Newly Diagnosed

You were just diagnosed with PH. What’s next?

Learning that you have pulmonary hypertension (PH) can be overwhelming, but you’re not alone. Like the tens of thousands of people diagnosed with PH before you, you have a compassionate and inspiring community of people ready to help. We are here to provide you with information and support as you adjust to your new life with PH.

While there’s currently no cure for PH, there are PH-specific therapies available to manage your symptoms and improve your quality of life. We know patients on treatment who have been living with PH for more than 20 years and counting.

Taking the First Steps

Order your Roadmap to Hope, a free information kit for recently diagnosed patients.

The Pulmonary Hypertension Association (PHA) has created a resource for people who have recently been diagnosed with pulmonary hypertension (PH). The Roadmap to Hope: a guide for people recently diagnosed with pulmonary hypertension (PH) answers the question, “I have PH – now what do I do?” It walks readers – patients as well as caregivers – through the steps they can take to live the longest, best lives possible with PH – from finding a specialist and working with their PH care team, to managing their energy and finding support. The guide offers advice that applies to all types of PH, and for both children and adults. Each section gives specific guidance for patients to manage their own care, paired with additional PHA resources to help them accomplish their goals. It also is useful for caregivers – the unpaid family and friends assisting the person who has PH.