With or without insurance, pulmonary hypertension (PH) treatments can be costly. If you need help covering the co-pay for your pulmonary hypertension therapy, you might want to take some or all of the following steps. This list represents resources that might apply to many in the PH community. It is by no means an exhaustive list of state or local assistance that may be available in your area.
For recommendations about local community resources, contact the Patient Advocate Foundation at 800-532-5274.
Contact Your PH Care Team
If you believe you could run out of your PH therapy, contact your PH care team now. Don’t wait until you are completely out of medication.
Nonprofit Charitable Assistance Funds
Here is a list of nonprofit assistance programs. The Pulmonary Hypertension Association (PHA) will update this page and announce changes through PHA News, our weekly e-newsletter, if the status of these funds change. Sign up for PHA News here.
- The Assistance Fund – Closed. Currently processing enrollments for existing waitlist patients.
- Good Days – Closed. Not currently accepting applications.
- HealthWell Foundation – Closed. Not currently accepting applications.
- PAN Foundation – Closed. Not currently accepting applications.
- Patient Advocate Foundation – Closed. Not currently accepting applications.
- Patient Services Inc. – Closed. Not currently accepting applications.
Other Nonprofit Programs
- The PAN Foundation’s FUND FINDER notifies users when assistance funds are available from several charitable organizations. Learn more and sign up.
- NeedyMeds offers a drug discount card, links to manufacturer assistance programs and other prescription assistance resources for both brand and generic therapies. Learn more here.
- National Organization for Rare Disorders : Two funds that assist rare disease patients during the COVID-19 pandemic. One program assists with insurance premiums and other medical expenses. The other program assists with non-medical needs such as food, utilities and transportation.
If your child is under 18 and has PH, you should know about the pediatric assistance fund at the HealthWell Foundation. The fund assists with co-pays or other costs related to a child’s life-altering medical condition. Applications are considered case by case, and there is no online application. Interested families should contact the HealthWell Foundation at 800-675-8416. See additional guidelines.
Manufacturer Patient Assistance Programs
Many pharmaceutical companies or specialty pharmacies sponsor drug-specific assistance programs to help patients navigate the reimbursement process.
PAPs are designed to make it as easy as possible to get your treatment by providing free or discounted drugs to low-income, underinsured or uninsured patients who meet specific guidelines. Manufacturers may also offer other types of general support programs, providing additional education, support and financial assistance.
Companies update these programs on an ongoing basis so individuals seeking assistance may wish to call even if they do not expect to qualify.
Specialty Pharmacy Assistance Programs
After exploring the options above, consider contacting the specialty pharmacies that deliver your PH medication.
- Accredo/CuraScript/ExpressScripts: 866-FightPH (866-344-4874)
- AllianceRx Walgreens Prime: 800-445-3674
- Briova/OptumRx: 855-856-0536
- Cigna Tel-Drug: 855-326-7463
- CVS/Caremark: 877-242-2738
- Humana Specialty Pharmacy: 855-478-8405
Contact Your Elected Officials
Your state legislators and members of Congress are potential sources of help and information. They might be familiar with state-specific financial assistance resources for medication costs or other expenses.
- Contact your U.S. senators and representative at PHA’s action alert.
- Contact state legislators; visit your legislature’s website: https://www.congress.gov/state-legislature-websites
State and Federal Assistance Programs
Find disaster financial assistance through government programs to help with food, housing and bills. Also find out more information about the CARES Act and other government stimulus packages.
Medicare Extra Help: If you use Medicare, you might want to explore a program called “Medicare Extra Help,” which provides reduced prescription drug costs for low-income Medicare recipients. Visit here or call 800-772-1213. (TTY users should call 800-325-0778.)
Benefits.gov and your state website have additional information about government-funded assistance programs such as Medicaid and CHIP.
Financial Resources for Other Costs
The following organizations advertise resources to help those affected by PH cover expenses other than medication copays.
- Blue Lips Foundation – Grants for non-medical expenses.
- Genetic and Rare Diseases Information Center – Programs that help with the costs of medical travel.
- Keep Swimming Foundation – Grants to the families of individuals facing extended hospital stays.
- Patient Advocate Foundation – Insurance navigation assistance, national directory of financial resources, case management and support.
- Unmet Needs Patient Impact Fund – Grants for non-medical expenses.