Statement of Healthcare Principles 2017-05-09T11:22:40+00:00

Online Insurance Guide

PHA Statement of Healthcare Principles

The Pulmonary Hypertension Association’s mission is to extend and improve the lives of all those affected by PH. When it comes to improving access to PH therapies, your voice is critical to our success.

Effective healthcare policy requires the engagement of policy makers from the full spectrum of political perspectives. No matter which side of the aisle your elected officials represent, help keep the PH community’s voice relevant throughout the healthcare reform process.

Healthcare Policy Priorities

  • Prohibit discrimination against individuals with costly health conditions, including pre-existing condition discrimination
  • Limit out-of-pocket costs for patients
  • Prohibit lifetime and annual caps on insurance benefits
  • Allow young adults to stay on family coverage until they are 26
  • Ensure formulary and network adequacy
  • Ensure medical care driven by clinician judgement and the patient-clinician relationship

Speak Out on Healthcare Reform

The current proposal to replace the Affordable Care Act (Obamacare) includes some elements that are concerning to the PH community, including what appear to be insufficient protections for individuals with preexisting conditions.

Join PHA and act now to safeguard treatment access for the PH community! Tell your Members of Congress to keep the needs of the PH community a priority throughout the healthcare reform process. Email your Members of Congress now.

Advocate Tools

Advocates are encouraged to share the Pulmonary Hypertension Association’s Statement of Healthcare Principles with relevant policy makers and regulators! Visit our advocacy page for talking points and resources to call, write or visit your Members of Congress.

Advocate Guidelines

  • Advocates are encouraged to share the Pulmonary Hypertension Association’s Statement of Healthcare Principles with relevant policy makers and regulators.
  • Advocates’ personal stories are a powerful tool in allowing policy makers and regulators to better understand the challenges of living with pulmonary hypertension and other rare, costly conditions. Advocates are encouraged to share personal stories, but should not present them as official statements from the Pulmonary Hypertension Association.
  • In order to best serve our diverse constituents, PHA seeks to engage in conversation with policy makers from the full spectrum of political perspectives. Advocates should refrain from presenting their personal political beliefs as statements on behalf of the Pulmonary Hypertension Association.
  • Only spokespersons approved by the Pulmonary Hypertension Association’s President or Vice President of Communication may make official statements on behalf of the organization. This includes but is not limited to statements on social media and to policy makers and the press.

Take action now or contact PHA’s advocacy team at Advocacy@PHAssociation.org or 301-565-3004 x749.