PHA Live is a monthly series of Facebook Live events and webinars that provides an opportunity for those affected by pulmonary hypertension (PH) to hear from experts on health, wellness, science and research topics. Recordings of PHA Live events will become available on this page within three business days of the original program.
Upcoming Events
A Conversation About the PHA Registry
Wednesday, August 18 at 3:30 p.m. EDT
Join the Pulmonary Hypertension Association (PHA) for the PHA Live event “A Conversation About the PHA Registry” on Wednesday, August 18 at 3:30 p.m. EDT.
The PHA Registry (PHAR) is a registry of patients with pulmonary arterial hypertension (PAH), pediatric pulmonary hypertension (PH) due to developmental lung disease and chronic thromboembolic pulmonary hypertension (CTEPH). The PHAR currently collects data from more than 1,600 patients receiving treatment at 56 PHA-accredited PH Care Centers (PHCCs) throughout the U.S. It contributes to raising quality of care and outcomes in patients with PH by helping researchers evaluate trends and practice patterns. The PHAR also helps health care professionals understand what treatments other clinicians use that could potentially benefit their patients.
This PHA Live event is a conversation between Dan Grinnan, M.D., former chair of the PHAR Steering Committee, with one of his PH patients, Shirl Rhodes, who is enrolled in the PHAR. Learn what it is like to participate in the PHAR and how PHAR supports PH research.
Interested attendees may email us phawebinars@phassociation.org any questions they would like addressed by Monday, August 16.
About the Speakers
Dan Grinnan, M.D.
Dan Grinnan, M.D., is director of Virginia Commonwealth University Health’s Comprehensive Care Center for Pulmonary Hypertension. He has served as chair of the PHAR Steering Committee and is a member of the PHCC Accreditation Committee.
Shirl Rhodes
Shirl Rhodes is a PH patient participating in the PHAR through the Virginia Commonwealth University PHCC. She is a former compliance and safety manager and lives in rural Virginia.
PHA thanks Bayer for its Platinum Sponsorship and Janssen Pharmaceuticals, Inc. for its Diamond Sponsorship of the PHA Connects fund, which provides support to this PHA Live event.
Watch Previous PHA Live Events
Understanding Hereditary PAH and Genetic Testing
Dr. Wendy Chung discusses the basics of genetics, hereditary pulmonary arterial hypertension (HPAH) and the genetic causes of pulmonary arterial hypertension (PAH). She explains commonly used genetic tests for pulmonary hypertension (PH) in the United States and addresses what happens during a genetic counseling session.
COVID-19 Updates with PHA’s Task Force
Members of PHA’s COVID-19 Task Force discuss COVID-19 vaccines, virus variants, current safety recommendations and more. PHA thanks Bayer for its Platinum Sponsorship and Janssen Pharmaceuticals, Inc. for its Diamond Sponsorship of the PHA Connects fund, which provides support to this PHA Live event.
PH and Sjögren’s Syndrome
Namita Sood, M.D., F.C.C.P., discusses the risk of pulmonary hypertension (PH) in individuals with Sjögren's, a rare autoimmune disorder. Learn about PH symptoms, diagnosis and treatment options.
PH and Your Child
Dr. Eric Austin discusses how pulmonary hypertension (PH) affects children and answers common questions about heritable pulmonary atrial hypertension (PAH). The event will help parents to understand how pediatric PH is treated. PHA thanks Janssen Pharmaceuticals, Inc. for its diamond sponsorship of the PHA Connects fund, which provides support to this PHA Live event.
PH, Intimacy and Self-Image — A PHA Live Event for Women
Dr. Ioana Preston leads a discussion about enhancing intimate relationships, feeling more comfortable in sexual experiences and improving your self-image. PHA thanks Janssen Pharmaceuticals, Inc. for its diamond sponsorship of the PHA Connects fund, which provides support to this PHA Live event.
Vacunas COVID-19: Preguntas y respuestas con el Dr. Fernando Torres
El Dr. Fernando Torres brinda información sobre la seguridad y eficacia de las vacunas actuales para COVID-19 y lo que la comunidad de HP necesita saber al momento de la vacunación. PHA agradece a Janssen Pharmaceuticals, Inc. por su patrocinio a nivel Diamante del fondo PHA Connects, en apoyo a este evento PHA Live.
COVID-19 Vaccines: Q&A with Dr. Victor Tapson
Dr. Victor Tapson provides insight on the safety and efficacy of the current COVID-19 vaccines and what the PH community needs to know as vaccinations begin. PHA thanks Janssen Pharmaceuticals, Inc. for its diamond sponsorship of the PHA Connects fund, which provides support to this PHA Live event.
PHA thanks Janssen Pharmaceuticals, Inc. for its diamond sponsorship and Bayer for its platinum sponsorship of the PHA Connects fund, which provides support to this PHA Live event.