The summer issue of Pathlight magazine focuses on pulmonary hypertension (PH) research. This issue of the Pulmonary Hypertension Association (PHA) member magazine focuses on research advancements, technology innovations and the importance of patient participation in clinical trials and studies.
Our cover story, “Innovation for an Independent Life,” is a first-person story by software developer and entrepreneur Shavini Fernando. Shavini, who has PH, invented a wearable device to continuously monitor oxygen saturation. Shavini created her company, OxiWear, while pursuing a master’s degree at Georgetown University.
In “Testing Tyvaso: Trial Participant Takes Control of Her Health,” Catherine Falardeau relates her experience in testing a drug for PH related to interstitial lung disease (ILD). While her trial medication, Tyvaso, has been on the market for over a decade, its success and ultimate FDA approval for PH associated with ILD was established in this important trial.
In “Medical Heroes Behind the Data,” Monica Penaranda, Linda Sullivan and Susan Huber share their experiences about participating in clinical trials and other studies. And PHA Board Chair Colleen Brunetti recounts the challenges and triumphs of “Participating in Research During a Pandemic.”
“The Future of PH Care” goes behind the scenes with Corey Ventetuolo, M.D., and Steven Kawut, M.D., M.S. The doctors piloted a study during the COVID-19 pandemic that could validate at-home six-minute walk tests. Such digital tools expand the possibilities of how patients and doctors can work together to monitor health progress.
These stories and other inspiring content are available only in Pathlight magazine, a benefit of your PHA membership. If you’re not a PHA member, join today to enjoy Pathlight, reduced PHA 2022 Conference rates and more. Choose the membership category that is best for you.
By joining at the Supporter, Leadership or Champion level, you support PHA’s patient programs, including PHA On the Road educational forums and PHA support groups. To join by phone, call 301-565-3004 x810.