This is a community web site of Pulmonary Hypertension Association.
What information are we collecting and how are we collecting it?
When you order products or services, participate in surveys, or apply for a job at PHA, we will ask you to provide personal information to complete these transactions. The types of personal information you provide to us on these pages may include contact information such as your name, address, telephone number, and email address; and other unique information such as user IDs and passwords, billing and transaction information, credit card information, product and service preferences, contact preferences, educational and employment background, and job interest data. In addition to the information you provide to us, PHA may also collect information during your visit to the PHA Network through our automatic data collection tools (“Data Collection Tools”), which include cookies, Web beacons, embedded Web links, and other commonly used information-gathering tools. These Data Collection Tools collect certain standard information that your browser sends to our website such as your browser type and language, access times, and the address of the website from which you arrived at the PHA Network.
These Data Collection Tools may also collect information about your Internet Protocol (IP) address, clickstream behavior and product information. When a visitor requests a page from any web site within the PHA Network, our web servers automatically recognize that visitor’s domain name and IP address. The domain name and IP address reveal nothing personal about you other than the IP address from which you have accessed our site.
How do we use your information?
PHA collects information to better understand your needs and interests to help deliver a consistent and personalized experience on the PHA Network. We will give you the opportunity to choose your privacy preferences regarding the communications we send (see below – How do I Select Privacy Preferences). Credit card information is used only for payment processing. Credit card information and other sensitive personal information required to process a credit decision is not used for any other purpose by our financial services providers or PHA and will not be kept longer than necessary for providing the services, unless you ask us to retain your credit card information for future purchases.
What are cookies and how do we use them?
What are web beacons and how do we use them?
Some parts of the PHA Network may use Web beacons alone or in conjunction with cookies to compile information about your website usage and your interaction with email. A Web beacon is an electronic image, called a single-pixel (1×1) or clear GIF. Web beacons can recognize certain types of information on your computer such as cookies, the time and date of a page viewed, and a description of the page where the Web beacon is placed. You may be able to disable Web beacons in email messages by not downloading images contained in the message you receive (this feature varies depending on the email software used on your personal computer). However, doing this may not always disable a Web beacon or other automatic data collection tools in the email message due to specific email software capabilities. If you choose to receive marketing emails or newsletters from PHA may automatically collect personal information about you. For example, through Web beacons and personalized URLs embedded in these emails or newsletters, PHA can track whether you’ve opened those messages and whether you’ve clicked on links contained within those messages. For more information on embedded Web links, see below.
What are embedded web links and how do we use them?
Some emails from PHA may use links designed to lead you to a relevant area on the Web. The redirection system allows PHA to change the destination URL of these links, if necessary, and to determine the effectiveness of our marketing initiatives. In emails, such web links may also allow PHA to determine whether you have clicked a link in an email, and this information about the interaction may be connected to your personal identity. If you do not want PHA to collect information about the links that you click, you can: (1) change your choice about how you receive communications from PHA (i.e. choose a text-based version of the message where available); or (2) choose not to click links in an email that PHA sends.
Will we disclose the information we collect to outside third parties?
(1) PHA retains service providers and suppliers to deliver complete products, services and customer solutions and to assist PHA with marketing and communication initiatives. These providers and suppliers include, for example, credit card processors, providers of customer support and live-help, email service providers, automated data processors, and shipping agents. Suppliers and service providers are required to keep confidential the information received on behalf of PHA and may not use it for any purpose other than to carry out the services they are performing for PHA.
How do I select privacy preferences?
You may opt out of receiving communications from PHA by using one of the following methods:
(1) Select the email “opt out” or “unsubscribe” link, or follow the opt-out instructions included in each email communication.
(2) Return to the PHA Web page(s) where you originally registered your preferences and follow the opt-out instructions.
(3) Write to PHA. . Be sure to provide your name, email and postal address, and specific relevant information about the PHA communications that you no longer wish to receive.
You correspondence should be addressed as follows:
Pulmonary Hypertension Association
Attn: Patient and Caregiver Services
801 Roeder Road, Suite 1000
Silver Spring, MD 20910
Please note that when you opt out of receiving certain communications, it may affect the services you have chosen to receive from PHA where accepting the communications is a condition of receiving the services.
How do we keep your personal information secure?
To prevent unauthorized access or disclosure, to maintain data accuracy, and to ensure the appropriate use of the information, PHA utilizes appropriate physical, technical and administrative procedures to safeguard the information we collect. Examples of our security measures include: physical, electronic, and procedural safeguards; sophisticated security monitoring tools; documented security policies; use of strong encryption (e.g., SSL) for transmissions of Order Information to and from our credit card processor; restricted access of personally identifiable information; and, periodic security audits.
Inside PHA, data is stored in password-controlled servers. Our staff is trained on a regular basis and educated about the importance of safeguarding your information. We are committed to holding them accountable for protecting your confidentiality. However, such precautions do not guarantee that our website is invulnerable to all security breaches. PHA makes no warranty, guarantee, or representation that our website is protected from viruses, security threats, or other vulnerabilities and that your information will always be secure.
Chat Rooms, Discussion Boards, Email Groups
You should remember that other members, patients, and third parties participating in PHA chat rooms, discussion boards, email groups and other online public discussions are not controlled by PHA. While we may monitor these public forums to control inappropriate content from being posted, we cannot control the privacy of information divulged by you in these forums. If you choose to reveal personal, contact, or medical information in these public forums, you do so at your own risk.
In addition to the address above, we can be reached via e-mail at support@PHAssociation.org or you can reach us by telephone at 1-301-565-3004.