Darby Hetrick
Living My Best Life With PH
PHA Conference
PHA Board of Trustees
Jesus Cornejo: Big Heart
Film by Enrique Franco Martin
Chloe Temtchine
Facebook Live Mini Concert
Kerry Babylon
The Importance of Family
PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.
Post-Transplant Life is an Unexpected Adventure
By Kathleen Sheffer From left, Kathleen and Monica in the German Alps, with help from a self-timer. Against a fair amount of unfavorable odds, I will be photographing PHA’s 13th International PH Conference and Scientific Sessions. This will be the ninth Conference
Rebekah Calverley Lives an Amazing, Beautiful, Fearless Life with Pulmonary Hypertension
Born in Auckland, New Zealand, Rebekah was sick a lot as a toddler with colds and even pneumonia. That didn’t stop her from being active like any other child as her parents searched for answers for her continued illnesses. When she was two and
Early Diagnosis and Advanced Care Put Indianapolis Mom with Pulmonary Hypertension on Promising Path
Indianapolis, Ind. (April 10, 2018) -- Donna Sparks combats a progressive life-threatening lung disease with courage, conviction and compassion -- for herself and others who share her fight. Diagnosed three years ago with pulmonary hypertension (PH), Donna is an active participant in myPHA, the
St. Louis Survivor of Deadly Lung Disease Working Hard, Inspiring Others and Breathing Easily
St. Louis, MO (March 20, 2018) -- Amanda Harvey-McKee’s life is the epitome of the notion that if you want to get something done, give it to a busy person. At age 39, she works 60 plus hours a week -- often flying from
Washington, D.C. Golden Glove Lightweight Champion Elvis Medrano Faces Biggest Battle with Deadly Lung Disease Diagnosis
Silver Spring, Md. (March 13, 2018) -- In and out of the boxing ring, Washington, D.C., Golden Glove lightweight champion Elvis Medrano is in a daily battle for his life. At 27, he’s lived six years with pulmonary hypertension (PH), a life-threatening disease also known
PHA Support Group Leader Stephanie Bachelder Wears Many Hats in Meeting With Congressman
PHA support group leader volunteers take on many roles in the pulmonary hypertension (PH) community. Many are living with PH -- others are caregivers or health care professionals -- in addition to being constituents, advocates, friends, mentors and champions of the PH community. Support
How the Unknown Led to Certainty for PhD Student and PH Patient Raele Robison
Raele Robison was a student in a demanding PhD program when she was diagnosed with scleroderma and pulmonary hypertension. Now armed with answers about what was causing her mysterious symptoms, she is living her best life with PH. By Raele Robison I remember the way
The Barefoot Movement: PHighting for a Cure for Jackson
Noah Wall is a singer, songwriter, and fiddler in the award winning acoustic band “The Barefoot Movement.” Her nephew Jackson Wall was diagnosed with pulmonary hypertension (PH) at one year old. Jackson’s parents hold a golf tournament each year to raise funds and awareness for
Choose Your 2019 Medicare Coverage Through Dec. 7
Medicare open enrollment, also called annual enrollment, has begun and continues through Dec. 7. During open enrollment, all Medicare participants have the opportunity to change Medicare plans or add or drop coverage.
PHA Recognizes Respiratory Care Week
In recognition of Respiratory Care Week Oct. 21-27, the Pulmonary Hypertension Association (PHA) interviewed a registered respiratory therapist and certified pulmonary function technician. Tonya Zeiger, R.R.T., CPFT, is the pulmonary
PHA Engages Health Care Professionals at CHEST Annual Meeting
The Pulmonary Hypertension Association (PHA) recently exhibited at the American College of Chest Physicians (CHEST) Annual Meeting 2018 in San Antonio. Hundreds of health care professionals from around the globe
It’s No Trick: These Kids with PH Are a Treat
Pulmonary hypertension (PH) is not just a disease for adults, so the Pulmonary Hypertension Association (PHA) works hard to support children with PH and their families. In 2017, PHA
Attend PHA on the Road – Milwaukee: Speaker Highlights
The Pulmonary Hypertension Association (PHA) will host PHA on the Road: PH Patients and Families Education Forum Saturday, Oct. 27, in Milwaukee. This unique education and networking forum provides people
Hear Ye! Hear Ye! Get Your Proclamation During Pulmonary Hypertension Awareness Month
Proclamations – statements encouraging people to take note of a particular person, place or time of year – are a popular way for elected officials to recognize issues that
Raise Funds and Awareness to Support PHA’s Mission During Awareness Month This November
November is Pulmonary Hypertension Awareness Month, presenting a great opportunity to raise money needed to fund the mission of the Pulmonary Hypertension Association (PHA), and to raise awareness of
Using a Risk Score Calculator to Predict Survival Rates
by Phyllis Hanlon, Contributing Writer The Registry to Evaluate Early and Long-term PAH Disease Management (REVEAL registry) is a study of approximately 3,500 people with World Health Organization (WHO) Group
Support a PHA Fundraising Event for Pulmonary Hypertension Awareness Month
This November, many pulmonary hypertension (PH) community members around the country will gather not only to raise awareness, but also to raise funds to help support the mission of
The DIBOSA Study: The 6MWT Helps Predict PH in Patients with SSc
by Phyllis Hanlon, Contributing Writer Research has found that World Health Organization (WHO) Group 1 pulmonary hypertension (PH) (pulmonary arterial hypertension, or PAH) affects 8 to 12 percent of
PHA on the Road – Long Beach Welcomes More Than 200 PH Community Members
The Pulmonary Hypertension Association (PHA) hosted a PHA on the Road: PH Patients and Families Education Forum Saturday, Sept. 29, in Long Beach, Calif. The forum brought together people
Two Pulmonary Hypertension Programs Receive PHA’s PHCC Accreditation
The Pulmonary Hypertension Association’s (PHA’s) Pulmonary Hypertension Care Center (PHCC) program granted Regional Care Program (RCP) accreditation to the Pulmonary Hypertension Program at Northside Hospital in Atlanta, and the
Take Action Now and on November 8 with PHA’s Advocacy Action Center
Recently, Kerry Babylon, an adult with pulmonary hypertension (PH) and Silver Spring, Md., PHA support group leader, visited the Rockville, Md., district office of U.S. Rep. Jamie Raskin (D-Md.).
People with PH: Be Proactive and Prepare for Flu Season
Staying healthy during cold and flu season is important for everyone, but for patients with pulmonary hypertension (PH), it is especially important. Cold and flu prevention is the key.
Results of Portopulmonary Hypertension Trial Released at European Respiratory Society Meeting
Actelion Pharmaceuticals Ltd. has announced the results of the first randomized controlled trial in portopulmonary hypertension (PoPH), which showed that macitentan (Opsumit®) significantly improved pulmonary vascular resistance (PVR) compared
Why Chair Yoga for People With Pulmonary Hypertension?
by Kaye Norlin, adult with PH and Central Illinois support group leader NOTE: Always check with your physician before beginning any new exercise program. September is National Yoga Month.
Analyzing the Effects of PH in Patients with Kidney Disease
by Phyllis Hanlon, Contributing Writer According to the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) approximately 14 percent of the general population has chronic kidney disease (CKD);
PHight for Life Brings Community of PHighters Together
The fourth annual PHight for Life event will take place in Rochester, N.Y., Sunday, Nov. 4, during pulmonary hypertension (PH) awareness month. The event is planned and hosted by
PHPN Mentor Program Provides Valuable Lessons to Health Care Professionals
The diagnosis of pulmonary hypertension (PH) is overwhelming in patients’ and caregivers’ lives. It also can prove challenging to health care professionals new to the field. Before health care professionals
The Wrath of Mother Nature: Preparing for Natural Disasters
Natural disasters are frightening, especially for those coping with PH, but good preparation can allay some of the fear. This information can help you be ready for the worst
PHA Accreditation Program Assures Access to Specialized Care for Thousands with Often-Misdiagnosed Deadly Lung Disease
SILVER SPRING, MD (October 3, 2018) – A national accreditation program launched by the Pulmonary
PHA Accreditation Program Assures Access to Specialized Care for Thousands with Often-Misdiagnosed Deadly Lung Disease
SILVER SPRING, MD (October 3, 2018) – A national accreditation program launched by the Pulmonary
Global Community Joins Hearts to Advocate for People Living with a Commonly Misdiagnosed and Deadly Lung Disease
SILVER SPRING, MD (April 13, 2018) – Organizations around the world will join forces on
Using a Risk Score Calculator to Predict Survival Rates
by Phyllis Hanlon, Contributing Writer The Registry to Evaluate Early and Long-term PAH Disease Management (REVEAL registry) is a study of approximately 3,500 people with World Health Organization
The DIBOSA Study: The 6MWT Helps Predict PH in Patients with SSc
by Phyllis Hanlon, Contributing Writer Research has found that World Health Organization (WHO) Group 1 pulmonary hypertension (PH) (pulmonary arterial hypertension, or PAH) affects 8 to 12
Results of Portopulmonary Hypertension Trial Released at European Respiratory Society Meeting
Actelion Pharmaceuticals Ltd. has announced the results of the first randomized controlled trial in portopulmonary hypertension (PoPH), which showed that macitentan (Opsumit®) significantly improved pulmonary vascular resistance
Analyzing the Effects of PH in Patients with Kidney Disease
by Phyllis Hanlon, Contributing Writer According to the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) approximately 14 percent of the general population has chronic kidney
Examination of PHAR Data Shows Few Patients are Referred to Palliative Care
Although treatment options for WHO Group 1 PH (pulmonary arterial hypertension, or PAH) have increased over the past few decades, symptom severity and quality of life still
Thanks to Our Sponsors
(in-kind)
Interested in advertising?
PHA offers various advertising and sponsorship opportunities on PHANews.org for companies and non-profit organizations. Please contact Advertisements@PHAssociation.org for more information.