Darby Hetrick
Living My Best Life With PH
PHA Conference
PHA Board of Trustees
Jesus Cornejo: Big Heart
Film by Enrique Franco Martin
Chloe Temtchine
Facebook Live Mini Concert
Kerry Babylon
The Importance of Family
PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.
Staying Positive Through Diagnosis: Elaine Lozano
I was diagnosed with pulmonary hypertension in 2016 when I was 22 years old; now I’m 24. It’s been a hard, rough road and it has changed my life for the worst and for the better. I never thought in a million years I
Divorce, Cancer and PH Are No Match for Sylvia Kujawa’s Strength
“I went through a divorce and cancer at the same time in 2008, but I got through that. I had cancer for the second time in January 2012, and I have had pulmonary hypertension (PH) since March 2012. Life sometimes is not easy, but
Colleen Brunetti: Reflections on the Power of Telling Your Story
My name is Colleen Brunetti, and I am your Pulmonary Hypertension Association (PHA) Board of Trustees chair-elect. I’m the first patient to serve in this volunteer position in many years, and the enormity of that honor does not escape me. Truly, at PHA, we
Becca Hubbard: Find a Way to Make Someone’s Life Better
“If I’d never been diagnosed with PH, I don’t think I would have developed the interest in fundraising that I have… most days I struggle to find anything positive in my PH diagnosis, but if I can convince someone to donate to any charitable
Rebekah Calverley: Tips for Self-Care
“It's always tough to say no to events or be unable to do things because a “bad day” is too hard to overcome. Doing small day to day things to help lessen their frequency is important.” “Burning the candle at both ends
Kim Crowell: Liver Transplant Provides a Second Chance
“None of this would have been possible without the brave, caring person who was an organ donor… Because of her precious gift of life, I’m healthy again and getting to live my second chance at life. Not a lot of people get this opportunity,
My Journey with CTEPH
“Throughout my journey I have found that there is not enough awareness about PH and CTEPH. So, I have made it a personal mission to help raise awareness so that through early detection and intervention, lives can be saved.” – Angela Michelle By:
PHA Interviews their Celebrity Champion, Boxer Elvis Medrano
“Do not give up. We will find a cure eventually, just do not give up. Please be patient. It’s just a matter of time.” – Elvis Medrano Recently PHA caught up with our celebrity champion, boxer Elvis Medrano. Elvis sat down with
In Memoriam: Sarah K. “Sally” Maddox, Ed.D.
We are deeply saddened by the passing of PHA Board of Trustees member and longtime volunteer Sally K. Maddox on Saturday, Dec. 1, 2018, in Atlanta. Diagnosed with idiopathic
PHA Registry Expands Access to PH Data Service
A new Data Analysis Service launched this week by the Pulmonary Hypertension Association (PHA) enables researchers and organizations not involved in PHA’s Pulmonary Hypertension Association Registry (PHAR) to use
Prepare Now for Insurance and Financial Assistance Changes
Many individuals with pulmonary hypertension (PH) experience changes in their health insurance coverage or charitable assistance grants at the beginning of the year. In many cases, these changes mean
PHA Provides Tips to Avoid the Holiday Blues
Heightened anxiety is already a common factor for many individuals with pulmonary hypertension (PH), and with the arrival of the holidays these symptoms can easily worsen. Keep in mind
Researchers at Vanderbilt Publish First Study from PHA’s 2018 Research Room
Using fitness devices and cell phones, pulmonary hypertension (PH) researchers compared the physical activity of individuals with and without pulmonary arterial hypertension (PAH) in the first research study published
PHantastic Response to Giving Tuesday Campaign
Two families offered a match for this week’s 2018 Giving Tuesday campaign, helping boost the Pulmonary Hypertension Association’s (PHA) total donations to a record-breaking $61,882 for the annual giving
PH Community Steps Up to Increase Pulmonary Hypertension Awareness
The Pulmonary Hypertension Association’s (PHA’s) The Right Heart campaign delivered a big impact during Pulmonary Hypertension Awareness Month, thanks to the efforts of the PH community. With the help
Pulmonary Hypertension Awareness Month Announced in Congress
U.S. Rep. Jamie Raskin (D-MD), submitted remarks earlier this month recognizing November as Pulmonary Hypertension Awareness Month. His full comments, included below, informed Congress about the severity of pulmonary
Colleen Brunetti: Reflections on the Power of Telling Your Story
My name is Colleen Brunetti, and I am your Pulmonary Hypertension Association (PHA) Board of Trustees chair-elect. I’m the first patient to serve in this volunteer position in many
Becca Hubbard: Find a Way to Make Someone’s Life Better
“If I’d never been diagnosed with PH, I don’t think I would have developed the interest in fundraising that I have… most days I struggle to find anything positive
Rebekah Calverley: Tips for Self-Care
“It's always tough to say no to events or be unable to do things because a “bad day” is too hard to overcome. Doing small day to day things
Kim Crowell: Liver Transplant Provides a Second Chance
“None of this would have been possible without the brave, caring person who was an organ donor… Because of her precious gift of life, I’m healthy again and getting
CTEPH Awareness Day Campaign Increases Overall PH Recognition
The Pulmonary Hypertension Association (PHA) recognized Wednesday, Nov. 14, as CTEPH Awareness Day and responses show an eagerness to learn about chronic thromboembolic pulmonary hypertension (CTEPH). Social media graphics and
Common Antacids: Beneficial for Patients with Pulmonary Hypertension?
by Phyllis Hanlon, Contributing Writer Certain over-the-counter (OTC) medications such as Pepcid®, Tagamet® and Zantac® are used to treat ulcers and excess stomach acid. These drugs, technically known as histamine-2
Pulmonary Hypertension Community Raises Crucial Funds in 2018 to Support PHA’s Mission
More than 12,500 volunteers throughout the country helped organize 49 events to raise funds that support the mission of the Pulmonary Hypertension Association (PHA). Nearly half of these events
My Journey with CTEPH
“Throughout my journey I have found that there is not enough awareness about PH and CTEPH. So, I have made it a personal mission to help raise awareness so that
Early diagnosis is vital for proper treatment of life-threatening pulmonary disease
Pulmonary Hypertension Association establishes November 14 as CTEPH Awareness Day Silver Spring, MD (November 14, 2018) – In order to help raise awareness and improve diagnosis of a rare form
PHA Interviews their Celebrity Champion, Boxer Elvis Medrano
“Do not give up. We will find a cure eventually, just do not give up. Please be patient. It’s just a matter of time.” – Elvis Medrano
Pulmonary Hypertension Awareness Month Outreach Makes a Big Impact
Last week the Pulmonary Hypertension Association (PHA) launched its annual awareness campaign, Pulmonary Hypertension Awareness Month, to increase knowledge of pulmonary hypertension (PH) among the general public, people at
First Tampa O2breathe Event Planned for February
Join us for the inaugural Tampa O2breathe Fun Run and Walk on Feb. 2, 2019, at Al Lopez Park in Tampa, Fla. The event features a 5K fun run,
Early diagnosis is vital for proper treatment of life-threatening pulmonary disease
Pulmonary Hypertension Association establishes November 14 as CTEPH Awareness Day Silver Spring, MD (November
PHA stresses need for increased awareness of life-threatening disease
November is Pulmonary Hypertension Awareness Month Silver Spring, MD (Nov. 1, 2018) – Each November,
PHA Accreditation Program Assures Access to Specialized Care for Thousands with Often-Misdiagnosed Deadly Lung Disease
SILVER SPRING, MD (October 3, 2018) – A national accreditation program launched by the Pulmonary
Researchers at Vanderbilt Publish First Study from PHA’s 2018 Research Room
Using fitness devices and cell phones, pulmonary hypertension (PH) researchers compared the physical activity of individuals with and without pulmonary arterial hypertension (PAH) in the first research
Common Antacids: Beneficial for Patients with Pulmonary Hypertension?
by Phyllis Hanlon, Contributing Writer Certain over-the-counter (OTC) medications such as Pepcid®, Tagamet® and Zantac® are used to treat ulcers and excess stomach acid. These drugs, technically known
PAH Study: Is Morbidity Related to Mortality?
by Phyllis Hanlon, Contributing Writer People with a serious illness such as pulmonary hypertension (PH) must form a partnership with their health care providers to effectively manage
PH with COPD: Is Sildenafil an Effective Treatment Option?
by Phyllis Hanlon, Contributing Writer All of the 14 targeted therapies for pulmonary hypertension (PH) are approved for use in patients with World Health Organization (WHO) Group 1
Using a Risk Score Calculator to Predict Survival Rates
by Phyllis Hanlon, Contributing Writer The Registry to Evaluate Early and Long-term PAH Disease Management (REVEAL registry) is a study of approximately 3,500 people with World Health Organization
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