Darby Hetrick

Living My Best Life With PH

PHA Conference

PHA Board of Trustees

Jesus Cornejo: Big Heart

Film by Enrique Franco Martin

Chloe Temtchine

Facebook Live Mini Concert

Kerry Babylon

The Importance of Family

PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.

The Right Heart

Staying Hopeful With CTEPH Diagnosis

“I take each day as it comes with an optimistic approach to my CTEPH.” By Joyce Sandberg We moved to Port St. Lucie, Florida, in 2014 after living in Fort Lauderdale for 30 years. Once we settled in, I bought an adult

PAH Diagnosis Leads to Self-Discovery

“The road between then and now has been a long one. I have learned so much about life and who I want to be.” By Kimbery Toland "I was diagnosed with severe pulmonary arterial hypertension (PAH) in 2016. After trying a few

Sydni Burgess (caregiver)

“My hope is…to know there is something to always PHight for.” By Sydni Burgess (caregiver) “My mother, Rebecca "Becky" Burgess was diagnosed with pulmonary hypertension (PH) two years after I was born in 1997. To me, it was a regular day to

Riley’s Story

“Riley has been an amazing PHighter during it all. She doesn’t let it get her down and always has a smile on her face!” By Kelly Wiegele “For most of her early life, we thought Riley was just a normal and healthy

Brigette Thompson: This Is My PAH Story

“Every day that I wake up is a good day because I am still here.” “It all started one morning in 2011 when I went to work. I parked in the parking structure on the first level. I got to the elevator

Traveling Salesperson Embarks on New Journey With PH

By Eileen Lepionka “I could barely make the walk through the yard, which was only about 150 feet.” "My Pulmonary Arterial Hypertension (PAH) journey began in August 2014. I was an active salesperson, selling toys at a hospital gift shop on

Featured News

Teen Learns Compassion Growing Up with PH

The Pulmonary Hypertension Association’s (PHA’s) The Right Heart blog brings you a story about 17-year-old Anna Lindner, who lives with idiopathic pulmonary hypertension (PH). Anna was diagnosed with PH

Staying Hopeful With CTEPH Diagnosis

The Pulmonary Hypertension Association’s (PHA’s) The Right Heart blog brings you a story about Joyce Sandberg, who lives with chronic thromboembolic pulmonary hypertension (CTEPH) and chronic obstructive pulmonary disease

Find Support Through Your Telephone

The Pulmonary Hypertension Association (PHA) hosts six telephone support groups to offer connection, information and inspiration to pulmonary hypertension (PH) community members from anywhere they have a telephone connection.

Finding Financial Assistance for PH Therapies

The Pulmonary Hypertension Association (PHA) offers resources for individuals with pulmonary hypertension (PH) seeking copay assistance at www.PHAssociation.org/HELP. The page includes information about nonprofit grant programs, manufacturer patient assistance programs

The PHaces of the Week – Jan. 2

This completes our “PHaces of Hope” campaign, which ran throughout November and December. Thank you to everyone who shared your hope with all of us in the pulmonary

Top 20 Stories in 2019

As 2019 comes to a close, we’d like to share with you our 20 most popular stories of the year in PHA News! Updated REVEAL Risk Calculator Improves

Top 10 Social Media Posts of the Year

This year’s most popular Pulmonary Hypertension Association (PHA) social media posts featured informative graphics, educational videos and special day announcements like Rare Disease Day and CTEPH Day. PHA

PHA Support Groups Celebrate!

Take a look at how Pulmonary Hypertension Association (PHA) support groups across the country are spreading holiday cheer! Find a PHA support group in your area by visiting the

The PHaces of the Week, Dec. 24

Although Pulmonary Hypertension Awareness Month has ended, responses to our “PHaces of Hope” campaign were so great that the Pulmonary Hypertension Association (PHA) is continuing to post the

PHA Posts ‘Holiday Headspace’ Videos

Recognizing the increased stress that often accompanies the holiday season, especially for the pulmonary hypertension (PH) community, Pulmonary Hypertension Association (PHA) staff and volunteers have created a two-part “Holiday

3 Ways to Reduce Holiday Stress

“Approach to the Holidays: 3 Ways to Reduce Stress,” was written for Pathlight, the Pulmonary Hypertension Association’s (PHA’s) member magazine, by Patrick Mellin, who was diagnosed with pulmonary hypertension

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