PHA Events

Every year, there are more than 60 events taking place across the country to raise much-needed funds to support the PH community. Some events are hosted by PHA, and others are hosted by members in the community. However, every event brings together patients, caregivers and medical professionals to support one another in our fight against PH. Please join us in supporting the PH community by participating in an upcoming event near you!  Interested in hosting an event? Contact events@phassociation.org.

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08 Feb
February 8, 2023    
12:00 pm CST - 2:00 pm CST

Topic: Can food improve your health?

Leader: Sophia Esteves

Email: ThePHWarrior@gmail.com

Phone Number: 210-464-8922

09 Feb
February 9, 2023    
8:00 pm EST - 9:00 pm EST

Call in to meet others who have lost a loved one to PH. Connect, learn and share strategies and experiences dealing with grief and bereavement.

Meeting information will be sent to your email address when you submit your registration.

Leader: Betty Lou Wojciechowski

Email: bettylouwojo@gmail.com

15 Feb
February 15, 2023    
2:00 pm EST - 3:00 pm EST

Topic: Pulmonary Hypertension Updates for 2023

Speaker: Catherine Simpson, MD, MHS

Leader: Julie Shamberger, Laura Camponeschi

Email: jshambe2@jhmi.edu, lcamponeschi@jhmi.edu

Phone Number: 410-614-6311, 410-614-6311

15 Feb
February 15, 2023    
7:00 pm EST - 8:00 pm EST

Join this monthly support call to connect, learn, and share strategies and experiences with PH caregivers and parents across the country. There is a PH caregiver present to facilitate introductions and present a discussion topic.

Meeting information will be sent to your email address when you submit your registration.

Leader: Michele Freeman

Email: oregonphgroup@gmail.com

16 Feb
February 16, 2023    
5:30 pm EST - 6:30 pm EST

Topic: Meet and Greet—Getting to Know Everyone —— We will be meeting LIVE and via ZOOM for those who wish to meet virtual.

Speaker: TBA

Leader: Michael McAdams

Email: memcadams@comcast.net

Phone Number: 717-781-4942

17 Feb
February 17, 2023    
11:00 am MST - 12:30 pm MST

Topic: Empowered Patient

Speaker: Demetrus Johnson, Janssen Pulmonary Hypertension

Sponsor: Janssen Pharmaceuticals

Leader:  Adriana Camila Mares, Estella Medina

Email: acvmares@yahoo.com, estella.epphighters@gmail.com

Phone Number: 915-301-2371, 915-208-2671

18 Feb
February 18, 2023    
7:00 am EST - 11:00 am EST
20 Feb
February 20, 2023    
6:00 pm CST - 7:00 pm CST

Topic: Research

Speaker: Research Coordinators from SLMC and FH

Leader: Tina Stiyer

Email: tina.stiyer@froedtert.com

Phone Number: 414-805-8884

21 Feb
February 21, 2023    
8:00 pm EST - 9:00 pm EST

Join this monthly telephone support group to connect with other CTEPH patients and discuss struggles and triumphs and receive support and advice from others experiencing the same challenges.

Meeting information will be sent to your email address when you submit your registration.

Leader: Missy Storm

Email: missyjstorm@cox.net

22 Feb
February 22, 2023    
2:00 pm EST - 3:00 pm EST
22 Feb
February 22, 2023    
8:00 pm EST - 9:00 pm EST

This meeting is held monthly for young adults with pulmonary hypertension who want to connect with other young adult patients via phone or video conferencing. The call is moderated by two young adult facilitators.

Meeting information will be sent to your email address when you submit your registration.

Leaders: Janessa Curnow and Shannon O’Donnell

Email: PHAGenerationHope@gmail.com

 

22 Feb
February 22, 2023    
8:00 pm EST - 9:00 pm EST

Únase a esta llamada de apoyo mensual para conectarse con otros pacientes y conversar sobre sus luchas y triunfos, así como para recibir apoyo y consejos de otros pacientes con hipertensión pulmonar (HP). Un paciente con HP facilitará las presentaciones y la conversación. Únase a la conversación o simplemente escuche.

Leader: Estella Medina

Email: stelmed76@gmail.com

23 Feb
February 23, 2023    
6:00 pm EST - 7:30 pm EST

Topic: Understanding Medicare Insurance

Speaker: Danielle Burkett, CMA Duke University Hospital

Leader: Diane Ramirez

Email: diramirez87@yahoo.com

Phone Number: 336-425-6335

23 Feb
February 23, 2023    
8:00 pm EST - 9:00 pm EST

Join this monthly support call to connect with other patients and discuss struggles and triumphs, and to receive support and advice from other PH patients. There is a PH patient present to facilitate introductions and conversation. Join the conversation or simply listen.

Meeting information will be sent to your email address when you submit your registration.

Leader: Carla Kinsey

Email: Carla_PSC@outlook.com

25 Feb
February 25, 2023    
11:00 am EST - 12:00 pm EST

Topic: Empowered Patient

Speaker: Dr. Raval, MD

Sponsor: Janssen Pharmaceuticals

Leader: Patti Sakoman, Josh Franson

Email: Litlsis@bellsouth.net, Josh.franson@gmail.com

Phone Number: 919-412-9795, 919-412-8137

25 Feb
February 25, 2023    
11:00 am EST - 1:00 pm EST

Topic: Beating The Winter Blues

Speaker: Susie Mcdevitt, DNP, ACNP-BC, Nurse Practitioner, U of M

Leader: Beverly Lipmyer

Email: beverlylip@comcast.net

Phone Number: 734 355 0295

26 Feb
February 26, 2023    
1:00 pm PST - 3:00 pm PST

Topic: Removing the mystery of PAH IV and SubQ Therapies & Potluck! Bring your favorite dish to share.

Speaker: Glenna Traiger, RN, MSN

Leader: Monica Penaranda

Email: mpenaranda562@gmail.com

Phone Number: 562-639-2053

28 Feb
February 28, 2023    
11:00 am EST - 12:30 pm EST

Topic: CTEPH Understanding the Basics and Experiencing Stress with your Condition

Speaker: Therese Sargent, NP

Leader: Bonnie Patricelli

Email: bonabona@comcast.net

Phone Number: 856-904-6867

03 Mar
March 3, 2023    
12:00 pm MST - 2:00 pm MST

Topic: Maddie’s Journey

Speaker: Lori Heaton, Mother of Deceased

Leader: Lala Juarez

Email: xoLalaBear@gmail.com

Phone Number: 801-663-4897

Events on February 8, 2023
Events on February 9, 2023
09 Feb
Events on February 15, 2023
Events on February 16, 2023
16 Feb
Events on February 17, 2023
Events on February 18, 2023
Events on February 20, 2023
Events on February 21, 2023
21 Feb
Events on February 22, 2023
Events on February 23, 2023
23 Feb
23 Feb
Events on February 25, 2023
25 Feb
25 Feb
Events on February 26, 2023
26 Feb
Events on February 28, 2023
28 Feb
Events on March 3, 2023