Do you have HHT? The Pulmonary Hypertension Association (PHA) created a new Facebook group with Cure HHT.
The new group is for people with PH and hereditary hemorrhagic telangiectasia (HHT). The genetic disorder, also known as Osler-Weber-Rendu, causes blood vessel abnormalities. The abnormalities often cause excessive bleeding of the organs. The most common symptom is nose bleeds. HHT affects about 1.4 million people, according to Cure HHT.
The group’s launch leads up to HHT Awareness Month in June.
Cure HHT was founded in 1991, the same year as PHA. Like PHA, Cure HHT advocates for patients and families; raises awareness; and funds and promotes research.
If you have PH and HHT, join a community dedicated to people affected by the same conditions. Make sure you answer the group’s membership questions to be approved. Join now.