This March issue of Pathlight is about creating and maintaining hope with pulmonary hypertension (PH). In this issue, people with PH and those who care for them share activities and experiences that inspire them to keep pushing forward. They hope their stories will offer hope to others in the PH community.
Here are a few of the people you’ll meet in the March issue:
In “Living Each Day to the Fullest in Mexico City,” longtime PHA volunteer Adriana Posada shares how she gives hope to others. A PHA PHriend and support group leader in Mexico City, Adriana advocates for treatment access and financial assistance in Mexico.
Our cover story explores “Art from the Heart.” Three people who participated in the PHA 2018 art gallery discuss how art helps them cope with PH, the pandemic and other stressors. If art helps you cope, join Bill Kolm, Sylvia Bandyke and Kathy Anderson in submitting your work for the PHA 2022 International PH Conference and Scientific Sessions Art Gallery. It’s not too late to share hope through your art, too. Apply by April 8 to participate.
In “Family ‘Bands’ Together to Fight Heritable PH,” we meet Rhonda Cramer, who was 15 when she lost her mother to PH. Fifteen years later, Rhonda was diagnosed with hereditable PH. Rhonda has been inspired to raise money annually for PHA.
We hear from Nadine Al-Naamani, M.D., in “PAH Trial Participants Inspire Doctor’s Passion for PH Research.” Dr. Al-Naamani was inspired to become a doctor after growing up in Beirut during the civil war in Lebanon. Today, she treats people with PH and other serious lung conditions at Penn Medicine in Philadelphia, as well as conducts PH research.
In “Finding and Giving Hope as a Volunteer,” Sue Liss of Chicago shares how the hopelessness she felt at diagnosis changed over the past 14 years. “I am still going strong,” says the patient support line volunteer. “I believe that gives hope to callers.”
These stories and other inspiring content are available only in Pathlight magazine, a benefit of your PHA membership. If you’re not a PHA member, join today to enjoy Pathlight, reduced PHA 2022 Conference rates and more. Choose the membership category best for you.
By joining at the Supporter, Leadership or Champion level, you support PHA’s patient programs, including PHA educational forums and support groups. To join by phone, call 301-565-3004 x810.