Darby Hetrick

Living My Best Life With PH

PHA Conference

PHA Board of Trustees

Jesus Cornejo: Big Heart

Film by Enrique Franco Martin

Chloe Temtchine

Facebook Live Mini Concert

Kerry Babylon

The Importance of Family



PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.

The Right Heart

Sydni Burgess (caregiver)

“My hope is…to know there is something to always PHight for.” By Sydni Burgess (caregiver) “My mother, Rebecca "Becky" Burgess was diagnosed with pulmonary hypertension (PH) two years after I was born in 1997. To me, it was a regular day to

Riley’s Story

“Riley has been an amazing PHighter during it all. She doesn’t let it get her down and always has a smile on her face!” By Kelly Wiegele “For most of her early life, we thought Riley was just a normal and healthy

Brigette Thompson: This Is My PAH Story

“Every day that I wake up is a good day because I am still here.” “It all started one morning in 2011 when I went to work. I parked in the parking structure on the first level. I got to the elevator

Traveling Salesperson Embarks on New Journey With PH

By Eileen Lepionka “I could barely make the walk through the yard, which was only about 150 feet.” "My Pulmonary Arterial Hypertension (PAH) journey began in August 2014. I was an active salesperson, selling toys at a hospital gift shop on

  • Bernadette Bonifacio

Fighting Lupus and PH: Bernadette’s Story

"2004 and 2007. Years that were life altering but have led me to my new normal. They are the years I was diagnosed with lupus and pulmonary hypertension (PH) respectively. "Hello, my name is Bernadette Bonifacio and I’m a Lupus Warrior and PHighter. Having

Featured News

Last Chance for Open Enrollment

Open enrollment for two types of insurance ends soon: Medicare Open Enrollment ends Dec. 7, 2019. Visit Medicare.gov to learn more and choose coverage. Marketplace Open Enrollment ends Dec.15,

PHaces of Hope Continues in December

Although Pulmonary Hypertension Awareness Month has ended, responses to our “PHaces of Hope” campaign were so great that the Pulmonary Hypertension Association (PHA) will continue to post the

Daughter Finds Inspiration and Strength From Mom

The Pulmonary Hypertension Association’s (PHA’s) The Right Heart blog brings you a story about Sydni Burgess, whose mom was diagnosed with pulmonary hypertension (PH) when she was two. Rebecca Burgess was

PHaces of the Week

Although Pulmonary Hypertension Awareness Month is coming to an end, responses to our “PHaces of Hope” campaign continue. Therefore PHA will continue to post the community’s PHaces into December

Returning to the Stage with PAH

Stephen Carter-Hicks, a long-time singer and Broadway star, is excited to take the stage again after being diagnosed with pulmonary arterial hypertension (PAH) almost 10 years ago. He remembers

Support Group Advisory Board Helps Train Leaders

Pulmonary Hypertension Association’s (PHA’s) Support Group Leader Advisory Board convened for its annual meeting on Saturday, Oct. 26 in Atlanta for a day of leadership activities and discussions focused

A PAH Diagnosis Brings Hope for More Awareness

The Pulmonary Hypertension Association’s (PHA’s) PHaces of Hope blog brings you a story of hope from a PHighter named Barbara Thompson, who lives with idiopathic pulmonary arterial hypertension (PAH) and makes

Insurance Changes? Tell Your Health Care Team

Individuals impacted by pulmonary hypertension (PH) should contact their PH care team and specialty pharmacy if they anticipate changes in their health insurance in January. Even health insurance provided

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