PHA News Home 2017-12-12T16:32:31+00:00
Side Effects
A team of authors
looked at common side effects
and provided recommendations
for managing these side effects
Post by Guest Contributor
Phyllis Hanlon


Jesus Cornejo
is a teenager living
with PH.

Watch Now

Modified Functional
Classification System
May Help Predict
Pediatric PH Morbidity
and Mortality
The WHO functional classification,
while useful for adults,
was not intended for use in
children and infants.

Study Confirms
Previously Published
Safety Data

VOLT study demonstrated
no new safety issues for
patients taking ambrisentan
in real life situations.

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The Right Heart
Video Series:
Darby's Story

Darby Hetrick
was diagnosed
with PH at
age 2., a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.

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Washington, D.C. Golden Glove Lightweight Champion Elvis Medrano Faces Biggest Battle with Deadly Lung Disease Diagnosis

Silver Spring, Md. (March 13, 2018) -- In and out of the boxing ring, Washington, D.C., Golden Glove lightweight champion Elvis Medrano is in a daily battle for his

Important Correction Notice for Professionals Who Received the PH Clinical Quick Reference Guide

Dear PH Professionals: If you received a copy of PH Clinical Quick Reference Guide, please discard. Page 1 of the guide “Classifying PH,” incorrectly states that an elevated pulmonary artery

  • Brad A. Wong

CEO Update: Volunteers Take Action to Support the Pulmonary Hypertension Community

Dear PHA Community Member: Every year, spring marks the beginning of the pulmonary hypertension (PH) community’s annual fundraising events to support the Pulmonary Hypertension Association (PHA) and its mission –

PHA Support Group Leader Stephanie Bachelder Wears Many Hats in Meeting With Congressman

PHA support group leader volunteers take on many roles in the pulmonary hypertension (PH) community. Many are living with PH -- others are caregivers or health care professionals --

Arizona Survivor of Type of Pulmonary Hypertension Caused by Blood Clots Walks for PH

Tucson, Ariz. (March 5, 2018) - The regulars who get their steps in early at Sabino Canyon National Park have come to know Eric Simmons, at least by face.

How the Unknown Led to Certainty for PhD Student and PH Patient Raele Robison

Raele Robison was a student in a demanding PhD program when she was diagnosed with scleroderma and pulmonary hypertension. Now armed with answers about what was causing her mysterious symptoms,

New Videos Answering Frequently Asked Questions About PH Published on PHA’s e-Learning Platform

Seven new videos — four in English and three in Spanish — are now live on PHA Classroom. We invite you to view these newly-released “Quick Clips” to get

Patient Advocate Foundation Co-Pay Assistance Fund for Qualifying Patients With PH Reopens

The Patient Advocate Foundation (PAF) has reopened a co-pay assistance fund for qualifying patients with pulmonary hypertension. PAF is accepting applications for new and renewal patients. The maximum award level

Assessing Risk in Patients with Pulmonary Arterial Hypertension

Although the past decades of discovery and research have yielded drugs that improve prognosis and quality of life, the long-term survival rates for people living with PAH is still unacceptably

PHA Supports Rare Disease Day with Social Media Awareness Push

Silver Spring, Md. (February 22, 2018) -- The Pulmonary Hypertension Association (PHA) joins global partners, Feb. 28, Rare Disease Day®, to bring attention to the hopes and needs of

PHA to Introduce Newly Redesigned PH Resource at 6th World Symposium on Pulmonary Hypertension

The 6th World Symposium on Pulmonary Hypertension will take place in Nice, France from Feb. 27 to March 1, 2018. This symposium, held every 5 years, is a time

PHA Accreditation Program Assures Access to Specialized Care for Thousands With Often-Misdiagnosed Deadly Lung Disease

Silver Spring, MD (February 15, 2018) – A national accreditation program launched by the Pulmonary Hypertension Association (PHA) assures that more than 12,000 people with a life-threatening lung disease

Seeking Financial Assistance Because of Caring Voice Developments? Previous CVC Clients Should Make That Clear When Contacting Manufacturers.

In January, the Department of Health and Humans Services informed companies that manufacture PH medications that they would be permitted to provide one year of free medication to some individuals

Adding Immunoadsorption to Current Treatment for People With IPAH

Study looks at a theory that adding immunoadsorption, or the process of filtering out antibodies from the blood, in addition to other PH therapies may help improve outcomes for people

An Overview of Pulmonary Arterial Hypertension (PAH) and Lupus

WHO Group 1 PH (PAH, pulmonary arterial hypertension) can appear by itself of be associated with other medical conditions including connective tissue diseases (CTD), such as systemic lupus erythematosus (SLE).

Specialty Pharmacy Update on National Shortage of Diluent Used for Some PH Medications

PHA was recently made aware of a national shortage of the diluent used for mixing some PH medications. The shortage is a result of product manufactures who have been affected

Researchers: Collect Data at Unique Opportunity in PH Field

Investigator Applications are now being accepted for the Research Room at PHA’s 2018 International PH Conference and Scientific Sessions. The Research Room helps researchers further their studies by providing the

Treating Pulmonary Hypertension Associated With Connective Tissue Disease

by Phyllis Hanlon, Contributing Writer  WHO Group 1 PH (PAH, pulmonary arterial hypertension) is a progressive and chronic disease. There currently is no cure. In PAH, the arteries in

Webinar for Medical Professionals CTEPH: Finding, Treating and Future Directions

Friday, February 9th, 2018, 3:00 p.m. ET Josanna M. Rodriguez-Lopez, M.D., Massachusetts General Hospital This webinar will focus on WHO Group 4 pulmonary hypertension (PH), chronic thromboembolic pulmonary hypertension

Legislation Passed to “Recognize, Assist, Include, Support and Engage” Family Caregivers

On Monday, January 15, 2018, President Trump signed into law the Recognize, Assist, Include, Support and Engage (RAISE) Family Caregivers Act calling for a national strategy to address the needs of family caregivers. This bipartisan

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