PHA's First
Comprehensive
Community Survey
Results highlight our
community's priority
focus areas
Post by Mitch
Koppelman, PhD
Strategic Planning
Committee Chair

Awareness

Do you have a
#Heart2CurePH?
Raising awareness helps
all people living with
pulmonary hypertension,
including those
not yet diagnosed.

Learn More

Researchers Debate
and Present Latest
PH Research at 113th
ATS Conference
Researchers also presented
studies based on data from
the Pulmonary Hypertension
Association Registry (PHAR).

11-year PH Survivor
to Deliver Message of
Hope and Triumph at
PHA on the Road Event

Pamela Combs of
St. Paul, Minn., is proving
to herself and others
that new treatments
and a positive outlook
can help extend and
improve patients’ lives.

Modified Functional
Classification System
May Help Predict
Pediatric PH Morbidity
and Mortality
The WHO functional classification,
while useful for adults,
was not intended for use in
children and infants.

Ambrisentan:
Study Confirms
Previously Published
Safety Data

VOLT study demonstrated
no new safety issues for
patients taking ambrisentan
in real life situations.

PHA Events
Connect with the
PH Community
Search for educational,
networking, fundraising and
awareness events near you.

Commuters Along
Amtrak’s Northeast
Corridor Learning
about PH from PHA’s
Heart2CurePH Ads

Ads feature PHA
celebrity champion
Traci Braxton and
#Heart2CurePH
message

PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.

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Featured News

The University of Kansas Health System Nursing Team to Attend Special Pulmonary Hypertension Association Symposium to Gain New Insights for Caring for Patients with Rare Lung Disease

SILVER SPRING, MD. (September 21, 2017) – A team of nurses at The University of Kansas Health System skilled in caring for patients with a little known deadly and

My Husband’s Unexplained Illness and PH Diagnosis

By Arianne Rohmann My active thirty-year-old husband was diagnosed with pulmonary hypertension (PH) and bi-lateral blood clots after experiencing unexplained symptoms for months… Five months later I was a

Liver Transplantation and Mean Pulmonary Artery Pressure

by Phyllis Hanlon, Contributing Writer People with liver disease can develop a type of pulmonary hypertension (PH – high blood pressure in the lungs) called portopulmonary hypertension (POPH). POPH involves

Take Action: Speak Out Against Graham-Cassidy Healthcare Proposal

Senators Lindsey Graham (R-SC) and Bill Cassidy (R-LA) introduced new legislation in mid-September to repeal and replace the Affordable Care Act (ACA). The Graham-Cassidy proposal is more far-reaching than other

Inadequate Coverage Nearly Cost Me My Life

By Sharon Thomas I had health care coverage when I found out I needed a life-saving heart and lung transplant for a disease called pulmonary hypertension. However, my insurance

Announcing “The Right Heart” – New PHA Blog Series of People Living Their Best Lives With PH

Living with a serious and rare diagnosis like pulmonary hypertension (PH) can be isolating. The PHA community is a network where people can connect with others who aren't just living

PHA PHriends Offer Hope and Support for People With PH and Their Caregivers

PHA PHriends are patient and caregiver volunteers in the PH community who are available to offer hope and support throughout your PH journey. Under the supervision of PHA, PHriends work with

UPDATES: Resources and Information for People Affected by Hurricane Irma

Recent hurricanes and wildfires have displaced and affected many in the PHA community. PHA is working with health care professionals, industry partners, specialty pharmacies, local PH Care Centers and support

Genetic Counseling and Testing May Provide Benefits for Patients With PAH

by Phyllis Hanlon, Contributing Writer Genetic testing is becoming more common for patients with certain medical conditions. For instance, cardiologists now refer patients more frequently for genetic testing to find

Life with PH: Emergency Preparedness and Your PH Emergency Kit

Nearly 700 members of the PHA community where affected by the devastation and flooding caused by Hurricane Harvey. For those impacted, PHA has worked with industry partners, specialty pharmacies,

FDA Approves First PH Drug for Pediatric Patients

This week, Actelion announced the first drug approved for the treatment of pediatric PH patients. Prior to the announcement, there were 14 FDA-approved PH treatments for adults living with

UPDATE: PHA and Partners Mobilize for PH Community Affected by Hurricane Harvey

Updated 9/7/17 by Michael Knappen, PHA Patient and Caregiver Programs The situation in the Houston area remains critical, but many hands and hearts are reaching out to help! I'm personally

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