looked at common side effects
and provided recommendations
for managing these side effects
May Help Predict
Pediatric PH Morbidity
while useful for adults,
was not intended for use in
children and infants.
VOLT study demonstrated
no new safety issues for
patients taking ambrisentan
in real life situations.
Connect with the
networking, fundraising and
awareness events near you.
PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.
The Pulmonary Hypertension Association (PHA) office phone system is experiencing intermittent outages as of Friday, Feb. 16, 2018 at 9:45 a.m. EST. We are working on a solution as quickly
PHA Accreditation Program Assures Access to Specialized Care for Thousands With Often-Misdiagnosed Deadly Lung Disease
Silver Spring, MD (February 15, 2018) – A national accreditation program launched by the Pulmonary Hypertension Association (PHA) assures that more than 12,000 people with a life-threatening lung disease
Seeking Financial Assistance Because of Caring Voice Developments? Previous CVC Clients Should Make That Clear When Contacting Manufacturers.
In January, the Department of Health and Humans Services informed companies that manufacture PH medications that they would be permitted to provide one year of free medication to some individuals
Study looks at a theory that adding immunoadsorption, or the process of filtering out antibodies from the blood, in addition to other PH therapies may help improve outcomes for people
WHO Group 1 PH (PAH, pulmonary arterial hypertension) can appear by itself of be associated with other medical conditions including connective tissue diseases (CTD), such as systemic lupus erythematosus (SLE).
PHA was recently made aware of a national shortage of the diluent used for mixing some PH medications. The shortage is a result of product manufactures who have been affected
Investigator Applications are now being accepted for the Research Room at PHA’s 2018 International PH Conference and Scientific Sessions. The Research Room helps researchers further their studies by providing the
by Phyllis Hanlon, Contributing Writer WHO Group 1 PH (PAH, pulmonary arterial hypertension) is a progressive and chronic disease. There currently is no cure. In PAH, the arteries in
Friday, February 9th, 2018, 3:00 p.m. ET Josanna M. Rodriguez-Lopez, M.D., Massachusetts General Hospital This webinar will focus on WHO Group 4 pulmonary hypertension (PH), chronic thromboembolic pulmonary hypertension
On Monday, January 15, 2018, President Trump signed into law the Recognize, Assist, Include, Support and Engage (RAISE) Family Caregivers Act calling for a national strategy to address the needs of family caregivers. This bipartisan
CEO Update: 2018 PHA International PH Conference and Scientific Sessions Registration and Scholarship Applications Are Open
Dear PHA Community, I’ll never forget my first experience with the PH Community and the Pulmonary Hypertension Association (PHA). It was day one of the 2016 PHA International PH
Studies indicate differences among racial and ethnic groups in type of pulmonary arterial hypertension (PAH) diagnosed, treatments used and outcomes. by Phyllis Hanlon, Contributing Writer Some medical researchers have
The Patient Advocate Foundation (PAF) assistance fund for new and renewal patients with Medicare (including Medicare Advantage), Medicaid or military benefits is open as of Jan. 24, 2018. More information
The federal government shutdown disrupts business as usual for Congress and many federal agencies. Fortunately, however, there are some critical government activities that are able to continue. During a shutdown:
Research Looks at Use of Health Care Resources and Costs of Care for People With Pulmonary Arterial Hypertension
Study Looks at Importance of Documenting Functional Class for PAH Patients by Phyllis Hanlon, Contributing Writer People with WHO Group 1 PH (PAH, pulmonary arterial hypertension) often experience a
Investigator Applications are now being accepted for the Research Room at PHA’s 2018 International PH Conference and Scientific Sessions. The Research Room is dedicated to helping researchers further their studies
PHA has learned that the Patient Advocate Foundation (PAF) PH fund has closed. The fund opened on the heels of the community learning that Caring Voice Coalition is no longer
The Patient Advocate Foundation (PAF) assistance fund for new and renewal patients with medicare, medicaid or military benefits is now open. More information at https://www.copays.org/diseases/pulmonary-hypertension. The Pulmonary Hypertension Association (PHA)
Question: My pulmonary doctor encouraged me to try to lose weight saying that it would likely help me breathe better. But, I get short of breath when I try to
Noah Wall is a singer, songwriter, and fiddler in the award winning acoustic band “The Barefoot Movement.” Her nephew Jackson Wall was diagnosed with pulmonary hypertension (PH) at one
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