Darby Hetrick
Living My Best Life With PH
PHA Conference
PHA Board of Trustees
Jesus Cornejo: Big Heart
Film by Enrique Franco Martin
Chloe Temtchine
Facebook Live Mini Concert
Kerry Babylon
The Importance of Family
PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.
Ranolene Pillay Remembers Her Mom
“My mom taught me many things, but one thing in particular I want to share with all the PHighters...Sometimes the road may get tough, but darling, you are tougher!” By Ranolene Pillay Ranolene Rhissa Pillay, 24, lives in Kwazulu Natal, South Africa,
Lindsey Wheeldon Remembers Haley Willow
“PH wasn’t her identity. Although she was open about having this condition, it never once held her back.”
How Chelsea Kennedy’s PH Diagnosis Changed Her Life
“There is light at the end of the tunnel, and you are more than just PH. We will fight and we will win!” Chelsea Kennedy, 27, has been living with pulmonary hypertension (PH) since 2018. She lives with her five children, husband and
How a PHA Support Group Helped Patient Advocate for His Health
“If I didn’t advocate for myself and put matters in my own hands, I would still be suffering until this day.” By Robert Stewart On March 17, 2017, I could hardly breathe as I played my third day straight of tennis. My
Meet Vlogger Quinland Folkestad, Who Thrives With PH
“I thought my life was over, but through the PHA and friends and family and doctors, I found the help I needed.” In recognition of Rare Disease Day and American Heart Month in February, the Pulmonary Hypertension Association’s (PHA’s) The Right Heart blog brings
Melissa Hembree: My Heart Is Getting Stronger
“I am kicking PH’s butt. If I can do it, so can you!” My name is Melissa. I am 33 years old. I was diagnosed when I was 4 years old with an atrial ventricular septal defect (AVSD). I was given a
It Takes ‘The Right Heart’ to Be a Caregiver
“I accept this job with a thankful heart and the attitude that I will do everything possible to ensure my husband lives his best life, in the best quality possible. I count my blessings for each and every day I have with him.”
Lisa Goldstein: Congenital Heart Defect Leads to Recent PAH Diagnosis
“This year, 2020, has brought me new challenges, but it has also brought me new hope. I feel connected to patients like me, patients I can finally relate to.” I was diagnosed with pulmonary arterial hypertension (PAH) on Dec. 18, 2019, which
Ranolene Pillay Remembers Her Mom
“My mom taught me many things, but one thing in particular I want to share with all the PHighters...Sometimes the road may get tough, but darling, you are tougher!”
In-Person Testing, Signature Requirements Waived for Home Oxygen
The Pulmonary Hypertension Association (PHA) urges people with pulmonary hypertension (PH), health care providers and oxygen suppliers to use new Centers for Medicare and Medicaid Services (CMS) guidelines during the
Now Is the Time to Commit Your Support to PHA Patients
There’s no better time to commit your support to pulmonary hypertension (PH) patients throughout the world by donating to the Pulmonary Hypertension Association (PHA). PHA is committed to serving the
PHA Board of Trustees Cancels PHA 2020
The PHA 2020 International PH Conference and Scientific Sessions scheduled to take place in Anaheim, California, June 12-14, 2020, will be canceled.
5 Videos to Safely Start a Home Exercise Routine
Feeling restless while sheltering in place? Consult your doctor about how to safely resume or add exercise into your daily routine. The Pulmonary Hypertension Association (PHA) recently released five
Why Caregiver Cindy Warnberg Started a Golf Tournament to Support PHA
Chelsea Warnberg celebrates another successful event. When Chelsea Warnberg was diagnosed with pulmonary hypertension (PH) nine years ago at age 21, her mother, Cindy, was there for her
5 Healthful Ways for PH Community to Connect
Many people are avoiding unnecessary physical interactions to limit the risk of spreading or contracting COVID-19. But sometimes physical isolation can lead to feelings of loneliness, anxiety or depression. As
Lindsey Wheeldon Remembers Haley Willow
“PH wasn’t her identity. Although she was open about having this condition, it never once held her back.”
In-Person Testing, Signature Requirements Waived for Home Oxygen
Sharon Smith, leader of the Altus, Oklahoma, PHA support group, relaunched her group after years of no in-person support in her area. “I held my first meeting in 2014,
A Message from PHA’s Scientific Leadership Council Chair on COVID-19
Dear Pulmonary Hypertension Community, All of us in the pulmonary hypertension community have a shared concern over the spread of a new respiratory illness called COVID-19, caused by the
4 Ways the Affordable Care Act Has Helped People With PH
“Before the ACA, I watched the lifetime coverage cap very closely. My daughter with pulmonary hypertension (PH) and heart disease had used almost half her cap before the passage
Tap Into Your Creative Side: Submit Your Work for the PHA 2020 Art Gallery
The much-anticipated Art Gallery returns to PHA 2020 International PH Conference and Scientific Sessions June 12-14 in Anaheim, California. The Art Gallery’s successful debut was at the 2018 PHA
Q: What’s a fun way to raise PH awareness? A: Trivia Night
The Pulmonary Hypertension Association (PHA) will host the annual PHA St. Louis Area Trivia Night Friday, March 27, in Maryland Heights, Missouri. The trivia night will bring together people
Discover This Support Group Leader’s Passion for Helping Others
Tara Suplicki decided to start volunteering when she learned she had pulmonary hypertension (PH). Today, she leads the Morristown, New Jersey, Pulmonary Hypertension Association (PHA) support group with Patrick
CEO Update: Help Raise PH Awareness for Rare Disease Day
Dear PH Community,Every year, the Pulmonary Hypertension Association (PHA) participates in a global campaign to draw attention to rare diseases. We mark Rare Disease Day – the last day in
Volunteer Spotlight: Holly Szmutko: A PH Advocate for Herself and Others
Holly Szmutko is a passionate volunteer and advocate on behalf of the pulmonary hypertension (PH) community. She became involved after she was diagnosed with pulmonary hypertension in January 2019
Volunteer Spotlight
Lorraine Robbins: Be a Volunteer to Feel Connected to Community
I was diagnosed with idiopathic pulmonary arterial hypertension (IPAH) a little more than seven years ago. I’ve participated in studies. I have a care team that allows me to
PHA 2020 Outstanding Member Award Nominations Now Open
Nominations are now open for the Pulmonary Hypertension Association (PHA) Outstanding Member Awards. The Outstanding Member Awards honor people who raise awareness and give a voice and face to
PHA Support Inspired Gale Perkins to Join Sustainers Circle
When Gale Perkins was first diagnosed with pulmonary hypertension more than 30 years ago, she didn’t know whom to turn to. She struggled to find resources, educational materials, and
New Issue of Advances in PH Focuses on Imaging
A new issue of Advances in Pulmonary Hypertension is available at AdvancesinPH.org. The issue, Volume 18, No. 4, “Pulmonary Hypertension: Every Picture Tells a Story,” was edited by Jeffrey
Early Diagnosis, Prompt Treatment Offer Hope for Those With Rare Form of Pulmonary Hypertension
November 13 is CTEPH Awareness Day Silver Spring, MD (November 8, 2019) – As
Pulmonary Hypertension Awareness Month Draws Attention to Life-Threatening, Often Misdiagnosed Disease
The Pulmonary Hypertension Association’s ‘PHaces of Hope’ campaign shares stories of those with PH,
Pulmonary Hypertension Association’s On the Road Education Forum Arrives in Kansas City on Oct. 12
Free event offers education about pulmonary hypertension from local medical experts and networking opportunities
Jason Boehme Awarded Grant to Fund Study in Pediatric PAH
Jason Boehme, M.D., received the 2019 PHA Robyn J. Barst, M.D. Pediatric PH Research & Mentoring Grant in honor of Jackson Wall, one of three Pulmonary Hypertension
Research Room Brings Community Together to Advance PH Studies
Researchers who study pulmonary hypertension (PH) can apply now to advance their research at the PHA 2020 International PH Conference and Scientific Sessions, which brings the PH
Young Investigator’s Research Looks at Vascular Remodeling in PAH
Ke Yuan, Ph.D., received the 2019 PHA Aldrighetti Research Award for Young Investigators. The award, one of three Pulmonary Hypertension Association (PHA) research grants awarded last year,
Research Fellow to Study How Inflammation Contributes to PH
Rahul Kumar, Ph.D., received the 2019 PHA/ATS Research Fellowship, one of three individual Pulmonary Hypertension Association research grants awarded last year, to study inflammation and how it contributes
Oxygen Survey May Lead to Better Technology and Advocacy
A team of Johns Hopkins University (Hopkins) engineering graduate students discovered the difficulties people with lung diseases experience accessing and obtaining portable oxygen equipment while shadowing Hopkins
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