PHA News Home 2018-09-21T16:59:53+00:00

Darby Hetrick

Living My Best Life With PH

PHA Conference

PHA Board of Trustees

Jesus Cornejo: Big Heart

Film by Enrique Franco Martin

Chloe Temtchine

Facebook Live Mini Concert

Kerry Babylon

The Importance of Family



PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.

The Right Heart

Five-Year Old Callie Inspires Parents to Fight for a PH Cure

“We will not stop fighting for a cure! In the meantime, we will continue cherish every moment we have because, as Callie has taught us, you never know what tomorrow may bring.” by Nikki Linscott "In the summer of 2017, we noticed

Staying Positive Through Diagnosis: Elaine Lozano

"I was diagnosed with pulmonary hypertension in 2016 when I was 22 years old; now I’m 24. It’s been a hard, rough road and it has changed my life for the worst and for the better. I never thought in a million years I

Divorce, Cancer and PH Are No Match for Sylvia Kujawa’s Strength

“I went through a divorce and cancer at the same time in 2008, but I got through that. I had cancer for the second time in January 2012, and I have had pulmonary hypertension (PH) since March 2012. Life sometimes is not easy, but

Colleen Brunetti: Reflections on the Power of Telling Your Story

My name is Colleen Brunetti, and I am your Pulmonary Hypertension Association (PHA) Board of Trustees chair-elect. I’m the first patient to serve in this volunteer position in many years, and the enormity of that honor does not escape me. Truly, at PHA, we

Becca Hubbard: Find a Way to Make Someone’s Life Better

“If I’d never been diagnosed with PH, I don’t think I would have developed the interest in fundraising that I have… most days I struggle to find anything positive in my PH diagnosis, but if I can convince someone to donate to any charitable

Rebekah Calverley: Tips for Self-Care

“It's always tough to say no to events or be unable to do things because a “bad day” is too hard to overcome. Doing small day to day things to help lessen their frequency is important.” “Burning the candle at both ends

Kim Crowell: Liver Transplant Provides a Second Chance

“None of this would have been possible without the brave, caring person who was an organ donor… Because of her precious gift of life, I’m healthy again and getting to live my second chance at life.  Not a lot of people get this opportunity,

My Journey with CTEPH

“Throughout my journey I have found that there is not enough awareness about PH and CTEPH. So, I have made it a personal mission to help raise awareness so that through early detection and intervention, lives can be saved.” – Angela Michelle By:

Featured News

Is Race a Risk Factor for Pulmonary Hypertension?

by Phyllis Hanlon, Contributing Writer Few studies have examined whether race makes a difference in how often pulmonary hypertension (PH) occurs and what causes it. These questions prompted a

Five-Year Old Callie Inspires Parents to Fight for a PH Cure

“We will not stop fighting for a cure! In the meantime, we will continue cherish every moment we have because, as Callie has taught us, you never know what

Staying Positive Through Diagnosis: Elaine Lozano

"I was diagnosed with pulmonary hypertension in 2016 when I was 22 years old; now I’m 24. It’s been a hard, rough road and it has changed my life

In Memoriam: Sarah K. “Sally” Maddox, Ed.D.

We are deeply saddened by the passing of PHA Board of Trustees member and longtime volunteer Sally K. Maddox on Saturday, Dec. 1, 2018, in Atlanta. Diagnosed with idiopathic

PHA Registry Expands Access to PH Data Service

A new Data Analysis Service launched this week by the Pulmonary Hypertension Association (PHA) enables researchers and organizations not involved in PHA’s Pulmonary Hypertension Association Registry (PHAR) to use

Prepare Now for Insurance and Financial Assistance Changes

Many individuals with pulmonary hypertension (PH) experience changes in their health insurance coverage or charitable assistance grants at the beginning of the year. In many cases, these changes mean

PHA Provides Tips to Avoid the Holiday Blues

Heightened anxiety is already a common factor for many individuals with pulmonary hypertension (PH), and with the arrival of the holidays these symptoms can easily worsen. Keep in mind

Divorce, Cancer and PH Are No Match for Sylvia Kujawa’s Strength

“I went through a divorce and cancer at the same time in 2008, but I got through that. I had cancer for the second time in January 2012, and

Researchers at Vanderbilt Publish First Study from PHA’s 2018 Research Room

Using fitness devices and cell phones, pulmonary hypertension (PH) researchers compared the physical activity of individuals with and without pulmonary arterial hypertension (PAH) in the first research study published

PHantastic Response to Giving Tuesday Campaign

Two families offered a match for this week’s 2018 Giving Tuesday campaign, helping boost the Pulmonary Hypertension Association’s (PHA) total donations to a record-breaking $61,882 for the annual giving

PH Community Steps Up to Increase Pulmonary Hypertension Awareness

The Pulmonary Hypertension Association’s (PHA’s) The Right Heart campaign delivered a big impact during Pulmonary Hypertension Awareness Month, thanks to the efforts of the PH community. With the help

Pulmonary Hypertension Awareness Month Announced in Congress

U.S. Rep. Jamie Raskin (D-MD), submitted remarks earlier this month recognizing November as Pulmonary Hypertension Awareness Month. His full comments, included below, informed Congress about the severity of pulmonary

Colleen Brunetti: Reflections on the Power of Telling Your Story

My name is Colleen Brunetti, and I am your Pulmonary Hypertension Association (PHA) Board of Trustees chair-elect. I’m the first patient to serve in this volunteer position in many

Becca Hubbard: Find a Way to Make Someone’s Life Better

“If I’d never been diagnosed with PH, I don’t think I would have developed the interest in fundraising that I have… most days I struggle to find anything positive

Rebekah Calverley: Tips for Self-Care

“It's always tough to say no to events or be unable to do things because a “bad day” is too hard to overcome. Doing small day to day things

Kim Crowell: Liver Transplant Provides a Second Chance

“None of this would have been possible without the brave, caring person who was an organ donor… Because of her precious gift of life, I’m healthy again and getting

CTEPH Awareness Day Campaign Increases Overall PH Recognition

The Pulmonary Hypertension Association (PHA) recognized Wednesday, Nov. 14, as CTEPH Awareness Day and responses show an eagerness to learn about chronic thromboembolic pulmonary hypertension (CTEPH). Social media graphics and

Common Antacids: Beneficial for Patients with Pulmonary Hypertension?

by Phyllis Hanlon, Contributing Writer Certain over-the-counter (OTC) medications such as Pepcid®, Tagamet® and Zantac® are used to treat ulcers and excess stomach acid. These drugs, technically known as histamine-2

Pulmonary Hypertension Community Raises Crucial Funds in 2018 to Support PHA’s Mission

More than 12,500 volunteers throughout the country helped organize 49 events to raise funds that support the mission of the Pulmonary Hypertension Association (PHA). Nearly half of these events

My Journey with CTEPH

“Throughout my journey I have found that there is not enough awareness about PH and CTEPH. So, I have made it a personal mission to help raise awareness so that

PHA Press

Early diagnosis is vital for proper treatment of life-threatening pulmonary disease

Pulmonary Hypertension Association establishes November 14 as CTEPH Awareness Day Silver Spring, MD (November

PHA stresses need for increased awareness of life-threatening disease

November is Pulmonary Hypertension Awareness Month Silver Spring, MD (Nov. 1, 2018) – Each November,

PHA Accreditation Program Assures Access to Specialized Care for Thousands with Often-Misdiagnosed Deadly Lung Disease

SILVER SPRING, MD (October 3, 2018) – A national accreditation program launched by the Pulmonary

PH Research

Is Race a Risk Factor for Pulmonary Hypertension?

by Phyllis Hanlon, Contributing Writer Few studies have examined whether race makes a difference in how often pulmonary hypertension (PH) occurs and what causes it. These questions

Researchers at Vanderbilt Publish First Study from PHA’s 2018 Research Room

Using fitness devices and cell phones, pulmonary hypertension (PH) researchers compared the physical activity of individuals with and without pulmonary arterial hypertension (PAH) in the first research

Common Antacids: Beneficial for Patients with Pulmonary Hypertension?

by Phyllis Hanlon, Contributing Writer Certain over-the-counter (OTC) medications such as Pepcid®, Tagamet® and Zantac® are used to treat ulcers and excess stomach acid. These drugs, technically known

PAH Study: Is Morbidity Related to Mortality?

by Phyllis Hanlon, Contributing Writer People with a serious illness such as pulmonary hypertension (PH) must form a partnership with their health care providers to effectively manage

PH with COPD: Is Sildenafil an Effective Treatment Option?

by Phyllis Hanlon, Contributing Writer All of the 14 targeted therapies for pulmonary hypertension (PH) are approved for use in patients with World Health Organization (WHO) Group 1

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