PHA Live is a monthly series of Facebook Live events and webinars that provides an opportunity for those affected by pulmonary hypertension (PH) to hear from experts on health, wellness, science and research topics. Recordings of PHA Live events will become available on this page within three business days of the original program.
A Conversation About the PHA Registry
Wednesday, August 18 at 3:30 p.m. EDT
Join the Pulmonary Hypertension Association (PHA) for the PHA Live event “A Conversation About the PHA Registry” on Wednesday, August 18 at 3:30 p.m. EDT.
The PHA Registry (PHAR) is a registry of patients with pulmonary arterial hypertension (PAH), pediatric pulmonary hypertension (PH) due to developmental lung disease and chronic thromboembolic pulmonary hypertension (CTEPH). The PHAR currently collects data from more than 1,600 patients receiving treatment at 56 PHA-accredited PH Care Centers (PHCCs) throughout the U.S. It contributes to raising quality of care and outcomes in patients with PH by helping researchers evaluate trends and practice patterns. The PHAR also helps health care professionals understand what treatments other clinicians use that could potentially benefit their patients.
This PHA Live event is a conversation between Dan Grinnan, M.D., former chair of the PHAR Steering Committee, with one of his PH patients, Shirl Rhodes, who is enrolled in the PHAR. Learn what it is like to participate in the PHAR and how PHAR supports PH research.
Interested attendees may email us firstname.lastname@example.org any questions they would like addressed by Monday, August 16.
About the Speakers
Dan Grinnan, M.D.
Dan Grinnan, M.D., is director of Virginia Commonwealth University Health’s Comprehensive Care Center for Pulmonary Hypertension. He has served as chair of the PHAR Steering Committee and is a member of the PHCC Accreditation Committee.
Shirl Rhodes is a PH patient participating in the PHAR through the Virginia Commonwealth University PHCC. She is a former compliance and safety manager and lives in rural Virginia.
PHA thanks Bayer for its Platinum Sponsorship and Janssen Pharmaceuticals, Inc. for its Diamond Sponsorship of the PHA Connects fund, which provides support to this PHA Live event.
Watch Previous PHA Live Events
PHA thanks Janssen Pharmaceuticals, Inc. for its diamond sponsorship and Bayer for its platinum sponsorship of the PHA Connects fund, which provides support to this PHA Live event.