Darby Hetrick
Living My Best Life With PH
PHA Conference
PHA Board of Trustees
Jesus Cornejo: Big Heart
Film by Enrique Franco Martin
Chloe Temtchine
Facebook Live Mini Concert
Kerry Babylon
The Importance of Family
PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.
Traveling Salesperson Embarks on New Journey With PH
By Eileen Lepionka “I could barely make the walk through the yard, which was only about 150 feet.” "My Pulmonary Arterial Hypertension (PAH) journey began in August 2014. I was an active salesperson, selling toys at a hospital gift shop on
Gail Merz: PH Warrior Advocates for PH Education
"I live day to day never knowing what the day will bring to me... I just thank the Lord every day for giving me the day and pray for one more." "I resided in the metropolitan Atlanta area from 1950 till 2013. My
Fighting Lupus and PH: Bernadette’s Story
"2004 and 2007. Years that were life altering but have led me to my new normal. They are the years I was diagnosed with lupus and pulmonary hypertension (PH) respectively. "Hello, my name is Bernadette Bonifacio and I’m a Lupus Warrior and PHighter. Having
Find the Right Fitness Routine for You: Rebekah Calverley
“If I don’t push myself a little, I know I would just sit on the couch and a vicious cycle would ensue.” "This month the Boston Marathon took place. A culmination of months of training, countless half marathons and other qualifiers all
New Lungs Make Lauri Stanfield an Ambassador of Hope
“ I...love to tell my story and what organ donation has done for me, and how it’s affected my life as well as the lives of my families and friends.” "My name is Lauri Stanfield, I’m 47 years old, and I’m a
Michelle: Mom of Two Has Second Chance at Life After Transplant Surgery
“The change in my life and my recovery is nothing short of amazing. I will be forever grateful to my donor and her family for the precious gifts they gave me. I will cherish our organs forever…” "I am Michelle, a single
Barbara Holden: Train Adventure to Double Lung Transplant
“I feel so blessed to have been given this second chance opportunity. It never would have happened had it not been for someone who became an organ donor.” "You may remember my 1,200-mile trip from Florida to Massachusetts, by train, in September
Tina Proulx: From A Double Lung Transplant to Rollercoaster Rides
“I don’t know anything about [my organ donor], but they are MY HERO.” “I would like to start off by saying that I am here today because of one person and I have no idea who they are! I don’t know what
Recent Gulf Coast Storm a Reminder to Be Prepared
“It could have been so much worse,” PHA’s New Orleans area support group leader Linda Gates says following Hurricane Barry last weekend. “The electricity was only out for
New PH Professionals Won’t Want to Miss the PHPN Symposium
Those who are just starting out in their professional career in pulmonary hypertension (PH) will not want to miss the 2019 PH Professional Network Symposium, “Influencing the Practice: The
PHA to Announce 2020 Conference Theme, July 26, on Facebook Live
This week PHA wrapped up the submission period for theme ideas for the PHA 2020 International PH Conference and Scientific Sessions to be held June 12-14, 2020, in Anaheim,
Wide Range of Topics Scheduled for PHA on the Road-San Francisco
In less than three weeks, PHA on the Road travels to San Francisco for a day of programming that offers something for everyone, from the newly diagnosed to
All Hearts on Deck: Game Night PHor a Cure
On Saturday, August 10, the PH community in greater Los Angeles will come together to support PHA at All Hearts on Deck: Game Night PHor a Cure. This unique
PHA Seeks Improved Health Insurance Coverage for Veterans, Military with PAH
Last month the Pulmonary Hypertension Association (PHA) advocated for improved health insurance coverage for veterans and military personnel who have pulmonary arterial hypertension (PAH). PHA submitted comments June 28
Register Online for Free PHA on the Road – San Francisco
On August 10, the Pulmonary Hypertension Association (PHA) is bringing PHA on the Road to San Francisco! Registration is now open for the San Francisco area PHA on the
PHA 2020 Theme Contest: It’s Your Last Chance to Win Big!
Have you submitted a theme idea for the PHA 2020 International PH Conference and Scientific Sessions? If you haven’t yet, don’t worry, you still have a chance to win
Training Energizes East Coast Support Group Leaders
A regional support group leader training held in Silver Spring, Maryland, last month reminded Laura Camponeschi why she volunteers as a support group leader. “This was really helpful, inspiring
Inspiration the Theme at Opening Session of PHA’s Upcoming Symposium
Working in the field of pulmonary hypertension (PH) can often be challenging, heartbreaking and overwhelming. But what these experts do matters. And it’s inspiring! Health care professionals who attend
CEO Update: Let’s Celebrate Our Volunteers: Four Elected to PHA Board of Trustees
Dear PH Community, As we pause to celebrate our nation’s birthday tomorrow, I am reminded of and grateful for the role that volunteers, driven by a desire to give
PHA’s PHCC Program: 70 Centers Accredited Nationwide
Five years after the PH Care Centers (PHCC) initiative began to help pulmonary hypertension (PH) patients find quality medical care, the Pulmonary Hypertension Association accredited its 70th PH center
PHA 2020 Theme Contest Ends Soon, Submit Your Ideas Now!
Your theme ideas for the PHA 2020 International PH Conference and Scientific Sessions continue to roll in as we gear up for the big event in Anaheim, Calif. The
Symposium Explores PH Therapy Insurance Roadblocks, Pediatric Topics
A session on “Insurance Challenges: Finding Coverage for PH Therapies” will be presented at the Pulmonary Hypertension Association's (PHA’s) PH Professional Network (PHPN) Symposium, which takes place from Sept.
Volunteer Spotlight: Wisconsin Support Group Hosts Cooking Event
Amy Chybowski and Tracy Vaughan, leaders of the PHA Madison/Janesville, Wisc., area support group, recently hosted a special cooking event. Led by University of Wisconsin Health culinary and registered
Symposium Sessions Range From Oxygen Delivery to Emerging Therapies
What’s in store at the Pulmonary Hypertension Association’s PH Professional Network (PHPN) Symposium “Influencing the Practice: The Art and Science of Treating Pulmonary Hypertension,” Sept. 5-7, in Washington, D.C.?
Inside Pathlight, PHA’s Member Magazine
The latest issue of Pathlight, the flagship magazine of the Pulmonary Hypertension Association (PHA), was sent to PHA members earlier this month. The magazine is published quarterly. Don’t miss
On Grief and Giving Back
This article originally appeared in the June issue of Pathlight. Jackie Woosley is a Pulmonary Hypertension Association (PHA) support group leader who also facilitates the monthly PHA Bereavement Telephone Support Group.
Why Join PHA’s Sustainers Circle?
Laura D'Anna, longtime volunteer and former Pulmonary Hypertension Association (PHA) Board of Trustees member, has been a member of the Sustainers Circle, PHA’s monthly giving society, since its inception
Volunteer Spotlight: Iowa Support Group Learns About Palliative Care
Karen Fragale and Traci Stewart, Pulmonary Hypertension Association support group leaders of the Pulmonary Hypertension (PH) Iowa Support Group, hosted a meeting on palliative care on June 8. At
Pulmonary Hypertension Association Promotes International World PH Day to Raise Awareness to Help Improve Patient Outcomes
Silver Spring, Md. (May 1, 2019) - The Pulmonary Hypertension Association (PHA) joins dozens
Cardiovascular Institute of North Colorado earns PHA Pulmonary Hypertension Care Centers Program accreditation
Designation assures access to specialized care for thousands with PH SILVER SPRING, MD (January
PHA to host first Tampa O2breathe timed 5K and walk Feb. 2 to fight pulmonary hypertension
Silver Spring, MD (Jan. 22, 2019) — The Pulmonary Hypertension Association (PHA) will hold
PHA Presents Research on PH Awareness and Diagnostic Trends
Pulmonary Hypertension Association (PHA) staff and medical leadership presented research findings and interacted with global health care professionals with an interest in pulmonary hypertension (PH) at the
CTEPH Study Finds Higher Survival Rates Among Those Who Have Surgery
Individuals with chronic thromboembolic pulmonary hypertension (CTEPH, World Health Organization Group 4 PH) who have surgery to remove blood clots from the lungs could have a better
Positive Data from INSPIRE Trial Released
New data from “INSPIRE: A Phase 3 Open-Label, Multicenter Study to Evaluate the Safety and Tolerability of LIQ861 in PAH” was presented last week during the 39th
New PHA Clinical Trial Finder Aims to Improve Patient Involvement in PH Research
Dear PH Community, In 1994, just three years after the Pulmonary Hypertension Association (PHA) was founded by three patients and a caregiver, PHA held its first International
Novel Clinical Trial Designs Featured in Advances-Published Paper
The Pulmonary Hypertension Association (PHA) just launched its new Clinical Trial Finder that allows individuals to search for research in pulmonary hypertension (PH), so it seems fitting
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