PHA's First
Comprehensive
Community Survey
Results highlight our
community's priority
focus areas
Post by Mitch
Koppelman, PhD
Strategic Planning
Committee Chair

Awareness

Do you have a
#Heart2CurePH?
Raising awareness helps
all people living with
pulmonary hypertension,
including those
not yet diagnosed.

Learn More

Researchers Debate
and Present Latest
PH Research at 113th
ATS Conference
Researchers also presented
studies based on data from
the Pulmonary Hypertension
Association Registry (PHAR).

11-year PH Survivor
to Deliver Message of
Hope and Triumph at
PHA on the Road Event

Pamela Combs of
St. Paul, Minn., is proving
to herself and others
that new treatments
and a positive outlook
can help extend and
improve patients’ lives.

Modified Functional
Classification System
May Help Predict
Pediatric PH Morbidity
and Mortality
The WHO functional classification,
while useful for adults,
was not intended for use in
children and infants.

Ambrisentan:
Study Confirms
Previously Published
Safety Data

VOLT study demonstrated
no new safety issues for
patients taking ambrisentan
in real life situations.

PHA Events
Connect with the
PH Community
Search for educational,
networking, fundraising and
awareness events near you.

Commuters Along
Amtrak’s Northeast
Corridor Learning
about PH from PHA’s
Heart2CurePH Ads

Ads feature PHA
celebrity champion
Traci Braxton and
#Heart2CurePH
message

PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.

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Featured News

More Than a Spectator: Living My “New Normal” With PH

By Tami Arnold Most people don’t realize I’m sick. It’s not something you could guess by looking at me. When I was diagnosed with PH in 2008, I really

Specialty Pharmacies Contacting PH Patients Using Some Smith Medical Products

Smith Medical, the manufacturer of CADD Cassettes, has initiated a recall on some products that may have been shipped to PH patients between June of this year and the present. Smith

This Is Your Journey: Lessons in Transitioning from Pediatric to Adult PH Care

By Becca Atherton I was diagnosed at birth with complex congenital heart disease that caused me to develop pulmonary hypertension. Now 24 years old, I’m transitioning from pediatric PH

PHA Raising Awareness About Deadly Disease Linked to Chronic Blood Clots

Silver Spring, Md. (Oct. 11, 2017) –  The Pulmonary Hypertension Association (PHA) joins global health organizations for World Thrombosis Day as part of its push to raise awareness of

2017 PH Professional Network (PHPN) Symposium Brings PH-Treating Professionals Together in Washington, D.C. Metro Area

The 2017 PHPN Symposium, Navigating the Future: Individualizing Patient Care in the Face of Increasingly Complex Treatment Options, was held in the Washington, D.C., metropolitan area on Oct. 5-7, 2017. Health

2017 PHPN Symposium Attendees Attend Hill Day to Advocate for People Living With PH

PHA and the PH Professional Network (PHPN) hosted the 2017 PHPN Advocacy Day on Capitol Hill yesterday. Advocates met with Senate staff to talk about issues that are important

Family Rallies Around Child Living With PH: Everybody Deserves the Dream of “When I Grow Up…”

In Haylee's first year of life she was on the exact growth chart as her older sister, but was hit with several respiratory illnesses. As she grew older, some

Air Travel Concerns for People With PAH and Cardiovascular Disease

by Phyllis Hanlon, Contributing Writer According to the Bureau of Transportation Statistics, a total of 64.4 million passengers boarded airplanes in January 2015. That was the highest number since June

  • Brad A. Wong

CEO Update: PHA’s Commitment to Families of Children Living With PH

Dear Community Member, During my travels this year to PHA on the Road and special events and meetings across the country, I have met many children living with PH

Coming Full Circle: A Filmmaker’s Journey

By Robert Nyerges Although it seems like just yesterday, nearly ten years have gone by since the passing of my mother, Helena Strauch. Neither my mother or myself knew

Understanding “Super Responders” May Drive Personalized Treatment

by Phyllis Hanlon, Contributing Writer Recent studies report that the future in health care lies in personalized medicine. Personalized medicine is a developing field of health care that takes

Travel by Train: My 1,200 Mile PH Adventure

By Barbara Holden People living with PH often have special travel considerations that require extra planning. The quickest route – flying – isn’t always an option. Sometimes the choice

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