When the COVID-19 pandemic forced people to distance themselves, PHA support group leaders wanted to keep their members connected. Before the pandemic, most Pulmonary Hypertension Association support group meetings took place in person.  

So PHA and its volunteer leaders came up with ways to meet via computer, and many groups still offer that option. During the transition, leaders offered creative ways to engage members and prevent isolation.  

Diane Ramirez, leader of the Piedmont Area Support Group in North Carolina recruited doctors from PHA-accredited PH Care Centers to speak about PH topics. “Because we were virtual, it was quite easy to set up with someone who was far away,” Ramirez says.  

Her group met regularly because members needed it, “and we did lots of catching up remotely,” she says.  

Monica Penaranda, leader of the Greater Los Angeles Support Group, enjoyed playing PH bingo with her group members. She also met remotely every Thursday for about a year to chat with PH friends beyond the Los Angeles area. “We had people join in as far as Australia,” she says. “It kept me sane during a scary time.”  

Virtual meetings were a relief during the lockdown for Nancy Zeppa, leader of the South Jersey Support Group. The virtual meetings allowed members to connect with others and share information even after other groups returned to in-person gatherings. “We have stayed remote as our members are geographically spread out,” Zeppa says. “We welcome anyone at all meetings.”  

Whether you prefer to connect in person or online, find a PHA support group. No PHA support group in your area? Apply to start one! PHA provides training and help every step of the way.