August is National Wellness Month, a time to focus on self-care, manage stress and build healthy habits.

Whether you’re living with PH or caring for someone who is, small steps to support your physical and mental health can make a meaningful difference. Use these tips as a starting point for building healthy routines and click on the headlines for each section below to find related information on the PHA website.

Acknowledge your feelings

It’s normal to experience a range of emotions after receiving a PH diagnosis. You might feel relieved to finally know what is causing your symptoms, while also feeling scared about what the future holds.

Give yourself time and space to process these emotions so you can reflect and move forward. Acknowledging how you feel can help you prepare for future challenges and become a better advocate for your needs. Connecting with others who have similar experiences can also help you gain perspective and encouragement.

Monitor your sodium and fluid intake

Building healthy eating habits can improve your energy levels, help manage symptoms and support better quality of life. People living with PH may be more sensitive to high levels of sodium, which can contribute to fluid retention, bloating and swelling. Limit high sodium foods and opt for more fresh fruits and vegetables, whole grains, lean proteins and healthy fats.

 

Your care team also might recommend monitoring your fluid intake to avoid or reduce swelling and difficulty breathing. When monitoring your fluid intake, count all liquids, including soup, popsicles, gelatin and ice. Follow the sodium and fluid limits recommended by your care team.

Exercise to improve muscle function

Regular exercise can improve physical capacity and muscle function. The type and intensity of exercise that are right for you will depend on your symptoms and response to treatment. Talk with your care team before beginning or modifying an exercise routine.

Try to exercise when you have the most energy and avoid holding your breath. Yoga can be a good option because it supports both physical and mental well-being and can be adapted for a wide range of abilities.

Prioritize activities to conserve energy

Life with PH often requires flexibility. For some people, a task that took an hour might take several days. Changes in energy and stamina can be part of living with PH, so be patient with yourself as you adjust and build your new routine.

Prioritize your activities by making a list of tasks and ranking by importance. This can help you focus on the most pressing items and set realistic goals. You shouldn’t have to navigate life with PH alone, so turn to friends and family for help when you need it.

Take care of yourself

Your mental health is just as important as your physical health. Be intentional about making time for activities and hobbies that bring you joy. Connect with a peer mentor or attend a PHA support group to spend time with others who understand what you’re going through.

Caregivers also should watch for the early warning signs of stress and make changes before becoming overwhelmed. Set realistic expectations, ask for help and give yourself grace. You do not have to do everything perfectly to provide meaningful care.