Darby Hetrick
Living My Best Life With PH
PHA Conference
PHA Board of Trustees
Jesus Cornejo: Big Heart
Film by Enrique Franco Martin
Chloe Temtchine
Facebook Live Mini Concert
Kerry Babylon
The Importance of Family
PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.
Fighting Lupus and PH: Bernadette’s Story
"2004 and 2007. Years that were life altering but have led me to my new normal. They are the years I was diagnosed with lupus and pulmonary hypertension (PH) respectively. "Hello, my name is Bernadette Bonifacio and I’m a Lupus Warrior and PHighter. Having
Find the Right Fitness Routine for You: Rebekah Calverley
“If I don’t push myself a little, I know I would just sit on the couch and a vicious cycle would ensue.” "This month the Boston Marathon took place. A culmination of months of training, countless half marathons and other qualifiers all
New Lungs Make Lauri Stanfield an Ambassador of Hope
“ I...love to tell my story and what organ donation has done for me, and how it’s affected my life as well as the lives of my families and friends.” "My name is Lauri Stanfield, I’m 47 years old, and I’m a
Michelle: Mom of Two Has Second Chance at Life After Transplant Surgery
“The change in my life and my recovery is nothing short of amazing. I will be forever grateful to my donor and her family for the precious gifts they gave me. I will cherish our organs forever…” "I am Michelle, a single
Barbara Holden: Train Adventure to Double Lung Transplant
“I feel so blessed to have been given this second chance opportunity. It never would have happened had it not been for someone who became an organ donor.” "You may remember my 1,200-mile trip from Florida to Massachusetts, by train, in September
Tina Proulx: From A Double Lung Transplant to Rollercoaster Rides
“I don’t know anything about [my organ donor], but they are MY HERO.” “I would like to start off by saying that I am here today because of one person and I have no idea who they are! I don’t know what
PHight like Shanta: Aaron Duncan
“You were chosen because you are PHighters and PHighters never back down from a PHight.” “Being diagnosed with pulmonary hypertension (PH) does not mean the end of life, rather the beginning of a new one. It doesn’t mean all dreams must go
Christa: Comedians and Exercise Help Keep Attitude Positive
“Luckily, some friends directed me to the PH Association website… That restored my hope!” "Hi. My name is Christa and in May 2010, I was diagnosed with idiopathic pulmonary arterial hypertension (PAH). "On May 19, 2010, I had an appointment to see
Blog Focuses on the Challenges of Fighting Lupus and PH
The Pulmonary Hypertension Association (PHA) is recognizing both World PH Day and Lupus Awareness Month throughout the month of May. Lupus is a long-term autoimmune disease in which the
Ambrisentan Options for Individuals with Pulmonary Arterial Hypertension
At the end of March, the Food and Drug Administration (FDA) approved four generic versions of ambrisentan, the pulmonary arterial hypertension-targeted therapy marketed as the brand name Letairis®. All
Limerick-filled Debate on Treatment Is Sure to Inform and Amuse
The Pulmonary Hypertension Association’s (PHA’s) PHPN Symposium, “Influencing the Practice: The Art and Science of Treating Pulmonary Hypertension,” Sept. 5-7, will feature a “limerick showdown” between Robert P. (Bob)
Boston O2breathe Walk Team Commemorates ‘Vivacious’ Teenager
Despite being diagnosed with idiopathic pulmonary arterial hypertension as an infant in the mid-80s, Sarah Atkinson lived a happy childhood. “She rode her bike, swam in the pool, we
World PH Day Puts Spotlight on PH Around the World
On May 5, the Pulmonary Hypertension Association (PHA) joined pulmonary hypertension (PH) organizations around the world in recognizing World PH Day. The goal of World PH Day is to
Celebrate Nurses Week and Sign Up for Symposium
In honor of National Nurses Week, May 5-12, the Pulmonary Hypertension Association (PHA) extends its heartfelt thanks to the many nurses worldwide who assist pulmonary hypertension (PH) patients and
Advocacy Success: Three States Pass Laws to Protect Patients Using Copay Cards
This year, Virginia and West Virginia passed legislation that requires all forms of copay assistance to count toward an individual’s deductible. Arizona passed more limited legislation that is a
FDA Comment Period on Life with a Rare Disease Still Open
Individuals with pulmonary hypertension (PH) and staff from the Pulmonary Hypertension Association (PHA) weighed in during a recent public meeting about living with a rare disease. The meeting was
CEO Update: World PH Day Shines a Light on Global Pulmonary Hypertension Awareness
Dear PH Community, Esperanza, Hoffnung, xiwàng, verwachting, espérer! Different words around the globe convey the same meaning: HOPE! Just as there are many ways to express the same word,
New Brochure Aids Those Coping with the Loss of a Loved One
The Pulmonary Hypertension Association (PHA) is pleased to offer a new brochure, In Your Time of Sorrow: A Bereavement Resource, available as a free download online at www.PHAssociation.org/Bereavement. In
Family Honors Water-Loving Grandfather at Chicago Stride for a Cure
On May 18, Doreen Potter and her family will attend the 2019 Stride for a Cure 5K and Walk outside of Chicago, in memory of Bud Vance, their father,
Call for Abstracts Deadline Extended!
The Pulmonary Hypertension Association (PHA) has extended the deadline for abstracts for the 2019 PHPN Symposium, “Influencing the Practice: The Art and Science of Treating Pulmonary Hypertension” Sept.
CTEPH Study Finds Higher Survival Rates Among Those Who Have Surgery
Individuals with chronic thromboembolic pulmonary hypertension (CTEPH, World Health Organization Group 4 PH) who have surgery to remove blood clots from the lungs could have a better five-year survival
Take Action for PH Patients: Speak Out on Step Therapy and Copay Cards
PHA’s advocacy action center has two new alerts that make it easy for you to speak out about legislation that impacts the PH community. Take action now with just
Abstracts Due May 3 for PHPN Symposium
May 3 is the last day to submit your abstracts for PHA’s PH Professional Network (PHPN) Symposium “Influencing the Practice: The Art and Science of Treating Pulmonary Hypertension,” Sept.
PHA Community Helps Spread the Word About Organ Donation
National Donate Life Month is coming to a close and the Pulmonary Hypertension Association (PHA) thanks each of you for helping us spread far and wide the importance of
Fundraisers Ready for 2019 Northern California O2breathe Walk
“I do not want to just survive, I want to THRIVE,” says Mona Singh, a first-time participant and the top fundraiser as of this writing for the 2019 Northern
PHA Joins NHLBI in Celebrating 50 Years of Progress in Pulmonary Science
The National Heart, Lung, and Blood Institute’s (NHLBI’s) Division of Lung Diseases celebrated its 50th anniversary April 9 with an NIH Symposium on lung research followed by a reception
Make an Impact on the Hill and Attend Our First-Ever Symposium Trivia Night
Health care professionals can register today for the Pulmonary Hypertension Association’s (PHA’s) 2019 PH Professional Network (PHPN) Symposium Sept. 5-7 in Washington, D.C., and take advantage of their proximity
Michelle Dukes’ Lung and Heart Transplant Highlights Importance of Organ Donation
National Donate Life Month continues to showcase the impact of registering to become an organ donor. This simple act can bring hope to patients on the National Transplant Registry
Pulmonary Hypertension Association Promotes International World PH Day to Raise Awareness to Help Improve Patient Outcomes
Silver Spring, Md. (May 1, 2019) - The Pulmonary Hypertension Association (PHA) joins dozens
Cardiovascular Institute of North Colorado earns PHA Pulmonary Hypertension Care Centers Program accreditation
Designation assures access to specialized care for thousands with PH SILVER SPRING, MD (January
PHA to host first Tampa O2breathe timed 5K and walk Feb. 2 to fight pulmonary hypertension
Silver Spring, MD (Jan. 22, 2019) — The Pulmonary Hypertension Association (PHA) will hold
CTEPH Study Finds Higher Survival Rates Among Those Who Have Surgery
Individuals with chronic thromboembolic pulmonary hypertension (CTEPH, World Health Organization Group 4 PH) who have surgery to remove blood clots from the lungs could have a better
Positive Data from INSPIRE Trial Released
New data from “INSPIRE: A Phase 3 Open-Label, Multicenter Study to Evaluate the Safety and Tolerability of LIQ861 in PAH” was presented last week during the 39th
New PHA Clinical Trial Finder Aims to Improve Patient Involvement in PH Research
Dear PH Community, In 1994, just three years after the Pulmonary Hypertension Association (PHA) was founded by three patients and a caregiver, PHA held its first International
Novel Clinical Trial Designs Featured in Advances-Published Paper
The Pulmonary Hypertension Association (PHA) just launched its new Clinical Trial Finder that allows individuals to search for research in pulmonary hypertension (PH), so it seems fitting
Study Suggests Reassessment of iNO Treatment Response Time in HRF Newborns Is Needed
A recent study published in BMC Pediatrics shows that reliable, objective, early criteria for inhaled nitric oxide (iNO) treatment response in newborns with hypoxic respiratory failure (HRF)
Thanks to Our Sponsors
(in-kind)
Interested in advertising?
PHA offers various advertising and sponsorship opportunities on PHANews.org for companies and non-profit organizations. Please contact Advertisements@PHAssociation.org for more information.