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Microsoft2015-10-08T23:13:03-04:00

FEATURED NEWS

How PHA Spread Awareness in November

Throughout November, the Pulmonary Hypertension Association shared the stories of people who “Live PHearlessly” to raise awareness of pulmonary hypertension. More than 30 people with PH participated, including Esther Liu, Wendy McBride and Jamie Mykins. Others, such as Amy Burant and Nancy Zeppa, advocated for improved oxygen access by sharing their experiences. See their stories.

By |December 6th, 2023|Comments Off on How PHA Spread Awareness in November

Summit Explores Ways to Improve Care Access, Research for Underserved Communities

A recent associated disease summit brought together the rare disease community to discuss challenges in increasing disease awareness and clinical trials participation among underserved communities. The summit, organized by the Pulmonary Hypertension Association, included representatives from 34 organizations.

By |December 6th, 2023|Comments Off on Summit Explores Ways to Improve Care Access, Research for Underserved Communities

Support Group Leaders Discuss 2024 Plan

PHA’s Support Group Leader Advisory Board recently convened in-person for the first time in-person since 2019. The advisory board met Nov. 5 in Washington, D.C., where members discussed support group programming for PHA 2024 International PH Conference and Scientific Sessions, as well volunteer training and appreciation. Learn more.

By |December 6th, 2023|Comments Off on Support Group Leaders Discuss 2024 Plan

Learn How PH Associations Have Enhanced Patient Care

Pulmonary Hypertension Association CEO Matt Granato is among the speakers in the next Alliance for Pulmonary Hypertension webinar. The webinar is set for 12:30 p.m. EST Tuesday, Dec. 12. The webinar will provide a historical overview of pulmonary hypertension-related associations and their role in patient care and support. Learn more.

By |December 6th, 2023|Comments Off on Learn How PH Associations Have Enhanced Patient Care

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