Darby Hetrick
Living My Best Life With PH
PHA Conference
PHA Board of Trustees
Jesus Cornejo: Big Heart
Film by Enrique Franco Martin
Chloe Temtchine
Facebook Live Mini Concert
Kerry Babylon
The Importance of Family
PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.
Born with Collapsed Lung, 36-Year-old Awaits Double Lung Transplant
“It was heartbreaking to leave our biggest supporters, but my family kept their faith strong.” By Jessica Romero I was born Oct. 26, 1983, at Denver General Hospital, now known as Denver Health, in Colorado. I was born three months prematurely and
Georgette Recognized a Rare Catch on the Volleyball Court. His Rare Diseases Spiked Later
“As Dean’s illness progresses, living each and every day is precious. We don’t take it for granted.” Georgette Bridger and her husband of 27 years, Dean, live in Suffolk, Virginia. Together they have four children and a dog Annabell. Dean was
19 Years After Diagnosis: Keeping Fit and Staying Hopeful
“I wanted to give up, but with lots of prayers and faith, I eventually started improving.” By Lorraine PolstonLorraine Polston of Amarillo, Texas, was diagnosed with idiopathic pulmonary arterial hypertension (PAH) in 2001. A registered nurse since 1992, she and her husband have
University Student Grapples With New PAH Diagnosis
“There is always something good in every day; we just need to look for it.” Sophia Grothoff, 22, of Bonn, Germany, was diagnosed with idiopathic pulmonary arterial hypertension (IPAH) in February 2020. Her story has been edited for style and clarity. I
Coming to Terms with PH
“I have a long road ahead of me, but one day at a time, right?” Jenny Phillips, 52, lives in Woodridge, Illinois. She has a sister, two brothers (including her twin) and nieces and nephews. An army veteran, she has been a
Ranolene Pillay Remembers Her Mom
“My mom taught me many things, but one thing in particular I want to share with all the PHighters...Sometimes the road may get tough, but darling, you are tougher!” By Ranolene Pillay Ranolene Rhissa Pillay, 24, lives in Kwazulu Natal, South Africa,
Lindsey Wheeldon Remembers Haley Willow
“PH wasn’t her identity. Although she was open about having this condition, it never once held her back.”
How Chelsea Kennedy’s PH Diagnosis Changed Her Life
“There is light at the end of the tunnel, and you are more than just PH. We will fight and we will win!” Chelsea Kennedy, 27, has been living with pulmonary hypertension (PH) since 2018. She lives with her five children, husband and
Helping the PH Community Navigate Unprecedented Times
As the holiday weekend approaches, the COVID-19 pandemic prevents us from enjoying activities normally associated with Independence Day. Instead of celebrating with picnics, parades and firework displays, we
Seeking PHashionistas for Summer PHling
Photo by Kathleen Sheffer Show off how you proudly flaunt or cleverly conceal oxygen cannulas, mobility devices and medication pumps. Get ready for a fashion show as part of
Texas Support Group Leader Aims to Empower, Give Hope
Estella Medina is a Pulmonary Hypertension Association (PHA) support group leader from El Paso, Texas. She shares her pulmonary hypertension (PH) journey from diagnosis to volunteerism. By Estella Medina
Finding a Budget-Friendly Way to Brighten Future for PH Patients
Ryan and Kenda James Ryan James joined the Pulmonary Hypertension Association (PHA)’s monthly giving program — the Sustainers Circle — in May because he felt
Born with Collapsed Lung, 36-Year-old Awaits Double Lung Transplant
“It was heartbreaking to leave our biggest supporters, but my family kept their faith strong.” By Jessica Romero I was born Oct. 26, 1983, at Denver General
Reconnect at PHA 2022. We’re going to Atlanta
As we look forward to a time when travel is safe again, the Pulmonary Hypertension Association (PHA) plans to welcome you in Atlanta. PHA 2022 International PH Conference and
Calling All PHashion Lovers: The Show Must Go Online
For years, the Pulmonary Hypertension Association (PHA)’s International PH Conference and Scientific Sessions has featured a fashion show to empower the pulmonary hypertension (PH) community. Attendees proudly flaunt
PH Journey: A Patient and Nurse Practitioner Connection
Allison Dsouza (center) and Elizabeth Colglazier (left) like to say they “grew up together in PH.” Allison, a 22-year-old nursing student at the University of California-Los Angeles (UCLA), was
Annual Gift Preserves Daughter’s Memory and Helps Other Patients
Randy Smith of Bloomington, Illinois, has been making donations to the Pulmonary Hypertension Association (PHA) for almost two decades in honor of his daughter, Ellen. Ellen was 13 years
5 Great Stories Available Only in Pathlight, PHA’s Member Magazine
5 Great Stories Available Only in Pathlight, PHA’s Member Magazine The latest issue of Pathlight, the Pulmonary Hypertension Association (PHA)’s quarterly magazine, is hot off the press and in
Turn Your Elected Officials Into PH Allies
Your senators and representatives become allies in the fight against pulmonary hypertension (PH) when they hear personal stories of people affected by the disease. Rep. Jamie Raskin (D-Maryland)
Friend Doubles Impact of PH Support Through Workplace Giving
When Victoria McVie was diagnosed with pulmonary hypertension (PH) at age 27, she was a newlywed and new homeowner. The PH diagnosis was a huge shock for the Monroe,
Discover Tactics to Manage Your Stress and Anxiety
The Pulmonary Hypertension Association hosted a June 12 virtual town hall on “Managing Stress and Anxiety” with psychiatrist Genie Priddy, social worker Marty Rice and PH patients and PHA
Get Help for Your Insurance Questions
The Pulmonary Hypertension Association (PHA) has overhauled its online Insurance and Treatment Access resources, previously known as the Online Insurance Guide. The section has easier navigation and an “Insurance
Georgette Recognized a Rare Catch on the Volleyball Court. His Rare Diseases Spiked Later
“As Dean’s illness progresses, living each and every day is precious. We don’t take it for granted.” Georgette Bridger and her husband of 27 years, Dean,
Help End Surprise Billing and Step Therapy
Thekla McGinley (right) shares PH materials with Anna Wilbourn in the district office of Rep. French Hill (R-Arkansas). As Congress debates what the next COVID-19 legislative package
Twin Affected by PH Prompts Family Support of PHA
When Melanie Brown faced a pulmonary hypertension (PH) diagnosis at age 22, she knew her family would be with her every step of the way. But doctors were stumped about
Is Your PH Caused by Chronic Lung Disease? See Our New Video
The Pulmonary Hypertension Association (PHA) recently released a new PHA Classroom video about Group 3 Pulmonary Hypertension. In the video, Shipla Johri, M.D., of Pulmonary Associates of Richmond, explains
Why the Parents of an Adult PH Patient Support PHA
Aleksandra was a “beautiful, but sickly little blue baby” when her parents Svjetlana and Spaso Ivanko came to the United States in 1993 as refugees from Bosnia and
Ease Your Isolation Through Advocacy
Many of us are apart from our loved ones during the pandemic, but we’re not alone. Working together, we can improve life for those with pulmonary hypertension (PH) during
World PH Day Raises Awareness of Pulmonary Hypertension’s Global Impact
Members of the world PH Community will come together May 5 to share their stories,
Early Diagnosis, Prompt Treatment Offer Hope for Those With Rare Form of Pulmonary Hypertension
November 13 is CTEPH Awareness Day Silver Spring, MD (November 8, 2019) – As
Pulmonary Hypertension Awareness Month Draws Attention to Life-Threatening, Often Misdiagnosed Disease
The Pulmonary Hypertension Association’s ‘PHaces of Hope’ campaign shares stories of those with PH,
Jason Boehme Awarded Grant to Fund Study in Pediatric PAH
Jason Boehme, M.D., received the 2019 PHA Robyn J. Barst, M.D. Pediatric PH Research & Mentoring Grant in honor of Jackson Wall, one of three Pulmonary Hypertension
Research Room Brings Community Together to Advance PH Studies
Researchers who study pulmonary hypertension (PH) can apply now to advance their research at the PHA 2020 International PH Conference and Scientific Sessions, which brings the PH
Young Investigator’s Research Looks at Vascular Remodeling in PAH
Ke Yuan, Ph.D., received the 2019 PHA Aldrighetti Research Award for Young Investigators, with sponsorship support provided by Actelion Pharmaceuticals, U.S. The award, one of three Pulmonary
Research Fellow to Study How Inflammation Contributes to PH
Rahul Kumar, Ph.D., received the 2019 PHA/ATS Research Fellowship, one of three individual Pulmonary Hypertension Association research grants awarded last year, to study inflammation and how it contributes
Oxygen Survey May Lead to Better Technology and Advocacy
A team of Johns Hopkins University (Hopkins) engineering graduate students discovered the difficulties people with lung diseases experience accessing and obtaining portable oxygen equipment while shadowing Hopkins
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