My name is Melissa. I am 33 years old. I was diagnosed when I was 4 years old with an atrial ventricular septal defect (AVSD). I was given a right heart catheter, and my pressure was at 90. I was then diagnosed with pulmonary hypertension (PH). My mother was told I wouldn’t live to see 16 and that I would need a heart and double lung transplant.
As I’ve gotten older, my heart seems to be getting stronger. I am on medications for my heart and two medications for my PH. Each test comes back better than the last. I am kicking PH’s butt. If I can do it, so can you!
I hope one day we will find a cure for this nasty rare disease. Until then, I will keep PHighting!