PHA News – for patients, families, caregivers, and healthcare professionals

The Right Heart

Emergency Prep: Surviving Poor Air Quality

Evans Wilson and his wife Alicia were recently affected by the smoke from the wildfires that raged through the West Coast. Evans was diagnosed with pulmonary arterial hypertension (PAH), pulmonary fibrosis (PF) in October 2014 and chronic thromboembolic pulmonary hypertension (CTEPH) in December 2016. This is his story.

Pastoring in a Pandemic and Finding Resilience

Diana Lewis, 57, lives in Rio Rancho, New Mexico, with her husband of 28 years, Adrian, and her son Joshua, 29, who has autism spectrum disorder. Diana, a pastor, taught pre-K and elementary school for 14 years. She was diagnosed with pulmonary hypertension (PH) five years ago. She shares her story about dealing with the pandemic.

Newly Diagnosed and Persevering

Lisa Laughlin was terrified after her husband Michael fell and passed out in 2017. He had been short of breath for more than a year and no longer had energy for his nightly walks. His diagnosis of a disease they’d never heard of was equally frightening.

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Featured News

How Has the Pandemic Affected Your Holiday Plans?

COVID-19 has upended many plans to be home for the holidays. How do you to plan to change this year’s celebrations? Share with the PH community how you plan to safely celebrate the holidays this year in the Pulmonary Hypertension Association’s Right Heart Blog.

Submit Your Proposals for 2021 PHPN Symposium

The Pulmonary Hypertension Association (PHA) is accepting speaker proposal submissions for its 2021 PH Professional Network (PHPN) Symposium. "PHiguring Out the Puzzle: Pieces to Innovative, Patient-Centered Care" is set for Sept. 30-Oct. 2, 2021, in Arlington, Virginia.

Georgia Fundraiser Celebrates Sally Maddox

The Pulmonary Hypertension Association (PHA) recently conducted a virtual version of its Georgia PHA Fun Walk for a Cure. The Oct. 10 event was in memory of Sarah K. “Sally” Maddox, Ed.D, who founded the event 17 years ago.

Clowning Around for a Serious Cause

Making annual donations to the Pulmonary Hypertension Association (PHA) is no laughing matter for Fran Etzkorn of Longmont, Colorado. Fran, who was diagnosed with pulmonary hypertension (PH) in 2009, uses her passion for clowning to spread awareness about PH.

Marketplace Open Enrollment Begins Nov. 1

Open enrollment for the individual health insurance marketplace runs Nov. 1 through Dec. 15. Individual marketplace plans can’t discriminate against people with pre-existing conditions, and most enrollees qualify for assistance with coverage costs.

Catch Up on ‘PHA Connects’ Events

Thank you for participating in our “PHA Connects: COVID-19 and Your Health” series. In case you missed any of our virtual town halls or Facebook Live events, watch the recordings on the Pulmonary Hypertension Association website

Reduce Your Risks When Casting Your Ballot

Protect yourself and others from COVID-19 by following healthful voting practices. HealthyVoting.org offers tips for safely voting by mail or in person. The website's guidance is based on guidance from public health experts and state election laws.

Review Your Medicare Coverage

If you have health insurance through Medicare, including a Medicare Advantage plan, now is the time to review your coverage. Medicare open enrollment starts Oct. 15.

Honoring Pat Paton by Inspiring New Leaders

At first glance, the Pulmonary Hypertension Association (PHA) might seem different from the fledgling organization Pat Paton founded in 1991, along with her sister Judy Simpson and Teresa Knazik and Dorothy Olson. This dedicated group of volunteers writing letters and making phone calls from their homes has become a modern version of the organization she envisioned.

PHA Joins Coalition on Safe, Accessible Telehealth

The Pulmonary Hypertension Association is part of a coalition calling for safe access to telehealth services. The participating organizations represent millions of people who live with serious, acute and chronic health conditions. The coalition recently released principles to guide policymakers to ensure continued access to telehealth services during and after the COVID-19 public health emergency.

PHA Continues Advocacy for Patient-Focused REMS Protocols

The Pulmonary Hypertension Association (PHA) continues its effort to improve safety protocols for some pulmonary hypertension (PH) drugs. PHA shared recommendations for safety improvements with the Bosentan REMS Group focus after successfully advocating for the merger of two Ambrisentan REMS programs.

Supporting Best Friend’s Dream for Cure

When Dawn Reynolds died two years ago, her best friend Courtney Hanna Griffin began donating to the Pulmonary Hypertension Association (PHA). She wanted to keep alive Dawn’s memory and her dream of a pulmonary hypertension cure.

No Sneakers Needed for Philadelphia O2breathe Walk

This year’s Pulmonary Hypertension Association (PHA) Philadelphia O2breathe Walk is a virtual celebration of the PH community’s fundraising efforts. Join us online at 11 a.m. EDT Saturday for live team recognition, inspirational messages and interactive engagement.

Read ‘PH in a Pandemic’ and Other Great Stories in Pathlight

If you’re a member of the Pulmonary Hypertension Association (PHA), the latest issue of Pathlight should have arrived in your mail. The August issue of PHA’s quarterly magazine addresses “PH in a Pandemic,” research breakthroughs and inspirational stories from people with pulmonary hypertension (PH) and their loved ones.

Affected by wildfires or flooding? Share Your Emergency Experience

Do you live in an area affected by recent wildfires, hurricanes or other emergency situations? How did the disaster affect your pulmonary hypertension (PH)? Let the PH community know how you’re managing and what precautions you took. Share your experience in the Pulmonary Hypertension Association’s Right Heart Blog.

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