PHA News Home 2018-09-21T16:59:53+00:00

Darby Hetrick

Living My Best Life With PH

PHA Conference

PHA Board of Trustees

Jesus Cornejo: Big Heart

Film by Enrique Franco Martin

Chloe Temtchine

Facebook Live Mini Concert

Kerry Babylon

The Importance of Family



PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.

The Right Heart

My Journey with CTEPH

“Throughout my journey I have found that there is not enough awareness about PH and CTEPH. So, I have made it a personal mission to help raise awareness so that through early detection and intervention, lives can be saved.” – Angela Michelle By:

PHA Interviews their Celebrity Champion, Boxer Elvis Medrano

“Do not give up. We will find a cure eventually, just do not give up. Please be patient. It’s just a matter of time.” – Elvis Medrano Recently PHA caught up with our celebrity champion, boxer Elvis Medrano. Elvis sat down with

Mother’s Death Seven Years Ago Illustrates Need for Awareness

“I am writing this to serve as a warning to others to watch for PH symptoms.” “How ironic for me that Nov. 8 is National PH Day of Action during PH Awareness Month. On this date, seven years ago, my beloved mother,

In Memory of Shanta Duncan: My Wife with PH

“Advancements in PH treatments helped prolong my wife’s life but making the most of life was completely up to us. My wife was not going to be one to sit around and let this consume our lives.” "Friday, Oct. 12, 2018, is

PH Didn’t Keep Aunt Pat From Her Mission – to Help in Any Way She Could

“I want others to stay positive and know that life is precious. Take time to savor the small things. Enjoy one another. Love others. Be kind.” – Nicole Lowe By: Nicole Lowe “My aunt was diagnosed with pulmonary arterial hypertension (PAH) in

PH, Cancer and Heart Failure no Match for Survivor Constance Claypool

“Through it all, I am a survivor! I will not be defined by this disease. I will continue to do the things I love to do!” by Constance Claypole “I was born in Rutland, Vermont, in 1947. I’ve lived in many locations

Post-Transplant Life is an Unexpected Adventure

By Kathleen Sheffer From left, Kathleen and Monica in the German Alps, with help from a self-timer. Against a fair amount of unfavorable odds, I will be photographing PHA’s 13th International PH Conference and Scientific Sessions. This will be the ninth Conference

Rebekah Calverley Lives an Amazing, Beautiful, Fearless Life with Pulmonary Hypertension

Born in Auckland, New Zealand, Rebekah was sick a lot as a toddler with colds and even pneumonia.  That didn’t stop her from being active like any other child as her parents searched for answers for her continued illnesses. When she was two and

Featured News

My Journey with CTEPH

“Throughout my journey I have found that there is not enough awareness about PH and CTEPH. So, I have made it a personal mission to help raise awareness so that

Early diagnosis is vital for proper treatment of life-threatening pulmonary disease

Pulmonary Hypertension Association establishes November 14 as CTEPH Awareness Day Silver Spring, MD (November 14, 2018) – In order to help raise awareness and improve diagnosis of a rare form

PHA Interviews their Celebrity Champion, Boxer Elvis Medrano

“Do not give up. We will find a cure eventually, just do not give up. Please be patient. It’s just a matter of time.” – Elvis Medrano

Pulmonary Hypertension Awareness Month Outreach Makes a Big Impact

Last week the Pulmonary Hypertension Association (PHA) launched its annual awareness campaign, Pulmonary Hypertension Awareness Month, to increase knowledge of pulmonary hypertension (PH) among the general public, people at

First Tampa O2breathe Event Planned for February

Join us for the inaugural Tampa O2breathe Fun Run and Walk on Feb. 2, 2019, at Al Lopez Park in Tampa, Fla. The event features a 5K fun run,

PAH Study: Is Morbidity Related to Mortality?

by Phyllis Hanlon, Contributing Writer People with a serious illness such as pulmonary hypertension (PH) must form a partnership with their health care providers to effectively manage the disease

Health Insurance Marketplace Open Enrollment Through Dec. 15

Now is the time to renew health insurance coverage purchased through a state or federal health insurance marketplace, also known as an insurance exchange. Marketplace open enrollment has begun and

Mother’s Death Seven Years Ago Illustrates Need for Awareness

“I am writing this to serve as a warning to others to watch for PH symptoms.” “How ironic for me that Nov. 8 is National PH Day

In Memory of Shanta Duncan: My Wife with PH

“Advancements in PH treatments helped prolong my wife’s life but making the most of life was completely up to us. My wife was not going to be one to

  • Brad A. Wong

CEO Update: Join PHA in Raising Awareness of PH in November

In fulfilling our mission at the Pulmonary Hypertension Association (PHA) to extend and improve the lives of those affected by pulmonary hypertension (PH), awareness is key. Although most of

PHA on the Road – Milwaukee Welcomes PH Community Members

The Pulmonary Hypertension Association (PHA) hosted a PHA on the Road: PH Patients and Families Education Forum Saturday, Oct. 27, in Milwaukee. Individuals with pulmonary hypertension (PH), PHA support group

Support PHA’s Mission During Awareness Month

PHA's Pulmonary Hypertension Awareness Month Fundraiser Help raise money for PHA during the month of November in four easy steps: Visit www.PHAssociation.org/November. Either register or login if you

PHA stresses need for increased awareness of life-threatening disease

November is Pulmonary Hypertension Awareness Month Silver Spring, MD (Nov. 1, 2018) – Each November, the Pulmonary Hypertension Association (PHA) focuses on the critical need to increase awareness – within

PH Didn’t Keep Aunt Pat From Her Mission – to Help in Any Way She Could

“I want others to stay positive and know that life is precious. Take time to savor the small things. Enjoy one another. Love others. Be kind.” – Nicole Lowe

Monthly Donor Makes PH His Commitment for Nearly 14 Years

When Gary Stacy was diagnosed with pulmonary hypertension (PH), he knew he had to give back somehow. Gary joined the Pulmonary Hypertension Association’s (PHA’s) Sustainers Circle, PHA’s monthly giving

PH with COPD: Is Sildenafil an Effective Treatment Option?

by Phyllis Hanlon, Contributing Writer All of the 14 targeted therapies for pulmonary hypertension (PH) are approved for use in patients with World Health Organization (WHO) Group 1 PH (pulmonary

Choose Your 2019 Medicare Coverage Through Dec. 7

Medicare open enrollment, also called annual enrollment, has begun and continues through Dec. 7. During open enrollment, all Medicare participants have the opportunity to change Medicare plans or add or drop coverage.

PHA Recognizes Respiratory Care Week

In recognition of Respiratory Care Week Oct. 21-27, the Pulmonary Hypertension Association (PHA) interviewed a registered respiratory therapist and certified pulmonary function technician. Tonya Zeiger, R.R.T., CPFT, is the pulmonary

PHA Engages Health Care Professionals at CHEST Annual Meeting

The Pulmonary Hypertension Association (PHA) recently exhibited at the American College of Chest Physicians (CHEST) Annual Meeting 2018 in San Antonio. Hundreds of health care professionals from around the globe

It’s No Trick: These Kids with PH Are a Treat

Pulmonary hypertension (PH) is not just a disease for adults, so the Pulmonary Hypertension Association (PHA) works hard to support children with PH and their families. In 2017, PHA

PHA Press

Early diagnosis is vital for proper treatment of life-threatening pulmonary disease

Pulmonary Hypertension Association establishes November 14 as CTEPH Awareness Day Silver Spring, MD (November

PHA stresses need for increased awareness of life-threatening disease

November is Pulmonary Hypertension Awareness Month Silver Spring, MD (Nov. 1, 2018) – Each November,

PHA Accreditation Program Assures Access to Specialized Care for Thousands with Often-Misdiagnosed Deadly Lung Disease

SILVER SPRING, MD (October 3, 2018) – A national accreditation program launched by the Pulmonary

PH Research

PAH Study: Is Morbidity Related to Mortality?

by Phyllis Hanlon, Contributing Writer People with a serious illness such as pulmonary hypertension (PH) must form a partnership with their health care providers to effectively manage

PH with COPD: Is Sildenafil an Effective Treatment Option?

by Phyllis Hanlon, Contributing Writer All of the 14 targeted therapies for pulmonary hypertension (PH) are approved for use in patients with World Health Organization (WHO) Group 1

Using a Risk Score Calculator to Predict Survival Rates

by Phyllis Hanlon, Contributing Writer The Registry to Evaluate Early and Long-term PAH Disease Management (REVEAL registry) is a study of approximately 3,500 people with World Health Organization

The DIBOSA Study: The 6MWT Helps Predict PH in Patients with SSc

by Phyllis Hanlon, Contributing Writer Research has found that World Health Organization (WHO) Group 1 pulmonary hypertension (PH) (pulmonary arterial hypertension, or PAH) affects 8 to 12

Results of Portopulmonary Hypertension Trial Released at European Respiratory Society Meeting

Actelion Pharmaceuticals Ltd. has announced the results of the first randomized controlled trial in portopulmonary hypertension (PoPH), which showed that macitentan (Opsumit®) significantly improved pulmonary vascular resistance

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