PHCC – Medical Professionals 2019-01-24T15:22:32+00:00

PH Care Centers

Medical Professionals

PHCC Initiative Mission Statement

The purpose of the PHA-Accredited Pulmonary Hypertension Care Centers (PHCC) initiative is to establish a program of accredited centers with expertise in pulmonary hypertension that aspires to improve overall quality of care and ultimately improve outcomes of patients with pulmonary hypertension, particularly pulmonary arterial hypertension, a rare and life-threatening group of diseases.

Why the Need for Accreditation?

Despite the availability and success of PAH-targeted therapeutic options over the past two decades, there are still shortcomings with the diagnosis and management of PAH. One recent study observed that expert recommended diagnostic algorithms were not being followed to completion in up to 94% of PAH patients, and nearly 60% of PAH referrals to expert centers already on therapy were on so contrary to published guidelines. In addition, despite the available medical therapies, long-term outcomes are still not optimal as many patients still die from PH, require transplantation or require hospitalization.

PH Care Centers: What You Need to Know

Two types of centers are be accredited: Centers of Comprehensive Care (CCC) and Regional Clinical Programs (RCP). Please note that applications for Pediatric Regional Clinical Programs are not currently being accepted. Learn more about the PH Care Centers initiative:

PHCC News and Research

Two Pulmonary Hypertension Programs Receive PHA’s PHCC Accreditation

The Pulmonary Hypertension Association’s (PHA’s) Pulmonary Hypertension Care Center (PHCC) program granted Regional Care Program (RCP) accreditation to the Pulmonary Hypertension Program at Northside Hospital in Atlanta, and the Pulmonary Hypertension Clinic at Baylor Scott & White The Heart Hospital – Plano, in Plano, Texas, this month. PHA created

Recent Research and the PHA Registry – How PHAR have we come?

PHAR data has already yielded numerous academic contributions (as listed below). American College of Chest Physicians (ACCP) 2016 A Cross-Sectional Assessment of Adherence to Expert Consensus Diagnosis and Treatment Guidelines by Comprehensive Care Centers Accredited by the Pulmonary Hypertension Association American Thoracic Society (ATS) 2016 Characterization of Centers Accredited by

Preliminary PHA Registry Data

Since late 2015, 26 accredited CCCs (24 adult, two pediatric) have enrolled a combined total of over 300 patients into the PHA Registry (PHAR) and another 15 sites are completing different stages of the onboarding process. Data from the initial seven PHAR pilot sites, in addition to the first