PHA Live is a monthly series of Facebook Live events and webinars that provides an opportunity for those affected by pulmonary hypertension (PH) to hear from experts on health, wellness, science and research topics. Recordings of PHA Live events will become available on this page within three business days of the original program.
Navigating 2024 Open Enrollment
Thursday, Oct. 19 at 2 p.m. EDT
The open enrollment period for health insurance is fast approaching. Join us for the PHA Live webinar, “Navigating 2024 Open Enrollment” to receive answers to questions on:
- When the open enrollment period will begin and end.
- Changes that may impact your pulmonary hypertension (PH) treatment and care coverage.
- The difference in health coverage plans.
Jaeger Spratt, MSW, the Pulmonary Hypertension Association (PHA)’s treatment and program access manager, will be joined by insurance coverage expert, Tonya Zeiger, RRT, CPFT, to answer your open enrollment questions.
Don’t miss this timely discussion.
About the Speakers
Tonya Zeiger, RRT, CPFT
Tonya Zeiger, RRT, CPFT, is a PH clinic coordinator and associate in pulmonary medicine at the Mayo Clinic’s Jacksonville, Fla. campus, a PHA-accredited Center of Comprehensive Care (CCC). She has worked with pulmonary hypertension patients since 2006. In addition to being a member of national and local boards for respiratory care, she is an active member of PHA’s PH Professional Network (PHPN), sitting on PHPN’s Practice and Symposium Committees. She is also a member of the Scientific Leadership Council’s Insurance Advocacy Committee.
Jaeger Spratt, MSW (pronouns: they/them)
Jaeger Spratt oversees PHA’s grassroots advocacy network. The network empowers people affected by PH to effect change by educating and influencing elected officials. They also help community members with managing copay assistance, choosing insurance and other treatment-access issues. Jaeger holds a Master of Social Work degree from Virginia Commonwealth University and has federal policy and legislative advocacy experience with the National Center for Transgender Equality.
Watch Previous PHA Live Events
Understanding the Connection between Idiopathic Pulmonary Fibrosis and PH
Navneet Singh, MD, MBA, and Christopher King, MD, discuss diagnostic tests and treatments for IPF and PH.
Caring for a Child with Pediatric PH
Pediatric Pulmonary Hypertension (PH) experts, Rachel Sullivan, M.D., and Melissa Magness, M.S.N., APRN, CNP-AC led an engaging webinar with PH parents, Jayna Wall and Jeff Harpp.
Pulling the Thread on Medicaid Unwinding
Jaeger Spratt walks through what pulmonary hypertension (PH) patients need to know about maintaining Medicaid coverage during these changes. Jaeger also reviews the specifics of Medicaid unwinding in different states and how to navigate the system to ensure you can maintain your coverage.
Respiratory Infections and Pulmonary Hypertension
Ivan Robbins, M.D., and Nidhy Varghese, M.D., discuss the impact viral respiratory infections have on adults and children with PH. They share information on the symptoms of viral infections, the impact of RSV on children and older adults with PH and give an overview of how to treat these conditions safely while on PH medication.
2022 Focus on Pulmonary Hypertension Research
Pulmonary hypertension experts Anna Hemnes, M.D., and Evan Brittain, M.D., M.Sc., moderate a panel discussion on the latest advances in pulmonary hypertension (PH) research. Panelists Thenappan Thenappan, M.D., and Corey Ventetuolo, M.D., share relevant data and research advances presented at the PHA 2022 International PH Conference and Scientific Sessions in Atlanta.
About CTEPH: A Patient’s Perspective
Angela Michelle, who was diagnosed with chronic thromboembolic pulmonary hypertension (CTEPH) in 2018 , shares her story for CTEPH Awareness Day 2022. Angela recounts how she learned she had CTEPH and her experience since diagnosis. William Auger, M.D., explains CTEPH causes, symptoms, risks, diagnosis and treatment.
Thanks to our supporters of PHA Connects, patient education programs.
Diamond
PHA thanks Janssen Pharmaceuticals, Inc. for its Diamond sponsorship of the PHA Connects fund, which sponsors patient education programming.
Silver
PHA thanks United Therapeutics for its Silver sponsorship of the PHA Connects fund, which sponsors patient education programming.
Bronze
PHA thanks Altavant for its Bronze sponsorship of the PHA Connects fund, which sponsors patient education programming.