Comprehensive
Community Survey
community's priority
focus areas
Koppelman, PhD
Strategic Planning
Committee Chair
Awareness
Do you have a
#Heart2CurePH?
Raising awareness helps
all people living with
pulmonary hypertension,
including those
not yet diagnosed.
Learn More
and Present Latest
PH Research at 113th
ATS Conference
studies based on data from
the Pulmonary Hypertension
Association Registry (PHAR).
11-year PH Survivor
to Deliver Message of
Hope and Triumph at
PHA on the Road Event
Pamela Combs of
St. Paul, Minn., is proving
to herself and others
that new treatments
and a positive outlook
can help extend and
improve patients’ lives.
Classification System
May Help Predict
Pediatric PH Morbidity
and Mortality
while useful for adults,
was not intended for use in
children and infants.
Ambrisentan:
Study Confirms
Previously Published
Safety Data
VOLT study demonstrated
no new safety issues for
patients taking ambrisentan
in real life situations.
PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.
The University of Kansas Health System Nursing Team to Attend Special Pulmonary Hypertension Association Symposium to Gain New Insights for Caring for Patients with Rare Lung Disease
SILVER SPRING, MD. (September 21, 2017) – A team of nurses at The University of Kansas Health System skilled in caring for patients with a little known deadly and
My Husband’s Unexplained Illness and PH Diagnosis
By Arianne Rohmann My active thirty-year-old husband was diagnosed with pulmonary hypertension (PH) and bi-lateral blood clots after experiencing unexplained symptoms for months… Five months later I was a
Liver Transplantation and Mean Pulmonary Artery Pressure
by Phyllis Hanlon, Contributing Writer People with liver disease can develop a type of pulmonary hypertension (PH – high blood pressure in the lungs) called portopulmonary hypertension (POPH). POPH involves
Take Action: Speak Out Against Graham-Cassidy Healthcare Proposal
Senators Lindsey Graham (R-SC) and Bill Cassidy (R-LA) introduced new legislation in mid-September to repeal and replace the Affordable Care Act (ACA). The Graham-Cassidy proposal is more far-reaching than other
Inadequate Coverage Nearly Cost Me My Life
By Sharon Thomas I had health care coverage when I found out I needed a life-saving heart and lung transplant for a disease called pulmonary hypertension. However, my insurance
Announcing “The Right Heart” – New PHA Blog Series of People Living Their Best Lives With PH
Living with a serious and rare diagnosis like pulmonary hypertension (PH) can be isolating. The PHA community is a network where people can connect with others who aren't just living
PHA PHriends Offer Hope and Support for People With PH and Their Caregivers
PHA PHriends are patient and caregiver volunteers in the PH community who are available to offer hope and support throughout your PH journey. Under the supervision of PHA, PHriends work with
UPDATES: Resources and Information for People Affected by Hurricane Irma
Recent hurricanes and wildfires have displaced and affected many in the PHA community. PHA is working with health care professionals, industry partners, specialty pharmacies, local PH Care Centers and support
Genetic Counseling and Testing May Provide Benefits for Patients With PAH
by Phyllis Hanlon, Contributing Writer Genetic testing is becoming more common for patients with certain medical conditions. For instance, cardiologists now refer patients more frequently for genetic testing to find
Life with PH: Emergency Preparedness and Your PH Emergency Kit
Nearly 700 members of the PHA community where affected by the devastation and flooding caused by Hurricane Harvey. For those impacted, PHA has worked with industry partners, specialty pharmacies,
FDA Approves First PH Drug for Pediatric Patients
This week, Actelion announced the first drug approved for the treatment of pediatric PH patients. Prior to the announcement, there were 14 FDA-approved PH treatments for adults living with
UPDATE: PHA and Partners Mobilize for PH Community Affected by Hurricane Harvey
Updated 9/7/17 by Michael Knappen, PHA Patient and Caregiver Programs The situation in the Houston area remains critical, but many hands and hearts are reaching out to help! I'm personally
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