Darby Hetrick
Living My Best Life With PH
PHA Conference
PHA Board of Trustees
Jesus Cornejo: Big Heart
Film by Enrique Franco Martin
Chloe Temtchine
Facebook Live Mini Concert
Kerry Babylon
The Importance of Family
PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.
Anna Lindner: Challenges and Benefits to Growing Up With PH
“I want others with PH to know, whether you are young or older, no matter what life puts in front of you, you are worth it and just keep fighting because PH will not beat you.” I am Anna Lindner, and I am
Staying Hopeful With CTEPH Diagnosis
“I take each day as it comes with an optimistic approach to my CTEPH.” By Joyce Sandberg We moved to Port St. Lucie, Florida, in 2014 after living in Fort Lauderdale for 30 years. Once we settled in, I bought an adult
PAH Diagnosis Leads to Self-Discovery
“The road between then and now has been a long one. I have learned so much about life and who I want to be.” By Kimbery Toland "I was diagnosed with severe pulmonary arterial hypertension (PAH) in 2016. After trying a few
Sydni Burgess (caregiver)
“My hope is…to know there is something to always PHight for.” By Sydni Burgess (caregiver) “My mother, Rebecca "Becky" Burgess was diagnosed with pulmonary hypertension (PH) two years after I was born in 1997. To me, it was a regular day to
Riley’s Story
“Riley has been an amazing PHighter during it all. She doesn’t let it get her down and always has a smile on her face!” By Kelly Wiegele “For most of her early life, we thought Riley was just a normal and healthy
Brigette Thompson: This Is My PAH Story
“Every day that I wake up is a good day because I am still here.” “It all started one morning in 2011 when I went to work. I parked in the parking structure on the first level. I got to the elevator
My Long Journey to PH Diagnosis and My Hope for the Future
“I’m working and raising my children. I’m currently writing a book and creating a blog, so that I can tell my full story. I’m so glad my children can see their mom LIVE with PH!” By CraShundra Richardson One Sunday in September 2015, I
Traveling Salesperson Embarks on New Journey With PH
By Eileen Lepionka “I could barely make the walk through the yard, which was only about 150 feet.” "My Pulmonary Arterial Hypertension (PAH) journey began in August 2014. I was an active salesperson, selling toys at a hospital gift shop on
PHA 2020 Registration Opens, New Event Website Debuts
It’s the week the pulmonary hypertension (PH) community has been waiting for! Registration is now open for PHA 2020 International PH Conference and Scientific Sessions coming June 12-14 to Anaheim,
Research Fellow to Study How Inflammation Contributes to PH
Rahul Kumar, Ph.D., received the 2019 PHA/ATS Research Fellowship, one of three individual Pulmonary Hypertension Association research grants awarded last year, to study inflammation and how it contributes to pulmonary
Teen Learns Compassion Growing Up with PH
The Pulmonary Hypertension Association’s (PHA’s) The Right Heart blog brings you a story about 17-year-old Anna Lindner, who lives with idiopathic pulmonary hypertension (PH). Anna was diagnosed with PH
The Jones Family Walks in Memory of Daughter and Sister, Elizabeth
The Tampa O2breathe Walk and 5K will return for its second year on Saturday, Feb. 1, in Tampa, Florida. The Florida event allows individuals with pulmonary hypertension (PH), caregivers,
CEO Update: PHA 2020 Conference Registration Opens Next Week
It’s no exaggeration to say that all of us in the pulmonary hypertension (PH) Community begin a Conference year with a great sense of anticipation and excitement. Held every
10 Things to Know About PHA 2020 Scholarships
It’s almost here! Next week, at 12:01 a.m. EST on Jan. 22, the Pulmonary Hypertension Association (PHA) opens registration for PHA 2020 International PH Conference and Scientific Sessions
Staying Hopeful With CTEPH Diagnosis
The Pulmonary Hypertension Association’s (PHA’s) The Right Heart blog brings you a story about Joyce Sandberg, who lives with chronic thromboembolic pulmonary hypertension (CTEPH) and chronic obstructive pulmonary disease
Find Support Through Your Telephone
The Pulmonary Hypertension Association (PHA) hosts six telephone support groups to offer connection, information and inspiration to pulmonary hypertension (PH) community members from anywhere they have a telephone connection.
Finding Financial Assistance for PH Therapies
The Pulmonary Hypertension Association (PHA) offers resources for individuals with pulmonary hypertension (PH) seeking copay assistance at www.PHAssociation.org/HELP. The page includes information about nonprofit grant programs, manufacturer patient assistance programs
Kimbery Toland: PAH Diagnosis Leads to Self-Discovery
The Pulmonary Hypertension Association’s (PHA’s) The Right Heart blog brings you a story about Kimbery Toland who lives with pulmonary arterial hypertension (PAH). Kimbery was officially diagnosed with severe PAH in
Registration for PHA 2020 Is Just Two Weeks Away!
Are you ready for PHA 2020? In less than two weeks, registration opens on Jan. 22 for PHA 2020 International PH Conference and Scientific Sessions. PHA 2020, Vision for
Support Group Leaders Share 20 Tips for Living Well in 2020
The New Year is often a time for making resolutions that lead to a better quality of life. With that idea in mind, we asked our Pulmonary Hypertension
The PHaces of the Week – Jan. 2
This completes our “PHaces of Hope” campaign, which ran throughout November and December. Thank you to everyone who shared your hope with all of us in the pulmonary
Top 20 Stories in 2019
As 2019 comes to a close, we’d like to share with you our 20 most popular stories of the year in PHA News! Updated REVEAL Risk Calculator Improves
Top 10 Social Media Posts of the Year
This year’s most popular Pulmonary Hypertension Association (PHA) social media posts featured informative graphics, educational videos and special day announcements like Rare Disease Day and CTEPH Day. PHA
PHA Support Groups Celebrate!
Take a look at how Pulmonary Hypertension Association (PHA) support groups across the country are spreading holiday cheer! Find a PHA support group in your area by visiting the
The PHaces of the Week, Dec. 24
Although Pulmonary Hypertension Awareness Month has ended, responses to our “PHaces of Hope” campaign were so great that the Pulmonary Hypertension Association (PHA) is continuing to post the
Two New Genes Associated With PAH Identified Through NIH-Funded Research
Scientists recently published in Genome Medicine the identification of two more genes potentially associated with pulmonary arterial hypertension (PAH), through the work of the PAH Biobank, a National Institutes of
PHA Posts ‘Holiday Headspace’ Videos
Recognizing the increased stress that often accompanies the holiday season, especially for the pulmonary hypertension (PH) community, Pulmonary Hypertension Association (PHA) staff and volunteers have created a two-part “Holiday
3 Ways to Reduce Holiday Stress
“Approach to the Holidays: 3 Ways to Reduce Stress,” was written for Pathlight, the Pulmonary Hypertension Association’s (PHA’s) member magazine, by Patrick Mellin, who was diagnosed with pulmonary hypertension
Early Diagnosis, Prompt Treatment Offer Hope for Those With Rare Form of Pulmonary Hypertension
November 13 is CTEPH Awareness Day Silver Spring, MD (November 8, 2019) – As
Pulmonary Hypertension Awareness Month Draws Attention to Life-Threatening, Often Misdiagnosed Disease
The Pulmonary Hypertension Association’s ‘PHaces of Hope’ campaign shares stories of those with PH,
Pulmonary Hypertension Association’s On the Road Education Forum Arrives in Kansas City on Oct. 12
Free event offers education about pulmonary hypertension from local medical experts and networking opportunities
Research Fellow to Study How Inflammation Contributes to PH
Rahul Kumar, Ph.D., received the 2019 PHA/ATS Research Fellowship, one of three individual Pulmonary Hypertension Association research grants awarded last year, to study inflammation and how it contributes
Oxygen Survey May Lead to Better Technology and Advocacy
A team of Johns Hopkins University (Hopkins) engineering graduate students discovered the difficulties people with lung diseases experience accessing and obtaining portable oxygen equipment while shadowing Hopkins
PHA Presents Research on PH Awareness and Diagnostic Trends
Pulmonary Hypertension Association (PHA) staff and medical leadership presented research findings and interacted with global health care professionals with an interest in pulmonary hypertension (PH) at the
CTEPH Study Finds Higher Survival Rates Among Those Who Have Surgery
Individuals with chronic thromboembolic pulmonary hypertension (CTEPH, World Health Organization Group 4 PH) who have surgery to remove blood clots from the lungs could have a better
Positive Data from INSPIRE Trial Released
New data from “INSPIRE: A Phase 3 Open-Label, Multicenter Study to Evaluate the Safety and Tolerability of LIQ861 in PAH” was presented last week during the 39th
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