RESOURCES
Patient’s Survival Guide
It is hard to have complete understanding of a disease as complex as pulmonary hypertension (PH) when first diagnosed or even when you have lived with it for many years. Written by a patient and first published in 1998 and now in its fifth edition, Pulmonary Hypertension: A Patient’s Survival Guide offers comprehensive information on what you need to know as a patient or caregiver. Read more
Glossary of Pulmonary Hypertension Terms
This glossary appears in Pulmonary Hypertension: A Patient’s Survival Guide (5th ed.). It was modified for the web to include links and additional references. View Glossary
Pulmonary Hypertension Acronym Decoder
Acronyms and shorthand are commonplace among members of the PH community. But no one is born knowing the difference between your PAP and your PCP. Newcomers and old-timers alike can use this convenient alphabetical list to brush up on common PH-related abbreviations. View decoder
General Resources
Find more information and resources about PH and related topics, including disability assistance, clinical trials, emergency response, medication safety, supplemental oxygen, air travel and transplant. View links
Related Health Organizations
Explore related disease organizations for more information on some of the illnesses commonly associated with pulmonary hypertension. View links
Pharmaceutical and Specialty Pharmacy Companies
See a complete listing of all the manufacturers of PH treatments.