Darby Hetrick
Living My Best Life With PH
PHA Conference
PHA Board of Trustees
Jesus Cornejo: Big Heart
Film by Enrique Franco Martin
Chloe Temtchine
Facebook Live Mini Concert
Kerry Babylon
The Importance of Family
PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.
Michelle: Mom of Two Has Second Chance at Life After Transplant Surgery
“The change in my life and my recovery is nothing short of amazing. I will be forever grateful to my donor and her family for the precious gifts they gave me. I will cherish our organs forever…” "I am Michelle, a single
Barbara Holden: Train Adventure to Double Lung Transplant
“I feel so blessed to have been given this second chance opportunity. It never would have happened had it not been for someone who became an organ donor.” "You may remember my 1,200-mile trip from Florida to Massachusetts, by train, in September
Tina Proulx: From A Double Lung Transplant to Rollercoaster Rides
“I don’t know anything about [my organ donor], but they are MY HERO.” “I would like to start off by saying that I am here today because of one person and I have no idea who they are! I don’t know what
PHight like Shanta: Aaron Duncan
“You were chosen because you are PHighters and PHighters never back down from a PHight.” “Being diagnosed with pulmonary hypertension (PH) does not mean the end of life, rather the beginning of a new one. It doesn’t mean all dreams must go
Christa: Comedians and Exercise Help Keep Attitude Positive
“Luckily, some friends directed me to the PH Association website… That restored my hope!” "Hi. My name is Christa and in May 2010, I was diagnosed with idiopathic pulmonary arterial hypertension (PAH). "On May 19, 2010, I had an appointment to see
Qiana Lomax: The Importance of a Support System
“I am extremely glad I have friends and family that are helping me through this process, no one should do this alone.” “I am 21-year-old college student studying to be a Physician Assistant and I was diagnosed with Pulmonary Arterial Hypertension (PAH)
Learning to Deal With a Chronic Illness
“When the pulmonology team met with my husband and me and tried to explain CTEPH, I simply broke down.” “I am 57 years old and was diagnosed last November at the University of Kansas (KU MED) Hospital in Kansas City with CTEPH
Living With Two Rare Diseases
“Rare Disease Day is not just about PH; it is also a recognition of the many rare diseases for which resources and funding are often limited.” By Shan Hardwick “I have PH, caused by scleroderma. I had symptoms of a scleroderma-related syndrome
PHA Joins NHLBI in Celebrating 50 Years of Progress in Pulmonary Science
The National Heart, Lung, and Blood Institute’s (NHLBI’s) Division of Lung Diseases celebrated its 50th anniversary April 9 with an NIH Symposium on lung research followed by a reception
Make an Impact on the Hill and Attend Our First-Ever Symposium Trivia Night
Health care professionals can register today for the Pulmonary Hypertension Association’s (PHA’s) 2019 PH Professional Network (PHPN) Symposium Sept. 5-7 in Washington, D.C., and take advantage of their proximity
Michelle Dukes’ Lung and Heart Transplant Highlights Importance of Organ Donation
National Donate Life Month continues to showcase the impact of registering to become an organ donor. This simple act can bring hope to patients on the National Transplant Registry
Positive Data from INSPIRE Trial Released
New data from “INSPIRE: A Phase 3 Open-Label, Multicenter Study to Evaluate the Safety and Tolerability of LIQ861 in PAH” was presented last week during the 39th International Society
Openings Still Available for Webinar Participation in FDA Meeting to Gather Input on Living With a Rare Disease
The U.S. Food and Drug Administration (FDA) reports that the in-person registration for their April 29 public meeting “Patient Perspectives on the Impact of Rare Diseases” is full. However,
PHA’s Community Helps Highlight Importance of Organ Donation
National Donate Life Month continues to celebrate the capacity we all possess to give life and hope by registering to become an organ donor. Every ten minutes, someone is
Support the Online PH Community — Volunteer to Moderate a PHA Facebook Group
The Pulmonary Hypertension Association (PHA) currently hosts five specific Facebook groups for people living with PH. These groups provide members with a supportive space to share stories, updates, goals,
PHA Helps Highlight the Importance of Organ Donation During National Donate Life Month
April is National Donate Life Month and all month long the Pulmonary Hypertension Association (PHA) is bringing awareness to transplant recipients, individuals still on the waiting list for a
PHA’s PH Care Centers (PHCC) Program Accredits Five New Centers
The Pulmonary Hypertension Association’s (PHA’s) PH Care Centers (PHCC) Program recently accredited five new centers in support of its commitment to promoting quality care practices through PH center accreditation.
Generic Treprostinil Injection Launched for Intravenous Use
Generic treprostinil, the pulmonary arterial hypertension--targeted therapy currently sold as Remodulin®, is now available for individuals using the medication delivered intravenously. Generic treprostinil injection is approved by the U.S.
Inside Pathlight, PHA’s Member Magazine
Pathlight, the flagship magazine of the Pulmonary Hypertension Association (PHA), is published quarterly and sent to all PHA members. Don’t miss the many compelling and informative articles in the
PHA Plans 2019 Outreach and Education
Meet up with Pulmonary Hypertension Association (PHA) staff as we head out across the nation with information and resources to help people living with conditions which may put them
New PHA Clinical Trial Finder Aims to Improve Patient Involvement in PH Research
Dear PH Community, In 1994, just three years after the Pulmonary Hypertension Association (PHA) was founded by three patients and a caregiver, PHA held its first International PH Conference.
Novel Clinical Trial Designs Featured in Advances-Published Paper
The Pulmonary Hypertension Association (PHA) just launched its new Clinical Trial Finder that allows individuals to search for research in pulmonary hypertension (PH), so it seems fitting to highlight
Study Suggests Reassessment of iNO Treatment Response Time in HRF Newborns Is Needed
A recent study published in BMC Pediatrics shows that reliable, objective, early criteria for inhaled nitric oxide (iNO) treatment response in newborns with hypoxic respiratory failure (HRF) still needs
Join New Fundraising Walk in Northern Virginia on May 4
The Pulmonary Hypertension Association (PHA) will host the inaugural Northern Virginia Walk on Saturday, May 4, in Alexandria, Va. The walk offers an opportunity for patients, caregivers, friends, family
Christa: Comedians and Exercise Help Keep Attitude Positive
“Luckily, some friends directed me to the PH Association website… That restored my hope!” "Hi. My name is Christa and in May 2010, I was diagnosed with
New Online Tool Simplifies Clinical Trial Search
The Pulmonary Hypertension Association (PHA) is pleased to announce the launch of its new Clinical Trial Finder, now available in the research section of the PHA website, PHAssociation.org. PHA
PHA Helps Spread Awareness of Blood Clots and Relationship to PH
The Pulmonary Hypertension Association (PHA) is pleased to join The National Blood Clot Alliance and other health care organizations around the nation to spread the word about blood clots
Updated REVEAL Risk Calculator Improves Accuracy of PAH Survival Predictions
A team of researchers has increased the accuracy of a tool used to predict survival for individuals with World Health Organization Group 1 PH (pulmonary arterial hypertension or PAH).
Cardiovascular Institute of North Colorado earns PHA Pulmonary Hypertension Care Centers Program accreditation
Designation assures access to specialized care for thousands with PH SILVER SPRING, MD (January
PHA to host first Tampa O2breathe timed 5K and walk Feb. 2 to fight pulmonary hypertension
Silver Spring, MD (Jan. 22, 2019) — The Pulmonary Hypertension Association (PHA) will hold
Early diagnosis is vital for proper treatment of life-threatening pulmonary disease
Pulmonary Hypertension Association establishes November 14 as CTEPH Awareness Day Silver Spring, MD (November
Positive Data from INSPIRE Trial Released
New data from “INSPIRE: A Phase 3 Open-Label, Multicenter Study to Evaluate the Safety and Tolerability of LIQ861 in PAH” was presented last week during the 39th
New PHA Clinical Trial Finder Aims to Improve Patient Involvement in PH Research
Dear PH Community, In 1994, just three years after the Pulmonary Hypertension Association (PHA) was founded by three patients and a caregiver, PHA held its first International
Novel Clinical Trial Designs Featured in Advances-Published Paper
The Pulmonary Hypertension Association (PHA) just launched its new Clinical Trial Finder that allows individuals to search for research in pulmonary hypertension (PH), so it seems fitting
Study Suggests Reassessment of iNO Treatment Response Time in HRF Newborns Is Needed
A recent study published in BMC Pediatrics shows that reliable, objective, early criteria for inhaled nitric oxide (iNO) treatment response in newborns with hypoxic respiratory failure (HRF)
New Online Tool Simplifies Clinical Trial Search
The Pulmonary Hypertension Association (PHA) is pleased to announce the launch of its new Clinical Trial Finder, now available in the research section of the PHA website,
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