The PH community recently came together in November for PH Awareness Month. In addition to raising awareness, they advocated for better care and showed support for people living with PH.
This year’s theme, “Let Your Light Shine,” emphasized the power of collective action and the strength of those living with this rare condition. From organizing fundraisers and leading support groups to sharing their personal stories, members of the PH community demonstrated what it means to let their lights shine. This message of hope, strength and resilience extended throughout the PH community, serving as a reminder that every action — big or small — makes a difference.
“One day, we may have a cure,” said Deatrice Tyner, who has had PH for more than a decade. Her message showed her commitment to raising awareness and fundraising to support PHA.
For Jasmine Wells, living with pulmonary arterial hypertension means embracing a new version of herself while encouraging others to find strength in their journey. “It’s OK to grieve the person you once were,” Wells said. “You are enough. Be kind and allow yourself grace.”
Ian Bartlett, who has chronic thromboembolic pulmonary hypertension, or CTEPH, highlighted his commitment to staying active and inspiring others.
Petrice Moses, a support group leader in Virginia, emphasized the power of education and community in overcoming challenges. “We owe it to ourselves and every person with PH we encounter to share the torch of light,” she said.
Caregivers also play a huge role. Mitzi McIver-LaBarge, whose daughter Ava was diagnosed with PH as an infant, serves as a mentor and support system for parents of children with PH, providing reassurance that no one should face PH alone. Similarly, McKenzie Adams honored her daughter’s memory by sharing her story and working to raise awareness of PH and congenital heart defects.
The campaign was a reminder that everyone’s light matters. Whether walking miles to raise awareness, advocating for policy changes or offering a listening ear, each contribution strengthens the PH community and brings hope for a brighter future.
To read more inspiring stories and quotes, visit PH Awareness month.
