PHA News Home 2017-12-12T16:32:31+00:00
Managing
Prostacyclin
Side Effects
A team of authors
looked at common side effects
and provided recommendations
for managing these side effects
Post by Guest Contributor
Phyllis Hanlon

Video
Blog

Jesus Cornejo
is a teenager living
with PH.

Watch Now

Modified Functional
Classification System
May Help Predict
Pediatric PH Morbidity
and Mortality
The WHO functional classification,
while useful for adults,
was not intended for use in
children and infants.

Ambrisentan:
Study Confirms
Previously Published
Safety Data

VOLT study demonstrated
no new safety issues for
patients taking ambrisentan
in real life situations.

PHA Events
Connect with the
PH Community
Search for educational,
networking, fundraising and
awareness events near you.

The Right Heart
Video Series:
Darby's Story

Darby Hetrick
was diagnosed
with PH at
age 2.

PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.

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  • telephone

Notice: PHA Phone Systems Experiencing Intermittent Outages

The Pulmonary Hypertension Association (PHA) office phone system is experiencing intermittent outages as of Friday, Feb. 16, 2018 at 9:45 a.m. EST. We are working on a solution as quickly

PHA Accreditation Program Assures Access to Specialized Care for Thousands With Often-Misdiagnosed Deadly Lung Disease

Silver Spring, MD (February 15, 2018) – A national accreditation program launched by the Pulmonary Hypertension Association (PHA) assures that more than 12,000 people with a life-threatening lung disease

Seeking Financial Assistance Because of Caring Voice Developments? Previous CVC Clients Should Make That Clear When Contacting Manufacturers.

In January, the Department of Health and Humans Services informed companies that manufacture PH medications that they would be permitted to provide one year of free medication to some individuals

Adding Immunoadsorption to Current Treatment for People With IPAH

Study looks at a theory that adding immunoadsorption, or the process of filtering out antibodies from the blood, in addition to other PH therapies may help improve outcomes for people

An Overview of Pulmonary Arterial Hypertension (PAH) and Lupus

WHO Group 1 PH (PAH, pulmonary arterial hypertension) can appear by itself of be associated with other medical conditions including connective tissue diseases (CTD), such as systemic lupus erythematosus (SLE).

Specialty Pharmacy Update on National Shortage of Diluent Used for Some PH Medications

PHA was recently made aware of a national shortage of the diluent used for mixing some PH medications. The shortage is a result of product manufactures who have been affected

Researchers: Collect Data at Unique Opportunity in PH Field

Investigator Applications are now being accepted for the Research Room at PHA’s 2018 International PH Conference and Scientific Sessions. The Research Room helps researchers further their studies by providing the

Treating Pulmonary Hypertension Associated With Connective Tissue Disease

by Phyllis Hanlon, Contributing Writer  WHO Group 1 PH (PAH, pulmonary arterial hypertension) is a progressive and chronic disease. There currently is no cure. In PAH, the arteries in

Webinar for Medical Professionals CTEPH: Finding, Treating and Future Directions

Friday, February 9th, 2018, 3:00 p.m. ET Josanna M. Rodriguez-Lopez, M.D., Massachusetts General Hospital This webinar will focus on WHO Group 4 pulmonary hypertension (PH), chronic thromboembolic pulmonary hypertension

Legislation Passed to “Recognize, Assist, Include, Support and Engage” Family Caregivers

On Monday, January 15, 2018, President Trump signed into law the Recognize, Assist, Include, Support and Engage (RAISE) Family Caregivers Act calling for a national strategy to address the needs of family caregivers. This bipartisan

  • Brad A. Wong

CEO Update: 2018 PHA International PH Conference and Scientific Sessions Registration and Scholarship Applications Are Open

Dear PHA Community, I’ll never forget my first experience with the PH Community and the Pulmonary Hypertension Association (PHA). It was day one of the 2016 PHA International PH

Ethnicity and PAH: Presentation, Treatment Options and Outcomes

Studies indicate differences among racial and ethnic groups in type of pulmonary arterial hypertension (PAH) diagnosed, treatments used and outcomes. by Phyllis Hanlon, Contributing Writer  Some medical researchers have

PH FINANCIAL ASSISTANCE UPDATE: The Patient Advocate Foundation Assistance Fund Is Now Open

The Patient Advocate Foundation (PAF) assistance fund for new and renewal patients with Medicare (including Medicare Advantage), Medicaid or military benefits is open as of Jan. 24, 2018. More information

What to Expect from the Federal Government Shutdown

The federal government shutdown disrupts business as usual for Congress and many federal agencies. Fortunately, however, there are some critical government activities that are able to continue. During a shutdown:

Research Looks at Use of Health Care Resources and Costs of Care for People With Pulmonary Arterial Hypertension

Study Looks at Importance of Documenting Functional Class for PAH Patients by Phyllis Hanlon, Contributing Writer People with WHO Group 1 PH (PAH, pulmonary arterial hypertension) often experience a

  • Patient in research room

Attention PH Researchers: Collect Data at Rare Opportunity in PH Field

Investigator Applications are now being accepted for the Research Room at PHA’s 2018 International PH Conference and Scientific Sessions. The Research Room is dedicated to helping researchers further their studies

PHA Learns That PH Financial Assistance Fund Is Now Closed

PHA has learned that the Patient Advocate Foundation (PAF) PH fund has closed. The fund opened on the heels of the community learning that Caring Voice Coalition is no longer

UPDATE PH Financial Assistance: The Patient Advocate Foundation

The Patient Advocate Foundation (PAF) assistance fund for new and renewal patients with medicare, medicaid or military benefits is now open. More information at https://www.copays.org/diseases/pulmonary-hypertension. The Pulmonary Hypertension Association (PHA)

Is It Possible to Lose Excess Weight With Lung Disease?

Question: My pulmonary doctor encouraged me to try to lose weight saying that it would likely help me breathe better. But, I get short of breath when I try to

The Barefoot Movement: PHighting for a Cure for Jackson

Noah Wall is a singer, songwriter, and fiddler in the award winning acoustic band “The Barefoot Movement.”  Her nephew Jackson Wall was diagnosed with pulmonary hypertension (PH) at one

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