyo y consejos de otros pacientes con hipertensión pulmonar (HP). Un paciente con HP facilitará las presentaciones y la conversación. Únase a la conversación o simplemente escuche.

More Info Register Now!
Young Adult Support Group
27 Sep
September 27, 2023    
8:00 pm EDT - 9:00 pm EDT
$0.00

This meeting is held monthly for young adults with pulmonary hypertension who want to connect with other young adult patients via phone or video conferencing. The call is moderated by two young adult facilitators.

Meeting information will be sent to your email address when you submit your registration.

Leaders: Janessa Curnow and Shannon O’Donnell

Email: PHAGenerationHope@gmail.com

 

More Info Register Now!
PHPN Symposium
28 Sep
September 28, 2023 - September 30, 2023    
12:00 am EDT
More Info
FL - Orlando (Virtual)
28 Sep
September 28, 2023    
6:30 pm EDT - 8:30 pm EDT
$0.00

Topic: Health Care Open Enrollment 2023

Speaker: Jane Northrop, PHA support group leader

Leader: Jane Northrop

Email: orlandophgroup@gmail.com

Phone Number: 321-245-8435

 

More Info Register Now!
Patient Support Group
28 Sep
September 28, 2023    
8:00 pm EDT - 9:00 pm EDT
$0.00

Join this monthly support call to connect with other patients and discuss struggles and triumphs, and to receive support and advice from other PH patients. There is a PH patient present to facilitate introductions and conversation. Join the conversation or simply listen.

Meeting information will be sent to your email address when you submit your registration.

Leader: Carla Kinsey

Email: Carla_PSC@outlook.com

More Info Register Now!
NV - Reno (Virtual)
30 Sep
September 30, 2023    
10:00 am PDT - 12:00 pm PDT
$0.00

Topic: Oxygen and sleep therapies

Speaker: TBD

Leader: Nikole Nichols

Email: nikdunich@hotmail.com

Phone Number: 408-314-0114

 

More Info Register Now!
Events on September 1, 2023
01 Sep
UT - Northern Utah (In Person)
1 Sep 23
Events on September 2, 2023
02 Sep
SC - Anderson, SC (In Person)
2 Sep 23
02 Sep
IN - Kentuckiana PH Warriors (in-person)
2 Sep 23
Corydon
Events on September 7, 2023
07 Sep
KY - Lexington (In Person)
7 Sep 23
07 Sep
TN - Mid South Area (In Person)
7 Sep 23
Events on September 8, 2023
08 Sep
NM - UNMH Albuquerque (In Person)
8 Sep 23
Events on September 9, 2023
09 Sep
MA - Greater Boston (Virtual)
9 Sep 23
09 Sep
Chicago O<sub>2</sub>breathe Walk and 5K
9 Sep 23
09 Sep
MN - Twin Cities (Virtual)
9 Sep 23
09 Sep
MI - Lansing, MI (In Person)
9 Sep 23
09 Sep
FL - Broward Count (Virtual)
9 Sep 23
09 Sep
TN - Tri Cities (In Person)
9 Sep 23
Events on September 11, 2023
11 Sep
NY - Mount Sinai (Virtual)
11 Sep 23
Events on September 12, 2023
12 Sep
NH - Dartmouth Hitchcock (Hybrid)
12 Sep 23
Events on September 13, 2023
13 Sep
OH - Cincinnati North (In Person)
13 Sep 23
13 Sep
Parent Support Group
13 Sep 23
Events on September 14, 2023
14 Sep
LA - New Orleans Area (Hybrid)
14 Sep 23
14 Sep
OH - Southwest General (In Person)
14 Sep 23
14 Sep
Webinar: Understanding the Connection between Idiopathic Pulmonary Fibrosis and PH
14 Sep 23
14 Sep
Bereavement Support Group
14 Sep 23
14 Sep
OR - Central Oregon (Virtual)
14 Sep 23
Events on September 15, 2023
15 Sep
NY - NYC Manhattan (Virtual)
15 Sep 23
15 Sep
CO - NOCO (In Person)
15 Sep 23
15 Sep
PHA National Support Group Meeting: PH and Idiopathic Pulmonary Fibrosis
15 Sep 23
Events on September 16, 2023
16 Sep
Right Heart Fight – Oklahoma City, OK
16 Sep 23
16 Sep
Puttin’ PHore Poots - Edina, MN
16 Sep 23
16 Sep
SC - Upstate SC (In Person)
16 Sep 23
16 Sep
Glowing For Kassie - Lawrenceburg, TN
16 Sep 23
Events on September 17, 2023
17 Sep
IL - North West Sub Lung at AMITA (Virtual)
17 Sep 23
Events on September 19, 2023
19 Sep
PA - U of Penn (Virtual)
19 Sep 23
19 Sep
IN - Indianapolis (Hybrid)
19 Sep 23
19 Sep
MI - Macomb-Oakland (virtual)
19 Sep 23
19 Sep
CTEPH Support Group
19 Sep 23
Events on September 20, 2023
20 Sep
TX - El Paso Phighters (Virtual)
20 Sep 23
20 Sep
Caregiver Support Group
20 Sep 23
Events on September 21, 2023
21 Sep
VA - Hampton Roads (In Person)
21 Sep 23
21 Sep
UT - Intermountain Medical Center (In Person)
21 Sep 23
Events on September 22, 2023
22 Sep
PA - Lehigh Poconos (In Person)
22 Sep 23
Events on September 23, 2023
23 Sep
VA - Richmond, Central VA (In Person)
23 Sep 23
23 Sep
GA - CSRA Augusta (In Person)
23 Sep 23
Events on September 24, 2023
24 Sep
CA - Greater Los Angeles (In Person)
24 Sep 23
Events on September 26, 2023
26 Sep
NJ - South Jersey (Virtual)
26 Sep 23
26 Sep
OR - NE Portland (Hybrid)
26 Sep 23
26 Sep
MI - Support Group of Michiana (In Person)
26 Sep 23
Events on September 27, 2023
27 Sep
Grupo de apoyo en español
27 Sep 23
27 Sep
Grupo de apoyo en español
27 Sep 23
27 Sep
Young Adult Support Group
27 Sep 23
Events on September 28, 2023
28 Sep
PHPN Symposium
28 Sep 23
28 Sep
FL - Orlando (Virtual)
28 Sep 23
28 Sep
Patient Support Group
28 Sep 23
Events on September 29, 2023
28 Sep
PHPN Symposium
28 Sep 23
Events on September 30, 2023
28 Sep
PHPN Symposium
28 Sep 23
30 Sep
NV - Reno (Virtual)
30 Sep 23