PHA News – for patients, families, caregivers, and healthcare professionals

The Right Heart

Emergency Prep: Surviving Poor Air Quality

Evans Wilson and his wife Alicia were recently affected by the smoke from the wildfires that raged through the West Coast. Evans was diagnosed with pulmonary arterial hypertension (PAH), pulmonary fibrosis (PF) in October 2014 and chronic thromboembolic pulmonary hypertension (CTEPH) in December 2016. This is his story.

Pastoring in a Pandemic and Finding Resilience

Diana Lewis, 57, lives in Rio Rancho, New Mexico, with her husband of 28 years, Adrian, and her son Joshua, 29, who has autism spectrum disorder. Diana, a pastor, taught pre-K and elementary school for 14 years. She was diagnosed with pulmonary hypertension (PH) five years ago. She shares her story about dealing with the pandemic.

Newly Diagnosed and Persevering

Lisa Laughlin was terrified after her husband Michael fell and passed out in 2017. He had been short of breath for more than a year and no longer had energy for his nightly walks. His diagnosis of a disease they’d never heard of was equally frightening.

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Featured News

Help Others ‘Discover PH’

Pulmonary Hypertension (PH) Awareness Month continues this week with shareable graphics and interactive tools to raise awareness of the common causes and often misdiagnosed symptoms of PH.

Get the Support You Need Without Leaving Home

Remote support group meetings help the community remain connected, supported and informed – without the risk of transmitting or contracting COVID-19. Although virtual meetings lack the magic of in-person support, they have other advantages.

Learn More About the Link Between PH and Meth

A new manuscript based on Pulmonary Hypertension Association Registry (PHAR) data examined "Clinical Differences and Outcomes between Methamphetamine-Associated and Idiopathic Pulmonary Arterial Hypertension." The study by Nicholas Kolaitis, M.D., and colleagues recently was published in the Annals of the American Thoracic Society.

4 Ways to Support PHA

When you donate to the Pulmonary Hypertension Association (PHA), your gift makes a difference in the lives of those affected by pulmonary hypertension (PH). PHA makes it easy to give in the way that works best for you. Discover some ways you can give a gift of hope to support PHA.

Act Now to Ensure On-Time Prescription Refills in January

If your insurance coverage is changing in January 2021, act now to make sure your first medication refill of the new year arrives on time. Discover three tips to avoid delays with prior authorization, step therapy requirements, co-pay assistance and related issues.

Spread Awareness, Not Germs

Pulmonary Hypertension Awareness Month continues with more digital downloads from the Pulmonary Hypertension Association’s Awareness Month Calendar. Today’s download helps you spread awareness – but not germs – by making a colorful statement. Check the calendar each day to find out what’s new, and catch up on what you’ve missed.

‘Ask the Experts’ at Our Facebook Live Events

Help spread pulmonary hypertension (PH) awareness by joining the Pulmonary Hypertension Association (PHA) for Facebook Live events in English and Spanish. First up is “About PH” at 7 p.m. EST Wednesday, Nov. 18 (Spanish) and Friday, Nov. 20 (English). “PH and Meth” is scheduled for Nov. 23 at 3 p.m. EST in English and 2 p.m. EST Nov. 24 in Spanish.

New Videos Provide PH Diagnosis and Treatment Insight

People with pulmonary hypertension (PH) and their families have a new resource for information on PH. “PH 101” provides a comprehensive survey of diagnosis, classification and treatment options. The two-part video series is presented by Jean Elwing, M.D., director of the pulmonary hypertension program at UC Health in Cincinnati.

Let’s Raise Awareness This Month

Pulmonary Hypertension (PH) Awareness Month is in full swing. By now, the Pulmonary Hypertension Association has released several days of digital tools and resources through our Awareness Month Calendar. So far, we’ve released desktop and phone wallpaper, virtual meeting backgrounds and a graphic to raise awareness of the risk of chronic thromboembolic pulmonary hypertension.

3 Ways to Honor the PHight for PH

Consider honoring a member of the pulmonary hypertension community with a gift to the Pulmonary Hypertension Association (PHA). A tribute gift allows PHA to continue its vital education, support and research programs — and acknowledges someone special.

Help Others Discover PH With Our Toolkit and Interactive Calendar

November marks Pulmonary Hypertension Awareness Month, an important time for the pulmonary hypertension (PH) community. Discover the Pulmonary Hypertension Association’s tools to help educate the public, health care providers and elected officials about this rare, often-misunderstood disease.

Take Advantage of Workplace Giving Programs

Many PHA donors take advantage of their employers’ giving programs to maximize their impact and spread awareness about pulmonary hypertension. Whether you are an employee, retiree or spouse of an employee, use these workplace giving options to support PHA.

How Has the Pandemic Affected Your Holiday Plans?

COVID-19 has upended many plans to be home for the holidays. How do you to plan to change this year’s celebrations? Share with the PH community how you plan to safely celebrate the holidays this year in the Pulmonary Hypertension Association’s Right Heart Blog.

Submit Your Proposals for 2021 PHPN Symposium

The Pulmonary Hypertension Association (PHA) is accepting speaker proposal submissions for its 2021 PH Professional Network (PHPN) Symposium. "PHiguring Out the Puzzle: Pieces to Innovative, Patient-Centered Care" is set for Sept. 30-Oct. 2, 2021, in Arlington, Virginia.

Georgia Fundraiser Celebrates Sally Maddox

The Pulmonary Hypertension Association (PHA) recently conducted a virtual version of its Georgia PHA Fun Walk for a Cure. The Oct. 10 event was in memory of Sarah K. “Sally” Maddox, Ed.D, who founded the event 17 years ago.

Clowning Around for a Serious Cause

Making annual donations to the Pulmonary Hypertension Association (PHA) is no laughing matter for Fran Etzkorn of Longmont, Colorado. Fran, who was diagnosed with pulmonary hypertension (PH) in 2009, uses her passion for clowning to spread awareness about PH.

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