How to Participate
If you qualify to enroll in PHAR, you will be asked by your healthcare team if you would like to participate in this quality-of-care and research project.
If you decide to enroll and sign the informed consent form, you will be asked to complete a survey. Your doctor also will fill out a form about you. When you are seen in clinic, you will need to complete a brief follow-up survey about your symptoms and overall health status approximately twice each year. Your health care professional (or assistant) also will complete follow-up surveys.
How much time does it take to participate in PHAR?
The first time information is collected, it may take up to 30 minutes. The answers for several questions — such as your birth date, where you were born, etc. — will not change and will only be asked once (when you first enroll). After that, your information will be updated about every six months. We anticipate these later updates to take about 15 minutes.