The Pulmonary Hypertension Association (PHA) recently published “Navigating Pulmonary Hypertension: A Guide for Newly Diagnosed Patients.”
This publication will help people with new pulmonary hypertension (PH), their caregivers and families learn more about diagnosis, treatment and resources for help in the first weeks, months or years after PH diagnosis.
The 60-page book includes checklists, resources and questions to ask doctors. It also provides information about support networks, participating in clinical trials and daily quality of life issues.
The guide is available online, and those new to PH can order free copies online, by email or by phone at 301-565-3004.
PHA also distributes postcards to health care providers so they can direct their newly diagnosed patients to the book. Professional members can order postcards and view the guide by logging into the membership portal.
This new publication carries on PHA’s tradition of empowering patients and caregivers through previous publications such as “Survival Guide,” “Roadmap to Hope” and “Understanding Pulmonary Hypertension.” Although PHA no longer publishes those books, “Navigating PH” covers a range of topics in ways that are accessible, practical and relevant.
If you’re a member of the PH community, spread the word about this resource on social media. We appreciate your helping us get this resource into the hands of those who need it.