Darby Hetrick
Living My Best Life With PH
PHA Conference
PHA Board of Trustees
Jesus Cornejo: Big Heart
Film by Enrique Franco Martin
Chloe Temtchine
Facebook Live Mini Concert
Kerry Babylon
The Importance of Family
PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.
Riley’s Story
“Riley has been an amazing PHighter during it all. She doesn’t let it get her down and always has a smile on her face!” By Kelly Wiegele “For most of her early life, we thought Riley was just a normal and healthy
Brigette Thompson: This Is My PAH Story
“Every day that I wake up is a good day because I am still here.” “It all started one morning in 2011 when I went to work. I parked in the parking structure on the first level. I got to the elevator
My Long Journey to PH Diagnosis and My Hope for the Future
“I’m working and raising my children. I’m currently writing a book and creating a blog, so that I can tell my full story. I’m so glad my children can see their mom LIVE with PH!” By CraShundra Richardson One Sunday in September 2015, I
Traveling Salesperson Embarks on New Journey With PH
By Eileen Lepionka “I could barely make the walk through the yard, which was only about 150 feet.” "My Pulmonary Arterial Hypertension (PAH) journey began in August 2014. I was an active salesperson, selling toys at a hospital gift shop on
Gail Merz: PH Warrior Advocates for PH Education
"I live day to day never knowing what the day will bring to me... I just thank the Lord every day for giving me the day and pray for one more." "I resided in the metropolitan Atlanta area from 1950 till 2013. My
Fighting Lupus and PH: Bernadette’s Story
"2004 and 2007. Years that were life altering but have led me to my new normal. They are the years I was diagnosed with lupus and pulmonary hypertension (PH) respectively. "Hello, my name is Bernadette Bonifacio and I’m a Lupus Warrior and PHighter. Having
Find the Right Fitness Routine for You: Rebekah Calverley
“If I don’t push myself a little, I know I would just sit on the couch and a vicious cycle would ensue.” "This month the Boston Marathon took place. A culmination of months of training, countless half marathons and other qualifiers all
New Lungs Make Lauri Stanfield an Ambassador of Hope
“ I...love to tell my story and what organ donation has done for me, and how it’s affected my life as well as the lives of my families and friends.” "My name is Lauri Stanfield, I’m 47 years old, and I’m a
CTEPH Awareness Day Videos, Posts Spark Engagement
Yesterday, the Pulmonary Hypertension Association (PHA) set aside a special day (Nov. 13) to help raise awareness and improve diagnosis of a rare form of pulmonary hypertension (PH) known
18th Annual Luncheon and Conference Spreads Awareness
In honor of Pulmonary Hypertension Awareness month, the Pulmonary Hypertension Association (PHA) joined Michigan PH support groups for their annual PAH Awareness Luncheon and Conference. This 18th annual Michigan
A PAH Diagnosis Brings Hope for More Awareness
The Pulmonary Hypertension Association’s (PHA’s) PHaces of Hope blog brings you a story of hope from a PHighter named Barbara Thompson, who lives with idiopathic pulmonary arterial hypertension (PAH) and makes
Insurance Changes? Tell Your Health Care Team
Individuals impacted by pulmonary hypertension (PH) should contact their PH care team and specialty pharmacy if they anticipate changes in their health insurance in January. Even health insurance provided
PHaces of the Week Awareness Month Features PHaces of Hope
Every day of November as part of Pulmonary Hypertension Awareness Month, the Pulmonary Hypertension Association (PHA) is posting “PHaces of Hope” on Facebook, Instagram, Twitter and LinkedIn. Due
Get Ready for CTEPH Awareness Day on Nov. 13
As part of Pulmonary Hypertension Awareness Month, the Pulmonary Hypertension Association (PHA) sets aside a special day, this year on Nov. 13, to help raise awareness and improve diagnosis
TAKE ACTION! National Day of Action Today and Safe Step Act Next Week
Do your members of Congress know what it is like to live with pulmonary hypertension (PH)? As a patient, caregiver, or health care professional treating PH, no one can
PHA 2020 Registration Opens in January
As you start to make plans for 2020, be sure to mark June 12-14 on your calendar for the largest PH-related gathering in the world! Another date to look
Awareness Month Features PHaces of Hope
Pulmonary Hypertension Awareness Month launched last Friday featuring “PHaces of Hope,” empowering and inspiring stories from a community of individuals with pulmonary hypertension (PH), their caregivers and health
A PHighter…From the Beginning
The Pulmonary Hypertension Association’s (PHA’s) The Right Heart blog brings you a story about a tough little kid named Riley Wiegele who lives with idiopathic pulmonary arterial hypertension (PAH) and has
2019 CEO Update: Join Us in Sharing Hope During PH Awareness Month
Within its first decade of being founded, the Pulmonary Hypertension Association (PHA) organized the first national pulmonary hypertension (PH) campaign, in November 1997. Its goal was simple: to raise
Asthma Symptoms Start Path Toward PAH Diagnosis
The Pulmonary Hypertension Association’s (PHA’s) The Right Heart blog brings you a story about an individual who lives with pulmonary arterial hypertension (PAH) and the difficult road to diagnosis. While at
Marketplace Open Enrollment Starts Nov. 1
From Nov. 1 – Dec. 15, 2019, individuals can purchase insurance coverage or update existing coverage through their state or local health insurance marketplace. Health insurance plans change premiums
The Morrow Family PHights for Daughter Isla
The 2019 Pulmonary Hypertension Association’s (PHA’s) Zebra PHest 5K and PHun Walk will return for its 13th year at Bachman Park in Dallas, on Saturday, Nov. 9, for a
PHA On the Road – Kansas City Provides PH Community Support and Resources
More than 170 individuals with pulmonary hypertension (PH), family members and medical professionals from all over the Midwest registered for the PHA on the Road PH Patients and Families
Volunteer Spotlight: Finding Resources for Living with PH
Michele Freeman is the support group leader of the Central Oregon PH Support Group in Bend, Ore., and the caregiver for her husband, Les Freeman. She describes her experience
PH Awareness Month Kicks Off on Nov. 1
There’s just one week to go until the start of Pulmonary Hypertension Awareness Month on Nov. 1. For 2019, the Pulmonary Hypertension Association (PHA) will be spreading awareness with
Caution: These Health Insurance Plans May Pose Challenges
When choosing health insurance coverage, individuals with pulmonary hypertension (PH) should be cautious of short-term plans and plans with copay accumulators. Short-term, limited-duration health insurance plans are inexpensive plans
Hope Is Focus of Pulmonary Hypertension Awareness Month
November is Pulmonary Hypertension Awareness Month, and anticipation is growing at the Pulmonary Hypertension Association (PHA). Starting Nov. 1, PHA will launch a month-long awareness campaign called “PHaces of
A Conversation with Pulmonary Hypertension Expert Dr. Jeffery Sager
Dr. Jeffrey Sager is the director of the Pulmonary Hypertension Care Center (PHCC) at Cottage Rehabilitation Hospital & Goleta Valley Cottage Hospital in Santa Barbara, Calif. He also serves
Early Diagnosis, Prompt Treatment Offer Hope for Those With Rare Form of Pulmonary Hypertension
November 13 is CTEPH Awareness Day Silver Spring, MD (November 8, 2019) – As
Pulmonary Hypertension Awareness Month Draws Attention to Life-Threatening, Often Misdiagnosed Disease
The Pulmonary Hypertension Association’s ‘PHaces of Hope’ campaign shares stories of those with PH,
Pulmonary Hypertension Association’s On the Road Education Forum Arrives in Kansas City on Oct. 12
Free event offers education about pulmonary hypertension from local medical experts and networking opportunities
Oxygen Survey May Lead to Better Technology and Advocacy
A team of Johns Hopkins University (Hopkins) engineering graduate students discovered the difficulties people with lung diseases experience accessing and obtaining portable oxygen equipment while shadowing Hopkins
PHA Presents Research on PH Awareness and Diagnostic Trends
Pulmonary Hypertension Association (PHA) staff and medical leadership presented research findings and interacted with global health care professionals with an interest in pulmonary hypertension (PH) at the
CTEPH Study Finds Higher Survival Rates Among Those Who Have Surgery
Individuals with chronic thromboembolic pulmonary hypertension (CTEPH, World Health Organization Group 4 PH) who have surgery to remove blood clots from the lungs could have a better
Positive Data from INSPIRE Trial Released
New data from “INSPIRE: A Phase 3 Open-Label, Multicenter Study to Evaluate the Safety and Tolerability of LIQ861 in PAH” was presented last week during the 39th
New PHA Clinical Trial Finder Aims to Improve Patient Involvement in PH Research
Dear PH Community, In 1994, just three years after the Pulmonary Hypertension Association (PHA) was founded by three patients and a caregiver, PHA held its first International
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