PHA Events

Every year, there are more than 60 events taking place across the country to raise much-needed funds to support the PH community. Some events are hosted by PHA, and others are hosted by members in the community. However, every event brings together patients, caregivers and medical professionals to support one another in our fight against PH. Please join us in supporting the PH community by participating in an upcoming event near you!  Interested in hosting an event? Contact events@phassociation.org.

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NJ - South Jersey (Virtual)
27 Jun
June 27, 2023    
11:00 am EDT - 12:00 pm EDT

Topic: Chat, Air Quality, Advocacy

Speaker: Group Discussion

Leader: Bonnie Patricelli

Email: bonabona@comcast.net

Phone Number: 856-904-6867

 

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SD - Black Hills (In Person)
28 Jun
June 28, 2023    
1:00 pm MDT - 2:00 pm MDT

Topic: Open Topic-Check in

Leader: Rayetta Johnson

Email: ChasingSerenity@yahoo.com

Phone Number: 605-559-0560

 

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Grupo de apoyo en español
28 Jun
June 28, 2023    
8:00 pm EDT - 9:00 pm EDT

Únase a esta llamada de apoyo mensual para conectarse con otros pacientes y conversar sobre sus luchas y triunfos, así como para recibir apoyo y consejos de otros pacientes con hipertensión pulmonar (HP). Un paciente con HP facilitará las presentaciones y la conversación. Únase a la conversación o simplemente escuche.

Leader: Estella Medina

Email: stelmed76@gmail.com

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Young Adult Support Group
28 Jun
June 28, 2023    
8:00 pm EDT - 9:00 pm EDT

This meeting is held monthly for young adults with pulmonary hypertension who want to connect with other young adult patients via phone or video conferencing. The call is moderated by two young adult facilitators.

Meeting information will be sent to your email address when you submit your registration.

Leaders: Janessa Curnow and Shannon O’Donnell

Email: PHAGenerationHope@gmail.com

 

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Grupo de apoyo en español
28 Jun
June 28, 2023    
8:00 pm EDT - 9:00 pm EDT

Únase a esta llamada de apoyo mensual para conectarse con otros pacientes y conversar sobre sus luchas y triunfos, así como para recibir apoyo y consejos de otros pacientes con hipertensión pulmonar (HP). Un paciente con HP facilitará las presentaciones y la conversación. Únase a la conversación o simplemente escuche.

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OR - NE Portland (Hybrid)
30 Jun
June 30, 2023    
1:00 pm PDT - 2:00 pm PDT

Topic: Traveling with PH

Speaker: Megan Linebarger, BSN, RN

Sponsor: CVS Pharmacy

Leader: Brittany Watson

Email: portlandpah@gmail.com

Phone Number: 503-963-3161

 

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MN -Twin Cities (Virtual)
08 Jul
July 8, 2023    
10:00 am CDT - 12:00 pm CDT

Topic: Helping one another with our goals

Leader: Alice Yount

Email: ayount@helmsbriscoe.com

Phone Number: 952-221-5475

 

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TX - Houston (Virtual)
08 Jul
July 8, 2023    
11:00 am CDT - 1:00 pm CDT

Topic: Understanding How your PAH Can Be Monitored

Speaker: Adrian Felder, NP

Leader: Shirley Craig, Lauri Stanfield

Email: phnomore@att.net, lauric03@yahoo.com

Phone Number: 832-418-1405, 832-646-0429

 

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FL - Broward County (Virtual)
08 Jul
July 8, 2023    
1:00 pm EDT - 2:00 pm EDT

Topic:  Open Discussion

Leader: Pat Hellyer

Email: pathellyer79@gmail.com

Phone Number: 561-628-5597

 

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SC - Lowcountry Charleston (In Person)
10 Jul
July 10, 2023    
2:00 pm EDT - 4:00 pm EDT

Topic: Managing PH Medications and Side Effects

Speaker: Meghan Morrisette, PharmD

Leader: Kristine Ritenour

Email: ritenour@musc.edu

Phone Number: 843-792-2127

 

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NY - Mount Sinai (Virtual)
10 Jul
July 10, 2023    
5:00 pm EDT - 6:30 pm EDT

Topic: Traveling With Oxygen

Speaker: Ben Rocco, Community Surgical

Leader: Rachel Potter

Email: respiratoryinstitute@mssm.edu

Phone Number: 212-241-5656

 

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MI - Macomb-Oakland (Virtual)
11 Jul
July 11, 2023    
7:00 pm EDT - 8:30 pm EDT

Topic: It’s been a long time since we’ve seen each

other. Let’s touch base

Speaker: Carla Kinsey

Leader: Carla Kinsey

Email: moph-sg@outlook.com

Phone Number: 586-530-0160

 

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Town Hall: How Professionals Can Lead in PH Care
12 Jul
July 12, 2023    
3:00 pm EDT - 4:00 pm EDT
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OH - Cincinnati North (In Person)
12 Jul
July 12, 2023    
6:00 pm EDT - 7:30 pm EDT

Topic: Life After Diagnosis of PAH Moving Forward

Speaker: Jacqueline Brewer, Clinical Coordinator

Leader: Connie Gill

Email: cgill25@outlook.com

Phone Number: 513-368-8693

 

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Parent Support Group
12 Jul
July 12, 2023    
8:00 pm EDT - 9:00 pm EDT

Call in to connect, learn, and share strategies and experiences caring for your child with PH.

Meeting information will be sent to your email address when you submit your registration.

Leader: Jane Northrop

Email: jbones1961@gmail.com

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LA - New Orleans Area (Hybrid)
13 Jul
July 13, 2023    
10:30 am CDT - 12:30 pm CDT

Topic: PH Update

Speaker: Ben DeBoisblanc, MD

Leader: Linda Gates

Email:lgates62@aol.com

Phone Number: 985-651-5582

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OH - Southwest General (In Person)
13 Jul
July 13, 2023    
12:00 pm EDT - 1:00 pm EDT

Topic: Walk for Your Wellbeing

Speaker: Jacqueline Brewer, AGPCNP-BC

Sponsor: United Therapeutics Corporation

Leader: Tammy Stankard, RN, BSN

Email: tstankard@swgeneral.com

Phone Number: 440-384-9683

 

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Bereavement Support Group
13 Jul
July 13, 2023    
8:00 pm EDT - 9:00 pm EDT

Call in to meet others who have lost a loved one to PH. Connect, learn and share strategies and experiences dealing with grief and bereavement.

Meeting information will be sent to your email address when you submit your registration.

Leader: Betty Lou Wojciechowski

Email: bettylouwojo@gmail.com

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OR - Central Oregon (Virtual)
13 Jul
July 13, 2023    
5:00 pm PDT - 6:00 pm PDT

Topic: Advocate for your Wellbeing

Speaker: Grant Farr, DO

Sponsor: United Therapeutics Corporation

Leader: Michele Freeman

Email: oregonphgroup@gmail.com

Phone Number: 541-408-4943

 

 

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Bereavement Support Group
13 Jul
July 13, 2023    
8:00 pm EDT - 9:00 pm EDT

Call in to meet others who have lost a loved one to PH. Connect, learn and share strategies and experiences dealing with grief and bereavement. Register for an upcoming call and receive call instructions once registered.

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NM - UNMH Albuquerque (In Person)
14 Jul
July 14, 2023    
10:30 am MDT - 11:30 am MDT

Topic: Clinical Trials

Speaker: Lisa Robertson, RN

Leader: Evan Holm

Email: evholm@salud.unm.edu

Phone Number: 505-272-2815

 

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SC - Upstate South Carolina (In Person)
15 Jul
July 15, 2023    
12:00 pm EDT - 2:00 pm EDT

Topic: A PH Doctor’s Point of View

Speaker: Armin Meyer, MD, Pulmonologist

Leader: Sarah Contreras BSN, RN

Email: sarah.contreras@prismahealth.org

Phone Number:864-501-4258

 

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IL - Chicago South Side (In Person)
15 Jul
July 15, 2023    
12:00 pm CDT - 2:00 pm CDT

Topic: Pulmonary hypertension: Understanding the Basics (Scleroderma) and Living with PAH or CTEPH: Traveling with your Condition

Speaker: TBA

Sponsor: Bayer Healthcare

Leader: Lynn Bastian

Email: lmbastian@att.net

Phone Number: 630-621-6280

 

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CA - Sacramento (In Person)
15 Jul
July 15, 2023    
12:00 pm PDT - 2:00 pm PDT

Topic: Pulmonary arterial hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Coping with your Condition

Speaker: Namita Sood, MD

Sponsor: Bayer Healthcare

Leader: Pat Graham, Debbie Baugh

Email: phgroupsac@gmail.com

Phone Number: 410-353-0350, 916-206-3567

 

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CA - Long Beach (In Person)
15 Jul
July 15, 2023    
1:00 pm PDT - 3:00 pm PDT

Topic: Tips for Being an Empowered Patient

Speaker: Sandee Lombardi, RN

Leader: Annabel Mejoradi

Email: LongbeachPHgroup@gmail.com

Phone Number: 626-383-4216

 

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PA - U of Penn (Virtual)
18 Jul
July 18, 2023    
11:00 am EDT - 12:00 pm EDT

Topic: General Discussion

Leader: Colleen Connor

Email: connor_colleen@comcast.net

Phone Number: 610-329-4993

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IN - Indianapolis (In Person)
18 Jul
July 18, 2023    
6:00 pm EDT - 8:00 pm EDT

Topic: Exercise with PH and recent updates in PAH

Speaker: Sashi Adigopula, MD and Diane Brackin, NP

Leader: Diane Brackin

Email: dsmith4@ecommunity.com

Phone Number: 317-621-8486

 

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CTEPH Support Group
18 Jul
July 18, 2023    
8:00 pm EDT - 9:00 pm EDT

Join this monthly telephone support group to connect with other CTEPH patients and discuss struggles and triumphs and receive support and advice from others experiencing the same challenges.

Meeting information will be sent to your email address when you submit your registration.

Leader: Missy Storm

Email: missyjstorm@cox.net

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Caregiver Support Group
19 Jul
July 19, 2023    
7:00 pm EDT - 8:00 pm EDT

Join this monthly support call to connect, learn, and share strategies and experiences with PH caregivers and parents across the country. There is a PH caregiver present to facilitate introductions and present a discussion topic.

Meeting information will be sent to your email address when you submit your registration.

Leader: Michele Freeman

Email: oregonphgroup@gmail.com

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Paddle the Gallup PHore PH - Ann Arbor, MI
20 Jul
July 20, 2023    
3:30 pm EDT - 6:30 pm EDT
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PH Warrior Walk – Claremont, NH
22 Jul
July 22, 2023    
9:00 am EDT - 1:00 pm EDT
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GA - CSRA (Augusta) (In Person)
22 Jul
July 22, 2023    
11:00 am EDT - 1:00 pm EDT

Topic: TBD

Speaker: Janie Sims, RN

Leader: Marcie McGregor

Email: marcie.mcgregor@yahoo.com

Phone Number: 803-640-3406

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SC - Anderson, SC (In Person)
22 Jul
July 22, 2023    
1:00 pm EDT - 3:00 pm EDT

Topic: Pulmonary arterial hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Medication Adherence and Goals

Speaker: Abhijit Raval, MD

Sponsor: Bayer Healthcare

Leader: Kelly Dickson

Email: kelly.dickson@anmed.org

Phone Number: 864-512-6625

 

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NJ - South Jersey (Virtual)
25 Jul
July 25, 2023    
11:00 am EDT - 12:00 pm EDT

Topic: General

Leader: Bonnie Patricelli

Email: bonabona@comcast.net

Phone Number: 856-904-6867

More Info
Grupo de apoyo en español
26 Jul
July 26, 2023    
8:00 pm EDT - 9:00 pm EDT

Únase a esta llamada de apoyo mensual para conectarse con otros pacientes y conversar sobre sus luchas y triunfos, así como para recibir apoyo y consejos de otros pacientes con hipertensión pulmonar (HP). Un paciente con HP facilitará las presentaciones y la conversación. Únase a la conversación o simplemente escuche.

Leader: Estella Medina

Email: stelmed76@gmail.com

More Info
Young Adult Support Group
26 Jul
July 26, 2023    
8:00 pm EDT - 9:00 pm EDT

This meeting is held monthly for young adults with pulmonary hypertension who want to connect with other young adult patients via phone or video conferencing. The call is moderated by two young adult facilitators.

Meeting information will be sent to your email address when you submit your registration.

Leaders: Janessa Curnow and Shannon O’Donnell

Email: PHAGenerationHope@gmail.com

 

More Info
Grupo de apoyo en español
26 Jul
July 26, 2023    
8:00 pm EDT - 9:00 pm EDT

Únase a esta llamada de apoyo mensual para conectarse con otros pacientes y conversar sobre sus luchas y triunfos, así como para recibir apoyo y consejos de otros pacientes con hipertensión pulmonar (HP). Un paciente con HP facilitará las presentaciones y la conversación. Únase a la conversación o simplemente escuche.

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NC - Piedmont Area (Virtul)
27 Jul
July 27, 2023    
6:00 pm EDT - 7:30 pm EDT

Topic: The New Normal: Life After Diagnosis of PAH

Speaker: Katherine Boggs, PA

Leader: Diane Ramirez, Patti Sakoman

Sponsor: Janssen Pharmaceuticals

Email: diramirez87@yahoo.com, litlsis@bellsouth.net

Phone Number: 336-425-6335, 919-412-9795

 

 

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FL - Orlando (Virtual)
27 Jul
July 27, 2023    
6:30 pm EDT - 8:30 pm EDT

Topic: PAH Emergency Preparedness

Speaker: Jose Gonzalez, RN, Clinical Nursing Service Specialist PAH

Sponsor: CVS Pharmacy

Leader: Jane Northrop

Email: orlandophgroup@gmail.com

Phone Number: 321-245-8435

 

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Patient Support Group
27 Jul
July 27, 2023    
8:00 pm EDT - 9:00 pm EDT

Join this monthly support call to connect with other patients and discuss struggles and triumphs, and to receive support and advice from other PH patients. There is a PH patient present to facilitate introductions and conversation. Join the conversation or simply listen.

Meeting information will be sent to your email address when you submit your registration.

Leader: Carla Kinsey

Email: Carla_PSC@outlook.com

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PH Community Workshop - Boston
29 Jul
July 29, 2023    
8:00 am EDT - 3:00 pm EDT
More Info
Broadway My Way - An Evening of Song with Stephen Carter-Hicks
29 Jul
July 29, 2023    
8:00 am EDT - 2:00 pm EDT
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Boston O<sub>2</sub>breathe Walk
30 Jul
July 30, 2023    
9:00 am EDT - 1:00 pm EDT
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MD - Baltimore Hopkins (Virtual)
02 Aug
August 2, 2023    
1:00 pm EDT - 3:00 pm EDT

Topic: Boosting Energy and Quality of Life with Pulmonary Rehabilitation, Exercise and Diet

Speaker: Rachel Damico, MD, PHO

Leader: Laura Camponeschi  Julie Shamberger

Email: lcamponeschi@jhmi.edu, jshambe2@jhmi.edu

Phone Number: 410-614-6311, 410-614-6311

 

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FL - Tampa Bay Pediatric (In Person)
05 Aug
August 5, 2023    
10:00 am EDT - 12:00 pm EDT

Topic: Healthy Lifestyle

Speaker: Kate Ingebretsen, ACSM-CEP, CSCS Clinical Exercise Physiologist

Leader: Shelly Screen, Tori Alkire

Email: sscreen1@jhmi.edu, talkire1@jhmi.edu

Phone Number: 727-767-8416

 

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NY - Buffalo Niagara PHriends (In Person)
05 Aug
August 5, 2023    
12:00 pm EDT - 2:00 pm EDT

Topic: Summertime Safety Tips!

Speaker: Colleen Schnell, Support Group Leader

Leader: Colleen Schnell

Email: melonlady1724@hotmail.com

Phone Number: 716-297-1067

 

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Events on June 27, 2023
27 Jun
NJ - South Jersey (Virtual)
27 Jun 23
Events on June 28, 2023
28 Jun
SD - Black Hills (In Person)
28 Jun 23
28 Jun
Grupo de apoyo en español
28 Jun 23
28 Jun
Young Adult Support Group
28 Jun 23
28 Jun
Grupo de apoyo en español
28 Jun 23
Events on June 30, 2023
30 Jun
OR - NE Portland (Hybrid)
30 Jun 23
Events on July 8, 2023
08 Jul
MN -Twin Cities (Virtual)
8 Jul 23
08 Jul
TX - Houston (Virtual)
8 Jul 23
08 Jul
FL - Broward County (Virtual)
8 Jul 23
Events on July 10, 2023
10 Jul
SC - Lowcountry Charleston (In Person)
10 Jul 23
10 Jul
NY - Mount Sinai (Virtual)
10 Jul 23
Events on July 11, 2023
11 Jul
MI - Macomb-Oakland (Virtual)
11 Jul 23
Events on July 12, 2023
12 Jul
Town Hall: How Professionals Can Lead in PH Care
12 Jul 23
12 Jul
OH - Cincinnati North (In Person)
12 Jul 23
12 Jul
Parent Support Group
12 Jul 23
Events on July 13, 2023
13 Jul
LA - New Orleans Area (Hybrid)
13 Jul 23
13 Jul
OH - Southwest General (In Person)
13 Jul 23
13 Jul
Bereavement Support Group
13 Jul 23
13 Jul
OR - Central Oregon (Virtual)
13 Jul 23
13 Jul
Bereavement Support Group
13 Jul 23
Events on July 14, 2023
14 Jul
NM - UNMH Albuquerque (In Person)
14 Jul 23
Events on July 15, 2023
15 Jul
SC - Upstate South Carolina (In Person)
15 Jul 23
15 Jul
IL - Chicago South Side (In Person)
15 Jul 23
15 Jul
CA - Sacramento (In Person)
15 Jul 23
15 Jul
CA - Long Beach (In Person)
15 Jul 23
Events on July 18, 2023
18 Jul
PA - U of Penn (Virtual)
18 Jul 23
18 Jul
IN - Indianapolis (In Person)
18 Jul 23
18 Jul
CTEPH Support Group
18 Jul 23
Events on July 19, 2023
19 Jul
Caregiver Support Group
19 Jul 23
Events on July 20, 2023
20 Jul
Paddle the Gallup PHore PH - Ann Arbor, MI
20 Jul 23
Events on July 22, 2023
22 Jul
PH Warrior Walk – Claremont, NH
22 Jul 23
22 Jul
GA - CSRA (Augusta) (In Person)
22 Jul 23
22 Jul
SC - Anderson, SC (In Person)
22 Jul 23
Events on July 25, 2023
25 Jul
NJ - South Jersey (Virtual)
25 Jul 23
Events on July 26, 2023
26 Jul
Grupo de apoyo en español
26 Jul 23
26 Jul
Young Adult Support Group
26 Jul 23
26 Jul
Grupo de apoyo en español
26 Jul 23
Events on July 27, 2023
27 Jul
NC - Piedmont Area (Virtul)
27 Jul 23
27 Jul
FL - Orlando (Virtual)
27 Jul 23
27 Jul
Patient Support Group
27 Jul 23
Events on July 29, 2023
29 Jul
PH Community Workshop - Boston
29 Jul 23
29 Jul
Broadway My Way - An Evening of Song with Stephen Carter-Hicks
29 Jul 23
Events on July 30, 2023
30 Jul
Boston O<sub>2</sub>breathe Walk
30 Jul 23
Events on August 2, 2023
02 Aug
MD - Baltimore Hopkins (Virtual)
2 Aug 23
Events on August 5, 2023
05 Aug
FL - Tampa Bay Pediatric (In Person)
5 Aug 23
05 Aug
NY - Buffalo Niagara PHriends (In Person)
5 Aug 23