“I’m hopeful that awareness will bring change for all of us affected by this invisible, rare, chronic, complicated, debilitating and misunderstood disease.”
By Joy Vera
“I’m hopeful that raising awareness will lower the outrageous cost for pulmonary hypertension (PH) medication. My three specialty medications cost $26,994.36, $3,428.34 and $9,894.43. That’s a total of $40,317.13 every month. I’m so thankful that my medications have come every month without interruption, but the anxiety that comes with the thought that I won’t be able to get them due to cost is overwhelming. I’m hopeful that awareness will bring change for all of us affected by this invisible, rare, chronic, complicated, debilitating and misunderstood disease.” #5yearsurvivor
