Private Discussion Forums 2018-04-03T23:16:15+00:00

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  • Ava
    Post count: 26
    #8473 |

    Hi everyone,
    I’m just letting you know that I can’t access the Private Discussion Forums (Introduce Yourself and Living With PH), so can’t read any comments made there or post a reply.

    I’ve let the PHA team know and they are working on a solution (we’ve tried all the obvious things). I’ve tried posting in those forums a couple of times, but while it apparently posts my comments, I still can’t access them.

    Meanwhile, I’ve just been using this (General Discussion) Forum. I’m not sure if others are having the same problem or if it’s just me, but I thought I’d let you know that for now, I can only respond to posts in this forum.

  • NancyLee DeGreif
    Post count: 3

    I was going to a Dr. who was supposed to be a PH specialist. The last time I saw her, she told me that after age 80 she would just let nature take it’s course; no tests or meds. She discontinued some of my meds and then I got into trouble. Obviously I don’t go to her anymore….. I’ll be 86 this month and I am still fairly active with some PH limitations.

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