About Tara
Tara’s journey with pulmonary arterial hypertension began in 2013, when she was diagnosed with PAH secondary to a congenital heart defect.
A former medical technologist, Tara left her career due to disability — an experience that gave her a unique perspective on what it means to live inside a diagnosis rather than just study one. She became a PHA Peer Mentor to support others navigating the complexities of Eisenmenger syndrome and PH, and to offer hope that a meaningful, connected life is still possible after diagnosis. She wants others to know that there is a community here, and that no one has to figure it out alone. Susan lives in the US Midwest.
Treatment familiarity:
- Ambrisentan (Letairis)
- Epoprostenol (Flolan, Veletri)
- Intravenous treprostinil (Remodulin)
- Macitentan (Opsumit)
- Oral treprostinil (Orenitram)
- Subcutaneous treprostinil
- Tadalafil (Adcirca)
- Winrevair (Sotatercept)
Experience with related illnesses:
- Congenital heart disease
- Sleep Apnea
Other areas of experience:
- Connect to chat
- Oxygen support
- Titration support
- Treatment access
Preferred communication methods:
Preferred languages:
- English