PHA News Home 2018-09-21T16:59:53+00:00

Darby Hetrick

Living My Best Life With PH

PHA Conference

PHA Board of Trustees

Jesus Cornejo: Big Heart

Film by Enrique Franco Martin

Chloe Temtchine

Facebook Live Mini Concert

Kerry Babylon

The Importance of Family



PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.

The Right Heart

Jamie Prettner: Staying Active Through CTEPH Journey

“Although having CTEPH has caused me a lot of pain, sadness and anger, it has allowed me the opportunity to meet such amazing, supportive, people through conferences and support groups. These wonderful people gave me the hope and strength I needed to beat this disease.”

Gerry Langan: Getting PAH Diagnosis as Mother of Young Twins

“I'm thankful for the clinical research that has led to my pump and Remodulin and I hope that my story will be one that helps raise awareness for the seriousness and severity of PH.” “My name is Gerry, and I am 29-years-old.

PH Angel Families Would Give Anything to Do Anything ‘Normal’ for Their Kids

“So, when you are thinking about all of the things you did for your kids today, think of all of the PH Angel families that would give anything to do anything "normal" for our kids. We have to find a cure.” “Our

Five-Year Old Callie Inspires Parents to Fight for a PH Cure

“We will not stop fighting for a cure! In the meantime, we will continue cherish every moment we have because, as Callie has taught us, you never know what tomorrow may bring.” by Nikki Linscott "In the summer of 2017, we noticed

Staying Positive Through Diagnosis: Elaine Lozano

"I was diagnosed with pulmonary hypertension in 2016 when I was 22 years old; now I’m 24. It’s been a hard, rough road and it has changed my life for the worst and for the better. I never thought in a million years I

Divorce, Cancer and PH Are No Match for Sylvia Kujawa’s Strength

“I went through a divorce and cancer at the same time in 2008, but I got through that. I had cancer for the second time in January 2012, and I have had pulmonary hypertension (PH) since March 2012. Life sometimes is not easy, but

Colleen Brunetti: Reflections on the Power of Telling Your Story

My name is Colleen Brunetti, and I am your Pulmonary Hypertension Association (PHA) Board of Trustees chair-elect. I’m the first patient to serve in this volunteer position in many years, and the enormity of that honor does not escape me. Truly, at PHA, we

Becca Hubbard: Find a Way to Make Someone’s Life Better

“If I’d never been diagnosed with PH, I don’t think I would have developed the interest in fundraising that I have… most days I struggle to find anything positive in my PH diagnosis, but if I can convince someone to donate to any charitable

Featured News

Share Your Story to Build New PH Champions in Congress

The government shutdown does not stop pulmonary hypertension (PH) advocacy. In fact, the nearly 100 new senators and representatives sworn into office at the beginning of the month represent

PHA’s Newest Publication Connects Pediatric Patients and Families to Vital Resources

The Pulmonary Hypertension Association (PHA) has produced a new resource, “Pediatric Pulmonary Hypertension: A Guide to Resources for Parents and Families,” in response to 2017 survey results of PHA’s

PHA’s Telephone Support Groups: Support Is Just a Call Away

The Pulmonary Hypertension Association’s (PHA’s) telephone support groups offer connection, information and inspiration to community members wherever they are. Brian, the caregiver for his wife Charlotte, who has pulmonary

PHA Publishes New Online CME Courses for Health Care Professionals

The Pulmonary Hypertension Association (PHA) recently published three new courses on PHA Online University, a program of PHA’s multi-sponsored Medical Education Fund and the go-to web platform for health care

Inside Pathlight, PHA’s Member Magazine

Pathlight, the flagship magazine of the Pulmonary Hypertension Association, is published quarterly and sent to all members of PHA. Don’t miss the many interesting articles in the December 2018,

Data Collected Through PHA’s Research Room Leads to the Identification of PAH Biomarker

Since the first Pulmonary Hypertension Association (PHA) Conference in 1994, the Research Room at PHA’s International PH Conference and Scientific Sessions has offered a dedicated space for individuals with

Top 10 PHA News Articles of 2018

Last year’s most popular PHA News articles focused on Pulmonary Hypertension Association (PHA) patient resources; treatments, clinical care and research in pulmonary hypertension (PH); and stories about individuals with

Jamie Prettner: Staying Active Through CTEPH Journey

“Although having CTEPH has caused me a lot of pain, sadness and anger, it has allowed me the opportunity to meet such amazing, supportive, people through conferences and support groups.

Cardiovascular Institute of North Colorado Receives PHA’s PHCC Accreditation

The Pulmonary Hypertension Association’s (PHA’s) Pulmonary Hypertension Care Centers (PHCC) program granted Regional Clinical Program (RCP) accreditation to the Cardiovascular Institute of North Colorado in December. PHA launched the

WSPH Report Explores Importance of Patient Perspectives in PH

In early 2018, a task force on the patient’s perspective was created at the sixth World Symposium on Pulmonary Hypertension (WSPH). This task force reviewed the role of patient associations

New Members Join 2018-20 Support Group Leader Advisory Board

The Pulmonary Hypertension Association (PHA) is pleased to announce the members of PHA's Support Group Leader Advisory Board for the 2018-2020 term: Lindsay Collins – new member Debra Hines

PH Co-Pay Assistance Fund Open at PAN Foundation

As of 1/2/2019, Medicare recipients with pulmonary hypertension can apply for a co-pay assistance grant up to $5,300 from the PAN Foundation. Phone lines will likely be crowded, so online

Gerry Langan: Getting PAH Diagnosis as Mother of Young Twins

“I'm thankful for the clinical research that has led to my pump and Remodulin and I hope that my story will be one that helps raise awareness for the

  • Brad A. Wong

CEO Update: Happy Holidays to Our PHA Community

Dear PHA Community, As the end of 2018 approaches and we all take time to reflect on the past year, including remembering loved ones we have lost, I want

Holiday Greetings from PHA

PH Angel Families Would Give Anything to Do Anything ‘Normal’ for Their Kids

“So, when you are thinking about all of the things you did for your kids today, think of all of the PH Angel families that would give anything to

Is Race a Risk Factor for Pulmonary Hypertension?

by Phyllis Hanlon, Contributing Writer Few studies have examined whether race makes a difference in how often pulmonary hypertension (PH) occurs and what causes it. These questions prompted a

Five-Year Old Callie Inspires Parents to Fight for a PH Cure

“We will not stop fighting for a cure! In the meantime, we will continue cherish every moment we have because, as Callie has taught us, you never know what

Staying Positive Through Diagnosis: Elaine Lozano

"I was diagnosed with pulmonary hypertension in 2016 when I was 22 years old; now I’m 24. It’s been a hard, rough road and it has changed my life

In Memoriam: Sarah K. “Sally” Maddox, Ed.D.

We are deeply saddened by the passing of PHA Board of Trustees member and longtime volunteer Sally K. Maddox on Saturday, Dec. 1, 2018, in Atlanta. Diagnosed with idiopathic

PHA Press

Early diagnosis is vital for proper treatment of life-threatening pulmonary disease

Pulmonary Hypertension Association establishes November 14 as CTEPH Awareness Day Silver Spring, MD (November

PHA stresses need for increased awareness of life-threatening disease

November is Pulmonary Hypertension Awareness Month Silver Spring, MD (Nov. 1, 2018) – Each November,

PHA Accreditation Program Assures Access to Specialized Care for Thousands with Often-Misdiagnosed Deadly Lung Disease

SILVER SPRING, MD (October 3, 2018) – A national accreditation program launched by the Pulmonary

PH Research

Data Collected Through PHA’s Research Room Leads to the Identification of PAH Biomarker

Since the first Pulmonary Hypertension Association (PHA) Conference in 1994, the Research Room at PHA’s International PH Conference and Scientific Sessions has offered a dedicated space for

Is Race a Risk Factor for Pulmonary Hypertension?

by Phyllis Hanlon, Contributing Writer Few studies have examined whether race makes a difference in how often pulmonary hypertension (PH) occurs and what causes it. These questions

Researchers at Vanderbilt Publish First Study from PHA’s 2018 Research Room

Using fitness devices and cell phones, pulmonary hypertension (PH) researchers compared the physical activity of individuals with and without pulmonary arterial hypertension (PAH) in the first research

Common Antacids: Beneficial for Patients with Pulmonary Hypertension?

by Phyllis Hanlon, Contributing Writer Certain over-the-counter (OTC) medications such as Pepcid®, Tagamet® and Zantac® are used to treat ulcers and excess stomach acid. These drugs, technically known

PAH Study: Is Morbidity Related to Mortality?

by Phyllis Hanlon, Contributing Writer People with a serious illness such as pulmonary hypertension (PH) must form a partnership with their health care providers to effectively manage

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