PHA News Home 2018-04-04T20:15:34+00:00

Darby Hetrick

Living My Best Life With PH

PHA Conference

PHA Board of Trustees

Jesus Cornejo: Big Heart

Film by Enrique Franco Martin

Chloe Temtchine

Facebook Live Mini Concert

Kerry Babylon

The Importance of Family



PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.

 

The Right Heart

Early Diagnosis and Advanced Care Put Indianapolis Mom with Pulmonary Hypertension on Promising Path

Indianapolis, Ind. (April 10, 2018) -- Donna Sparks combats a progressive life-threatening lung disease with courage, conviction and compassion -- for herself and others who share her fight. Diagnosed three years ago with pulmonary hypertension (PH), Donna is an active participant in myPHA, the

St. Louis Survivor of Deadly Lung Disease Working Hard, Inspiring Others and Breathing Easily

St. Louis, MO (March 20, 2018) -- Amanda Harvey-McKee’s life is the epitome of the notion that if you want to get something done, give it to a busy person. At age 39, she works 60 plus hours a week -- often flying from

Washington, D.C. Golden Glove Lightweight Champion Elvis Medrano Faces Biggest Battle with Deadly Lung Disease Diagnosis

Silver Spring, Md. (March 13, 2018) -- In and out of the boxing ring, Washington, D.C., Golden Glove lightweight champion Elvis Medrano is in a daily battle for his life. At 27, he’s lived six years with pulmonary hypertension (PH), a life-threatening disease also known

PHA Support Group Leader Stephanie Bachelder Wears Many Hats in Meeting With Congressman

PHA support group leader volunteers take on many roles in the pulmonary hypertension (PH) community. Many are living with PH -- others are caregivers or health care professionals -- in addition to being constituents, advocates, friends, mentors and champions of the PH community. Support

How the Unknown Led to Certainty for PhD Student and PH Patient Raele Robison

Raele Robison was a student in a demanding PhD program when she was diagnosed with scleroderma and pulmonary hypertension. Now armed with answers about what was causing her mysterious symptoms, she is living her best life with PH. By Raele Robison I remember the way

The Barefoot Movement: PHighting for a Cure for Jackson

Noah Wall is a singer, songwriter, and fiddler in the award winning acoustic band “The Barefoot Movement.”  Her nephew Jackson Wall was diagnosed with pulmonary hypertension (PH) at one year old. Jackson’s parents hold a golf tournament each year to raise funds and awareness for

  • Luis Cortes with mother, Doris Andujar, and father, Enrique Cortes

Living and Breathing through PH – and Hurricane Maria

by Luis Cortes I was born in 1976 and raised on the beautiful island of Puerto Rico with a congenital heart defect called, Tetralogy of Fallot. Since no open heart surgeries were done on the island back then, my parents took me to the

The Right Heart Video Series: Kerry Babylon

Kerry Babylon is living her best life with PH. In this video post from PHA's The Right Heart blog series, she talks about traveling with PH and the importance of family. Kerry recently starred in a public services announcement with PHA's celebrity ambassador Terrence J and

Featured News

Global Community Joins Hearts to Advocate for People Living with a Commonly Misdiagnosed and Deadly Lung Disease

SILVER SPRING, MD (April 13, 2018) – Organizations around the world will join forces on May 5 to raise awareness for pulmonary hypertension (PH).  PH is a complex, life-threatening, too-often

Ask the Expert: Managing Seasonal Allergies in Patients With Pulmonary Hypertension (PH)

By Nathan Verlinden, Cardiology Clinical Pharmacy Specialist, Allegheny General Hospital, Pittsburgh Nathan Verlinden received his PharmD from Drake University in Des Moines, Iowa, in 2013. He then completed a post-graduate

Share Your Story to Fight for PH Charitable Assistance Programs

"If I didn’t have the medication I wouldn’t be around. I would have passed away. And I don’t want to do that because I have great grandchildren and I

Nadine Al-Naamani, M.D., M.S., Aldrighetti Research Award for Young Investigators Grant Recipient, Shares Research Journey and Hope for the Future

Nadine Al-Naamani, M.D., M.S., University of Pennsylvania, and Andrew Sweatt, M.D., Stanford University, were the research awardees of the 2017 Aldrighetti Research Award for Young Investigators and PHA/ATS Research

Study Finds Inhaled Nitric Oxide May Benefit Patients with COPD and Pulmonary Hypertension

by Phyllis Hanlon, Contributing Writer   The Centers for Disease Control and Prevention (CDC) reports that about 15.7 million people in the U.S. have been diagnosed with chronic obstructive pulmonary disease

Early Diagnosis and Advanced Care Put Indianapolis Mom with Pulmonary Hypertension on Promising Path

Indianapolis, Ind. (April 10, 2018) -- Donna Sparks combats a progressive life-threatening lung disease with courage, conviction and compassion -- for herself and others who share her fight. Diagnosed

2017 PHA/ATS Research Fellowship in Pulmonary Arterial Hypertension Award Grantee Discusses Work and Research

Andrew Sweatt, M.D., Stanford University, and Nadine Al-Naamani, M.D., M.S., University of Pennsylvania, are the research awardees of the 2017 PHA/ATS Research Fellowship in Pulmonary Arterial Hypertension and Aldrighetti Research

Clinicians Explore Mindfulness as a Possible Benefit to Complement Pulmonary Hypertension Treatments

Note: PHA cautions PH patients to check with their doctor before taking up yoga, meditation and other mindfulness practices. Pulmonary hypertension (PH) is a progressive disease that affects the

PHA Wants to Hear from Kids with PH, Parents and Providers

The Pulmonary Hypertension Association (PHA) launched a survey of the pediatric PH community today to learn more about the needs of children with PH, their parents and providers. This brief

With the Right Diagnosis, Sharyn Robbins is Back to Bowling with Spare Time to Support the Pulmonary Hypertension Association

Silver Spring, Md. (March 28, 2018) - At Manasquan High School in Manasquan, NJ, where she taught physical education and health classes for 35 years, Sharyn Robbins was a

Pulmonary Hypertension Association Registry Gives People Living with Deadly Lung Disease a Chance to Advance Patient Care

Silver Spring, Md. (March 23, 2018) – The Pulmonary Hypertension Association (PHA) patient registry is giving more than 500 people with two deadly, often-misdiagnosed breathing diseases a way to advance

Are Two Drugs Better Than One for PAH?

by Phyllis Hanlon, Contributing Writer   Research in managing WHO Group 1 PH (PAH, pulmonary arterial hypertension) has resulted in new drugs and strategies that have extended and are improving

St. Louis Survivor of Deadly Lung Disease Working Hard, Inspiring Others and Breathing Easily

St. Louis, MO (March 20, 2018) -- Amanda Harvey-McKee’s life is the epitome of the notion that if you want to get something done, give it to a busy

Washington, D.C. Golden Glove Lightweight Champion Elvis Medrano Faces Biggest Battle with Deadly Lung Disease Diagnosis

Silver Spring, Md. (March 13, 2018) -- In and out of the boxing ring, Washington, D.C., Golden Glove lightweight champion Elvis Medrano is in a daily battle for his life.

Important Correction Notice for Professionals Who Received the PH Clinical Quick Reference Guide

Dear PH Professionals: If you received a copy of PH Clinical Quick Reference Guide, please discard. Page 1 of the guide “Classifying PH,” incorrectly states that an elevated pulmonary artery

  • Brad A. Wong

CEO Update: Volunteers Take Action to Support the Pulmonary Hypertension Community

Dear PHA Community Member: Every year, spring marks the beginning of the pulmonary hypertension (PH) community’s annual fundraising events to support the Pulmonary Hypertension Association (PHA) and its mission –

PHA Support Group Leader Stephanie Bachelder Wears Many Hats in Meeting With Congressman

PHA support group leader volunteers take on many roles in the pulmonary hypertension (PH) community. Many are living with PH -- others are caregivers or health care professionals --

Arizona Survivor of Type of Pulmonary Hypertension Caused by Blood Clots Walks for PH

Tucson, Ariz. (March 5, 2018) - The regulars who get their steps in early at Sabino Canyon National Park have come to know Eric Simmons, at least by face.

How the Unknown Led to Certainty for PhD Student and PH Patient Raele Robison

Raele Robison was a student in a demanding PhD program when she was diagnosed with scleroderma and pulmonary hypertension. Now armed with answers about what was causing her mysterious symptoms,

New Videos Answering Frequently Asked Questions About PH Published on PHA’s e-Learning Platform

Seven new videos — four in English and three in Spanish — are now live on PHA Classroom. We invite you to view these newly-released “Quick Clips” to get

PHA Press

Global Community Joins Hearts to Advocate for People Living with a Commonly Misdiagnosed and Deadly Lung Disease

SILVER SPRING, MD (April 13, 2018) – Organizations around the world will join forces on

Early Diagnosis and Advanced Care Put Indianapolis Mom with Pulmonary Hypertension on Promising Path

Indianapolis, Ind. (April 10, 2018) -- Donna Sparks combats a progressive life-threatening lung disease

With the Right Diagnosis, Sharyn Robbins is Back to Bowling with Spare Time to Support the Pulmonary Hypertension Association

Silver Spring, Md. (March 28, 2018) - At Manasquan High School in Manasquan, NJ,

PH Research

Nadine Al-Naamani, M.D., M.S., Aldrighetti Research Award for Young Investigators Grant Recipient, Shares Research Journey and Hope for the Future

Nadine Al-Naamani, M.D., M.S., University of Pennsylvania, and Andrew Sweatt, M.D., Stanford University, were the research awardees of the 2017 Aldrighetti Research Award for Young Investigators and

Study Finds Inhaled Nitric Oxide May Benefit Patients with COPD and Pulmonary Hypertension

by Phyllis Hanlon, Contributing Writer   The Centers for Disease Control and Prevention (CDC) reports that about 15.7 million people in the U.S. have been diagnosed with chronic obstructive

2017 PHA/ATS Research Fellowship in Pulmonary Arterial Hypertension Award Grantee Discusses Work and Research

Andrew Sweatt, M.D., Stanford University, and Nadine Al-Naamani, M.D., M.S., University of Pennsylvania, are the research awardees of the 2017 PHA/ATS Research Fellowship in Pulmonary Arterial Hypertension and

Pulmonary Hypertension Association Registry Gives People Living with Deadly Lung Disease a Chance to Advance Patient Care

Silver Spring, Md. (March 23, 2018) – The Pulmonary Hypertension Association (PHA) patient registry is giving more than 500 people with two deadly, often-misdiagnosed breathing diseases a way

Are Two Drugs Better Than One for PAH?

by Phyllis Hanlon, Contributing Writer   Research in managing WHO Group 1 PH (PAH, pulmonary arterial hypertension) has resulted in new drugs and strategies that have extended and

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