Coping with Pulmonary Hypertension
Over the past decade, the quality of pulmonary hypertension care has improved greatly. While everyone has “blue” days, it’s important to realize that many pulmonary hypertension patients today are living long and active lives — and that you can, too.
Just as life is made up of more than doctors’ appointments, your health is made up of more than medical test results. Your health has a physical component, of course, but also emotional, social and spiritual components that need time and attention if you want to feel your best.
Guides for Living with Pulmonary Hypertension
Order to learn about what to expect and how to move forward if you or someone in your family is living with pulmonary hypertension.
Individual coping articles for newly diagnosed and long-term survivors are available below. Visit Parents, Caregivers and Teens for other individual articles.
Tending to Your Emotional Health
People living with chronic illness frequently report feelings of sadness, disappointment, anger and helplessness. In some, these feelings become more intense and pervasive, taking the form of depression, anxiety, or longterm guilt or grief. These emotions, while serious, are considered normal and can be addressed in a variety of ways.
- Coping When You’re Newly Diagnosed
- Coping as a Long-Term Survivor
- Identifying and Seeking Treatment for Depression
- Maintaining a Positive Self-Image
- Managing Stress
- Your Prescription for Well-Being: Attend a Support Group
- Grieving the Loss of a Fellow Patient
- How Social Workers Can Help
Communicating with Family and Friends
Beyond managing your physical and emotional health, communicating about the changes in your life and rebuilding healthy relationships after your diagnosis is a challenge that everyone living with PH faces.
- Coping with PH When Those Close to You Don’t Understand
- Maintaining Healthy Relationships
- Helping Your Child Cope with Your Illness
- Resources on Coping for Your Caregiver
- Helping Your Significant Other Transition Into the Caregiver Role
Getting Support
Our community is full of courageous people living life to the fullest despite ongoing medical challenges. Connect with a member of the PH community today to tap into some of their shared hope.
- Call PHA’s Support Line: 800-748-7274
- Email a PHA Email PHriend
- Connect with other patients or caregivers by phone
- Join a PHA Support Group