Discover the latest news from the Pulmonary Hypertension, including advocacy updates, research articles and event coverage.
The Pulmonary Hypertension Association is celebrating Pride Month throughout June to support the lesbian, gay, bisexual, trans, queer and intersex community, especially those with pulmonary hypertension. Hear from PHA members Stephen Carter-Hicks and Sydney Ward, see pictures from a PHA 2022 mixer and learn about our Facebook group for LGBTQ+ people with PH.
The Greater Washington, D.C., O2breathe Walk held on May 13 at Oronocco Park in Arlington, VA raised almost twice the amount from the previous year. The event, formerly known as the Northern Virginia O2breathe Walk, raised $12,763 to support the fight against pulmonary hypertension (PH). The top fundraising teams were Inova PHast and PHurious, Mid-Atlantic PHoo PHighters and Team PHA Staff.
Pulmonary Hypertension Association CEO Matt Granato recently participated in a Spanish-language Instagram Live chat with the Sociedad Latina de Hipertensión Pulmonar. He discussed how PHA is fulfilling its duty to share knowledge and resources to rid the world of pulmonary hypertension.
Start brainstorming ideas for the PHA 2024 theme. Our theme contest kickoff is right around the corner for PHA 2024 International PH Conference and Scientific Sessions. Starting June 22, you can submit theme ideas and help set the tone for PHA 2024. The winner will receive unlimited bragging rights, a $25 Amazon gift card, PHA swag and a free one-year individual Pulmonary Hypertension Association membership.
Pulmonary hypertension advocates met with congressional offices in May to request support for health care reforms. The advocates urged legislators to cosponsor the Safe Step and the H.E.L.P. Copays acts. They also discussed the need for supplemental oxygen access reform. Find out which senator signed on to the Safe Step Act a few days after hearing from a PHA advocate.
The Pulmonary Hypertension Association recently asked the Institute for Clinical and Economic Review to modify its draft document about sotatercept for pulmonary arterial hypertension (PAH). PHA seeks changes to language about medication side effects, supplemental oxygen access and sotatercept’s unique characteristics to potentially treat PAH.
Insurance & treatment access
Study suggests transdermal delivery could be alternative to existing treprostinil administration methods.
Thymmune is developing regenerative cell therapies for potential post-transplant treatment.
Some patients can now access OxiWear through Medicare and participating insurance providers.
