Darby Hetrick
Living My Best Life With PH
PHA Conference
PHA Board of Trustees
Jesus Cornejo: Big Heart
Film by Enrique Franco Martin
Chloe Temtchine
Facebook Live Mini Concert
Kerry Babylon
The Importance of Family
PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.
Joy Broadstock: Lack of Insurance Makes PH Journey Difficult
“I had noticed for almost a year now that I had shortness of breath. I thought it was because I had gained some weight.” “I am a 62-year-old woman. I had noticed for almost a year now that I had shortness of
Marybeth Alteneder: A Reminder to Remain Hopeful
“I want to take this opportunity to give hope to those people newly diagnosed.” “When I was first diagnosed and read about PH [pulmonary hypertension] online, I was very scared. My doctor sent me to Stanford where I was prescribed the treatment
Claudine Saxton: My PH Journey
“I am not sure what to expect. Will these symptoms stop or am I going to have to live with them?” “I am a 78-year-old lady. I have been having symptoms of pulmonary hypertension (PH) for quite some time. I kept thinking
Daisy Shaji: Faith Keeps Her Going
“Many times, I felt that I was reaching the end. Every time, however, Jesus lifted me up and gave me new hope.” “In January 2006, I was admitted to Christian Medical College & Hospital in Ludhiana, India, due to a severe fever.
Dolores Davis: Grants Help Pay for Life-Saving Meds
“Thank God for the grants that help pay for specialized medication!” “I was undiagnosed for several months. I was getting shorter of breath every day. I was almost to the point of not being able to get a breath before I saw
Joseph Hall: My Teen Son’s PH Diagnosis
“The reason I am sharing this story is awareness. I want as many people I know to be aware of this diagnosis in honor of [my son] … in hopes that such a tragedy is decreased, and early detection and diagnosis is obtained so
Jamie Prettner: Staying Active Through CTEPH Journey
“Although having CTEPH has caused me a lot of pain, sadness and anger, it has allowed me the opportunity to meet such amazing, supportive, people through conferences and support groups. These wonderful people gave me the hope and strength I needed to beat this disease.”
Gerry Langan: Getting PAH Diagnosis as Mother of Young Twins
“I'm thankful for the clinical research that has led to my pump and Remodulin and I hope that my story will be one that helps raise awareness for the seriousness and severity of PH.” “My name is Gerry, and I am 29-years-old.
Expert Panel Updates PAH Therapy Guidelines
Updated guidelines for pulmonary arterial hypertension (PAH) were recently completed by a panel of experts from the Pulmonary Hypertension Association, American Thoracic Society and the American Heart Association and
YouTube Videos Frequently Contain Misinformation on Idiopathic Pulmonary Fibrosis
Researchers and health care providers know that patients with rare diseases frequently rely on the internet for information on their condition, how it is diagnosed, how it is
Happy Valentine’s Day: PHA Releases New Intimacy Guide
What better way to celebrate Valentine’s Day than to announce a new Pulmonary Hypertension Association (PHA) resource on the topic of dating, relationships and intimacy? Today PHA releases “Living
Advocates Prepare for Rare Disease Day
Advocates across the U.S. are participating in free state advocacy events now through mid-March in collaboration with the National Organization for Rare Disorders (NORD) to celebrate Rare Disease Day
Advances in Pulmonary Hypertension Looks at Different Approaches to Treat Pediatric PH
Although the World Symposium on Pulmonary Hypertension (WSPH) has led pulmonary hypertension (PH) to be considered in five classifications, or groups, pediatric PH is more nuanced and there is
Join the National Discussion on Heart Disease During American Heart Month
February is American Heart Month and the Pulmonary Hypertension Association (PHA) encourages members to join the awareness campaign of the National Heart, Lung, and Blood Institute (NHLBI) of the
PHA’s Online Advances in Pulmonary Hypertension Examines Barriers in New PH Therapies
The latest issue of Advances in Pulmonary Hypertension: Official Journal of the Pulmonary Hypertension Association (PHA) — a free quarterly publication directed by an editorial board of renowned pulmonary hypertension
CEO Update: Year of Hope Begins With New and Continuing Programs
Dear PH Community, For me, January always is inspiring and energizing, in part because the new year represents hope, possibility and anticipation. I look forward to the year ahead
Early Signs of Pulmonary Vascular Disease Found in Adults Born Prematurely
One in 10 people in the U.S. is born prematurely. Premature birth is known to be associated with pulmonary vascular disease in infants and children, and registry studies have
Professionals Give Insights on Adaptive Strollers and Push Chairs for Children with PH
by Nidhy Varghese, M.D., and Erin Ely, R.N., CPN, of Texas Children’s Hospital Adaptive seating systems, such as adaptive strollers or push chairs, are technology for children with mobility-related
PHA Releases Updated Associated Condition Brochures
The Pulmonary Hypertension Association (PHA) updated and redesigned its PH& brochures, a series of 13 educational pamphlets that discuss the relationship of pulmonary hypertension (PH) and other conditions or
Joseph Hall: My Teen Son’s PH Diagnosis
“The reason I am sharing this story is awareness. I want as many people I know to be aware of this diagnosis in honor of [my son] … in
Share Your Story to Build New PH Champions in Congress
The government shutdown does not stop pulmonary hypertension (PH) advocacy. In fact, the nearly 100 new senators and representatives sworn into office at the beginning of the month represent
PHA’s Newest Publication Connects Pediatric Patients and Families to Vital Resources
The Pulmonary Hypertension Association (PHA) has produced a new resource, “Pediatric Pulmonary Hypertension: A Guide to Resources for Parents and Families,” in response to 2017 survey results of PHA’s
PHA’s Telephone Support Groups: Support Is Just a Call Away
The Pulmonary Hypertension Association’s (PHA’s) telephone support groups offer connection, information and inspiration to community members wherever they are. Brian, the caregiver for his wife Charlotte, who has pulmonary
PHA Publishes New Online CME Courses for Health Care Professionals
The Pulmonary Hypertension Association (PHA) recently published three new courses on PHA Online University, a program of PHA’s multi-sponsored Medical Education Fund and the go-to web platform for health care
Inside Pathlight, PHA’s Member Magazine
Pathlight, the flagship magazine of the Pulmonary Hypertension Association, is published quarterly and sent to all members of PHA. Don’t miss the many interesting articles in the December 2018,
Data Collected Through PHA’s Research Room Leads to the Identification of PAH Biomarker
Since the first Pulmonary Hypertension Association (PHA) Conference in 1994, the Research Room at PHA’s International PH Conference and Scientific Sessions has offered a dedicated space for individuals with
Top 10 PHA News Articles of 2018
Last year’s most popular PHA News articles focused on Pulmonary Hypertension Association (PHA) patient resources; treatments, clinical care and research in pulmonary hypertension (PH); and stories about individuals with
Jamie Prettner: Staying Active Through CTEPH Journey
“Although having CTEPH has caused me a lot of pain, sadness and anger, it has allowed me the opportunity to meet such amazing, supportive, people through conferences and support groups.
Cardiovascular Institute of North Colorado earns PHA Pulmonary Hypertension Care Centers Program accreditation
Designation assures access to specialized care for thousands with PH SILVER SPRING, MD (January
PHA to host first Tampa O2breathe timed 5K and walk Feb. 2 to fight pulmonary hypertension
Silver Spring, MD (Jan. 22, 2019) — The Pulmonary Hypertension Association (PHA) will hold
Early diagnosis is vital for proper treatment of life-threatening pulmonary disease
Pulmonary Hypertension Association establishes November 14 as CTEPH Awareness Day Silver Spring, MD (November
Expert Panel Updates PAH Therapy Guidelines
Updated guidelines for pulmonary arterial hypertension (PAH) were recently completed by a panel of experts from the Pulmonary Hypertension Association, American Thoracic Society and the American Heart
Advances in Pulmonary Hypertension Looks at Different Approaches to Treat Pediatric PH
Although the World Symposium on Pulmonary Hypertension (WSPH) has led pulmonary hypertension (PH) to be considered in five classifications, or groups, pediatric PH is more nuanced and
PHA’s Online Advances in Pulmonary Hypertension Examines Barriers in New PH Therapies
The latest issue of Advances in Pulmonary Hypertension: Official Journal of the Pulmonary Hypertension Association (PHA) — a free quarterly publication directed by an editorial board of renowned
Early Signs of Pulmonary Vascular Disease Found in Adults Born Prematurely
One in 10 people in the U.S. is born prematurely. Premature birth is known to be associated with pulmonary vascular disease in infants and children, and registry
Data Collected Through PHA’s Research Room Leads to the Identification of PAH Biomarker
Since the first Pulmonary Hypertension Association (PHA) Conference in 1994, the Research Room at PHA’s International PH Conference and Scientific Sessions has offered a dedicated space for
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