“My hope is for a cure to be found. I have faith and pray for those who work daily for us living with PH.”
By Erica Bailon
“I was diagnosed at age 11 with pulmonary hypertension (PH). It was at that age doctors discovered my patent ductus arteriosus (PDA), Eisenmenger syndrome. Since then my pressures have gone up. Doing daily everyday things has always been a challenge. I do consider myself very fortunate to have great doctors that have helped me stay at MY best for a long time. Even though I recently had to relocate to be listed on the United Network for Organ Sharing (UNOS) list, I feel at my best and continue to be strong for those I love.
“My life has been a complete blessing! I have an amazing husband, daughter, parents and siblings who have supported and loved me unconditionally. I am around individuals who believe in me and have shown me through their own sickness to remain strong and keep fighting. I am thankful for all the research and medications available that have helped me.
“My hope is for a cure to be found. I have faith and pray for those who work daily for us living with PH.”
