Darby Hetrick
Living My Best Life With PH
PHA Conference
PHA Board of Trustees
Jesus Cornejo: Big Heart
Film by Enrique Franco Martin
Chloe Temtchine
Facebook Live Mini Concert
Kerry Babylon
The Importance of Family
PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.
Traveling Salesperson Embarks on New Journey With PH
By Eileen Lepionka “I could barely make the walk through the yard, which was only about 150 feet.” "My Pulmonary Arterial Hypertension (PAH) journey began in August 2014. I was an active salesperson, selling toys at a hospital gift shop on
Gail Merz: PH Warrior Advocates for PH Education
"I live day to day never knowing what the day will bring to me... I just thank the Lord every day for giving me the day and pray for one more." "I resided in the metropolitan Atlanta area from 1950 till 2013. My
Fighting Lupus and PH: Bernadette’s Story
"2004 and 2007. Years that were life altering but have led me to my new normal. They are the years I was diagnosed with lupus and pulmonary hypertension (PH) respectively. "Hello, my name is Bernadette Bonifacio and I’m a Lupus Warrior and PHighter. Having
Find the Right Fitness Routine for You: Rebekah Calverley
“If I don’t push myself a little, I know I would just sit on the couch and a vicious cycle would ensue.” "This month the Boston Marathon took place. A culmination of months of training, countless half marathons and other qualifiers all
New Lungs Make Lauri Stanfield an Ambassador of Hope
“ I...love to tell my story and what organ donation has done for me, and how it’s affected my life as well as the lives of my families and friends.” "My name is Lauri Stanfield, I’m 47 years old, and I’m a
Michelle: Mom of Two Has Second Chance at Life After Transplant Surgery
“The change in my life and my recovery is nothing short of amazing. I will be forever grateful to my donor and her family for the precious gifts they gave me. I will cherish our organs forever…” "I am Michelle, a single
Barbara Holden: Train Adventure to Double Lung Transplant
“I feel so blessed to have been given this second chance opportunity. It never would have happened had it not been for someone who became an organ donor.” "You may remember my 1,200-mile trip from Florida to Massachusetts, by train, in September
Tina Proulx: From A Double Lung Transplant to Rollercoaster Rides
“I don’t know anything about [my organ donor], but they are MY HERO.” “I would like to start off by saying that I am here today because of one person and I have no idea who they are! I don’t know what
Join PHA for Pulmonary Hypertension Awareness Month in November…Share Your Story
During the month of November, the Pulmonary Hypertension Association (PHA) gives special recognition to pulmonary hypertension (PH), along with a specific type of PH on Nov. 13, CTEPH Awareness
Volunteer Spotlight: Giving Hope to Others
Bill Kolm, Pulmonary Hypertension Association (PHA) support group leader of the Omaha Area Support Group in Nebraska, has been leading the group for nearly two-and-a-half years. “I have seen
Board of Trustees Member ‘Out and About’
Pulmonary Hypertension Association (PHA) Board of Trustees member Nicole Creech participated last month in the Patient Symposium at Washington University in St. Louis, an accredited Pulmonary Hypertension Care Center
Medicare Open Enrollment Starts Tuesday, Oct. 15
Medicare Open Enrollment runs from Tuesday, Oct. 15, through Saturday, Dec. 7. During this time, individuals with health insurance through Medicare can switch their existing coverage, including making changes
Central California Walk Returns for Its 8th Year
The Pulmonary Hypertension Association (PHA) will be hosting the annual Central California O2breathe Walk on Saturday, Oct. 26, in Fresno, Calif. The walk offers an opportunity for patients, caregivers,
PHA on the Road Arrives in Kansas City Saturday
This Saturday, Oct. 12., the PHA on the Road education forum comes to the Sheraton Overland Park Hotel in Kansas City, Kan. The event will be from 8:30 a.m. to 3:30
CEO Update: PHA Is Here to Help with Open Enrollment
Dear PH Community, Here in Washington, D.C., autumn has arrived with some cooler weather and the first golden and orange leaves. Fall means that vacations are mostly over, and
New PAH Treatment System Submitted for FDA Approval
Trevyent®, a new treatment system that utilizes subcutaneous delivery of treprostinil for pulmonary arterial hypertension (PAH) patients, was submitted to the U.S. Food & Drug Administration (FDA) for approval.
Volunteer Spotlight: Treating the Condition and Beyond
Kristine Ritenour, a pulmonary hypertension (PH) nurse coordinator at the Medical University of South Carolina, serves as the Pulmonary Hypertension Association (PHA) support group leader of the Lowcountry Charleston Support
Teenager with PH Gets Surprise Sweet 16 Prom
Eliana Alderete of Albuquerque, N.M., lives every day with pulmonary hypertension (PH). But her disease has not stopped the 16-year-old from living life to the fullest and enriching the
Online Registration Closes for PHA on the Road – Kansas City on Oct. 8
We are just one week away from the Pulmonary Hypertension Association’s (PHA’s) free PHA on the Road education forum at the Sheraton Overland Park Hotel in Kansas City, Kan., on
Stay Up to Date on PHA 2020 Announcements
Are you looking for more information about the Pulmonary Hypertension Association (PHA) 2020 International Pulmonary Hypertension (PH) Conference and Scientific Sessions? Sign up for updated notifications and information to
Health Care Professionals Share Why They Participate in and Lead PHA Support Groups
Many of the 350 volunteers leading the Pulmonary Hypertension Association’s (PHA’s) more than 200 support groups are patients and caregivers. But there is also another group of these leaders
Volunteer Spotlight: PHA Support Group Leader Loves Making an Impact in the PH Community
Heather Arena, Pulmonary Hypertension Association (PHA) Support Group of Michiana leader in St. Joseph, Mich., shares her passion and joy for being a support group leader and how it
Oxygen Survey May Lead to Better Technology and Advocacy
A team of Johns Hopkins University (Hopkins) engineering graduate students discovered the difficulties people with lung diseases experience accessing and obtaining portable oxygen equipment while shadowing Hopkins pulmonologists in
Pulmonary Pints Returns for Its 11th Year
The 2019 Pulmonary Pints: PubDay for PH will return on Oct. 26 for its 11th year at Nick’s Fish House in Baltimore, Md., for a day of live music, great
Share Your Hope with PHA for Pulmonary Hypertension Awareness Month
November is Pulmonary Hypertension Awareness Month. During this month, the Pulmonary Hypertension Association (PHA) also gives special recognition to one form of pulmonary hypertension (PH) on Nov. 13, CTEPH
Volunteer Spotlight: PHA Support Group Leader Lynn Bastian Shares Her Journey with PH
Lynn Bastian serves as the leader of the Chicago South Side Pulmonary Hypertension Association (PHA) Support Group. In this story, she describes her journey from a newly diagnosed individual
Open Enrollment: Navigating the Road to Health Insurance Coverage
Editor’s Note: We are rapidly approaching the period of open enrollment for Medicare, the Marketplace and Medicare Advantage. This article first appeared in Pathlight, the flagship magazine of the
Less than a Month to Go for PHA on the Road – Kansas City!
We are less than a month away from PHA on the Road in Kansas City, Kan. It takes place on Saturday, Oct. 12, at the Sheraton Overland Park Hotel at the
Pulmonary Hypertension Association’s On the Road Education Forum Arrives in Kansas City on Oct. 12
Free event offers education about pulmonary hypertension from local medical experts and networking opportunities
Pulmonary Hypertension Association Brings On the Road Education Forum to San Francisco on August 10
Free event offers educational seminars on pulmonary hypertension from local medical experts and networking
Pulmonary Hypertension Association Promotes International World PH Day to Raise Awareness to Help Improve Patient Outcomes
Silver Spring, Md. (May 1, 2019) - The Pulmonary Hypertension Association (PHA) joins dozens
Oxygen Survey May Lead to Better Technology and Advocacy
A team of Johns Hopkins University (Hopkins) engineering graduate students discovered the difficulties people with lung diseases experience accessing and obtaining portable oxygen equipment while shadowing Hopkins
PHA Presents Research on PH Awareness and Diagnostic Trends
Pulmonary Hypertension Association (PHA) staff and medical leadership presented research findings and interacted with global health care professionals with an interest in pulmonary hypertension (PH) at the
CTEPH Study Finds Higher Survival Rates Among Those Who Have Surgery
Individuals with chronic thromboembolic pulmonary hypertension (CTEPH, World Health Organization Group 4 PH) who have surgery to remove blood clots from the lungs could have a better
Positive Data from INSPIRE Trial Released
New data from “INSPIRE: A Phase 3 Open-Label, Multicenter Study to Evaluate the Safety and Tolerability of LIQ861 in PAH” was presented last week during the 39th
New PHA Clinical Trial Finder Aims to Improve Patient Involvement in PH Research
Dear PH Community, In 1994, just three years after the Pulmonary Hypertension Association (PHA) was founded by three patients and a caregiver, PHA held its first International
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