Navigating Pulmonary Hypertension: A Guide for the Newly Diagnosed Patient

“Navigating Pulmonary Hypertension: A Guide for Newly Diagnosed Patients” is designed to help people with pulmonary hypertension (PH), their caregivers and families learn more about diagnosis, treatment and resources for help in the first weeks, months or years after PH diagnosis. The 60-page book includes checklists, resources and questions to ask doctors. It also provides information about support networks, participating in clinical trials and daily quality of life issues.

This new publication carries on PHA’s tradition of empowering patients and caregivers through previous publications such as “Survival Guide,” “Roadmap to Hope” and “Understanding Pulmonary Hypertension.” Although PHA no longer publishes those books, “Navigating PH” covers a range of topics in ways that are accessible, practical and relevant.

Order a free copy of the print booklet, read it online or download a PDF.

Glossary of Pulmonary Hypertension Terms

This glossary appears in Pulmonary Hypertension: A Patient’s Survival Guide (5th ed.). It was modified for the web to include links and additional references. View Glossary

Pulmonary Hypertension Acronym Decoder

Acronyms and shorthand are commonplace among members of the PH community. But no one is born knowing the difference between your PAP and your PCP. Newcomers and old-timers alike can use this convenient alphabetical list to brush up on common PH-related abbreviations. View decoder

General Resources

Find more information and resources about PH and related topics, including disability assistance, clinical trials, emergency response, medication safety, supplemental oxygen, air travel and transplant. View links

Related Health Organizations

Explore related disease organizations for more information on some of the illnesses commonly associated with pulmonary hypertension. View links

Pharmaceutical and Specialty Pharmacy Companies

See a complete listing of all the manufacturers of PH treatments.