PHA STORE – FREE MATERIALS

The following items are free to download. Physical copies may be ordered for selected materials using the order form at the bottom of the page. However, due to COVID-19, PHA is taking extra safety measures to protect our customers and employees. This means a delay in the shipment of store orders. We appreciate your patience during this time. If you have questions about your order, please send us an email.

The Pulmonary Hypertension Association is unable to send free material to addresses outside of the United States.  Please email us at International@PHAssociation.org if you have any questions.

Associated Disease Resources

You can download PDF copies of the Associated Disease Resource Brochures.  If you would like to order printed copies of these brochures, use the order form at the bottom of the page.

PH & Congenital Heart Disease

Download this resource (PDF)

PH & Chronic Thromboembolic Disease

Download this resource (PDF)

PH & Hereditary Hemorrhagic Telangiectasia

Download this resource (PDF)

PH & HIV

Download this resource (PDF)

PH & Idiopathic Pulmonary Fibrosis

Download this resource (PDF)

PH & Liver Disease

Download this resource (PDF)

PH & Lupus

Download this resource (PDF)

PH & Methamphetamine Use

Download this resource (PDF)

PH & Sarcoidosis

Download this resource (PDF)

PH & Scleroderma

Download this resource (PDF)

PH & Sickle Cell Disease

Download this resource (PDF)

PH & Sleep Apnea

Download this resource (PDF)

In Your Time of Sorrow: A Bereavement Resource

In Your Time of Sorrow explains that bereaved family members – those experiencing the death of a loved one – are not alone and that they remain a welcome part of the PHA community. This resource also lists ways in which a bereaved person can memorialize their loved one through PHA, for example by havingtheir loved one’s name listed in Pathlight magazine’s Passages section or volunteering for PHA in their memory. Readers will also find other PHA support resources and information about other organizations that specialize in grief and bereavement.

Download this resource (PDF)

Guides for Living with Pulmonary Hypertension

Download  to learn about what to expect and how to move forward if you or someone in your family is living with pulmonary hypertension.

A Guide for the Newly DiagnosedA Guide for Long-Term SurvivorsA Guide for ParentsA Guide for CaregiversA Guide for Teens

"A Guide for Teens" Available for download only. Download this resource (PDF)

"A Guide for the Newly Diagnosed" Available for download only. Download this resource (PDF)

"A Guide for Parents" Available for download only. Download this resource (PDF)

"A Guide for Caregivers" Available for download only. Download this resource (PDF)

"A Guide for Long-Term Survivors" Available for download only. Download this resource (PDF)

Living With PH: A Guide to Intimacy

DISCLAIMER:  This guide has been created for adult members of the PH community interested in or engaged in physically intimate and/or sexual activity and contains sexually explicit information including references to sexuality and sex — both written and in images. PHA respects that it is the parents’ responsibility to teach their own beliefs about these topics to their children and it is not the intent ofPHA to promote or distribute this guide to children under the age of 18 without parental approval. As part of our mission, however, PHA makes its educational/information resources generally available through our website and store.

This resource is not designed to be a substitute for medical advice. As with any physical activity, you should talk to your doctor about whether you are healthy enough to engage in sex or any of the other activities described in this resource. PHA makes no warranty or guarantee as to the effectiveness of the methods described within this guide or that the activities are safe for all individuals. You assume full responsibility for how you choose to use this resource.

Download this resource (PDF)

Pediatric Pulmonary Hypertension: A guide to resources for parents and families

An overview of pediatric PH, includes information about finding an a PH care center with expertise in pediatric PH, ways to connect with other families, resources to help plan school and much more.

Download this resource (PDF)

PH Facts Wallet Card

The PHA Wallet Card describes PH, including common symptoms and risks and directs readers to the PHA website to learn more about the disease. This wallet card can be shared with those who may be at risk for developing PH from an associated disease or who exhibit symptoms. People with PH are not alone and PHA can help.

Download this resource (PDF)

Someone I Love Has PH

Geared to ages 10 to 14, this booklet explains PH for to children teenagers who have an adult in their life diagnosed with PH

Download this resource (PDF)

The New Normal

This book is designed to be both a resource and a source of reflection, with stories representing a cross section of patients across gender, race, age and type of PH. Journal prompts are included to empower people with PH to find your voice and your strength.

Download this resource (PDF)

What You Need to Know After a Pulmonary Embolism

Between 0.5% and 5% of people who experience a pulmonary embolism (PE) later develop chronic thromboembolic PH (CTEPH). If you or someone you care for have had a PE, learn about the risks for CTEPH as well as its signs, symptoms, diagnostic tests and treatments.

Download this resource (PDF)

Order Form

All of the following items can be downloaded above. If you prefer a printed copy, please fill out the form below.

There is a maximum order for each brochure of 5 per person.

I am a *
How do you plan on using these resources? *
Thank you - your order has been submitted
There was an error trying to send your message. Please try again later.