World PH Day is held on May 5.
Learn more at www.WorldPHDay.org.
PHA Joined Global PH Partners for Successful 2018 World PH Day Campaign
Throughout May, beginning on World PH Day, May 5, 86 global partner organizations joined forces in a worldwide awareness campaign to advocate for access to pulmonary hypertension (PH) diagnosis, treatment and care.
PH can exist alone or in association with many other conditions. In the developed world, PH is most commonly associated with left heart disease. In the underdeveloped world, schistosomiasis, caused by parasitic flatworms – also known as snail fever — is the greatest cause of PH. Other PH-associated diseases include connective tissue disorders, blood clots to the lungs, HIV, sickle cell anemia, COPD, as well as and many other conditions. PH has also been associated with methamphetamine use.
The campaign got a head start with a global Thunderclap effort that ensured delivery of a World PH Day notification to a record 4,378,727 million people in nations around the world. Beginning May 5, organizations shared photos, stories and social media messages linked by an image of two linked hearts, the 2018 World PH Day campaign symbol. The two-hearts logo symbolizes unity and the need for greater awareness of the disease. The mirrored hearts indicate that the health of the heart’s right ventricle is as important as the health of the left ventricle. This important detail is often overlooked in medical screenings. The image was the choice of representatives from 29 countries from Australia, Africa, Asia, Europe, Central America, North America and South America from countries as diverse as South Africa, South Korea, the Philippines, Nepal, Israel and China.
Resources available to help the global PH community participate in the campaign included toolkits from PHA Europe and PHA. PHA’s kit provided easy-to-translate English-language social media messages and memes directing the public to information about medical, advocacy and community support resources.
PHA thanks all international PH organizations and community members who helped make the 2018 effort a success.