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FEATURED NEWS

Prepare Now for Medicaid and CHIP Coverage Changes

Take steps to keep you and your family insured in case you’re no longer eligible for pandemic-related health care coverage. During the COVID-19 pandemic, people who no longer were eligible for Medicaid or the Children’s Health Insurance Program (CHIP) could keep their coverage. However, continuous CHIP coverage ends in May, and some states will start to disenroll people from Medicaid on April 1.

By |March 29th, 2023|Comments Off on Prepare Now for Medicaid and CHIP Coverage Changes

Family Shares Story To Help Other Bereaved Caregivers

Joanna Grey found hope in her doctors, her family and the pulmonary hypertension community after her 2016 diagnosis. Since her 2021 death from transplant complications, her family has been striving to keep her memory alive. Joanna's family shared her story with the Pulmonary Hypertension Association for the spring issue of Pathlight, PHA's quarterly magazine, and PHA's spring fundraising campaign.

By |March 29th, 2023|Comments Off on Family Shares Story To Help Other Bereaved Caregivers

PH Professionals: Submit Your Abstract for PHPN Symposium

The Pulmonary Hypertension Association is accepting late-breaking abstract submissions for its PH Professional Network Symposium, Sept. 28-30 in Arlington, Virginia. We’re especially interested in personalization of care, health disparities and treatment access, transition to new therapies, and pediatric PH care.

By |March 29th, 2023|Comments Off on PH Professionals: Submit Your Abstract for PHPN Symposium

Your Voice Has Power

When the Pulmonary Hypertension Association (PHA) board met in early March, immediate past chair Colleen Brunetti made time to visit Capitol Hill. She visited lawmakers and legislative staff and created a powerful video from her time in Washington, D.C.

By |March 29th, 2023|Comments Off on Your Voice Has Power

Charitable Assistance Access Chosen as 2023 Legislative Priority

Participants in the Pulmonary Hypertension Association (PHA)’s first Advocacy Town Hall selected PHA’s top legislative priority for this year: protecting patient access to charitable assistance. The town hall also focused on another legislative priority: oxygen access.

By |March 29th, 2023|Comments Off on Charitable Assistance Access Chosen as 2023 Legislative Priority

Make a World of Difference through Advocacy in May

Celebrate World PH Day May 5 by joining the Pulmonary Hypertension Association (PHA)’s monthlong virtual advocacy campaign. With PHA’s support, you can share the impact of PH on your life with members of Congress and ask them to pass important legislation that matters to the entire community. Sign up by April 11 so PHA can schedule your virtual congressional visits.

By |March 29th, 2023|Comments Off on Make a World of Difference through Advocacy in May

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