Hear about patient experiences with supplemental oxygen and learn why access has become so challenging in crossover podcast episodes from the Pulmonary Hypertension Association and the American Thoracic Society.
The two-part series provides an in-depth look supplemental oxygen issues and proposed legislation before Congress.
In the first segment, which aired July 22, the ATS Breathe Easy podcast featured guests Susan Jacobs, a nurse and research manager at Stanford University and PHA’s Jaeger Spratt. Jacobs chairs the multi-organizational Oxygen Special Interest Group that worked to introduce the Supplemental Oxygen Access Reform Act. Spratt, PHA’s advocacy and treatment access program manager, discussed the status of the SOAR Act in Congress and provisions in the legislation to establish a Bill of Rights for oxygen users and Medicare coverage for respiratory therapy.
In the second segment, which aired July 23, Spratt hosted PHA’s PH Insights podcast. Their guests were long-time PHA advocates Amy Burant and Colleen Connor. The guests discussed how access to supplemental oxygen has shaped their PH journeys and the freedom that comes with using the appropriate type of oxygen equipment for their needs.
Listen to both episodes wherever you stream your favorite podcasts and get inspired to jump into advocacy. Start by emailing or calling your members of Congress and asking them to cosponsor the SOAR Act with PHA’s easy-to-use email template and call script.
Stay up to date with PHA’s advocacy work by subscribing to PHA’s Advocacy Action Alert newsletter. Email us or call 240-485-0758 with questions about PH advocacy.
