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PH Professional Network Mentor program

Mentor Profiles

The members of PH Professional Network listed here have volunteered to serve as mentors to healthcare professionals new to pulmonary hypertension or those taking on a new challenge in their career. A mentor is an experienced PH healthcare professional with the desire and ability to work with one or more new members of PH Professional Network.

Nurse/Nurse Practitioner Mentors

Pediatric Nurse Practitioner Mentors

Pharmacist Mentor

Social Worker Mentor

Nurse/Nurse Practitioner Mentors

Louise Durst, RN Louise Durst, RN

Supervisor, Research RN study Coordinator II
PAH Study Coordinator
Mayo Clinic
Rochester, Minn.

  1. Years of experience in PH? Louise has been working in pulmonary hypertension since 1998.
  2. Expertise in clinical care, research or both? She has expertise in both clinical care and research.
  3. Any specific expertise, such as a certain patient population? Louise works with a diverse patient population including idiopathic, familial, associated, left heart disease, lung disease, transplant program, Porto-pulmonary, HHT and thromboembolic among others.
  4. Additional involvement: She is a former Chair of the PH Professional Network and a former member and Chair of the PHPN Membership Committee.

Areas of Expertise
Data/outcomes management
Developing disease self-management programs for patients (e.g. Diuretic protocols)
Developing patient education materials
Managing hospitalized PH patients (including hospital policy and procedures)
Managing IV and SQ therapies
Obtaining coverage for PH medications, including use of patient assistance programs
PA/APN work-up and management of PH patients
Palliative Care and/or Hospice Patient
PH educational opportunities for health professionals
Working as a part of a multidisciplinary team

Karen Frutiger, RN, BSNKaren Frutiger, RN, BSN

Clinical Research Coordinator
University of Rochester/Department of Pulmonary Medicine
Mary Parkes Asthma and Pulmonary Center
Rochester, N.Y.

  1. Years of experience in PH? Since 2005, Karen has worked as the clinical coordinator of the University of Rochester Pulmonary Hypertension Program, a nationally recognized PAH Referral Center of Excellence. In addition, in her prior position she served as an inpatient care coordinator at the University of Rochester Medical Center for patients with a variety of diagnoses including heart failure, heart transplant, arrhythmias, ventricular assist devices, diabetes and pulmonary hypertension.
  2. Expertise in clinical care, research or both? She has broad experience in clinical care of the PAH patient. She serves as a study coordinator and sub-investigator for industry and investigator initiated PAH clinical research trials and has an active role in the management of subjects on investigational PAH medications.
  3. Any specific expertise, such as a certain patient population? She has extensive expertise in the management of SQ Remodulin therapy having worked with roughly 70- 100 patients on SQ Remodulin. The University of Rochester currently has approximately 45 active patients on this therapy.

Areas of expertise
Developing disease self-management programs for patients (e.g. Diuretic protocols)
Developing patient education materials
Managing IV and SQ therapies
Obtaining coverage for PH medications, including use of patient assistance programs
PA/APN work-up and management of PH patients
Palliative Care and/or Hospice
Patient support group activities
Patient/family counseling (insurance and psychosocial)
PH clinic nursing duties
PH educational opportunities for health professionals
PH program development and evaluation
PH research
Pulmonary Rehab
Work/life issues for the health professional
Working as a part of a multidisciplinary team

Traci Housten, RN, MSTraci Housten, RN, MS

Clinical Nurse Specialist
Johns Hopkins Pulmonary Hypertension Program
Baltimore, Md.

  1. Years of experience in PH? Traci has been working in pulmonary hypertension since 1995.
  2. Expertise in clinical care, research or both? Her expertise is in clinical care.
  3. Any specific expertise, such as a certain patient population? Traci has long term experience in the clinical management of adult patients with all forms of Pulmonary Hypertension. Her institution has a particular focus on patients with Scleroderma. She also has expertise in PH program development.
  4. Additional involvement: Traci is a founding member of PHPN. She is also a former co-chair of PHPN and the PHPN Symposium Committee.

Areas of Expertise
Developing patient education materials
Managing hospitalized PH patients (including hospital policy and procedures)
Managing IV and SQ therapies
Obtaining coverage for PH medications, including use of patient assistance programs
PH program development and evaluation

Martha Kingman, DNP, FNP-CMartha Kingman, FNP-C, DNP

Nurse Practitioner
Doctor of Nursing Practice
Pulmonary Hypertension Program
University of Texas Southwestern Medical Center at Dallas
Dallas, Texas

  1. Years of experience in PH? Martha has worked with pulmonary hypertension since 2000.
  2. Expertise in clinical care, research or both? Her expertise is in both clinical care and research.
  3. Any specific expertise, such as a certain patient population? Martha’s expertise is with adults with PH.
  4. Additional involvement: Martha is the Vice-Chair of the PHPN Symposium Committee and has also served as the Chair of the Research and Publications Committee.

Areas of Expertise
Managing IV and SQ therapies
Managing hospitalized PH patients
PA/APN work-up and management of PH patients
PH educational opportunities for health professionals
PH program development and evaluation
PH research
Pregnancy and women’s issues
Publishing
Working as a part of a multidisciplinary team

Judy Lane, RN, BSNJudy Lane, RN, BSN

PH Case Manager
Research Nurse
Nebraska Medicine
Omaha, Nebr.

  1. Years of experience in PH? Judy has been working with pulmonary hypertension patients since 2007.
  2. Expertise in clinical care, research or both? She has expertise in both clinical care and research.
  3. Any specific expertise, such as a certain patient population? Judy works in an adult CHD/PH clinic that is run with an adult congenital heart physician. Her expertise is with adult PH patients. Her clinic sees a large number of rheumatology patients. Judy treats patients with all forms of therapy, but her clinic tends to use mostly IV Veletri.
  4. Additional involvement: Judy attends annual PHA and PHPN meetings and is a member of the PHPN Practice Committee. She has facilitated support groups in her area and has worked with pharmaceutical companies on advisory boards and as a speaker.

Areas of Expertise
Basic science research
Managing hospitalized PH patients (including hospital policy and procedures)
Managing IV and SQ therapies
Obtaining coverage for PH medications, including use of patient assistance programs
PA/APN work-up and management of PH patients
Patient support group activities
Patient/family counseling (insurance and psychosocial)
PH clinic nursing duties
PH educational opportunities for health professionals
PH program development and evaluation
PH research
Working as a part of a multidisciplinary team

Stephanie Nolley, RN, BSNStephanie Nolley, RN, BSN

Nurse Coordinator
Pulmonary Vascular Disease Program
University of Washington Medical Center
Seattle, Wash.

  1. Years of experience in PH? Stephanie has been working with PAH patients since 1996.
  2. Expertise in clinical care, research or both? She has expertise in both clinical care and research.
  3. Any specific expertise, such as a certain patient population? Stephanie works with all populations.
  4. Additional involvement: She is a former chair of the PHPN Education Committee.

Areas of Expertise
Developing disease self-management programs for patients (e.g. Diuretic protocols)
Developing patient education materials
Managing hospitalized PH patients (including hospital policy and procedures)
Managing IV and SQ therapies
Obtaining coverage for PH medications, including use of patient assistance programs
Palliative Care and/or Hospice
Patient support group activities
Patient/family counseling (insurance and psychosocial)
PH clinic nursing duties
PH educational opportunities for health professionals
PH program development and evaluation
PH research
Pregnancy and women’s issues
Work/life issues for the PH professional
Working as a part of a multidisciplinary team

Traci Stewart, RN, MSN, CHFNTraci Stewart, RN, MSN, CHFN

Pulmonary Hypertension/Heart Failure Nurse Coordinator
University of Iowa Hospitals and Clinics
Pulmonary Hypertension Program
Iowa City, Iowa

  1. Years of experience in PH? Traci started working in pulmonary hypertension in 1995.
  2. Expertise in clinical care, research or both? She has clinical expertise in the management of adults with PH and heart failure. Her focus is on patient education and coordinating care in the inpatient and outpatient care settings. She also assists with clinical research for heart failure and pulmonary hypertension trials.
  3. Any specific expertise, such as a certain patient population? See above
  4. Additional involvement: She serves as a nurse leader in program and community staff education, in development of new treatment protocols and organizes and leads the Iowa Pulmonary Hypertension Support Group. Traci is also the Immediate Past Chair of the PH Professional Network and a former member of the PHPN Education Committee.

Areas of Expertise
Developing disease self-management programs for patients (e.g. Diuretic protocols)
Developing patient education materials
Managing hospitalized PH patients (including hospital policy and procedures)
Managing IV and SQ therapies
Obtaining coverage for PH medications, including use of patient assistance programs
Palliative Care and/or Hospice
Patient support group activities
PH clinic nursing duties
PH educational opportunities for health professionals
PH program development and evaluation
Pulmonary Rehab
Work/life issues for the PH professional
Working as a part of a multidisciplinary team

Glenna Traiger, RN, MSN, CNS-BCGlenna Traiger, RN, MSN, CNS-BC

PH Clinical Nurse Specialist
David Geffen School of Medicine at UCLA
Los Angeles, Calif.

  1. Years of experience in PH? Glenna has been working as the PAH Clinical Nurse Specialist and Program Coordinator since 1999.
  2. Expertise in clinical care, research or both? Primarily clinical care; she screens and educates patients about research protocols, but is not responsible for IRB, CRFs, etc.
  3. Any specific expertise, such as a certain patient population? Works with all types of PH patients except pediatrics; all therapies. Pulmonary and cardiology practice, also works with Rheumatologists.
  4. Additional involvement: Glenna was a PH support group leader for 10 years and is a former chair of the PHPN Membership Committee. She is a current member of the PHPN Communications Committee.

Areas of Expertise
Developing disease self-management programs for patients (e.g. Diuretic protocols)
Developing patient education materials
Managing hospitalized PH patients (including hospital policy and procedures)
Managing IV and SQ therapies
Obtaining coverage for PH medications, including use of patient assistance programs
Patient support group activities
Patient/family counseling (insurance and psychosocial)
PH clinic nursing duties
PH educational opportunities for health professionals
Publishing
Work/life issues for the PH professional
Working as a part of a multidisciplinary team

Pediatric Nurse Practitioner Mentors

Michelle Cash, RN, MSN, APRNMichelle Cash, RN, MSN, APRN

Pediatric Nurse Practitioner
Cincinnati Children’s Hospital Medical Center
Cincinnati, Ohio

  1. Years of experience in PH? Michelle has been working with PH patients since 2007.
  2. Expertise in clinical care, research or both? Clinical
  3. Any specific expertise, such as a certain patient population? Congenital diaphragmatic hernia
  4. Additional involvement: Chair of the PHPN Symposium Committee

Areas of expertise
Managing hospitalized PH patients (including hospital policy and procedures)
Managing IV and SQ therapies
Obtaining coverage for PH medications, including use of patient assistance programs
PA/APN work-up and management of PH patients
Pediatrics
PH clinic nursing duties
PH educational opportunities for health professionals
PH program development and evaluation
Working as a part of a multidisciplinary team

Michelle Ogawa, MSN, RN, CPNPMichelle Ogawa, MSN, RN, CPNP

Nurse Practitioner
Lucile Packard Children’s Hospital
Stanford University
Palo Alto, Calif.

  1. Years of experience in PH? Michelle has been working in PH since 2006.
  2. Expertise in clinical care, research or both? Her expertise is in clinical care.
  3. Any specific expertise, such as a certain patient population? Michelle cares for pediatric patients with pulmonary hypertension and/or pulmonary vascular disease associated with congenital heart disease, chronic lung disease, portopulmonary syndrome, hepatopulmonary syndrome, Alagille syndrome, rheumatologic/autoimmune diseases, as well as idiopathic and familial pulmonary hypertension. She has extensive experience caring for patients on parenteral prostacyclins (IV and subQ).
  4. Additional involvement: Michelle has spoken at several PHPN conferences in the past. She and a colleague (a social worker) also created a resource for teens that is now available on PHA’s website.

Areas of Expertise
Managing hospitalized PH patients (including hospital policy and procedures)
Managing IV and SQ therapies
Obtaining coverage for PH medications, including use of patient assistance programs
PA/APN work-up and management of PH patients
Patient/family counseling (insurance and psychosocial)
Pediatrics

Pharmacist Mentor

Laura Duvall, PharmD, BCPSLaura Duvall, PharmD, BCPS

Specialty Practice Pharmacist, Internal Medicine and Pulmonary Hypertension
The Ohio State University Wexner Medical Center
Columbus, Ohio

  1. Years of experience in PH? Laura has been working in PH since 2007.
  2. Expertise in clinical care, research or both? Clinical care
  3. Any specific expertise, such as a certain patient population? Internal Medicine
  4. Additional involvement: Laura has spoken at the PHPN Symposium about the safe use of infused prostacyclins.

Areas of expertise
Developing patient education materials
Managing hospitalized PH patients (including hospital policy and procedures)
Managing IV and SQ therapies
PH educational opportunities for health professionals
PH program development and evaluation
Working as a part of a multidisciplinary team

Social Worker Mentor

Allyson Rupp, MSW, LCSWAllyson Rupp, MSW, LCSW

Social Worker and Complex Care Manager
Stanford Healthcare
Stanford, Calif.

  1. Years of experience in PH? Allyson has been working with PH patients since 2003.
  2. Expertise in clinical care, research or both? Her expertise is in clinical care.
  3. Any specific expertise, such as a certain patient population? Allyson is a clinical social worker for inpatients and outpatients, covering support and assessment for all patients and caregivers and providing counseling around adjustment to illness, grief and bereavement. She also handles inpatient case management/discharge planning and relevant treatment authorizations for inpatients.
  4. Additional involvement: Allyson is a member of the Scientific Leadership Council Sub-Committee for Insurance Advocacy, the PHPN Symposium Planning Committee, and the PH Care for All initiative. She has previously been a member of PHA’s Caregiver Advisory Board, facilitator of PHA’s Telephone Caregiver Support Group and an editor of and contributor to PHA’s Survival Guide.

Areas of Expertise
Developing patient education materials
Managing hospitalized PH patients (including hospital policy and procedures)
Obtaining coverage for PH medications, including use of patient assistance programs
Palliative Care and/or Hospice
Patient support group activities
Patient/family counseling (insurance and psychosocial)
Work/life issues for the health professional
Working as a part of a multidisciplinary team