Support Group Meeting Calendar

This information is for caregivers and patients, not for solicitations or commercial use.

Support group leaders: Submit your event to the calendar and a postcard mailing (you will be prompted to sign in).

Monday
Tuesday
Wednesday
Thursday
Friday
Saturday
Sunday
M
T
W
T
F
S
S
26
27
29
1
3
4
6
7
11
15
22
25
29
31
28 Feb
February 28, 2024    
12:00 pm PST - 1:00 pm PST

Topic: PAH Emergency Preparedness

Speaker: Sarah King Brown, BSN, RN

Sponsor: CVS Pharmacy

Leader: Brittany Watson, RN

Email: bwatson@orclinic.com

Phone Number: 503-963-3161

 

 

28 Feb
February 28, 2024    
8:00 pm EST - 9:00 pm EST

Únase a esta llamada de apoyo mensual para conectarse con otros pacientes y conversar sobre sus luchas y triunfos, así como para recibir apoyo y consejos de otros pacientes con hipertensión pulmonar (HP). Un paciente con HP facilitará las presentaciones y la conversación. Únase a la conversación o simplemente escuche.

28 Feb
February 28, 2024    
8:00 pm EST - 9:00 pm EST

This meeting is held monthly for young adults with pulmonary hypertension who want to connect with other young adult patients via phone or video conferencing. The call is moderated by two young adult facilitators.

Meeting information will be sent to your email address when you submit your registration.

Leaders: Janessa Curnow and Shannon O’Donnell

Email: PHAGenerationHope@gmail.com

 

02 Mar
March 2, 2024    
11:00 am CST - 1:00 pm CST

Topic: Hope for the future: New Pulmonary Hypertension Therapies

Speaker: Amy Chybowski, NP

Leader: Amy Chybowski

Email: achybowski@uwhealth.org

Phone Number: 608-217-5667

 

02 Mar
March 2, 2024    
1:00 pm EST - 2:00 pm EST

Topic: New PH Medications

Speaker: Hernando Garcia, MD, FCCP

Leader:  Pat Hellyer

Email: pathellyer79@gmail.com

Phone Number: 561-628-5597

02 Mar
March 2, 2024    
11:00 am MST - 1:00 pm MST

Topic: Q & A Roundtable

Speaker: Stephanie Bert, LISAC

Leader: Stacy Zygmont

Email: stacyzygmont@yahoo.com

Phone Number: 520-256-5803

02 Mar
March 2, 2024    
1:00 pm PST - 3:00 pm PST

Topic: Meet & Greet Social Meeting

Leader: Lakota Spoolman

Email: phlasvegasgroup@yahoo.com

Phone Number: 702-600-7249

 

05 Mar
March 5, 2024    
11:00 am EST - 12:15 pm EST

Topic: TBA

Leader: Bonnie Patricelli

Email: bonabona@comcast.net

Phone Number: 856-904-6867

 

05 Mar
March 5, 2024    
6:00 pm EST - 7:00 pm EST

Topic: Zoom check in & PHA 2024 Conference

Leader: Diane Leavitt

Email: dleavitt1616@gmail.com

Phone Number: 207 -776-0113

 

08 Mar
March 8, 2024    
10:30 am MST - 11:30 am MST

Topic: TBA

Speaker: Evan Holm, LMSW SWCM

Leader: Evan Holm

Email: evholm@salud.unm.edu

Phone Number: 505-272-2815

 

09 Mar
March 9, 2024    
11:00 am EST - 1:00 pm EST

Topic: Exercise and PAH

Speaker: Denise Lewis, RN, Live Chair Zumba Class w/ Laurel

Sponsor: Janssen Pharmaceuticals

Leader:  Chris Calvert

Email: circles69@calvert.cc

Phone Number: 804-357-1457

 

09 Mar
March 9, 2024    
10:00 am CST - 12:00 pm CST

Topic: Pulmonary hypertension: Understanding the Basics (CTEPH) and Living with PAH or CTEPH: Coping with your Condition

Speaker: Lauren Hulett, RN

Sponsor: Bayer Healtchcare

Leader:  Alice Yount

Email: ayount@helmsbriscoe.com

Phone Number: 952-221-5475

 

09 Mar
March 9, 2024    
12:00 pm EST - 2:00 pm EST

Topic: Checking in with Dr. Mughal

Speaker: Majid Mughal, MD

Leader: Karen Sawyer

Email: Luluidapple@gmail.com

Phone Number: 517-420-6457

 

09 Mar
March 9, 2024    
1:00 pm EST - 2:30 pm EST

Topic: Mindful Self-Compassion

Speaker: Donald Friedman, MD, Associate Professor of Medicine

Leader: Leslie Polss, Coleen Makovicz

Email:lpolss@msn.com, erte9355@hotmail.com

 

 

09 Mar
March 9, 2024    
1:00 pm EST - 3:00 pm EST

Topic: TBA

Leader:  Terrie Keplinger

Email: terrie.keplinger@gmail.com

Phone Number: 423-732-9344

 

09 Mar
March 9, 2024    
1:00 pm EST - 2:30 pm EST

Topic: Risk Assessment/PAH Tracking

Speaker: Katherine Boggs, PA

Sponsor: Janssen Pharmaceuticals

Leader: Mary Hale

Email: halemary2003@hotmail.com

Phone Number:937-926-0095

 

10 Mar
March 10, 2024    
1:00 pm MDT - 3:00 pm MDT

Topic: Randomized Trial of Sedative Choice for Intubation Information & Feedback

Speaker: Cori Withers & Adit Ginde, University of Colorado

Leader: Jody Miller

Email: jtani1O@aol.com

Phone Number: 720-244-4048

 

12 Mar
March 12, 2024    
1:00 pm EDT - 3:00 pm EDT

Topic: Treatment Pathways

Speaker: Jeffrey Stewart, MD

Leader: Jane Armstrong

Email: janenlnh@tds.net

Phone Number: 603-658-1234

 

 

13 Mar
March 13, 2024    
6:00 pm EDT - 7:00 pm EDT

Topic: Living with Pulmonary Hypertension and Lessons Learned

Speaker: Tiffani Brown, PH patient

Leader: Lisa Laughlin, Pam Johnson

Email: lisa_laughlin@trihealth.com, pamjohnson@trihealth.com

Phone Number: 513-865-1289, 513-246-4054

13 Mar
March 13, 2024    
8:00 pm EDT - 9:00 pm EDT

Call in to connect, learn, and share strategies and experiences caring for your child with PH.

Meeting information will be sent to your email address when you submit your registration.

Leader: Jane Northrop

Email: jbones1961@gmail.com

14 Mar
March 14, 2024    
6:00 pm EDT - 8:00 pm EDT

Topic: Exercising with PH

Speaker: Andrew Kolodziej, MD

Leader: Evelyn Mitchell

Email: evelynkmitchell@yahoo.com

Phone Number: 859-396-2476

 

16 Mar
March 16, 2024    
11:00 am EDT - 1:00 pm EDT

Topic: Emotional Health and PH, Staying out of Depression

Speaker: Michele Freeman, LPC, NCC

Leader: Marcie McGregor

Email: marcie.mcgregor@yahoo.com

Phone Number: 803-640-3406

 

16 Mar
March 16, 2024    
11:00 am CDT - 12:15 pm CDT

Topic: Clinical Trials and April 6 Community Meeting

Speaker: Sandeep Sahay, MD, FCCP, Houston PH Clinic

Leader: Shirley Craig, or Lauri Stanfield

Email: phnomore@att.net, lauric03@yahoo.com

Phone Number: 832-418-1405, 832-646-0429

 

16 Mar
March 16, 2024    
12:00 pm EDT - 2:00 pm EDT

Topic: The New Normal: Life After Diagnosis of PAH

Speaker:  Amy Sisk, RPH Sanger Heart & Vascular

Sponsor: Janssen Pharmaceuticals

Leader: Barbara Stubbs

Email: BStubbsPH@gmail.com

Phone Number: 864-607-4084

 

 

16 Mar
March 16, 2024    
1:00 pm CDT - 3:00 pm CDT

Topic: Relationships and PAH

Speaker: Sophia Esteves, Global Patient Advocate & PHA Support Group Leader

Sponsor: Janssen Pharmaceuticals

Leader: Sophia Esteves

Email: ThePHWarrior@Gmail.Com

Phone Number: 210-464-8922

 

16 Mar
March 16, 2024    
12:00 pm PDT - 2:00 pm PDT

Topic: Open Forum

Leader: Pat Graham, Debbie Baugh

Email: patalgram@gmail.com

Phone Number: 410-353-0350, 916-206-3567

 

17 Mar
March 17, 2024    
3:00 pm CDT - 4:30 pm CDT

Topic: 5 Questions To Assess Your Risk With PAH

Leader: Margie Chan, Sue Liss 720-334-4136

Email: mchan624@aol.com

Phone Number: 773-398-9155

 

18 Mar
March 18, 2024    
2:00 pm EDT - 4:00 pm EDT

Topic: Oxygen Therapy and Delivery Systems

Speaker: Wayne Barfield, RT

Leader: Kristine Ritenour

Email: ritenour@musc.edu

Phone Number: 843-792-2127

 

19 Mar
March 19, 2024    
11:00 am EDT - 12:15 pm EDT
$0.00

Topic: Nutrition

Speaker: Aubrey Redd, MS, RON, LON

Leader: Colleen Connor

Email: connor_colleen@comcast.net

Phone Number: 610-329-4993

 

19 Mar
March 19, 2024    
5:00 pm EDT - 6:00 pm EDT
$0.00

Topic: The New Normal: Life After Diagnosis of PAH

Speaker: Denise Lewis, BSN, RN

Sponsor: Janssen Pharmaceuticals

Leader: Tammy Slankard, BSN, RN, Kim Handa, BSN, RN

Email: tstankard@swgeneral.com

Phone Number: 440-384-9683

 

19 Mar
March 19, 2024    
6:00 pm EDT - 7:30 pm EDT
$0.00

Topic: The New Normal: Life After Diagnosis of PAH

Speaker: Katherine Boggs, PA

Sponsor: Janssen Pharmaceuticals

Leader: April Blakley

Email: ablakle1@iuhealth.org

Phone Number: 317-963-1860

 

19 Mar
March 19, 2024    
8:00 pm EDT - 9:00 pm EDT
$0.00

Join this monthly telephone support group to connect with other CTEPH patients and discuss struggles and triumphs and receive support and advice from others experiencing the same challenges.

Meeting information will be sent to your email address when you submit your registration.

Leader: Missy Storm

Email: missyjstorm@cox.net

20 Mar
March 20, 2024    
5:30 pm EDT - 7:00 pm EDT
$0.00

Topic: Pulmonary arterial hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Traveling with your Condition

Speaker: Mohsen Noreldin, MD

Sponsor: Bayer Healthcare

Leader: Julie Shea, Stephanie Krusch

Email: jushea@uchc.edu, skrusch@uchc.edu

Phone Number: 860-679-8300

 

20 Mar
March 20, 2024    
7:00 pm EDT - 8:00 pm EDT
$0.00

Join this monthly support call to connect, learn, and share strategies and experiences with PH caregivers and parents across the country. There is a PH caregiver present to facilitate introductions and present a discussion topic.

Meeting information will be sent to your email address when you submit your registration.

Leader: Michele Freeman

Email: oregonphgroup@gmail.com

21 Mar
March 21, 2024    
4:00 pm MDT - 6:00 pm MDT
$0.00

Topic: Medication Review

Leader: Brandi Orr

Email: brandi.bolton-orr@imail.com

Phone Number: 801-507-4800

 

23 Mar
March 23, 2024    
11:00 am EDT - 2:00 pm EDT
$0.00

Topic: Pulmonary hypertension: Understanding the Basics (CTEPH)

Speaker: Omar Minai, MD

Sponsor: Bayer Healthcare

Leader: Patrice Moses, Betsy Daniel

Email: rsndolph20@gmail.com, Bdaniel@paraccess.com

Phone Number: 804-939-2003, 804-591-3533

 

23 Mar
March 23, 2024    
9:00 am MDT - 11:00 am MDT
$0.00

Topic: Health in PAH

Speaker: Naomi Habib, MD & Akshay Muralidhar, MD

Leader: Akshay Muralidhar

Email: phxnew@azpulm.com

Phone Number: 602-274-7195

 

23 Mar
March 23, 2024    
11:00 am EDT - 1:00 pm EDT
$0.00

Topic: Risk Assessment/PAH Tracking

Speaker: Denise Lewis, RN, BSN

Sponsor: Janssen Pharmaceuticals

Leader: Beverly Lipmyer

Email: beverlylip@comcast.net

Phone Number: 734-355-0295

 

23 Mar
March 23, 2024    
11:00 am CDT - 2:30 pm CDT
$0.00

Topic: Advocate for your Wellbeing

Speaker: Adrian Felder, MS, RN, AGNP-C

Sponsor: United Therapeutics Corporation

Leader: Karen Fragale

Email: Believegod2@yahoo.com

Phone Number: 515-259-1030

 

23 Mar
March 23, 2024    
12:00 pm CDT - 2:00 pm CDT
$0.00

Topic: Pulmonary arterial hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Medication Adherence and Goals

Speaker: Sahil Bakshi, DO, Cardiologist

Sponsor: Bayer Healthcare

Leader: Debra Hines, Gary Bruce

Email: msddhines@gmail.com, glbmoney51@gmail.com

Phone Number: 562-230-7593, 214-714-2487

 

24 Mar
March 24, 2024    
11:00 am PDT - 1:00 pm PDT
$0.00

Topic: TBD

Speaker: TBD

Leader: LaKeshia Orr

Email: n/a

Phone Number: 909-682-0926

 

26 Mar
March 26, 2024    
1:00 pm EDT - 3:00 pm EDT
$0.00

Topic: Advocate for your Wellbeing

Speaker: TBD

Sponsor: United Therapeutics Corporation

Leader: Matt Schatti, RN, Joyce Kossman

Email: joyce.jay@att.net

Phone Number: 757-388-9138

27 Mar
March 27, 2024    
10:30 am CDT - 12:30 pm CDT
$0.00

Topic: The New Normal: Life After Diagnosis of PAH

Sponsor: Janssen Pharmaceuticals

Leader: Linda Gates

Email: lgates62@aol.com

Phone Number: 985-651-5582

 

27 Mar
March 27, 2024    
12:00 pm EDT - 2:00 pm EDT
$0.00

Topic: Meet and Greet

Speaker: Linda Santos Morgan, PHA support group leader

Leader: Linda Santos Morgan

Email: morgan.linda.s@icloud.com

Phone Number: 619-764-2617

 

27 Mar
March 27, 2024    
8:00 pm EDT - 9:00 pm EDT
$0.00

This meeting is held monthly for young adults with pulmonary hypertension who want to connect with other young adult patients via phone or video conferencing. The call is moderated by two young adult facilitators.

Meeting information will be sent to your email address when you submit your registration.

Leaders: Janessa Curnow and Shannon O’Donnell

Email: PHAGenerationHope@gmail.com

 

27 Mar
March 27, 2024    
8:00 pm EDT - 9:00 pm EDT
$0.00

Únase a esta llamada de apoyo mensual para conectarse con otros pacientes y conversar sobre sus luchas y triunfos, así como para recibir apoyo y consejos de otros pacientes con hipertensión pulmonar (HP). Un paciente con HP facilitará las presentaciones y la conversación. Únase a la conversación o simplemente escuche.

28 Mar
March 28, 2024    
5:30 pm EDT - 7:00 pm EDT
$0.00

Topic: Traveling with PH

Speaker: Debbie Kittel, RN, PH Nursing Program Manager

Leader:  Tiffani Brown, Debbie Kittel

Email: tiffani9094@gmail.com

Phone Number: 614-325-3941, 614-203-5006

 

28 Mar
March 28, 2024    
6:30 pm EDT - 8:30 pm EDT
$0.00

Topic: 5 Things You Should Know Before Your Next PAH Appointment

Speaker:  Jane Northrop, Support Group Leader

Leader: Jane Northrop

Email: jbones1961@gmail.com

Phone Number: 321-245-8435

 

28 Mar
March 28, 2024    
8:00 pm EDT - 9:00 pm EDT
$0.00

Join this monthly support call to connect with other patients and discuss struggles and triumphs, and to receive support and advice from other PH patients. There is a PH patient present to facilitate introductions and conversation. Join the conversation or simply listen.

Meeting information will be sent to your email address when you submit your registration.

Leader: Carla Kinsey

Email: Carla_PSC@outlook.com

30 Mar
March 30, 2024    
9:00 am EDT - 11:00 am EDT
$0.00

Topic: Nutrition Supplements and Sodium/Fluid Balance

Speaker: Mary Whitenhall, MSN, AGACNP-BC

Leader: Ashley Horton

Email: bostonphs@gmail.com, wendybostonph@gmail.com

Phone Number: 708-307-6637

 

30 Mar
March 30, 2024    
1:00 pm EDT - 3:00 pm EDT
$0.00

Topic: Traveling with PH

Sponsor: CVS Pharmacy

Leader: Pat Ofori

Email: 0forihhp72@aol.com

Phone Number: 646-504-9506

 

Events on February 28, 2024
28 Feb
28 Feb
28 Feb
Events on March 2, 2024
Events on March 5, 2024
05 Mar
05 Mar
Events on March 8, 2024
Events on March 9, 2024
Events on March 10, 2024
Events on March 12, 2024
Events on March 13, 2024
13 Mar
Events on March 14, 2024
14 Mar
Events on March 16, 2024
16 Mar
16 Mar
16 Mar
16 Mar
Events on March 17, 2024
Events on March 18, 2024
Events on March 19, 2024
19 Mar
19 Mar
19 Mar
Events on March 20, 2024
Events on March 21, 2024
Events on March 23, 2024
Events on March 24, 2024
24 Mar
Events on March 26, 2024
Events on March 27, 2024
27 Mar
27 Mar
27 Mar
Events on March 28, 2024
28 Mar
28 Mar
28 Mar
Events on March 30, 2024