Darby Hetrick
Living My Best Life With PH
PHA Conference
PHA Board of Trustees
Jesus Cornejo: Big Heart
Film by Enrique Franco Martin
Chloe Temtchine
Facebook Live Mini Concert
Kerry Babylon
The Importance of Family
PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.
Traveling Salesperson Embarks on New Journey With PH
By Eileen Lepionka “I could barely make the walk through the yard, which was only about 150 feet.” "My Pulmonary Arterial Hypertension (PAH) journey began in August 2014. I was an active salesperson, selling toys at a hospital gift shop on
Gail Merz: PH Warrior Advocates for PH Education
"I live day to day never knowing what the day will bring to me... I just thank the Lord every day for giving me the day and pray for one more." "I resided in the metropolitan Atlanta area from 1950 till 2013. My
Fighting Lupus and PH: Bernadette’s Story
"2004 and 2007. Years that were life altering but have led me to my new normal. They are the years I was diagnosed with lupus and pulmonary hypertension (PH) respectively. "Hello, my name is Bernadette Bonifacio and I’m a Lupus Warrior and PHighter. Having
Find the Right Fitness Routine for You: Rebekah Calverley
“If I don’t push myself a little, I know I would just sit on the couch and a vicious cycle would ensue.” "This month the Boston Marathon took place. A culmination of months of training, countless half marathons and other qualifiers all
New Lungs Make Lauri Stanfield an Ambassador of Hope
“ I...love to tell my story and what organ donation has done for me, and how it’s affected my life as well as the lives of my families and friends.” "My name is Lauri Stanfield, I’m 47 years old, and I’m a
Michelle: Mom of Two Has Second Chance at Life After Transplant Surgery
“The change in my life and my recovery is nothing short of amazing. I will be forever grateful to my donor and her family for the precious gifts they gave me. I will cherish our organs forever…” "I am Michelle, a single
Barbara Holden: Train Adventure to Double Lung Transplant
“I feel so blessed to have been given this second chance opportunity. It never would have happened had it not been for someone who became an organ donor.” "You may remember my 1,200-mile trip from Florida to Massachusetts, by train, in September
Tina Proulx: From A Double Lung Transplant to Rollercoaster Rides
“I don’t know anything about [my organ donor], but they are MY HERO.” “I would like to start off by saying that I am here today because of one person and I have no idea who they are! I don’t know what
PHA on the Road – San Francisco Educates and Inspires
The PHA on the Road –San Francisco PH Patients and Families Education Forum drew almost 200 members of the pulmonary hypertension (PH) community to the San Francisco Westin Airport
Exercise and PH Topic of Newest Advances in Pulmonary Hypertension
Now online, Volume 18, Issue 2 of Advances in Pulmonary Hypertension, official journal of the Pulmonary Hypertension Association, is dedicated to the role of exercise in pulmonary hypertension (PH). “Exercise
10 Reasons to Attend 2019 PHPN Symposium
PHA is just three weeks away from the PH Professional Network (PHPN) Symposium, “Influencing the Practice: The Art and Science of Treating Pulmonary Hypertension” to be held in Washington,
Lee Ann and Chris Scott Walk in Philadelphia for Grandson Cayden
The Pulmonary Hypertension Association (PHA) will be hosting the annual Philadelphia O2breathe Walk on Saturday, Sept. 21, in Philadelphia, Pa. The walk allows individuals with pulmonary hypertension (PH), caregivers,
Volunteer Spotlight: Parent Telephone Support Group Facilitators
Jenn Garigen and Jane Northrop facilitate PHA’s monthly parent telephone support group, a place where parents of children with PH can connect and share experiences, challenges and triumphs. Jenn
CEO Update: Thanks to Our Volunteers Who Bring You PHA on the Road
Dear PHA Community, While we keep in regular touch with many in our Pulmonary Hypertension Association (PHA) PHamily online — through PHA News and other e-communications, our website, online
PHA Releases New Videos on Clinical Research
The Pulmonary Hypertension Association (PHA) recently released the final three of its six-part educational video series on clinical research. The full series, which is available free on PHA Classroom,
Colleen Daniel Looks Forward to Her Third Southern California Walk
Individuals with pulmonary hypertension (PH), their friends, family and health care professionals who treat the disease will come together in Fountain Valley, Calif., on Sept. 14 to participate in
PHPN Symposium Explores Latest in Implantable Pumps and Oxygen Delivery Devices
The PH Professional Network (PHPN) Symposium, “Influencing the Practice: The Art and Science of Treating Pulmonary Hypertension,” being held from Sept. 5-7 in Washington, D.C., will offer attendees informative
Volunteer Spotlight: The Texas Children’s Pediatric Support Group in Houston, Texas
The Texas Children’s Pediatric Support Group in Houston, Texas, hosted its first meet and greet meeting to create a family-centered support network. Approximately 30 people attended the event, and
‘I Made a Difference for Nevada’ — Advocacy August Kicks Off
Nicole Hogan-Williams is one of several advocates who got a head start on the Pulmonary Hypertension Association’s (PHA’s) Advocacy August campaign by visiting with her elected officials in July.
Recent Publication Highlights Potential Use of Cardiac Implant in PAH
Results from a recent clinical study demonstrated that a cardiac implant system can safely be used in individuals with pulmonary arterial hypertension (PAH), and the device provided useful information
Expert Panel Discussion on Therapy Transitions among Anticipated Sessions at PHA Symposium
The session schedule for this year’s PH Professional Network (PHPN) Symposium, “Influencing the Practice: The Art and Science of Treating Pulmonary Hypertension,” being held from Sept. 5-7 in Washington,
PHA 2020 Theme Contest Winner: Vision for a Cure
On Friday, July 26, live on Facebook, PHA announced the theme for its PHA 2020 Conference: Vision for a Cure. The PHA International PH Conference and Scientific Sessions will
PHA Support Group Leader Featured in Arkansas Democrat-Gazette
The Arkansas Democrat-Gazette recently featured a story about Thekla McGinley, who leads the PHA Central Arkansas Support Group. In it, she opens up about living with pulmonary hypertension (PH)
Individual with PH Shares What PHA on the Road Means to Her
Meet Rita Orth. For the past 20 years, Rita has lived with pulmonary hypertension (PH). Along the way, she has sought opportunities to learn how to navigate the challenges
Advances in Pulmonary Hypertension Article Explores Atrial Septal Defect-Associated Pulmonary Hypertension
Summary by Bennett Samuel, M.H.A., B.S.N., R.N. Pulmonary hypertension (PH) is a type of high blood pressure. PH affects the blood vessels in the lungs and heart. An atrial
PH Medical Professionals Will Make Their Voices Heard on Capitol Hill during Advocacy Day
On September 5, pulmonary hypertension (PH) medical professionals and other advocates will make their voices heard on Capitol Hill in Washington, D.C., during the Pulmonary Hypertension Association’s PH Professional
Three PH Copay Assistance Funds Open
Three copay assistance funds are currently open to help individuals with pulmonary hypertension (PH) pay unreimbursed copays for PH medications. Funding for copays is now available through the PAN
PHA on the Road – San Francisco Connects Local Experts with PH Community
The Pulmonary Hypertension Association (PHA) On The Road Education Forum comes to San Francisco, Calif., on Aug. 10 at The Westin San Francisco Airport. PHA on the Road is a
Pulmonary Hypertension Association Brings On the Road Education Forum to San Francisco on August 10
Free event offers educational seminars on pulmonary hypertension from local medical experts and networking
Pulmonary Hypertension Association Promotes International World PH Day to Raise Awareness to Help Improve Patient Outcomes
Silver Spring, Md. (May 1, 2019) - The Pulmonary Hypertension Association (PHA) joins dozens
Cardiovascular Institute of North Colorado earns PHA Pulmonary Hypertension Care Centers Program accreditation
Designation assures access to specialized care for thousands with PH SILVER SPRING, MD (January
PHA Presents Research on PH Awareness and Diagnostic Trends
Pulmonary Hypertension Association (PHA) staff and medical leadership presented research findings and interacted with global health care professionals with an interest in pulmonary hypertension (PH) at the
CTEPH Study Finds Higher Survival Rates Among Those Who Have Surgery
Individuals with chronic thromboembolic pulmonary hypertension (CTEPH, World Health Organization Group 4 PH) who have surgery to remove blood clots from the lungs could have a better
Positive Data from INSPIRE Trial Released
New data from “INSPIRE: A Phase 3 Open-Label, Multicenter Study to Evaluate the Safety and Tolerability of LIQ861 in PAH” was presented last week during the 39th
New PHA Clinical Trial Finder Aims to Improve Patient Involvement in PH Research
Dear PH Community, In 1994, just three years after the Pulmonary Hypertension Association (PHA) was founded by three patients and a caregiver, PHA held its first International
Novel Clinical Trial Designs Featured in Advances-Published Paper
The Pulmonary Hypertension Association (PHA) just launched its new Clinical Trial Finder that allows individuals to search for research in pulmonary hypertension (PH), so it seems fitting
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