PHA News

For patients, families, caregivers and health care professionals

The Right Heart

Taking Life a Day at a Time a Year After Diagnosis

Debra Gonzales, 66, is a just a year into her pulmonary hypertension journey. After a recent doctor visit, she learned her arterial pressure had declined and her heart function had improved. Her pulmonary arterial hypertension doesn’t stop her from spending time with her daughter, mother-in-law, friends and her dog in Redondo Beach, California.

Hole in Heart Leads to PH Diagnosis

Doctors weren’t sure Lillian Cooke would survive the night they discovered her pulmonary arterial hypertension. Three years later, the stay-at-home mom spends time with family and friends, painting, playing video games and listening to music.” I hope my story gives someone else hope,” Lillian writes in the Pulmonary Hypertension Association’s Right Heart Blog. “I will never lose hope, and I’m going to keep fighting until my last breath.”

Dancing Through Life with PH

Pam Vinesett of North Carolina served three years of active duty and 17 years in the army reserves. The mother of seven and grandmother of eight enjoys swimming, fishing and tubing with her husband. In 2014, she noticed shortness of breath and other pulmonary hypertension symptoms. Since her eventual diagnosis and other health challenges, she is doing well and teaches four to six Zumba classes a week.

Seeing PH Diagnosis as a Blessing

Twelve years after her pulmonary hypertension diagnosis, Marcie McGregor credits her faith in God, her doctors and the Pulmonary Hypertension Association (PHA) for where she is today. Marcie shares her story for PHA’s spring fundraising campaign, which begins April 29.

Health Care Exec Breathes Easily After PTE Surgery

Angela Donovan began experiencing shortness of breath in 2019. After she moved for a new career, her symptoms worsened. A work visit to an urgent care clinic led to her chronic thromboembolic pulmonary hypertension diagnosis. She shares her story for Blood Clot Awareness Month.

Finding Hope in the PH Community and Research Studies

Morgan Nuchols began to show signs of PH as a baby. Today the 28-year-old participates in the Pulmonary Hypertension Association’s Generation Hope Facebook Support Group for young adults. She also participates in research studies to in hopes of finding a genetic link between pulmonary hypertension and congenital diaphragmatic hernia. She also participates in research studies to in hopes of finding a genetic link between pulmonary hypertension and congenital diaphragmatic hernia.

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Featured News

CEO Update: The Importance of In-Person Connections

The Pulmonary Hypertension Association recognizes the importance of in-person connections to health, wellbeing and care management and has resumed some in-person events, including our first PHA On The Road patient and caregiver workshop since late 2019.

6 Sources of Financial Assistance for PH Therapy

Do the high costs of treatment prevent you from receiving treatment you need? The best solution for you depends on the kind of insurance you have, the type of medication you take and availability of financial assistance resources.

Watch Our Outstanding Member Awards Ceremony

Meet the superstars of the pulmonary hypertension community. Watch a video of our Outstanding Member Award ceremony from PHA 2022 International PH Conference and Scientific Sessions. The awards recognize volunteer efforts in patient/caregiver support; advocacy; promotion of quality patient care; and advancing pulmonary hypertension research.

Investigators: Apply for PHA Pediatrics PH Research Award

The Pulmonary Hypertension Association (PHA)’s newest grant supports pediatric pulmonary hypertension research that addresses unmet needs or enhances knowledge of pediatric PH, including classification, diagnosis, treatment and quality improvement and care. The PHA Pediatric PH Research Award will support a pilot study for one year for up to $65,000. Apply by Sept. 12.

Lead a Support Group in Your Area

The Pulmonary Hypertension Association is looking for volunteers to lead support groups. By becoming a support group leader, you will join a nationwide team of volunteers who are passionate about supporting, educating and empowering the pulmonary hypertension community.

‘Navigating Pulmonary Hypertension’ Wins EXCEL award

The Pulmonary Hypertension Association won a silver EXCEL award for “Navigating Pulmonary Hypertension” from the Software & Information Industry Association (SIIA) AM&P Network. The EXCEL awards recognize excellence and leadership in association media, publishing, marketing and communications.

Son’s PH Helps Pediatrician Better Understand Her Patients

As an intensive care pediatrician, Chandani Dezure, M.D., treats critically ill children. After one son was diagnosed with pulmonary hypertension, Dr. Dezure became a caregiver herself. She shares how her son's PH helped her become a better doctor. Her story appeared in the June 2022 issue of Pathlight.

Patient-Caregiver Workshops Resume

On the Road, the Pulmonary Hypertension Association (PHA)’s daylong, regional workshops for patients and caregivers resume this fall. Registration is open for the Sept. 17 PHA On the Road in Louisville, Kentucky.

Advisory to the PH Community: Abortion Access

PHA joins many health care organizations deeply concerned about unequal access to medically necessary care in the U.S. Pregnancy is considered high risk for people with pulmonary hypertension because their heart and lungs can’t easily adjust to the demands of pregnancy and childbirth.

Navigating Prior Authorization and Step Therapy

Are you having problems trying to refill your pulmonary hypertension prescriptions? Enlist your care team to help you manage insurance issues. Health insurance companies often control costs by limiting access to expensive care through prior authorization and step therapy.

How PHA 2022 Reconnected the PH Community

After a four-year wait, the pulmonary hypertension (PH) community gathered in Atlanta for PHA 2022 International PH Conference and Scientific Sessions. Read our wrap-up, see pictures and watch an emotional, bring-down-the-house performance from Stephen Carter-Hicks.

Meet 7 People Dedicated to Community Service

Who are the remarkable people who received Outstanding Member Awards from the Pulmonary Hypertension Association? Hint: They include a 10-year-old martial arts fan, a recent college grad and decades-long PH fighters.

Watch: PHA 2022 Highlights

Explore the highlights of PHA 2022 International PH Conference and Scientific Sessions. Hear from speakers and attendees; experience the exhibit hall and education sessions; and feel the emotion of the four-day event in Atlanta.

Watch: PHA 2022 Opening Video

Meet people with pulmonary hypertension, caregivers and health care professionals in this inspiring video shown at the opening of PHA 2022 International PH Conference and Scientific Sessions.

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PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.

PHA Press

Press Release: World PH Day

World PH Day puts a spotlight on the global impact of pulmonary hypertension (PH), a rare, complex, life-threatening disease. PH has no cure and affects more than 75 million adults and children of all ethnicities globally.

PH Research

Investigators: Apply for PHA Pediatrics PH Research Award

The Pulmonary Hypertension Association (PHA)’s newest grant supports pediatric pulmonary hypertension research that addresses unmet needs or enhances knowledge of pediatric PH, including classification, diagnosis, treatment and quality improvement and care. The PHA Pediatric PH Research Award will support a pilot study for one year for up to $65,000. Apply by Sept. 12.

PHA Offers New Pediatric Research Award

The Pulmonary Hypertension Association is launching a new grant opportunity to support pediatric pulmonary hypertension research. The award will support a pilot study for one year, up to $65,000 a year, that would provide foundational research for a larger study and support additional grant submissions. Learn more.

PHA Names 2022 Aldrighetti Young Investigator

Catherine Simpson, M.D., is the latest recipient of the Pulmonary Hypertension Association (PHA) Aldrighetti Research Award for Young Investigators. The award is for young researchers who show promise of significantly increasing understanding of pulmonary arterial hypertension (PAH).

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