My wife (who is the one with PAH) and I are planing on a trip from Maine to Montana and other places along the way, and back via Wyoming, Nebraska, Missouri Indianapolis … and well, after doing a bit of research this seems like not such a good idea?
Maine’s average mean altitude is 600′ and many of the areas we are considering are 6,700′ + – . Most of the East coast is 300 to 1,000′
She has on occasion a bit of a hard time walking 1/4 mile or so with having to stop to catch her breath, and it seems like going that high in altitude may be even harder to breath. No she is not currently on oxogen.
Also, have folks found a site that lists doctors and hospitals that offer service, care for folks with PAH across the country. We’d like to know where to go should something happen along the way