This year’s most popular Pulmonary Hypertension Association social media posts promoted PH awareness, patient stories, advocacy efforts and community events.
We are thankful for our online pulmonary hypertension community and everyone who engages with our social media content. Through every comment, like and share, you foster relationships and raise PH awareness. We look forward to connecting with you online in the new year.
Here are PHA’s top 10 most popular social media posts from 2023:
PH Awareness Month
We shared a link to our PH Awareness Month page for downloadable graphics, informative materials and resources on how to get involved throughout the month.
World PH Day
We celebrated World PH Day on May 5 with our theme, “United to Cure PH.”
Janessa Curnow’s Right Heart Blog
Curnow shared how she celebrates living with PH in our Right Heart Blog. “PH is so difficult. Every milestone, big or small, should be celebrated.”
Rare Disease Day
We celebrated Rare Disease Day on Feb. 28 to raise awareness for the 25 million people in the U.S. and 300 million people worldwide affected by rare diseases.
Barbara Linser’s quest for improved oxygen access
Linser advocates for oxygen-access reform because of her challenges with liquid oxygen shortages.
Isla Grey’s Right Heart Blog
Grey and her third-grade class raised money for pulmonary hypertension awareness.
PHPN Symposium Advocacy Day
Eighty-one advocates met with U.S. senators to ask for their support on the Safe Step and HELP Copays acts to improve health care accessibility and efficiency.
Scleroderma awareness
June is Scleroderma Awareness Month, and this June we promoted a free brochure that shared the connection between scleroderma and PH.
How Chloe Merrit Lives PHearlessly
Chloe Merrit, the creative mind behind the PH Awareness Month theme, recounted how she came up with the theme and her pulmonary hypertension journey.
Education workshop in Boston
The PHA Connects: PHA Community Workshop offered free educational sessions from experts on pediatric PH, exercise and diet, PAH risks, and the latest in PH research, as well as opportunities to connect with other members of the PH community.
