PHA Events

Every year, there are more than 60 events taking place across the country to raise much-needed funds to support the PH community. Some events are hosted by PHA, and others are hosted by members in the community. However, every event brings together patients, caregivers and medical professionals to support one another in our fight against PH. Please join us in supporting the PH community by participating in an upcoming event near you!  Interested in hosting an event? Contact events@phassociation.org.

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NJ - South Jersey (Virtual)
26 Sep
September 26, 2023    
11:00 am EDT - 12:15 pm EDT

Topic: TBA

Leader: Bonnie Patricelli

Email: bonabona@comcast.net

Phone Number: 856-904-6867

 

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OR - NE Portland (Hybrid)
26 Sep
September 26, 2023    
12:00 pm PDT - 1:00 pm PDT

Topic: Palliative care: Coping with Chronic Illness

Speaker: Shoshawna Rainwater, MSW, LCSW Palliative Care Social Worker

Leader: Brittany Watson

Email: portlandpah@gmail.com

Phone Number: 503-963-3161

 

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MI - Support Group of Michiana (In Person)
26 Sep
September 26, 2023    
6:30 pm EDT - 8:00 pm EDT

Topic: Emergency Preparedness

Speaker: Jennifer Johnson, RN, BSN

Sponsor: Accredo

Leader: Heather Arena

Email: ph.michiana@gmail.com

Phone Number: 269-982-5864

 

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Grupo de apoyo en español
27 Sep
September 27, 2023    
8:00 pm EDT - 9:00 pm EDT

Únase a esta llamada de apoyo mensual para conectarse con otros pacientes y conversar sobre sus luchas y triunfos, así como para recibir apoyo y consejos de otros pacientes con hipertensión pulmonar (HP). Un paciente con HP facilitará las presentaciones y la conversación. Únase a la conversación o simplemente escuche.

Leader: Estella Medina

Email: stelmed76@gmail.com

More Info
Grupo de apoyo en español
27 Sep
September 27, 2023    
8:00 pm EDT - 9:00 pm EDT

Únase a esta llamada de apoyo mensual para conectarse con otros pacientes y conversar sobre sus luchas y triunfos, así como para recibir apoyo y consejos de otros pacientes con hipertensión pulmonar (HP). Un paciente con HP facilitará las presentaciones y la conversación. Únase a la conversación o simplemente escuche.

More Info
Young Adult Support Group
27 Sep
September 27, 2023    
8:00 pm EDT - 9:00 pm EDT

This meeting is held monthly for young adults with pulmonary hypertension who want to connect with other young adult patients via phone or video conferencing. The call is moderated by two young adult facilitators.

Meeting information will be sent to your email address when you submit your registration.

Leaders: Janessa Curnow and Shannon O’Donnell

Email: PHAGenerationHope@gmail.com

 

More Info
PHPN Symposium
28 Sep
September 28, 2023 - September 30, 2023    
12:00 am EDT
More Info
FL - Orlando (Virtual)
28 Sep
September 28, 2023    
6:30 pm EDT - 8:30 pm EDT

Topic: Health Care Open Enrollment 2023

Speaker: Jane Northrop, PHA support group leader

Leader: Jane Northrop

Email: orlandophgroup@gmail.com

Phone Number: 321-245-8435

 

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Patient Support Group
28 Sep
September 28, 2023    
8:00 pm EDT - 9:00 pm EDT

Join this monthly support call to connect with other patients and discuss struggles and triumphs, and to receive support and advice from other PH patients. There is a PH patient present to facilitate introductions and conversation. Join the conversation or simply listen.

Meeting information will be sent to your email address when you submit your registration.

Leader: Carla Kinsey

Email: Carla_PSC@outlook.com

More Info
NV - Reno (Virtual)
30 Sep
September 30, 2023    
10:00 am PDT - 12:00 pm PDT

Topic: Oxygen and sleep therapies

Speaker: TBD

Leader: Nikole Nichols

Email: nikdunich@hotmail.com

Phone Number: 408-314-0114

 

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MA - Greater Boston (Hybrid)
07 Oct
October 7, 2023    
9:30 am EDT - 11:00 am EDT
$0.00

Topic: Assessing Risk in PAH: Is Your Treatment Plan Working?

Speaker: Mary Whittenhall, MSN, Brown / Rhode Island Hospital Pulmonary Hypertension Center

Leader: Ashley Horton

Email: bostonphs@gmail.com, Wendybostonph@gmail.com

Phone Number: 708-307-6637

 

More Info Register Now!
NY - Buffalo/Niagara PHriends (In Person)
07 Oct
October 7, 2023    
12:00 pm EDT - 2:00 pm EDT
$0.00

Topic: Preparing For Change

Speaker: Colleen Schnell, PHA support group leader

Leader: Colleen Schnell

Email: melonlady1724@hotmail.com

Phone Number: 716-297-1067

 

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CA - Sacramento (In Person)
07 Oct
October 7, 2023    
12:00 pm PDT - 4:00 pm PDT
$0.00

Topic: Annual Family Picnic

Leader: pat graham, debbie baugh

Email: phgroupsac@gmail.com

Phone Number: 410-353-0350, 916-200-3567

 

More Info Register Now!
Columbus O<sub>2</sub>breathe Walk – Columbus, OH
08 Oct
October 8, 2023    
8:00 am EDT - 1:00 pm EDT
More Info
SC - Charleston (Hybrid)
09 Oct
October 9, 2023    
2:00 pm EDT - 4:00 pm EDT
$0.00

Topic: Living with PH

Speaker: TBD

Leader: Kristine Ritenour

Email: ritenour@musc.edu

Phone Number: 843-792-2127

 

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CT - U of Connecticut (In Person)
11 Oct
October 11, 2023    
5:30 pm EDT - 7:30 pm EDT
$0.00

Topic: Bingo Night

Leader: Stephanie Krusch, Julie Shea

Email: Skrusch@uchc.edu, jushea@uchc.edu

Phone Number: 860-679-8300

 

 

More Info Register Now!
OH - Cincinnati North (In Person)
11 Oct
October 11, 2023    
6:00 pm EDT - 7:30 pm EDT
$0.00

Topic:  Navigating PAH Benefits and Resources

Speaker: Ellie Clyburn, BSN, RN

Sponsor: CVS Pharmacy

Leader: Connie Gill

Email: cgill25@outlook.com

Phone Number: 513-368-8693

 

More Info Register Now!
Parent Support Group
11 Oct
October 11, 2023    
8:00 pm EDT - 9:00 pm EDT
$0.00

Call in to connect, learn, and share strategies and experiences caring for your child with PH.

Meeting information will be sent to your email address when you submit your registration.

Leader: Jane Northrop

Email: jbones1961@gmail.com

More Info Register Now!
Bereavement Support Group
12 Oct
October 12, 2023    
8:00 pm EDT - 9:00 pm EDT
$0.00

Call in to meet others who have lost a loved one to PH. Connect, learn and share strategies and experiences dealing with grief and bereavement.

Meeting information will be sent to your email address when you submit your registration.

Leader: Betty Lou Wojciechowski

Email: bettylouwojo@gmail.com

More Info Register Now!
OR - Central Oregon (Virtual)
12 Oct
October 12, 2023    
5:00 pm PDT - 7:00 pm PDT
$0.00

Topic: Insurance 101 – How to Choose the Best

Speaker: Jenny Chambrone, Independent Health Insurance Specialist

Leader:  Michele Freeman

Email: oregonphgroup@gmail.com

Phone Number: 541-408-4943

 

More Info Register Now!
MN - Twin Cities (In Person)
14 Oct
October 14, 2023    
10:00 am CDT - 12:00 pm CDT
$0.00

Topic: Coffee with open discussion

Leader: Alice Yount

Email: ayount@helmsbriscoe.com

Phone Number: 952-221-5475

 

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VA - Northern VA (In Person)
14 Oct
October 14, 2023    
12:00 pm EDT - 2:00 pm EDT
$0.00

Topic: New information on Sotatercept

Speaker: Christopher Thomas, MD

Leader: Beth DeCristofaro

Email: bethd0323@gmail.com

Phone Number: 703-577-4779

 

 

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IL - Elmhurst (In Person)
14 Oct
October 14, 2023    
12:00 pm CDT - 3:00 pm CDT
$0.00

Topic: Navigating PAH Benefits and Resources

Speaker: Speaker: Dana Cecher, Nurse Manager/CVS Caremrk

Sponsor: CVS Pharmacy

Leader: Benita Kosiara

Email: benitak9588@comcast.net

Phone Number: 630-942-9588

 

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FL - Broward County (Virtual)
14 Oct
October 14, 2023    
1:00 pm EDT - 2:00 pm EDT
$0.00

Topic: Open Discussion

Leader: Pat Hellyer

Email: pathellyer79@gmail.com

Phone Number: 561-628-5597

 

More Info Register Now!
Baltimore O<sub>2</sub>breathe Walk – Baltimore, MD
15 Oct
October 15, 2023    
9:00 am EDT - 1:00 pm EDT
More Info
IN - Indianapolis (In Person)
17 Oct
October 17, 2023    
6:00 pm EDT - 8:00 pm EDT
$0.00

Topic: Pulmonary Rehab

Speaker: Stewart Sisson, MS, RRT-NPS, C-NPT, C-ELBW

Leader: Diane Brackin, Andrea Redstone

Email: dsmith4@ecommunity.com, ARedstone@ecorm,unity.com

Phone Number: 317-621-8486, 317-621-8656

 

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MI - Macomb Oakland (Virtual)
17 Oct
October 17, 2023    
7:00 pm EDT - 9:00 pm EDT
$0.00

Topic: Q&A with Dr. Allen

Speaker: Samuel Allen, DO, pulmonologisVpulmonary Hypertension specialist

Leader: Carla Kinsey

Email: moph-sg@outlook.com

Phone Number: 586-530-0160

 

More Info Register Now!
CTEPH Support Group
17 Oct
October 17, 2023    
8:00 pm EDT - 9:00 pm EDT
$0.00

Join this monthly telephone support group to connect with other CTEPH patients and discuss struggles and triumphs and receive support and advice from others experiencing the same challenges.

Meeting information will be sent to your email address when you submit your registration.

Leader: Missy Storm

Email: missyjstorm@cox.net

More Info Register Now!
Caregiver Support Group
18 Oct
October 18, 2023    
7:00 pm EDT - 8:00 pm EDT
$0.00

Join this monthly support call to connect, learn, and share strategies and experiences with PH caregivers and parents across the country. There is a PH caregiver present to facilitate introductions and present a discussion topic.

Meeting information will be sent to your email address when you submit your registration.

Leader: Michele Freeman

Email: oregonphgroup@gmail.com

More Info Register Now!
Webinar: Navigating 2024 Open Enrollment
19 Oct
October 19, 2023    
2:00 pm EDT - 3:00 pm EDT
More Info
Driving “Fore” a Cure for PH – Clayton, NC
20 Oct
October 20, 2023    
8:00 am EDT - 2:00 pm EDT
More Info
Phoenix O<sub>2</sub>breathe Walk 2023 - Phoenix, AZ
21 Oct
October 21, 2023    
9:00 am EDT - 12:00 pm EDT
More Info
Grupo de apoyo en español
25 Oct
October 25, 2023    
8:00 pm EDT - 9:00 pm EDT
$0.00

Únase a esta llamada de apoyo mensual para conectarse con otros pacientes y conversar sobre sus luchas y triunfos, así como para recibir apoyo y consejos de otros pacientes con hipertensión pulmonar (HP). Un paciente con HP facilitará las presentaciones y la conversación. Únase a la conversación o simplemente escuche.

Leader: Estella Medina

Email: stelmed76@gmail.com

More Info Register Now!
Grupo de apoyo en español
25 Oct
October 25, 2023    
8:00 pm EDT - 9:00 pm EDT
$0.00

Únase a esta llamada de apoyo mensual para conectarse con otros pacientes y conversar sobre sus luchas y triunfos, así como para recibir apoyo y consejos de otros pacientes con hipertensión pulmonar (HP). Un paciente con HP facilitará las presentaciones y la conversación. Únase a la conversación o simplemente escuche.

More Info Register Now!
Young Adult Support Group
25 Oct
October 25, 2023    
8:00 pm EDT - 9:00 pm EDT
$0.00

This meeting is held monthly for young adults with pulmonary hypertension who want to connect with other young adult patients via phone or video conferencing. The call is moderated by two young adult facilitators.

Meeting information will be sent to your email address when you submit your registration.

Leaders: Janessa Curnow and Shannon O’Donnell

Email: PHAGenerationHope@gmail.com

 

More Info Register Now!
Patient Support Group
26 Oct
October 26, 2023    
8:00 pm EDT - 9:00 pm EDT
$0.00

Join this monthly support call to connect with other patients and discuss struggles and triumphs, and to receive support and advice from other PH patients. There is a PH patient present to facilitate introductions and conversation. Join the conversation or simply listen.

Meeting information will be sent to your email address when you submit your registration.

Leader: Carla Kinsey

Email: Carla_PSC@outlook.com

More Info Register Now!
CA - San Luis Obispo (In Person)
28 Oct
October 28, 2023    
12:30 pm PDT - 2:30 pm PDT
$0.00

Topic: Meet & Greet/ Planning our meeting calendar. Space is limited, RSVP soon!

Leader: Mickie Ulibarri

Email: mickieulibarri@gmail.com

Phone Number: 805-556-5588

More Info Register Now!
El Paso O<sub>2</sub>breathe Walk – El Paso, TX
04 Nov
November 4, 2023    
12:00 am CDT
More Info
FL - Tampa Bay Pediatric (Hybrid)
04 Nov
November 4, 2023    
10:00 am EDT - 12:00 pm EDT
$0.00

Topic: Make A Wish

Speaker: Tessa Dvoraka, Medical and Community Outreach Coordinator

Leader: Shelly Screen

Email: sscreen1@jh.edu, talkire1@jh.edu

Phone Number: 727-767-8416

 

More Info Register Now!
Monrovia O<sub>2</sub>breathe Walk – Monrovia, CA
04 Nov
November 4, 2023    
9:00 am PDT - 2:00 pm PDT
More Info
IA - Iowa City (In Person)
04 Nov
November 4, 2023    
11:00 am CDT - 2:00 pm CDT
$0.00

Topic: Celebration Lunch

Leader: Karen Fragale

Email: Believegod2@yahoo.com

Phone Number: 913-217-5456

More Info Register Now!
UT - Northern Utah (In Person)
04 Nov
November 4, 2023    
12:00 pm MDT - 2:00 pm MDT
$0.00

Topic: Caring for Caregivers

Speaker: Jennifer Johnson, BSN, RN, CRNI

Leader: Lala Juarez

Email: xoLalaBear@gmail.com

Phone Number: 801-663-4897

More Info Register Now!
UT - Northern Utah (Hybrid)
04 Nov
November 4, 2023    
12:00 pm MDT - 2:00 pm MDT

Topic: Caregiver Support for Patients with PAH

Speaker: Jennifer Johnson, BSN, RN, CRNI

Sponsor: Janssen Pharmaceuticals

Leader: Lala Juarez

Email: xoLalaBear@grnail.com

Phone Number: 801-663-4897

 

More Info
Events on September 26, 2023
26 Sep
NJ - South Jersey (Virtual)
26 Sep 23
26 Sep
OR - NE Portland (Hybrid)
26 Sep 23
26 Sep
MI - Support Group of Michiana (In Person)
26 Sep 23
Events on September 27, 2023
27 Sep
Grupo de apoyo en español
27 Sep 23
27 Sep
Grupo de apoyo en español
27 Sep 23
27 Sep
Young Adult Support Group
27 Sep 23
Events on September 28, 2023
28 Sep
PHPN Symposium
28 Sep 23
28 Sep
FL - Orlando (Virtual)
28 Sep 23
28 Sep
Patient Support Group
28 Sep 23
Events on September 29, 2023
28 Sep
PHPN Symposium
28 Sep 23
Events on September 30, 2023
28 Sep
PHPN Symposium
28 Sep 23
30 Sep
NV - Reno (Virtual)
30 Sep 23
Events on October 7, 2023
07 Oct
MA - Greater Boston (Hybrid)
7 Oct 23
07 Oct
NY - Buffalo/Niagara PHriends (In Person)
7 Oct 23
07 Oct
CA - Sacramento (In Person)
7 Oct 23
Events on October 8, 2023
08 Oct
Columbus O<sub>2</sub>breathe Walk – Columbus, OH
8 Oct 23
Events on October 9, 2023
09 Oct
SC - Charleston (Hybrid)
9 Oct 23
Events on October 11, 2023
11 Oct
CT - U of Connecticut (In Person)
11 Oct 23
11 Oct
OH - Cincinnati North (In Person)
11 Oct 23
11 Oct
Parent Support Group
11 Oct 23
Events on October 12, 2023
12 Oct
Bereavement Support Group
12 Oct 23
12 Oct
OR - Central Oregon (Virtual)
12 Oct 23
Events on October 14, 2023
14 Oct
MN - Twin Cities (In Person)
14 Oct 23
14 Oct
VA - Northern VA (In Person)
14 Oct 23
14 Oct
IL - Elmhurst (In Person)
14 Oct 23
14 Oct
FL - Broward County (Virtual)
14 Oct 23
Events on October 15, 2023
15 Oct
Baltimore O<sub>2</sub>breathe Walk – Baltimore, MD
15 Oct 23
Events on October 17, 2023
17 Oct
IN - Indianapolis (In Person)
17 Oct 23
17 Oct
MI - Macomb Oakland (Virtual)
17 Oct 23
17 Oct
CTEPH Support Group
17 Oct 23
Events on October 18, 2023
18 Oct
Caregiver Support Group
18 Oct 23
Events on October 19, 2023
19 Oct
Webinar: Navigating 2024 Open Enrollment
19 Oct 23
Events on October 20, 2023
20 Oct
Driving “Fore” a Cure for PH – Clayton, NC
20 Oct 23
Events on October 21, 2023
21 Oct
Phoenix O<sub>2</sub>breathe Walk 2023 - Phoenix, AZ
21 Oct 23
Events on October 25, 2023
25 Oct
Grupo de apoyo en español
25 Oct 23
25 Oct
Grupo de apoyo en español
25 Oct 23
25 Oct
Young Adult Support Group
25 Oct 23
Events on October 26, 2023
26 Oct
Patient Support Group
26 Oct 23
Events on October 28, 2023
28 Oct
CA - San Luis Obispo (In Person)
28 Oct 23
Events on November 4, 2023
04 Nov
El Paso O<sub>2</sub>breathe Walk – El Paso, TX
4 Nov 23
04 Nov
FL - Tampa Bay Pediatric (Hybrid)
4 Nov 23
04 Nov
Monrovia O<sub>2</sub>breathe Walk – Monrovia, CA
4 Nov 23
04 Nov
IA - Iowa City (In Person)
4 Nov 23
04 Nov
UT - Northern Utah (In Person)
4 Nov 23
04 Nov
UT - Northern Utah (Hybrid)
4 Nov 23