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Living With Pulmonary Hypertension

Pulmonary hypertension can affect every aspect of your day-to-day routine, whether you’re newly diagnosed, someone who has lived with PH for many years, or a caregiver or parent. No matter where you are in your PH journey, be sure to review our popular topics on preparing for emergencies, navigating insurance issues and traveling.

Find more resources in our Empowered Patient Toolkit.

Newly Diagnosed

I just learned that I have pulmonary hypertension.
What should I do now?

Find a PH Specialist Navigating Pulmonary Hypertension: A Guide for the Newly Diagnosed Navigate daily life with PH
Connect with other patients Manage the emotional challenges of life with PH

Caregivers

Someone I love has pulmonary hypertension.
What do I need to know?

Care for the PH patient in your life Connect with other caregivers
Manage emotional challenges of caregiving

Parents

My child has pulmonary hypertension.
What do I do now?

Find a PH specialist for your child Navigate school for a child with PH
Manage the emotional challenges Connect with other parents

Teenagers

Adolescence is hard enough. PH makes it even tougher.
How do I survive this?

Connect with other teens who have PH Learn about the transition from pediatric to adult care
Find coping tips for teens Succeeding in high school and college

Long-term Survivors

Dealing with my physical limitations and emotional stress for many years is an extraordinary challenge.
How do I keep going?

Connect with other patients Continue to cope with the emotional challenges
Help other patients