Paralyzing fatigue and unrelentless pounding in her heart after a long COVID-19 bout made Tina Kondos revisit decades of medical records. “So many symptoms I described 30 years ago are present today,” says Kondos, 54. “There were multiple mentions of routine screening for PH and heart failure.” Kondos, of Phoenix, spent months grieving a complete medical system failure. Today, she works to help her mind, body and spirit, and shares her knowledge as a Pulmonary Hypertension Association volunteer.
Kondos’ story is among the inspirational and educational articles in the most recent issue of Pathlight magazine. Pathlight’s quarterly printed magazine is a benefit of PHA membership.
Read about other highlights in the current issue:
PHA Accredits First Pediatric Regional Clinical Program
Children’s Nebraska in Omaha is the first medical center to become a PHA-accredited Pediatric Regional Clinical Program. “Receiving this accreditation provides validation that our program operated at the highest level of quality standards,” says pulmonologist Matthew Dennis, co-director of the pediatric PH team.
World Symposium Takes Patient Perspectives to Heart
Long-time PHA volunteer and PH Colleen Brunetti shares her experience as a presenter at the Seventh World Symposium on Pulmonary Hypertension last summer. As a member of the Patient Perspectives Task Force, she worked with patients and health care professionals for months to gather and analyze data, consult experts and produce a paper for publication. Their session opened the conference, showing the value of patient voices from around the world.
PHA 2024 Camaraderie, Connections and Knowledge
We brought the sights and sounds of PHA 2024 International PH Conference and Scientific Sessions to life through attendee reactions and photos. Hear what drew people from nearly every state and 22 countries to Indianapolis in August.
Student Athlete ‘Writes’ His Own Story
High schooler Nick Herrera and pediatric pulmonologist Nidhy Varghese related their shared experiences at PHA 2024’s Journey luncheon. They were among three pairs of people with PH and health care professionals who shared their journeys during the event.
Read these and other inspiring stories in Pathlight, an exclusive benefit of Pulmonary Hypertension Association membership. For your own Pathlight subscription, join PHA or renew your membership.
