PHA Live is a monthly series of Facebook Live events and webinars that provides an opportunity for those affected by pulmonary hypertension (PH) to hear from experts on health, wellness, science and research topics. Recordings of PHA Live events will become available on this page within three business days of the original program.
Navigating and Understanding the Post Lung Transplant Journey
Tuesday, Apr. 15, at 4 p.m. EDT
In celebration of Donate Life Month this April, the Pulmonary Hypertension Association, in partnership with the National Scleroderma Foundation, will host a webinar focused on life after lung transplantation.
Join experts Maria M. Crespo, medical director at the University of Pennsylvania and Derek Zaleski, physical therapist at the University of Pennsylvania’s lung transplant program for an overview of the recovery process after receiving a transplant. Evan Rood, a lung and heart transplant recipient and patient advocate will share his transplantation journey.
Speakers will discuss:
- Recovery processes following a lung transplant.
- Expectations and guidelines for long-term care.
- What to expect in the months and years after transplant surgery.
Whether you’re a patient, caregiver or health care provider, this session will provide valuable insights for navigating life after transplantation.
About the Speakers
Maria M. Crespo, MD
Medical Director, Lung Transplant Program
Professor of Clinical Medicine, Pulmonary, Allergy and Critical Care
University of Pennsylvania – Penn Medicine
Derek Zaleski, PT, DPT
Physical therapist, Lung Transplant Program
University of Pennsylvania – Penn Medicine
Evan Rood
Lung and heart transplant recipient and patient advocate
Watch Previous PHA Live Events
Pediatric to Adult Congenital Heart Disease: Managing Your Diagnosis
Watch the webinar recording to learn about the types of pulmonary hypertension associated with congenital heart disease. Speakers discuss diagnostic tests, life expectancy improvements and treatment advancements.
Spotlight on Innovative Projects in PH
Watch the webinar recording to learn about some innovative research projects from recent Pulmonary Hypertension Association research grant recipients who will discuss their research and its impact on the future of PH.
Managing Scleroderma and Pulmonary Arterial Hypertension
Watch the webinar recording to review an overview of genetics and genetic testing in pulmonary hypertension. Learn about types of genetic tests, interpreting test results and the risks and benefits of genetic testing. In this recording, speakers also review who is considered eligible for genetic testing in heritable pulmonary arterial hypertension.
Fundamentals of Genetic Testing
Watch the webinar recording to review an overview of genetics and genetic testing in pulmonary hypertension. Learn about types of genetic tests, interpreting test results and the risks and benefits of genetic testing. In this recording, speakers also review who is considered eligible for genetic testing in heritable pulmonary arterial hypertension.
Unraveling the Link Between Sleep Apnea and Pulmonary Hypertension
Unraveling the Link Between Sleep Apnea and Pulmonary Hypertension Recorded on April 18, 2024 In this webinar, health care professionals Mary Jo Farmer, PH services director, and Tonya Zeiger, respiratory therapist, explain the different types of sleep disorders and how they may affect people with PH. Speakers also cover the
Hope Through Research in Pulmonary Hypertension: Clinical Trials
This webinar offers a closer look at the clinical trial process, including similarities and differences for adult and pediatric participation. The panelists will discuss promising clinical trials in the pipeline and how patients can participate.
Thanks to our supporters of PHA Connects, patient education programs.
Diamond
PHA thanks Janssen Pharmaceuticals, Inc. for its Diamond sponsorship of the PHA Connects fund, which sponsors patient education programming.
Silver
PHA thanks United Therapeutics for its Silver sponsorship of the PHA Connects fund, which sponsors patient education programming.
Bronze
PHA thanks Altavant for its Bronze sponsorship of the PHA Connects fund, which sponsors patient education programming.