PHA Pediatric Resources

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The number of pediatric PH Care Centers accredited in the U.S. by the Pulmonary Hypertension Association.

The PH Care Centers initiative seeks to identify centers with expertise in PH that have demonstrated an ability to properly diagnose the disease and have the capability to manage these complex patients. This program is part of PHA’s commitment to people with PH and their families.

Together, we can and must improve the quality of care for kids living with PH and support the families affected by this disease.

SAVE THE DATE

Connect with pediatric programs, kids activities,

the PHA Fashion Show and scholarships just for kids.

WHERE

Orlando, Fla.

WHEN

June 29 - July 1, 2018

PHA’s International PH Conference

and Scientific Sessions

Pediatric

Online Resources

PHA RECORDINGS

PH

Caring for a Child with PH

kids at PH Conference

The more you know...

becoming an informed advocate for your child

PARENTS

FOR

FAQ'S

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Tips for coping and planning for school and other activities

BREATHLESS NOT HOPELESS.

CHLOE TEMTCHINE

"BREATHE" ORIGINAL SONG
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Join an online community for patients and families with PH.

myPHA is a social network with forums and groups for teens, pediatric families and caregivers.
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About PHA’s Pediatric Resources

PHA offers resources for caregivers of children who are living with PH as well as special support groups and online communities and information for teens living with PH and parents of children who are living with the disease. Connect directly with an email mentor as a source of support, strength and hope.

Although there are some similarities between adults and children with PH, there are also differences. PHA’s Pulmonary Hypertension Care Center (PHCC)-accreditation program now includes centers across the United States that treat children with PH. PHA’s programs to improve the quality of care for kids with PH include education, resources and networking opportunities for pediatric PH clinicians. PHA also provides resources for researchers looking to better understand and care for children living with PH and work to find a cure for the complex disease.

The more you know, the better equipped you will be to advocate for your child in many different situations. Read these FAQs for parents of children with PH to learn more about the causes of PH in children, the available treatments and pediatric care centers.

PHA’s International Conference

PHA’s International PH Conference and Scientific Sessions offers programs for children, families and pediatric health care professionals. Activities for kids with PH and families of kids with PH, including the PHA Fashion Show, are available at Conference. PHA also offers scholarships for pediatric patients and caregivers.

Stay connected with the latest research and announcements signing up for PHANews.

Can’t find what you need on this page? Contact us at KidsWithPH@PHAssociation.org.

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Frequently Asked Questions for Parents of Kids with PH.

Learn more about the causes of and treatments for pediatric PH.
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Resources and Events for PH-Treating Health Care Professionals

PHA Online University

PHA Online University is an online learning center for medical education and resources on pulmonary hypertension. Resources include courses, a resource library, research, access to the Advances in PH journal and Networking. Read More >>

PHA Preceptorship Program

Developed by the PHA Scientific Leadership Council, this program offers, at nationally recognized PAH centers, direct instruction on state-of-the-art PAH diagnosis and management for physicians and other health professionals who help care for patients with PAH. The PHA Preceptorship Program is designed to improve competence, performance, and patient care practices by instructing front-line clinicians in the highest quality of care for patients with PAH by combining didactic discourse and highly interactive case-based discussion. Read More >>

Robyn J. Barst Pediatric Research and Mentoring Fund

Named after a pioneer in the field of pediatric PH research, the Robyn J. Barst Fund advances the field by providing support for one-year mentorship for young clinicians and researchers. Grantees also complete a proof of concept research project. Read More >>

The PHPN Symposium

The PHPN Symposium is an event held once every two years that brings together more than 500 PH-treating health care professionals to learn and earn CME/CE; share research among peers; and network with other health care professionals. The 2017 PHPN Symposium, Navigating the Future: Individualizing Patient Care in the Face of Increasingly Complex Treatment Options, will be held in the Washington, D.C., metropolitan area on Oct. 5-7, 2017. This year’s Symposium includes sessions in lung disease and infancy as well as pediatric PH issues. Read More >>

PHA’s International PH Conference and Scientific Sessions

PHA’s 2018 Conference will take place June 29-July 1 in Orlando, Fla. PHA’s International PH Conferences bring together more than 1,500 patients, caregivers, medical professionals and other friends of PHA every two years to share information on the latest research, treatments and lifestyle issues with PH. Read More >>