LIVING WITH PH

“She asked, ‘You women go through all of this every day?’ and we said, ‘Yes, we do. We do and we have no choice because we want to live.’” — PH patient Diane Ramirez, on former U.S. Senator Elizabeth Dole’s reaction to medicating for PH


Mother with PH patient childWhile it can be difficult to imagine in the days and months following diagnosis, many patients develop strategies to cope with the physical and emotional aspects of living with PH and lead happy, fulfilling lives. With a bit of patience, planning, and flexibility, many people affected by PH find ways to work, travel, exercise, and do the things they loved before they were diagnosed.

Today, people diagnosed with PH can benefit from the experience of thousands of other patients who have learned to effectively manage this illness. Explore this section to find tips, tools and resources to help you adapt to life with PH.

Empowered Patient Online Toolkit

Download PH-specific templates and checklists to create your own personalized medical binder.

Day-to-Day Living

Simplify your daily routine with these tips from long-term survivors.

Coping with PH

Identify strategies for coping with the emotional and social aspects of PH.

Health and Medication Management

Manage your medications and coordinate your healthcare.

Emergency Situations

Take the time to prepare for emergencies before they happen.

Working with PH

Make and keep a place for yourself in the workforce by listening to your body and knowing your rights.

Diet and Nutrition

Keep your diet on track with advice from PH experts.

Exercise and PH

Get active without overexerting your body.

Traveling with PH

Plan ahead for safe and comfortable travel with PH by car, plane or train.

Climate and PH

Prepare for changes in weather and altitude.