I wanted to introduce myself. My name is Dale and I was diagnosed with Pulmonary Veno Occulsive Disease about 2 years ago. I go to the clinic at Vanderbilt. I am on full time oxygen and attending pulmonary rehab currently. I have a wife named Anita and a son named Brian.
My name is Dana and I had a heart cath. left and right last October which gave me the diagnoses. March 4th I was diagnosed with needing oxygen when I exert myself. I currently am having to be my own advocate and stay on my doctors to move the process along. I have not been to the Vanderbilt specialist yet but my pulmonologist is working on my referral (it’s been 6 weeks and just called again today). I’ve been left in the dark and am looking for any and all help/advise I can fine related to my prognosis and diagnosis.
I am currently working a full-time job and have an ailing mother (Phyllis) who lives with me. I am divorced and am an only child.