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The Right Heart

Pastoring in a Pandemic and Finding Resilience

Diana Lewis, 57, lives in Rio Rancho, New Mexico, with her husband of 28 years, Adrian, and her son Joshua, 29, who has autism spectrum disorder. Diana, a pastor, taught pre-K and elementary school for 14 years. She was diagnosed with pulmonary hypertension (PH) five years ago. She shares her story about dealing with the pandemic.

Newly Diagnosed and Persevering

Lisa Laughlin was terrified after her husband Michael fell and passed out in 2017. He had been short of breath for more than a year and no longer had energy for his nightly walks. His diagnosis of a disease they’d never heard of was equally frightening.

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Featured News

Help Determine How Donor Lungs are Distributed

The scoring system for allocating donor lungs is under review. You can weigh in on how donor lungs are distributed by taking a 10- to 15-minute survey from the Organ Procurement and Transplantation Network. The Pulmonary Hypertension Association (PHA) encourages people with pulmonary hypertension, their loved ones and health care teams to participate.

How to Maximize Your Support for PH Research and Awareness

Does your employer have a matching gift program? If so, you can double your contribution to the Pulmonary Hypertension Association (PHA). Depending on the employer, you might be eligible to provide twice the support for the pulmonary hypertension (PH) community, whether you’re an employee, spouse of an employee or retiree.

Learn About PH Drugs In Development

While the number of therapies available to treat PH has grown over the past few decades, more research is needed. Learn about current and emerging PH treatments Sept. 25 at 4 p.m. EDT in “Understanding the PH Drug Pipeline.” PH specialist Anna Hemnes will provide insight on available treatments, the biological pathways targeted and potential new drugs on the horizon.

Former Runner Goes the Distance to Advance PH Research

Nick Simons ran 25 to 30 miles a week until 2008. A particularly disappointing run led to a doctor’s visit, tests and a pulmonary hypertension (PH) diagnosis. Eventually, he started contributing to the Pulmonary Hypertension Association (PHA) through payroll deductions.

Get Social! Join a PHA Facebook Group

Essential social support during the COVID-19 pandemic is possible thanks to the Pulmonary Hypertension Association (PHA)’s eight Facebook groups. Pam Kehoe of Wisconsin, who joined the CTEPH group after her diagnosis, shares how the group provides her with a supportive space to exchange stories, news and concerns.

8 Tips to Get Your Child With PH Ready for School

As a new school year begins amid the COVID-19 pandemic, deciding whether to send children back to the classroom can be difficult. Three pediatric pulmonary hypertension (PH) specialists share considerations to help you decide what’s best for your child.

Do You Have the FAQs About COVID-19 & PH?

Discover links to back-to-school guidance and more answers to your COVID-19 concerns. The Pulmonary Hypertension Association recently updated its frequently asked questions to help you maintain your health, prevent virus transmission and exposure, and manage stress and anxiety during the pandemic.

‘Lucky to be Alive’ and Inspired to Give Back

Lauri Stanfield donates to the Pulmonary Hypertension Association (PHA) in honor of the people who inspire her: fellow PH patients. “I’m lucky to be alive,” Lauri says. “That’s why I give back to PHA. Some of the best people I’ve ever met in the world are PH patients. I know that my gifts honor them.”

New Professional Development Courses Online

One of the ways the Pulmonary Hypertension Association (PHA) promotes quality patient care is through free education courses for health care professionals. Several new courses have been added to the PHA Online University, a digital platform for continuing medical education.

Add These Tactics to Your Emergency Checklist

Many people in the pulmonary hypertension community are preparing for power outages and other issues related to Hurricane Laura and wildfires in California. Discover resources and tips from the Pulmonary Hypertension Association that apply to many emergency situations.

10 Tips to Reinvent Your Vacation Plans

Sharon Horning was looking forward to two concerts and a big car show this summer. When the pandemic forced her to revamp her plans, she took on a massive new project. Find out how Sharon and other members of the pulmonary hypertension community are making the most of summer and fall despite distancing.

Resources for Copay Assistance Due to COVID-19

Struggling with your copays and other medical costs due to the COVID-19 pandemic? Discover copay assistance resources for people with pulmonary hypertension. Find available grants and manufacturer programs on the Pulmonary Hypertension Association website.

Applications Open for Aldrighetti Research Award

The Pulmonary Hypertension Association is accepting applications for the Aldrighetti Research Award for Young Investigators. The research grant supports the work of promising young investigators interested in research in pulmonary arterial hypertension.

4 Reasons Why You Should Join the Sustainers Circle

Join the Pulmonary Hypertension Association’s (PHA’s) monthly giving program to make a difference for the pulmonary hypertension (PH) community. Members of the Sustainers Circle provide support throughout the year to keep hope alive for everyone in the PH community.

Contact Congress: Help End Surprise Medical Bills

When someone with PH seeks medical care, they should be confident about what their health insurance will cover. But more than half of adults surveyed in the U.S. say they or a family member have received an unexpected medical bill. Urge your senators and representatives to support comprehensive legislation to protect people from surprise medical bills for all diseases in all care settings.

PHA Resources Help Families Stay Connected

Jason and Shannin Strom-Henry try to help their daughter Zoe deal with the isolation during the pandemic. Throughout the pandemic, the family has relied on Pulmonary Hypertension Association (PHA) resources, such as PHA’s Parents of Kids with PH web page and PH Kids support group.

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