Darby Hetrick
Living My Best Life With PH
PHA Conference
PHA Board of Trustees
Jesus Cornejo: Big Heart
Film by Enrique Franco Martin
Chloe Temtchine
Facebook Live Mini Concert
Kerry Babylon
The Importance of Family
PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.
Christa: Comedians and Exercise Help Keep Attitude Positive
“Luckily, some friends directed me to the PH Association website… That restored my hope!” "Hi. My name is Christa and in May 2010, I was diagnosed with idiopathic pulmonary arterial hypertension (PAH). "On May 19, 2010, I had an appointment to see
Qiana Lomax: The Importance of a Support System
“I am extremely glad I have friends and family that are helping me through this process, no one should do this alone.” “I am 21-year-old college student studying to be a Physician Assistant and I was diagnosed with Pulmonary Arterial Hypertension (PAH)
Learning to Deal With a Chronic Illness
“When the pulmonology team met with my husband and me and tried to explain CTEPH, I simply broke down.” “I am 57 years old and was diagnosed last November at the University of Kansas (KU MED) Hospital in Kansas City with CTEPH
Living With Two Rare Diseases
“Rare Disease Day is not just about PH; it is also a recognition of the many rare diseases for which resources and funding are often limited.” By Shan Hardwick “I have PH, caused by scleroderma. I had symptoms of a scleroderma-related syndrome
Catherine Sta Maria
“She's [mother] been experiencing difficulty breathing for eight years, but her cardiologist told us it was because of her age — 80 years —and it was only in her mind.” "My mother has pulmonary hypertension with COPD and dysfunction of left valve
Joy Broadstock: Lack of Insurance Makes PH Journey Difficult
“I had noticed for almost a year now that I had shortness of breath. I thought it was because I had gained some weight.” “I am a 62-year-old woman. I had noticed for almost a year now that I had shortness of
Marybeth Alteneder: A Reminder to Remain Hopeful
“I want to take this opportunity to give hope to those people newly diagnosed.” “When I was first diagnosed and read about PH [pulmonary hypertension] online, I was very scared. My doctor sent me to Stanford where I was prescribed the treatment
Claudine Saxton: My PH Journey
“I am not sure what to expect. Will these symptoms stop or am I going to have to live with them?” “I am a 78-year-old lady. I have been having symptoms of pulmonary hypertension (PH) for quite some time. I kept thinking
Study Suggests Reassessment of iNO Treatment Response Time in HRF Newborns Is Needed
A recent study published in BMC Pediatrics shows that reliable, objective, early criteria for inhaled nitric oxide (iNO) treatment response in newborns with hypoxic respiratory failure (HRF) still needs
Join New Fundraising Walk in Northern Virginia on May 4
The Pulmonary Hypertension Association (PHA) will host the inaugural Northern Virginia Walk on Saturday, May 4, in Alexandria, Va. The walk offers an opportunity for patients, caregivers, friends, family
Christa: Comedians and Exercise Help Keep Attitude Positive
“Luckily, some friends directed me to the PH Association website… That restored my hope!” "Hi. My name is Christa and in May 2010, I was diagnosed with
New Online Tool Simplifies Clinical Trial Search
The Pulmonary Hypertension Association (PHA) is pleased to announce the launch of its new Clinical Trial Finder, now available in the research section of the PHA website, PHAssociation.org. PHA
PHA Helps Spread Awareness of Blood Clots and Relationship to PH
The Pulmonary Hypertension Association (PHA) is pleased to join The National Blood Clot Alliance and other health care organizations around the nation to spread the word about blood clots
Updated REVEAL Risk Calculator Improves Accuracy of PAH Survival Predictions
A team of researchers has increased the accuracy of a tool used to predict survival for individuals with World Health Organization Group 1 PH (pulmonary arterial hypertension or PAH).
Second Generic Tadalafil Product Announced
Questions to Consider When Choosing Between Brand and Generic Therapy Teva Pharmaceutical Industries recently announced the launch of ALYQ ™ (tadalafil), a generic version of the drug Adcirca®. Mylan
CEO Update: Rare Disease Day Plays Important Role in Increased PH Awareness
Dear PH Community, The last day of February — whether it is the 28th or the 29th in a leap year — is special since it is recognized internationally
PHA Promotes PH’s Connection to Heart Disease During American Heart Month
American Heart Month is ending, but the fight to elevate heart health consciousness continues. Throughout February the Pulmonary Hypertension Association (PHA) has been using social media to spread the
Expert Panel Updates PAH Therapy Guidelines
Updated guidelines for pulmonary arterial hypertension (PAH) were recently completed by a panel of experts from the Pulmonary Hypertension Association, American Thoracic Society and the American Heart Association and
YouTube Videos Frequently Contain Misinformation on Idiopathic Pulmonary Fibrosis
Researchers and health care providers know that patients with rare diseases frequently rely on the internet for information on their condition, how it is diagnosed, how it is
Happy Valentine’s Day: PHA Releases New Intimacy Guide
What better way to celebrate Valentine’s Day than to announce a new Pulmonary Hypertension Association (PHA) resource on the topic of dating, relationships and intimacy? Today PHA releases “Living
Advocates Prepare for Rare Disease Day
Advocates across the U.S. are participating in free state advocacy events now through mid-March in collaboration with the National Organization for Rare Disorders (NORD) to celebrate Rare Disease Day
Advances in Pulmonary Hypertension Looks at Different Approaches to Treat Pediatric PH
Although the World Symposium on Pulmonary Hypertension (WSPH) has led pulmonary hypertension (PH) to be considered in five classifications, or groups, pediatric PH is more nuanced and there is
Join the National Discussion on Heart Disease During American Heart Month
February is American Heart Month and the Pulmonary Hypertension Association (PHA) encourages members to join the awareness campaign of the National Heart, Lung, and Blood Institute (NHLBI) of the
PHA’s Online Advances in Pulmonary Hypertension Examines Barriers in New PH Therapies
The latest issue of Advances in Pulmonary Hypertension: Official Journal of the Pulmonary Hypertension Association (PHA) — a free quarterly publication directed by an editorial board of renowned pulmonary hypertension
CEO Update: Year of Hope Begins With New and Continuing Programs
Dear PH Community, For me, January always is inspiring and energizing, in part because the new year represents hope, possibility and anticipation. I look forward to the year ahead
Early Signs of Pulmonary Vascular Disease Found in Adults Born Prematurely
One in 10 people in the U.S. is born prematurely. Premature birth is known to be associated with pulmonary vascular disease in infants and children, and registry studies have
Professionals Give Insights on Adaptive Strollers and Push Chairs for Children with PH
by Nidhy Varghese, M.D., and Erin Ely, R.N., CPN, of Texas Children’s Hospital Adaptive seating systems, such as adaptive strollers or push chairs, are technology for children with mobility-related
PHA Releases Updated Associated Condition Brochures
The Pulmonary Hypertension Association (PHA) updated and redesigned its PH& brochures, a series of 13 educational pamphlets that discuss the relationship of pulmonary hypertension (PH) and other conditions or
Cardiovascular Institute of North Colorado earns PHA Pulmonary Hypertension Care Centers Program accreditation
Designation assures access to specialized care for thousands with PH SILVER SPRING, MD (January
PHA to host first Tampa O2breathe timed 5K and walk Feb. 2 to fight pulmonary hypertension
Silver Spring, MD (Jan. 22, 2019) — The Pulmonary Hypertension Association (PHA) will hold
Early diagnosis is vital for proper treatment of life-threatening pulmonary disease
Pulmonary Hypertension Association establishes November 14 as CTEPH Awareness Day Silver Spring, MD (November
Study Suggests Reassessment of iNO Treatment Response Time in HRF Newborns Is Needed
A recent study published in BMC Pediatrics shows that reliable, objective, early criteria for inhaled nitric oxide (iNO) treatment response in newborns with hypoxic respiratory failure (HRF)
New Online Tool Simplifies Clinical Trial Search
The Pulmonary Hypertension Association (PHA) is pleased to announce the launch of its new Clinical Trial Finder, now available in the research section of the PHA website,
Updated REVEAL Risk Calculator Improves Accuracy of PAH Survival Predictions
A team of researchers has increased the accuracy of a tool used to predict survival for individuals with World Health Organization Group 1 PH (pulmonary arterial hypertension
Expert Panel Updates PAH Therapy Guidelines
Updated guidelines for pulmonary arterial hypertension (PAH) were recently completed by a panel of experts from the Pulmonary Hypertension Association, American Thoracic Society and the American Heart
Advances in Pulmonary Hypertension Looks at Different Approaches to Treat Pediatric PH
Although the World Symposium on Pulmonary Hypertension (WSPH) has led pulmonary hypertension (PH) to be considered in five classifications, or groups, pediatric PH is more nuanced and
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