Join PHA in Boston

Join PHA in San Diego
Saturday, May 6, 2023
8 a.m. 3 p.m. PST

Attend a free workshop on managing and thriving with pulmonary hypertension in Boston. Led by top health care providers and experts in the field, the PH Community Workshop is your chance to learn and network with leading PH specialists in the Greater Boston area. Whether you’re a patient, caregiver, family member, or health care professional, you’re invited to attend this informational event. Don’t wait to register – seating is limited!

 

You also can register by phone. Call 301-565-3004 x3030 and leave a detailed voicemail. Be sure to mention registration for the Boston Workshop event. We will call you back to complete your registration.

This is a free event for people with PH, caregivers and health care professionals. Please consider making a donation to PHA to enable us to continue offering free patient education.

Would you like to be notified of future PHA events in the Boston area?

PH Community Workshop
Boston, MA

When:
Saturday, July 29, 2023
8 a.m to 3 p.m. EDT

Where:
Boston Marriott Burlington

One Burlington Mall Road
Burlington MA 01803
Free parking included

Directions

Who Should Attend:
• People with PH: Childhood onset to adult.
• Parents, young adults and kids with PH.
• Health care professionals.

Agenda

Event Time
8–9 a.m. Registration, Breakfast and Exhibits
9:00 a.m. – 3:30 p.m. Kid’s Room
9–9:50 a.m.

Welcome and Introduction to the Pulmonary Hypertension Association

PH 101: Understanding Your PH Diagnosis

9:50–10 a.m. Break & Exhibits
10–10:50 a.m.

Breakout Sessions #1

  • Understanding Childhood Onset PH
  • Importance of Risk Stratificationin in Adult PH
  • Coordinated Care for PH Patients
10:50–11:20 a.m. Break & Exhibits
11:20 a.m.–12:10 p.m.

Breakout Sessions #2

  • Understanding Genetic Risk in PAH
  • Benefits of Exercise and Diet
  • Life with Childhood Onset PH
12:10–1:10 p.m.

Networking Lunch

Expert Q&A 

Keynote Presentation

1:10–1:20 p.m. Break & Exhibits
1:20–2:10 p.m.

Support Group Meetings

  • Patients: Support Group for PH patients
  • Parents: Support Group for parents of kids with PH
  • Caregivers: Support Group for people who love someone with PH
2:10–2:50 p.m.

General Session #2

Spotlight on PH Research

2:50–3:00 p.m. PHA Resources
3 p.m. Program Close

Program chairs

Mary P. Mullen, M.D., Ph.D.
Director, Pulmonary Hypertension Service
Department of Cardiology
Boston Children’s Hospital

Elieen Harder, M.D.
Fellow Physician
Department of Pulmonary and Critical Care Medicine
Brigham and Women’s Hospital

Kids Room

The Kids Room is open to all children and teens ages 3 to 17 attending the Workshop. The space is hosted by a professional childcare company and includes games and activities for all ages. This is a great opportunity for children and teens who are impacted by PH to meet and connect.

COVID-19 precautions

PHA is dedicated to the health and safety of our community. To ensure a safe in-person event, all attendees must be fully vaccinated and wear masks. View PHA’s COVID-19 safety policy for more information.

Code of conduct

PHA is committed to ensuring a safe and welcoming environment for all members of the community and staff either interacting one-on-one or at PHA sponsored- or sanctioned-events. View PHA’s Code of Conduct.

Hotel

Boston Marriott Burlington
One Burlington Mall Road,
Burlington MA 01803

PHA does not have a room block and/or discounted rates.

Join PHA today

Become a PHA member and join our global network of people with PH, caregivers, supporters and health care professionals. Enjoy discounts to future PHA events, exclusive webinars, PHA’s Pathlight magazine and advocacy leadership opportunities.