PHA News Home 2018-09-21T16:59:53+00:00

Darby Hetrick

Living My Best Life With PH

PHA Conference

PHA Board of Trustees

Jesus Cornejo: Big Heart

Film by Enrique Franco Martin

Chloe Temtchine

Facebook Live Mini Concert

Kerry Babylon

The Importance of Family



PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.

The Right Heart

Marybeth Alteneder: A Reminder to Remain Hopeful

“I want to take this opportunity to give hope to those people newly diagnosed.” “When I was first diagnosed and read about PH [pulmonary hypertension] online, I was very scared. My doctor sent me to Stanford where I was prescribed the treatment

Claudine Saxton: My PH Journey

“I am not sure what to expect. Will these symptoms stop or am I going to have to live with them?” “I am a 78-year-old lady. I have been having symptoms of pulmonary hypertension (PH) for quite some time. I kept thinking

Daisy Shaji: Faith Keeps Her Going

“Many times, I felt that I was reaching the end. Every time, however, Jesus lifted me up and gave me new hope.” “In January 2006, I was admitted to Christian Medical College & Hospital in Ludhiana, India, due to a severe fever.

Dolores Davis: Grants Help Pay for Life-Saving Meds

“Thank God for the grants that help pay for specialized medication!” “I was undiagnosed for several months. I was getting shorter of breath every day. I was almost to the point of not being able to get a breath before I saw

Joseph Hall: My Teen Son’s PH Diagnosis

“The reason I am sharing this story is awareness. I want as many people I know to be aware of this diagnosis in honor of [my son] … in hopes that such a tragedy is decreased, and early detection and diagnosis is obtained so

Jamie Prettner: Staying Active Through CTEPH Journey

“Although having CTEPH has caused me a lot of pain, sadness and anger, it has allowed me the opportunity to meet such amazing, supportive, people through conferences and support groups. These wonderful people gave me the hope and strength I needed to beat this disease.”

Gerry Langan: Getting PAH Diagnosis as Mother of Young Twins

“I'm thankful for the clinical research that has led to my pump and Remodulin and I hope that my story will be one that helps raise awareness for the seriousness and severity of PH.” “My name is Gerry, and I am 29-years-old.

PH Angel Families Would Give Anything to Do Anything ‘Normal’ for Their Kids

“So, when you are thinking about all of the things you did for your kids today, think of all of the PH Angel families that would give anything to do anything "normal" for our kids. We have to find a cure.” “Our

Featured News

Happy Valentine’s Day: PHA Releases New Intimacy Guide

What better way to celebrate Valentine’s Day than to announce a new Pulmonary Hypertension Association (PHA) resource on the topic of dating, relationships and intimacy? Today PHA releases “Living

Advocates Prepare for Rare Disease Day

Advocates across the U.S. are participating in free state advocacy events now through mid-March in collaboration with the National Organization for Rare Disorders (NORD) to celebrate Rare Disease Day

Advances in Pulmonary Hypertension Looks at Different Approaches to Treat Pediatric PH

Although the World Symposium on Pulmonary Hypertension (WSPH) has led pulmonary hypertension (PH) to be considered in five classifications, or groups, pediatric PH is more nuanced and there is

Join the National Discussion on Heart Disease During American Heart Month

February is American Heart Month and the Pulmonary Hypertension Association (PHA) encourages members to join the awareness campaign of the National Heart, Lung, and Blood Institute (NHLBI) of the

PHA’s Online Advances in Pulmonary Hypertension Examines Barriers in New PH Therapies

The latest issue of Advances in Pulmonary Hypertension: Official Journal of the Pulmonary Hypertension Association (PHA) — a free quarterly publication directed by an editorial board of renowned pulmonary hypertension

  • Brad A. Wong

CEO Update: Year of Hope Begins With New and Continuing Programs

Dear PH Community, For me, January always is inspiring and energizing, in part because the new year represents hope, possibility and anticipation. I look forward to the year ahead

Early Signs of Pulmonary Vascular Disease Found in Adults Born Prematurely

One in 10 people in the U.S. is born prematurely. Premature birth is known to be associated with pulmonary vascular disease in infants and children, and registry studies have

Professionals Give Insights on Adaptive Strollers and Push Chairs for Children with PH

by Nidhy Varghese, M.D., and Erin Ely, R.N., CPN, of Texas Children’s Hospital Adaptive seating systems, such as adaptive strollers or push chairs, are technology for children with mobility-related

PHA Releases Updated Associated Condition Brochures

The Pulmonary Hypertension Association (PHA) updated and redesigned its PH& brochures, a series of 13 educational pamphlets that discuss the relationship of pulmonary hypertension (PH) and other conditions or

Joseph Hall: My Teen Son’s PH Diagnosis

“The reason I am sharing this story is awareness. I want as many people I know to be aware of this diagnosis in honor of [my son] … in

Share Your Story to Build New PH Champions in Congress

The government shutdown does not stop pulmonary hypertension (PH) advocacy. In fact, the nearly 100 new senators and representatives sworn into office at the beginning of the month represent

PHA’s Newest Publication Connects Pediatric Patients and Families to Vital Resources

The Pulmonary Hypertension Association (PHA) has produced a new resource, “Pediatric Pulmonary Hypertension: A Guide to Resources for Parents and Families,” in response to 2017 survey results of PHA’s

PHA’s Telephone Support Groups: Support Is Just a Call Away

The Pulmonary Hypertension Association’s (PHA’s) telephone support groups offer connection, information and inspiration to community members wherever they are. Brian, the caregiver for his wife Charlotte, who has pulmonary

PHA Publishes New Online CME Courses for Health Care Professionals

The Pulmonary Hypertension Association (PHA) recently published three new courses on PHA Online University, a program of PHA’s multi-sponsored Medical Education Fund and the go-to web platform for health care

Inside Pathlight, PHA’s Member Magazine

Pathlight, the flagship magazine of the Pulmonary Hypertension Association, is published quarterly and sent to all members of PHA. Don’t miss the many interesting articles in the December 2018,

Data Collected Through PHA’s Research Room Leads to the Identification of PAH Biomarker

Since the first Pulmonary Hypertension Association (PHA) Conference in 1994, the Research Room at PHA’s International PH Conference and Scientific Sessions has offered a dedicated space for individuals with

Top 10 PHA News Articles of 2018

Last year’s most popular PHA News articles focused on Pulmonary Hypertension Association (PHA) patient resources; treatments, clinical care and research in pulmonary hypertension (PH); and stories about individuals with

Jamie Prettner: Staying Active Through CTEPH Journey

“Although having CTEPH has caused me a lot of pain, sadness and anger, it has allowed me the opportunity to meet such amazing, supportive, people through conferences and support groups.

Cardiovascular Institute of North Colorado Receives PHA’s PHCC Accreditation

The Pulmonary Hypertension Association’s (PHA’s) Pulmonary Hypertension Care Centers (PHCC) program granted Regional Clinical Program (RCP) accreditation to the Cardiovascular Institute of North Colorado in December. PHA launched the

WSPH Report Explores Importance of Patient Perspectives in PH

In early 2018, a task force on the patient’s perspective was created at the sixth World Symposium on Pulmonary Hypertension (WSPH). This task force reviewed the role of patient associations

PHA Press

Cardiovascular Institute of North Colorado earns PHA Pulmonary Hypertension Care Centers Program accreditation

Designation assures access to specialized care for thousands with PH SILVER SPRING, MD (January

PHA to host first Tampa O2breathe timed 5K and walk Feb. 2 to fight pulmonary hypertension

Silver Spring, MD (Jan. 22, 2019) — The Pulmonary Hypertension Association (PHA) will hold

Early diagnosis is vital for proper treatment of life-threatening pulmonary disease

Pulmonary Hypertension Association establishes November 14 as CTEPH Awareness Day Silver Spring, MD (November

PH Research

Advances in Pulmonary Hypertension Looks at Different Approaches to Treat Pediatric PH

Although the World Symposium on Pulmonary Hypertension (WSPH) has led pulmonary hypertension (PH) to be considered in five classifications, or groups, pediatric PH is more nuanced and

PHA’s Online Advances in Pulmonary Hypertension Examines Barriers in New PH Therapies

The latest issue of Advances in Pulmonary Hypertension: Official Journal of the Pulmonary Hypertension Association (PHA) — a free quarterly publication directed by an editorial board of renowned

Early Signs of Pulmonary Vascular Disease Found in Adults Born Prematurely

One in 10 people in the U.S. is born prematurely. Premature birth is known to be associated with pulmonary vascular disease in infants and children, and registry

Data Collected Through PHA’s Research Room Leads to the Identification of PAH Biomarker

Since the first Pulmonary Hypertension Association (PHA) Conference in 1994, the Research Room at PHA’s International PH Conference and Scientific Sessions has offered a dedicated space for

Is Race a Risk Factor for Pulmonary Hypertension?

by Phyllis Hanlon, Contributing Writer Few studies have examined whether race makes a difference in how often pulmonary hypertension (PH) occurs and what causes it. These questions

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