PHA Registry (PHAR) Committees

The Mission of the PHA Registry: The ultimate goal of the PHAR is to improve the quality of life and survival of PH patients.

Purpose and Objectives

  • Measure and improve quality of care
  • Assess relationship of good care with outcomes important to patients
  • Determine clinical, comparative, and cost-effectiveness of treatment approaches
  • Understand risk factors for outcomes and regional/center differences
  • Facilitate funded clinical trials of new therapies
  • Collaborate with the PAH community at large (providers/patients/caregivers)

To achieve this mission, the PHCC initiative seeks applicants for the PHAR Steering Committee, PHAR Data Access/Publications and Presentations Committee, and PHAR Liaison Committee. Applicants must be employed at a PHA-accredited PHAR-participating clinical site and maintain current membership in PHCR or PHPN.

PHAR Steering Committee

The PHAR Steering Committee is responsible for:

  • Administrative tasks
  • Objectives and directions
  • Legal/ethical decisions
  • Fulfilling obligations to patients
  • Satisfying interests of stakeholders

TIME COMMITMENT

Members of the PHAR Steering Committee will be expected to convene for monthly meetings, which will be held remotely.

ELIGIBILITY

The applicant must:

  • Be employed at a PHA-accredited PHAR-participating clinical site
  • Be a licensed health care professional at the time of appointment (examples include but not limited to MD, DO, NP, RN, PA, RRT, RPh)
  • Be experienced in observational research or quality improvement.
  • Be willing and able to serve a three-year term.
  • Be a current member of PHCR or PHPN and willing to maintain membership throughout the three-year term.

PHAR Data Access/Publications and Presentations Committee

The PHAR Data Access/Publications and Presentations Committee is tasked with:

  • Ensuring access to the registry for those in the PH community
  • Defining the process by which investigators access data and perform analyses
  • Ensuring the de-identification of data before release
  • Reviewing paper proposals
  • Reviewing and approving abstracts and manuscripts before submission for publication.

TIME COMMITMENT

Members of the PHAR Data Access/Publications and Presentations Committee will be expected to convene for monthly meetings, which will be held remotely.

ELIGIBILITY

The applicant must:

  • Be employed at a PHA-accredited PHAR-participating clinical site
  • Be a licensed health care professional at the time of appointment (examples include but not limited to MD, DO, NP, RN, PA, RRT, RPh).
  • Be experience in the publication and dissemination of quality improvement, observational, or interventional research in pulmonary hypertension; have a track record of federal funding for clinical research and prior participation in multicentric studies.
  • Be a current member of PHCR or PHPN and willing to maintain membership throughout the three-year term.

PHAR Liaison Committee

PHAR Liaison Committee is tasked with:

  • Maintaining relationships with centers
  • Providing early feedback and ongoing advice on operations and patient and provider insights
  • Developing tools for monitoring satisfaction with registry conduct and the accessibility of staff.

Time Commitment

Committee engagement is depended on the need of the PHAR Steering Committee to communicate messaging or procedural changes with PHAR sites.  Members of the PHAR Liaison Committee will be expected to review communications by email or convene for calls as needed.

ELIGIBILITY

For Physicians, the applicant must:

  • Be employed at a PHA-accredited PHAR-participating clinical site
  • Be a licensed health care professional at the time of appointment (examples include but not limited to MD, DO, NP, RN, PA, RRT, RPh).
  • Demonstrate knowledge of issues that affect the operations, coordination, and management of a PH program
  • Be willing and able to serve a three-year term.
  • Be a current member of PHCR or PHPN and willing to maintain membership throughout the three-year term.

PHA Registry (PHAR) Committees Application

The PHCC initiative seeks applicants for the PHAR Steering Committee, PHAR Data Access/Publications and Presentations Committee, and PHAR Liaison Committee. Applicants must be employed at a PHA-accredited PHAR-participating clinical site and maintain current membership on PHCR or PHPN. Please indicate which committee(s) you would like to be considered and submit your application by COB at 5:00 p.m., Eastern Time, on Monday, July 18, 2022.

Please note, applications must be completed in one sitting to avoid losing your responses.

1Contact Information
2Professional Information
3PH Experience
4Membership