Darby Hetrick
Living My Best Life With PH
PHA Conference
PHA Board of Trustees
Jesus Cornejo: Big Heart
Film by Enrique Franco Martin
Chloe Temtchine
Facebook Live Mini Concert
Kerry Babylon
The Importance of Family
PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.
Traveling Salesperson Embarks on New Journey With PH
By Eileen Lepionka “I could barely make the walk through the yard, which was only about 150 feet.” "My Pulmonary Arterial Hypertension (PAH) journey began in August 2014. I was an active salesperson, selling toys at a hospital gift shop on
Gail Merz: PH Warrior Advocates for PH Education
"I live day to day never knowing what the day will bring to me... I just thank the Lord every day for giving me the day and pray for one more." "I resided in the metropolitan Atlanta area from 1950 till 2013. My
Fighting Lupus and PH: Bernadette’s Story
"2004 and 2007. Years that were life altering but have led me to my new normal. They are the years I was diagnosed with lupus and pulmonary hypertension (PH) respectively. "Hello, my name is Bernadette Bonifacio and I’m a Lupus Warrior and PHighter. Having
Find the Right Fitness Routine for You: Rebekah Calverley
“If I don’t push myself a little, I know I would just sit on the couch and a vicious cycle would ensue.” "This month the Boston Marathon took place. A culmination of months of training, countless half marathons and other qualifiers all
New Lungs Make Lauri Stanfield an Ambassador of Hope
“ I...love to tell my story and what organ donation has done for me, and how it’s affected my life as well as the lives of my families and friends.” "My name is Lauri Stanfield, I’m 47 years old, and I’m a
Michelle: Mom of Two Has Second Chance at Life After Transplant Surgery
“The change in my life and my recovery is nothing short of amazing. I will be forever grateful to my donor and her family for the precious gifts they gave me. I will cherish our organs forever…” "I am Michelle, a single
Barbara Holden: Train Adventure to Double Lung Transplant
“I feel so blessed to have been given this second chance opportunity. It never would have happened had it not been for someone who became an organ donor.” "You may remember my 1,200-mile trip from Florida to Massachusetts, by train, in September
Tina Proulx: From A Double Lung Transplant to Rollercoaster Rides
“I don’t know anything about [my organ donor], but they are MY HERO.” “I would like to start off by saying that I am here today because of one person and I have no idea who they are! I don’t know what
Share Your Hope with PHA for Pulmonary Hypertension Awareness Month
November is Pulmonary Hypertension Awareness Month. During this month, the Pulmonary Hypertension Association (PHA) also gives special recognition to one form of pulmonary hypertension (PH) on Nov. 13, CTEPH
Volunteer Spotlight: PHA Support Group Leader Lynn Bastian Shares Her Journey with PH
Lynn Bastian serves as the leader of the Chicago South Side Pulmonary Hypertension Association (PHA) Support Group. In this story, she describes her journey from a newly diagnosed individual
Open Enrollment: Navigating the Road to Health Insurance Coverage
Editor’s Note: We are rapidly approaching the period of open enrollment for Medicare, the Marketplace and Medicare Advantage. This article first appeared in Pathlight, the flagship magazine of the
Less than a Month to Go for PHA on the Road – Kansas City!
We are less than a month away from PHA on the Road in Kansas City, Kan. It takes place on Saturday, Oct. 12, at the Sheraton Overland Park Hotel at the
PHPN Symposium Draws Record Numbers to D.C.
The 2019 Pulmonary Hypertension Professional Network (PHPN) Symposium, “Influencing the Practice: The Art and Science of Treating Pulmonary Hypertension,” drew a record 548 attendees from all over the U.S.
Inside Pathlight, PHA’s Member Magazine
The latest issue of Pathlight, the flagship magazine of the Pulmonary Hypertension Association (PHA), was sent to PHA members last week. The magazine is published quarterly. Don’t miss the
PHPN Advocacy Day Brings PH Professionals to Capitol Hill
Another Pulmonary Hypertension Professional Network (PHPN) Advocacy Day is in the books, and what a day it was! More than 100 health care professionals came together on Capitol Hill
PHA Georgia Fun Walk for a Cure Honors Inspiring Memory of Its Founder
The 16th Annual PHA Georgia Fun Walk for a Cure is scheduled to take place on Saturday, Oct. 12, at East Cobb Park in Marietta, Ga. The event will
CEO Update: Join Our Volunteers in Supporting Events That Fund PHA’s Mission
Dear PHA Community, Throughout the year, our community of volunteers is the driving force behind the Pulmonary Hypertension Association’s (PHA's) mission-driven activities. Our success in serving the pulmonary hypertension
PH Professional Network (PHPN) Symposium Kicks Off Today!
The 2019 Pulmonary Hypertension Professional Network (PHPN) Symposium, “Influencing the Practice: The Art and Science of Treating Pulmonary Hypertension,” kicks off today. More than 400 medical professionals from all
Join Fun Walk in Southern Indiana on Oct. 19
PHA’s 2019 Greater Louisville/Southern Indiana Fun Walk takes place on Saturday, Oct. 19, in Jeffersonville, Ind. Event organizers aim to raise $15,000 for the PH community. Karen Storie, an
Rochester PH Community Launches Pediatric Support Group
The Rochester, N.Y., pulmonary hypertension (PH) community held the first meeting of its pediatric support group on Saturday, Aug. 24. Children with PH and their families were invited to
PHPN Symposium Begins Sept. 5 in Washington, D.C.
After months of anticipation, the 2019 PH Professional Network (PHPN) Symposium, “Influencing the Practice: The Art and Science of Treating Pulmonary Hypertension,” opens on Sept. 5 for three days
It’s Back-To-School Time! Here Are Tips for Parents of Kids with PH
It’s back-to-school time! It’s that special time of year when our social media feeds fill with images of kids headed to their first day of school. While going back
Karen Konar Joins Walk in Baltimore in Memory of Her Friend
The 2019 Baltimore O2breathe Walk will be held on Saturday, Oct. 5, at Canton Waterfront Park in Baltimore, Md. Individuals with pulmonary hypertension (PH), friends, families and health care
Couple Shares Inspiration from PHA on the Road
The Pulmonary Hypertension Association (PHA) is busy planning the second leg of its PHA on the Road educational forum on pulmonary hypertension (PH) that arrives in Kansas City, Kan.,
Volunteer Spotlight: Holly Szmutko, Northwest Indiana Support Group Leader
When Holly Szmutko learned of her pulmonary hypertension (PH) diagnosis, she struggled at first to adjust to her life with the condition. “When first diagnosed, I was in denial
PHA Registry Enrolls 1,000 Patients Across U.S.
The Pulmonary Hypertension Association's (PHA's) patient registry reached a significant milestone this month with the enrollment of its 1,000th patient. The PHA Registry (PHAR) continues to expand its important
Last Chance to Register Online for PHPN Symposium
The final countdown is on for the Pulmonary Hypertension Association’s PHPN Symposium, “Influencing the Practice: The Art and Science of Treating Pulmonary Hypertension.” It takes place from Sept.
Join Declan and Haylee at Walk4Hay in St. Louis
Declan Powers and Haylee York met at the church their families attend. Beyond their play dates and day-to-day activities together, one special day for them is the annual Pulmonary
Pulmonary Hypertension Association Brings On the Road Education Forum to San Francisco on August 10
Free event offers educational seminars on pulmonary hypertension from local medical experts and networking
Pulmonary Hypertension Association Promotes International World PH Day to Raise Awareness to Help Improve Patient Outcomes
Silver Spring, Md. (May 1, 2019) - The Pulmonary Hypertension Association (PHA) joins dozens
Cardiovascular Institute of North Colorado earns PHA Pulmonary Hypertension Care Centers Program accreditation
Designation assures access to specialized care for thousands with PH SILVER SPRING, MD (January
PHA Presents Research on PH Awareness and Diagnostic Trends
Pulmonary Hypertension Association (PHA) staff and medical leadership presented research findings and interacted with global health care professionals with an interest in pulmonary hypertension (PH) at the
CTEPH Study Finds Higher Survival Rates Among Those Who Have Surgery
Individuals with chronic thromboembolic pulmonary hypertension (CTEPH, World Health Organization Group 4 PH) who have surgery to remove blood clots from the lungs could have a better
Positive Data from INSPIRE Trial Released
New data from “INSPIRE: A Phase 3 Open-Label, Multicenter Study to Evaluate the Safety and Tolerability of LIQ861 in PAH” was presented last week during the 39th
New PHA Clinical Trial Finder Aims to Improve Patient Involvement in PH Research
Dear PH Community, In 1994, just three years after the Pulmonary Hypertension Association (PHA) was founded by three patients and a caregiver, PHA held its first International
Novel Clinical Trial Designs Featured in Advances-Published Paper
The Pulmonary Hypertension Association (PHA) just launched its new Clinical Trial Finder that allows individuals to search for research in pulmonary hypertension (PH), so it seems fitting
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