PHA News Home 2018-05-02T20:47:26+00:00

Darby Hetrick

Living My Best Life With PH

PHA Conference

PHA Board of Trustees

Jesus Cornejo: Big Heart

Film by Enrique Franco Martin

Chloe Temtchine

Facebook Live Mini Concert

Kerry Babylon

The Importance of Family



PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.

The Right Heart

Post-Transplant Life is an Unexpected Adventure

By Kathleen Sheffer From left, Kathleen and Monica in the German Alps, with help from a self-timer. Against a fair amount of unfavorable odds, I will be photographing PHA’s 13th International PH Conference and Scientific Sessions. This will be the ninth Conference

Rebekah Calverley Lives an Amazing, Beautiful, Fearless Life with Pulmonary Hypertension

Born in Auckland, New Zealand, Rebekah was sick a lot as a toddler with colds and even pneumonia.  That didn’t stop her from being active like any other child as her parents searched for answers for her continued illnesses. When she was two and

Early Diagnosis and Advanced Care Put Indianapolis Mom with Pulmonary Hypertension on Promising Path

Indianapolis, Ind. (April 10, 2018) -- Donna Sparks combats a progressive life-threatening lung disease with courage, conviction and compassion -- for herself and others who share her fight. Diagnosed three years ago with pulmonary hypertension (PH), Donna is an active participant in myPHA, the

St. Louis Survivor of Deadly Lung Disease Working Hard, Inspiring Others and Breathing Easily

St. Louis, MO (March 20, 2018) -- Amanda Harvey-McKee’s life is the epitome of the notion that if you want to get something done, give it to a busy person. At age 39, she works 60 plus hours a week -- often flying from

Washington, D.C. Golden Glove Lightweight Champion Elvis Medrano Faces Biggest Battle with Deadly Lung Disease Diagnosis

Silver Spring, Md. (March 13, 2018) -- In and out of the boxing ring, Washington, D.C., Golden Glove lightweight champion Elvis Medrano is in a daily battle for his life. At 27, he’s lived six years with pulmonary hypertension (PH), a life-threatening disease also known

PHA Support Group Leader Stephanie Bachelder Wears Many Hats in Meeting With Congressman

PHA support group leader volunteers take on many roles in the pulmonary hypertension (PH) community. Many are living with PH -- others are caregivers or health care professionals -- in addition to being constituents, advocates, friends, mentors and champions of the PH community. Support

How the Unknown Led to Certainty for PhD Student and PH Patient Raele Robison

Raele Robison was a student in a demanding PhD program when she was diagnosed with scleroderma and pulmonary hypertension. Now armed with answers about what was causing her mysterious symptoms, she is living her best life with PH. By Raele Robison I remember the way

The Barefoot Movement: PHighting for a Cure for Jackson

Noah Wall is a singer, songwriter, and fiddler in the award winning acoustic band “The Barefoot Movement.”  Her nephew Jackson Wall was diagnosed with pulmonary hypertension (PH) at one year old. Jackson’s parents hold a golf tournament each year to raise funds and awareness for

Featured News

Bellerophon Therapeutics Announces Interim Results of Nitric Oxide Clinical Trial in Pulmonary Arterial Hypertension

Bellerophon Therapeutics announced this week that its Phase 3 clinical trial of pulsatile inhaled nitric oxide (iNO) for World Health Organization (WHO) Group 1 PH (pulmonary arterial hypertension, or PAH)

PHA Provides Tools to Help Parents and Children With PH Prepare for New School Year

The Pulmonary Hypertension Association (PHA) offers comprehensive resources for parents of children living with pulmonary hypertension (PH) to prepare for back-to-school season. These tools provide help for parents of children

Fatigue: Under-Recognized and Unaddressed in PH

by Phyllis Hanlon, Contributing Writer Symptoms that are commonly experienced by people with pulmonary hypertension (PH) — such as shortness of breath, light-headedness, chest pain, swelling and fatigue —

Milwaukee-Area Walkers Step Out for PHA

The sixth annual Steps for Stripes Fun Walk and Paws in the Park for PH will take place in Brookfield, Wis., Saturday, August 25. The walk originated as a

Learning to Live Your Best Life: Join PHA on the Road in 2018

The Pulmonary Hypertension Association (PHA) announces the dates and cities for two PHA on the Road: PH Patients and Families Education Forums for 2018. Forums are scheduled in Long

United Therapeutics Receives FDA Approval for the Implantable System for Remodulin®

United Therapeutics Corporation announced July 31 that it had received approval from the Food and Drug Administration (FDA) for Remodulin® (treprostinil) to be used in the Implantable System for Remodulin®

2018 PHA Conference Session Provided Insights into PH Advances in China

By Huan Huang, cofounder and director of iSEEKPH Hope Center and presenter at PHA’s 2018 International PH Conference and Scientific Sessions In the treatment of pulmonary hypertension (PH), China has

In Memorium: James “Jim” Ryan

We are saddened at the passing of our friend and supporter James “Jim” Ryan. Last month, Mr. Ryan received the 2018 PHA Philanthropy Award at PHA’s International Conference and

Member Photos Showcase 2018 PHA Conference Experiences

Attendees at the Pulmonary Hypertension Association’s (PHA) 2018 International PH Conference and Scientific Sessions in Orlando, Fla., shared experiences from their perspectives through photos posted on Facebook and Instagram.

  • Zhiyu Dai, Ph.D.

Participation in PHA Conference Opens Doors for Northwestern University Researcher

Zhiyu Dai, Ph.D., a researcher at Northwestern University and assistant professor of research at Northwestern University Feinberg School of Medicine in Chicago, has presented his work during the past

PHA Brings Your Voice to Capitol Hill: Treatment Access and Quality Care

During the past month, the Pulmonary Hypertension Association (PHA) and members of the pulmonary hypertension (PH) community have communicated with Congress in unique ways. Hundreds of attendees at PHA’s

O2 breathe™ Events Raise Funds and Awareness Across the Country

During 2018, the Pulmonary Hypertension Association (PHA) will host twenty O2 breathe™ (pronounced: oh-to-breathe) fundraising events nationally. PHA works closely with local volunteers, PHA Support Group Leaders, Pulmonary Hypertension Care

PHA Conference Art Gallery Showcases Community Talent

This year at PHA’s International PH Conference and Scientific Sessions, we hosted our first art gallery! Community members were invited to enter their artwork for review and selection by

Riders Rally in Memory of Jonah

More than 500 people gathered June 23 in Murfreesboro, TN, to honor the memory of Jonah Guider at a fundraising event unlike any other Pulmonary Hypertension Association (PHA) event

2018 PHA Outstanding Members Awards Presented During Conference

The Pulmonary Hypertension Association (PHA) would not be able to achieve its work without the dedication and excellence of the entire PH community. The individuals recognized during a June

Dr. Fagan Assumes PHA Board of Trustees’ Helm

Karen A. Fagan, M.D., began her term as Pulmonary Hypertension Association (PHA) Board of Trustees (BOT) chair during a July 1 ceremony at PHA’s 2018 International PH Conference and

Rare Disease Caregiving Report Paints a Portrait of PH Caregivers in the U.S.

This article by Mike Knaapen, Director, Patient and Caregiver Programs and Lisa Weber, Vice President, Greenwald and Associates, first appeared in Issue 2 2018 of Pathlight magazine. Become a

  • Welcome to Conference

Highlights of PHA’s 2018 International PH Conference and Scientific Sessions in Photos

Whether you were or were not able to attend PHA’s 2018 International PH Conference and Scientific Sessions this past weekend in Orlando, Fla., you can glimpse the highlights and

Post-Transplant Life is an Unexpected Adventure

By Kathleen Sheffer From left, Kathleen and Monica in the German Alps, with help from a self-timer. Against a fair amount of unfavorable odds, I will be

NEW! PHA Roadmap to Hope a must-read resource for people newly diagnosed with PH

The Pulmonary Hypertension Association (PHA) has created a new resource for people who have recently been – or are at risk of being – diagnosed with pulmonary hypertension (PH).

PHA Press

Global Community Joins Hearts to Advocate for People Living with a Commonly Misdiagnosed and Deadly Lung Disease

SILVER SPRING, MD (April 13, 2018) – Organizations around the world will join forces on

Early Diagnosis and Advanced Care Put Indianapolis Mom with Pulmonary Hypertension on Promising Path

Indianapolis, Ind. (April 10, 2018) -- Donna Sparks combats a progressive life-threatening lung disease

With the Right Diagnosis, Sharyn Robbins is Back to Bowling with Spare Time to Support the Pulmonary Hypertension Association

Silver Spring, Md. (March 28, 2018) - At Manasquan High School in Manasquan, NJ,

PH Research

Bellerophon Therapeutics Announces Interim Results of Nitric Oxide Clinical Trial in Pulmonary Arterial Hypertension

Bellerophon Therapeutics announced this week that its Phase 3 clinical trial of pulsatile inhaled nitric oxide (iNO) for World Health Organization (WHO) Group 1 PH (pulmonary arterial hypertension,

Fatigue: Under-Recognized and Unaddressed in PH

by Phyllis Hanlon, Contributing Writer Symptoms that are commonly experienced by people with pulmonary hypertension (PH) — such as shortness of breath, light-headedness, chest pain, swelling and

  • Zhiyu Dai, Ph.D.

Participation in PHA Conference Opens Doors for Northwestern University Researcher

Zhiyu Dai, Ph.D., a researcher at Northwestern University and assistant professor of research at Northwestern University Feinberg School of Medicine in Chicago, has presented his work during

Conference Speaker Spotlight: Norman Stockbridge, M.D., Ph.D.

The Pulmonary Hypertension Association (PHA) Scientific Sessions Planning Committee has announced Norman Stockbridge, M.D., Ph.D., director of the Division of Cardiovascular and Renal Products (DCaRP) in the Center

Conference Speaker Spotlight: Sagar Lonial, M.D., FACP

Prompted by recent successes in the field of oncology in precision medicine, the Pulmonary Hypertension Association’s (PHA) Scientific Sessions Committee has invited Sagar Lonial, M.D., FACP, an

Thanks to Our Sponsors

                                        

(in-kind)

Interested in advertising?

PHA offers various advertising and sponsorship opportunities on PHANews.org for companies and non-profit organizations. Please contact Advertisements@PHAssociation.org for more information.

Contact Us