Darby Hetrick
Living My Best Life With PH
PHA Conference
PHA Board of Trustees
Jesus Cornejo: Big Heart
Film by Enrique Franco Martin
Chloe Temtchine
Facebook Live Mini Concert
Kerry Babylon
The Importance of Family
PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.
Traveling Salesperson Embarks on New Journey With PH
“I could barely make the walk through the yard, which was only about 150 feet.” "My Pulmonary Arterial Hypertension (PAH) journey began in August 2014. I was an active salesperson, selling toys at a hospital gift shop on that fateful day. While
Gail Merz: PH Warrior Advocates for PH Education
"I live day to day never knowing what the day will bring to me... I just thank the Lord every day for giving me the day and pray for one more." "I resided in the metropolitan Atlanta area from 1950 till 2013. My
Fighting Lupus and PH: Bernadette’s Story
"2004 and 2007. Years that were life altering but have led me to my new normal. They are the years I was diagnosed with lupus and pulmonary hypertension (PH) respectively. "Hello, my name is Bernadette Bonifacio and I’m a Lupus Warrior and PHighter. Having
Find the Right Fitness Routine for You: Rebekah Calverley
“If I don’t push myself a little, I know I would just sit on the couch and a vicious cycle would ensue.” "This month the Boston Marathon took place. A culmination of months of training, countless half marathons and other qualifiers all
New Lungs Make Lauri Stanfield an Ambassador of Hope
“ I...love to tell my story and what organ donation has done for me, and how it’s affected my life as well as the lives of my families and friends.” "My name is Lauri Stanfield, I’m 47 years old, and I’m a
Michelle: Mom of Two Has Second Chance at Life After Transplant Surgery
“The change in my life and my recovery is nothing short of amazing. I will be forever grateful to my donor and her family for the precious gifts they gave me. I will cherish our organs forever…” "I am Michelle, a single
Barbara Holden: Train Adventure to Double Lung Transplant
“I feel so blessed to have been given this second chance opportunity. It never would have happened had it not been for someone who became an organ donor.” "You may remember my 1,200-mile trip from Florida to Massachusetts, by train, in September
Tina Proulx: From A Double Lung Transplant to Rollercoaster Rides
“I don’t know anything about [my organ donor], but they are MY HERO.” “I would like to start off by saying that I am here today because of one person and I have no idea who they are! I don’t know what
Try Newly Redesigned PHA Online University on a Phone or Tablet
The Pulmonary Hypertension Association (PHA) has launched a newly redesigned PHA Online University, providing pulmonary hypertension (PH) continuing education the PH community can trust on a more robust,
Register Now for Symposium Early-Bird Prices!
Time is running out to take advantage of the early-bird registration rate for the Pulmonary Hypertension Association (PHA)’s PH Professional Network (PHPN) Symposium, “Influencing the Practice: The Art
Implantable System for Remodulin Launch Delayed
United Therapeutics Corporation has notified the Pulmonary Hypertension Association (PHA) that there will be a delay in distribution of the Implantable System for Remodulin® (ISR), a collaboration between United
NORD Rare Impact Award Goes to PH Researcher
The National Organization for Rare Disorders (NORD) recently announced that Wendy Chung, M.D., Ph.D., will receive a 2019 Rare Impact Award during NORD’s Living Rare, Living Stronger Forum June
Traveling Salesperson Embarks on New Journey With PH
“I could barely make the walk through the yard, which was only about 150 feet.” "My Pulmonary Arterial Hypertension (PAH) journey began in August 2014. I was
Volunteer Spotlight: Cardio Rehab Speaker and Therapy Pooch Present at Support Group Meeting
Nicole Creech, support group leader of the Pulmonary Hypertension Association (PHA) Lexington, Ky., support group, recently hosted a meeting on cardiopulmonary rehabilitation featuring speaker Katelyn King, MSEP, pulmonary rehabilitation
CEO Update: Introduction of Generic Drugs Changing Therapy Landscape for Many
Dear PH Community, The past year has seen rapid expansion in the availability of generic therapy options for individuals with pulmonary arterial hypertension (PAH.) Four branded PAH therapies now
‘We Just Have to Be Heard’: Use PHA Resources to Educate Elected Officials
Last August, I made my first congressional visits. I was so nervous that I would forget what I wanted to say but once I started talking that changed. I
PHA Launches Three New Facebook Groups to Support the PH Community
The Pulmonary Hypertension Association (PHA) has created three new Facebook groups to provide support for the pulmonary hypertension (PH) community! PHA’s Facebook groups provide members with a supportive space
PHA Members Enjoy Discounts on Symposium Registration and More!
Pulmonary Hypertension Association (PHA) members enjoy a host of benefits including discounted registration for the PH Professional Network (PHPN) Symposium, “Influencing the Practice: The Art and Science of
World PH Day Promotion Efforts Garner Social Media Interest
Throughout the month of May, the Pulmonary Hypertension Association (PHA) joined PH organizations around the world to celebrate World PH Day. During the month, the official website for the
Learning to Live Your Best Life with PH: Join PHA on the Road in 2019
The Pulmonary Hypertension Association (PHA) is excited to announce dates and cities for two PHA on the Road: PH Patients and Families Education Forums in 2019. PHA on
Therapy Debate Explores PAH Treatment Options
“Initial Triple vs. Sequential Combination PAH Therapy” will be debated at the PHPN Symposium, “Influencing the Practice: The Art and Science of Treating Pulmonary Hypertension,” in Washington, D.C.,
NORD Launches Caregiver Relief Program
Caregivers who help individuals with rare diseases are often unpaid family members who rarely get a day off. In recognition of the significant time, attention, patience and dedication that
PHA Presents Research on PH Awareness and Diagnostic Trends
Pulmonary Hypertension Association (PHA) staff and medical leadership presented research findings and interacted with global health care professionals with an interest in pulmonary hypertension (PH) at the American Thoracic
PH Warrior Advocates Education to Increase Awareness
The Pulmonary Hypertension Association’s (PHA’s) The Right Heart blog brings you a story chronicling just how rigorous, uncertain and time consuming the road to a proper pulmonary hypertension (PH)
Symposium Session Focuses on Special Challenges of Women with PH
Women with pulmonary hypertension (PH) deal with a host of different issues including family planning, dating and relationships and self-image. Because these topics can be difficult to discuss, the
‘Taylor’s Wish’ Concludes Successful 10-Year Fundraising Campaign
On May 11, the 10th and final “RACE 2 CURE PH – Taylor Caffrey Memorial 5K Run/Walk” took place in Anaheim Hills, Calif., organized by Taylor’s parents, Shari and
California Family Fights for Improved Diagnosis and Treatment Through PH Bill
Tracy Espinosa of Stockton, Calif., knows first-hand the need for better diagnosis and treatment of pulmonary hypertension (PH), especially when it comes to pediatric PH. Tracy lost her husband
Blog Focuses on the Challenges of Fighting Lupus and PH
The Pulmonary Hypertension Association (PHA) is recognizing both World PH Day and Lupus Awareness Month throughout the month of May. Lupus is a long-term autoimmune disease in which the
Pulmonary Hypertension Association Promotes International World PH Day to Raise Awareness to Help Improve Patient Outcomes
Silver Spring, Md. (May 1, 2019) - The Pulmonary Hypertension Association (PHA) joins dozens
Cardiovascular Institute of North Colorado earns PHA Pulmonary Hypertension Care Centers Program accreditation
Designation assures access to specialized care for thousands with PH SILVER SPRING, MD (January
PHA to host first Tampa O2breathe timed 5K and walk Feb. 2 to fight pulmonary hypertension
Silver Spring, MD (Jan. 22, 2019) — The Pulmonary Hypertension Association (PHA) will hold
PHA Presents Research on PH Awareness and Diagnostic Trends
Pulmonary Hypertension Association (PHA) staff and medical leadership presented research findings and interacted with global health care professionals with an interest in pulmonary hypertension (PH) at the
CTEPH Study Finds Higher Survival Rates Among Those Who Have Surgery
Individuals with chronic thromboembolic pulmonary hypertension (CTEPH, World Health Organization Group 4 PH) who have surgery to remove blood clots from the lungs could have a better
Positive Data from INSPIRE Trial Released
New data from “INSPIRE: A Phase 3 Open-Label, Multicenter Study to Evaluate the Safety and Tolerability of LIQ861 in PAH” was presented last week during the 39th
New PHA Clinical Trial Finder Aims to Improve Patient Involvement in PH Research
Dear PH Community, In 1994, just three years after the Pulmonary Hypertension Association (PHA) was founded by three patients and a caregiver, PHA held its first International
Novel Clinical Trial Designs Featured in Advances-Published Paper
The Pulmonary Hypertension Association (PHA) just launched its new Clinical Trial Finder that allows individuals to search for research in pulmonary hypertension (PH), so it seems fitting
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