PHA Live is a monthly series of Facebook Live events and webinars that provides an opportunity for those affected by pulmonary hypertension (PH) to hear from experts on health, wellness, science and research topics. Recordings of PHA Live events will become available on this page within three business days of the original program.

Navigating Open Enrollment Webinars

Each Thursday in October at 2 p.m. EDT

Join the Pulmonary Hypertension Association (PHA) at 2 p.m. EDT each Thursday in October for a four-part PHA Live webinar series titled “Navigating Open Enrollment.” The series is focused on key information to guide you through open enrollment for Medicare and health insurance plans. Each webinar will feature an engaging informational session and Q&A segment. The series will conclude with a live Q&A session. Come prepared with your insurance questions for expert Danielle Burkett, CMA, of Duke University Hospital and PHA staff.

Webinar Schedule

Intro to Open Enrollment – Oct. 6; 2 p.m. EDT
Medicare Overview – Oct. 13; 2 p.m. EDT
Medicare Tips and Troubleshooting – Oct. 20; 2 p.m. EDT
Ask the Expert – Oct. 27; 2 p.m. EDT

Register for individual webinars or the entire series.

Register Now!

Thanks to Janssen Pharmaceuticals, Inc. for being a Diamond level corporate sponsor of the PHA Connects fund which provides support for these PHA Live events.

About the Speakers

Danielle Burkett, CMA

Danielle Burkett has worked as a certified medical assistant (CMA) for Duke University Hospital’s Pulmonary Vascular Disease Center for seven and a half years. She works directly with insurance companies and specialty pharmacies to get PH medication approved for her patients. She loves her job and telling patients that they have been approved. She also assists patients in getting funding for expensive medication.

Jaeger Spratt, MSW

Jaeger Spratt is PHA’s advocacy and treatment access program manager. They coordinate PHA’s grassroots advocacy network. The network empowers people impacted by PH to effect change with elected officials. They also help community members with managing copay assistance, choosing insurance and other treatment-access issues. Jaeger received a Master of Social Work from Virginia Commonwealth University and has federal policy and legislative advocacy experience with the National Center for Transgender Equality.

Watch Previous PHA Live Events

2021-08-19T15:29:20-04:00

A Conversation About the PHA Registry

Dan Grinnan, M.D., speaks with one of his pulmonary hypertension (PH) patients, Shirl Rhodes, about her enrollment in the PHA Registry (PHAR), a registry of patients with pulmonary arterial hypertension (PAH), pediatric PH due to developmental lung disease and chronic thromboembolic pulmonary hypertension (CTEPH). Learn what it is like to participate in the PHAR and how PHAR supports PH research. PHA thanks Bayer for its Platinum Sponsorship and Janssen Pharmaceuticals, Inc. for its Diamond Sponsorship of the PHA Connects fund, which provides support to this PHA Live event.

2021-07-30T11:35:06-04:00

PHA Research Room Findings

Scientists and clinicians present findings from the 2018 PHA Research Room, the Pulmonary Hypertension Association (PHA)’s research project providing pulmonary hypertension (PH) patients the opportunity to participate in clinical research studies. Learn about pulmonary arterial hypertension (PAH) biomarkers, patient survey results from support group therapy, an outcomes risk assessment tool for PH patients and barriers to exercise therapy in PH. PHA thanks Bayer for its Platinum Sponsorship and Janssen Pharmaceuticals, Inc. for its Diamond Sponsorship of the PHA Connects fund, which provides support to this PHA Live event.

Thanks to our supporters of PHA Connects, patient education programs.

Diamond

PHA thanks Janssen Pharmaceuticals, Inc. for its Diamond sponsorship of the PHA Connects fund, which sponsors patient education programming.

Silver

PHA thanks United Therapeutics for its Silver sponsorship of the PHA Connects fund, which sponsors patient education programming.

Bronze

PHA thanks Altavant for its Bronze sponsorship of the PHA Connects fund, which sponsors patient education programming.