The Pulmonary Hypertension Association (PHA) has created a new resource for people who have recently been – or are at risk of being – diagnosed with pulmonary hypertension (PH). The Roadmap to Hope: a guide for people recently diagnosed with pulmonary hypertension (PH) answers the question, “I have PH – now what do I do?” It walks readers through the steps they can take to live the longest, best lives possible with PH – from finding a specialist and working with their PH care team, to managing their energy and finding support.
The guide offers advice that applies to all types of PH, and for both children and adults. Each section gives specific guidance for patients to manage their own care, paired with additional PHA resources to help them accomplish their goals. It also is useful for caregivers – the unpaid family and friends assisting the person who has PH.
Roadmap to Hope: a guide for people recently diagnosed with pulmonary hypertension (PH) is free and can be ordered on the PHA website at https://phassociation.org/roadmap-to-hope. If you are a PHA support group leader or health care provider, email gro.noitaicossahp@troppus to request free order forms to distribute to patients so that they may order their own guide.