LIVING WITH PULMONARY HYPERTENSION

Pulmonary hypertension (PH) can impact every aspect of your day-to-day routine, whether you are a newly diagnosed adult or teen, someone who has lived with PH for many years, a caregiver to someone with PH or a parent whose child has PH. As you become aware of your needs, we hope Living with PH will provide you with useful information that will help you in your daily life. No matter where you are in your PH journey, be sure to review our popular topics for everyone that include preparing for emergencies, navigating insurance issues, traveling, and PH and COVID-19.

Newly Diagnosed

I just learned that I have pulmonary hypertension.
What should I do now?

Find a PH Specialist Navigate daily life with PH
Connect with other patients Manage the emotional challenges of life with PH

Caregivers

Someone I love has pulmonary hypertension.
What do I need to know?

Care for the PH patient in your life Connect with other caregivers
Manage emotional challenges of caregiving

Parents

My child has pulmonary hypertension.
What do I do now?

Find a PH specialist for your child Navigate school for a child with PH
Manage the emotional challenges Connect with other parents

Teenagers

Adolescence is hard enough. PH makes it even tougher.
How do I survive this?

Connect with other teens with PH Transitioning from pediatric to adult care
Coping as a teen with PH Succeeding in high school and college

Long-term Survivors

Dealing with my physical limitations and emotional stress for many years is an extraordinary challenge.
How do I keep going?

Connect with other patients Continue to cope with the emotional challenges
Use your experience to help other patients

Funding for this project was possible in part by support from Janssen Pharmaceuticals, Inc.