"You don't look sick" — Diane Ramirez's Patient Voice in New York Times 2018-04-03T18:40:19+00:00

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  • PHA Staff
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    #8472 |

    PHA Board Member and longtime PH survivor Diane Ramirez was featured in a New York Times Well profile — read her story and listen at https://www.nytimes.com/interactive/2018/03/27/well/patient-voices-rare.html. For many in the PH community, her experiences are easy to relate to. She finds she has to educate new doctors on this rare disease and struggles with the frustrations that come from living with an “invisible” disease.

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