Darby Hetrick

Living My Best Life With PH

PHA Conference

PHA Board of Trustees

Jesus Cornejo: Big Heart

Film by Enrique Franco Martin

Chloe Temtchine

Facebook Live Mini Concert

Kerry Babylon

The Importance of Family



PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.

The Right Heart

Traveling Salesperson Embarks on New Journey With PH

“I could barely make the walk through the yard, which was only about 150 feet.” "My Pulmonary Arterial Hypertension (PAH) journey began in August 2014. I was an active salesperson, selling toys at a hospital gift shop on that fateful day. While

  • Bernadette Bonifacio

Fighting Lupus and PH: Bernadette’s Story

"2004 and 2007. Years that were life altering but have led me to my new normal. They are the years I was diagnosed with lupus and pulmonary hypertension (PH) respectively. "Hello, my name is Bernadette Bonifacio and I’m a Lupus Warrior and PHighter. Having

Barbara Holden: Train Adventure to Double Lung Transplant

“I feel so blessed to have been given this second chance opportunity. It never would have happened had it not been for someone who became an organ donor.” "You may remember my 1,200-mile trip from Florida to Massachusetts, by train, in September

Featured News

Register Now for Symposium Early-Bird Prices!

Time is running out to take advantage of the early-bird registration rate for the Pulmonary Hypertension Association (PHA)’s PH Professional Network (PHPN) Symposium, “Influencing the Practice: The Art

Implantable System for Remodulin Launch Delayed

United Therapeutics Corporation has notified the Pulmonary Hypertension Association (PHA) that there will be a delay in distribution of the Implantable System for Remodulin® (ISR), a collaboration between United

NORD Rare Impact Award Goes to PH Researcher

The National Organization for Rare Disorders (NORD) recently announced that Wendy Chung, M.D., Ph.D., will receive a 2019 Rare Impact Award during NORD’s Living Rare, Living Stronger Forum June

Therapy Debate Explores PAH Treatment Options

“Initial Triple vs. Sequential Combination PAH Therapy” will be debated at the PHPN Symposium, “Influencing the Practice: The Art and Science of Treating Pulmonary Hypertension,” in Washington, D.C.,

NORD Launches Caregiver Relief Program

Caregivers who help individuals with rare diseases are often unpaid family members who rarely get a day off. In recognition of the significant time, attention, patience and dedication that

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