A team of Johns Hopkins University (Hopkins) engineering graduate students discovered the difficulties people with lung diseases experience accessing and obtaining portable oxygen equipment while shadowing Hopkins pulmonologists in 2018. They were inspired to take action.

They learned from individual patients about the impact current portable oxygen equipment has on living a normal lifestyle and now wish to learn more from you.

These researchers are committed to using their graduate studies and this research to improve the design of future portable oxygen in order to better improve mobility and offer more independence to oxygen users.

They have launched a survey that examines oxygen users’ experiences in ways that may advance technological development by engineers, as well as help further the Pulmonary Hypertension Association’s (PHA’s) advocacy efforts to achieve greater patient-centered quality care. In addition to collecting information about the experiences of people with pulmonary hypertension (PH), they are also collecting feedback from people with Chronic Obstructive Pulmonary Disease (COPD) and interstitial lung diseases (like pulmonary fibrosis and sarcoidosis).

As part of their work, the researchers are “interested in surveying oxygen therapy users to learn more about product satisfaction, oxygen usage behaviors and innovations in the portable oxygen space.” If you are interested in helping the Department of Biomedical Engineering at Hopkins with this research project, please complete this short survey.

PHA encourages oxygen users in our community to participate to advance our advocacy efforts on these issues. If you have questions, email gro.noitaicossAHP@lacideM.