Introduction 2019-03-04T18:35:55+00:00
  • Author
    Posts
  • Dale Pace
    Participant
    Post count: 1
    #11169 |

    Good morning,
    I wanted to introduce myself. My name is Dale and I was diagnosed with Pulmonary Veno Occulsive Disease about 2 years ago. I go to the clinic at Vanderbilt. I am on full time oxygen and attending pulmonary rehab currently. I have a wife named Anita and a son named Brian.

  • Dana
    Participant
    Post count: 1

    Good afternoon.
    My name is Dana and I had a heart cath. left and right last October which gave me the diagnoses. March 4th I was diagnosed with needing oxygen when I exert myself. I currently am having to be my own advocate and stay on my doctors to move the process along. I have not been to the Vanderbilt specialist yet but my pulmonologist is working on my referral (it’s been 6 weeks and just called again today). I’ve been left in the dark and am looking for any and all help/advise I can fine related to my prognosis and diagnosis.
    I am currently working a full-time job and have an ailing mother (Phyllis) who lives with me. I am divorced and am an only child.

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