About Marcie

Marcie first noticed pulmonary hypertension symptoms while she was practicing softball with her youngest daughter, something she did frequently. Suddenly, she felt strangely out of breath. Soon after, simple tasks like grocery shopping or taking a shower left her winded.

In 2012, a right heart catheterization confirmed she had PH. At the time, Marcie’s doctor told her that the PHA website was the only place he wanted her to look for information. She followed his direction and found information about treatment and financial assistance. She says she wouldn’t be able to afford her PH treatments without the information on PHA’s website.

To show her appreciation, Marcie became a PHA volunteer. She has been a PHA support group leader since 2015.

Marcie chooses to look at her PH diagnosis as a blessing. PH has taught her not to take a single day for granted. She is most thankful that PH hasn’t robbed her of seeing her beautiful granddaughters, whom she calls the lights of her life that keep her going.

Read Marcie’s Right Heart Blog post.

Treatment familiarity:

• Bosentan (Tracleer)
• Inhaled treprostinil (Tyvaso)
• Macitentan (Opsumit)
• Oral treprostinil (Orenitram)
• Riociguat (Adempas)
• Selexipag (Uptravi)
• Tadalafil (Adcirca)

Other areas of experience:

• Connect to chat
• Grief/Loss of a loved one
• Oxygen support
• Titration support

Preferred communication methods:

• No preference

Preferred languages:

• English