Janet Mabe of Murrells Inlet, South Carolina, learned early in her diagnosis that she has pulmonary hypertension (PH), but PH doesn’t have her. Now, she volunteers for the PHA Support Line to help other patients cope with their diagnosis.
“I just love it when a caller understands that it’s okay to love living a good, healthy, enjoyable life and set aside the fear of death,” she says.
PHA’s Support Line is a resource for people with PH, caregivers and others in the community. While volunteers can’t give medical advice, they share their own experiences, listen and connect callers to helpful resources.
Noel Holly, of Costa Mesa, California, enjoys volunteering for the support line because she likes to give encouragement to newly diagnosed patients and let them know they’re not alone. “There are others who understand their concerns and can give them hope,” she says.
Linda Valdez, a PHA Support Line volunteer from Wheaton, Illinois, enjoys giving others hope and an understanding that there is a way to get through this disease.
“My favorite parts of volunteering on the PHA support line are providing the support and resources an individual may need to get through a day and helping them understand they can reach out and be heard,” she says. “We are here to help no matter what they need.”
Volunteering for the PHA Support Line is a safe way to support the PH community during the pandemic, when virtual support is crucial. Apply to volunteer here.